RE: Re: cort johnson and the phoenix newsletter

[Guest guest]

My take on the prognosis was taken mostly from Dr. Chia's talk at the London

conference as I remember. Yes most patients do relapse but they do seem to

respond after the relapse to another round of treatment.

My understanding is that the same applies to Ampligen - relapse is common at

some point after the termination of treatment.

[Moderator: agreed -- I suspect that the attitude of " being cured " , instead of

going " into remission " plays a significant role. I had several scares after my

remission, before I got it through my head that with an

chronic/occult/deep-seated infection and a inherited coagulation defect, there

was 'no escape' from the constraints that I need to keep within. Per Jadin, I

need to make sure that I get a round of tetracyclines every 2 years, keep on the

fibrinolytic enzyemes, keep stress WAY DOWN, change attitude and responses " what

will be, will be " , etc. I'm in remission, potentially life-long remission if I

remember that I am in remission by the grace of the almighty and live

accordingly.]

[Guest guest]

As a former patient of Dr Chias, he is right on about ME/CFS origin e.t.c. Im

talking everything. I walked in his office and he told me nearly everything

about my life as describd in his part one and part two postings by Court. Im

talking he knows to the T.

However just as a few others his treatments are NOT worth the money, most who

have had IGG an d interferon do not have mcuh success and his marintime pill as

well.

Interferon is old and very very rough on the system, Ampligen is ocnsidered a

newer genration interferon if you look it up, which i s much less toxic and more

effective.

Your better off travelig to one of the trial sites and doing ampligen for $1200

month than doing the interferon IGG route, however as said before its ongoing,

treating this dsiease is a lifelong effort, more baout remission than cure,

howver someday there will be a cure for sure with advancing technology in gene

therapy, brain growth fators e.t.c.

To sum it up, no Dr Chias treatment is not worth the expense, however he is one

of the most honest and caring doctors around, I guy of his stature literally

charges 60 bucks for an appointment!!!

Unlike some of the others we know about who charge $10,000 per appointment in

some cases.

The knowldge is there and many therapies are online already, you need to choose

which is best for you and really just get a general physician on board for your

treatment plan you choose, but which is not easy in itself in the long run thats

the most important , so your not traveling 1000miles to see a doc.

There are also many cheaper routes in controlling this disease, th e most

expenisve part are some of the tests, HEmex, RNASE e.t.c. which I think are a

waste of time anyways s most know they have Rnase issues and coagulation issues

already as well as a ton of viral and Lyme/bactrial issues, comes with the

territory of having the disease..

Almost all the different treatment plans are printed on line, make you rchoise

and try too get a compassionate local doc to work with!!!!

Just my opinion, some might differ

kindest

Mike