Guest guest Posted June 21, 2005 Report Share Posted June 21, 2005 Gerardo, I think you both are making very good points here. I have some thoughts on this. I know someone who is very sensitive to mold and also mycotoxins. More than me, and I am pretty bad. If some comes around, that person needs to detoxify them selves extensively before their presence is tolerable. This is part of the routine: (I believe that it is reccommended by the Dallas clinic for that specific person) New clothes, washed in soda, borax and ?, to get the chemicals out. 3 changes of new clothes. First day, sauna, then bath, then new clothes. 2nd day: sauna, bath new clothes again. 3rd day, same routine. Old clothes thrown out or given to the Goodwill. After 3 days of it, and no new exposure, the toxins should be gone from the body. If you took objects from your old moldy home, they are contaminated. They can contaminate your clothes, which can affect sensitive people. It is also possible that you are detoxing the mold from your body still, and that may be part of it, which will be over when you are not having to detox any more, which I assume would be when your body is completely free of any fungal infection. Some people have had surgery, to later find out from the tissue samples taken that they had fungal disease in that organ. I find that a sauna makes me feel better- some people say it helps the body to detoxify from the molds. Maybe if you are detoxing, it might help. I wash in detergent and borax, or detergent and a little bleach (with 2 rinses). I saw a study on PubMed that some researchers washed things 6 times in detergent and bleach and couldn't get any mold to grow, and couldn't find any traces of mycotoxins in the clothing. As I recall, nothing worked for the carpet in that experiment, or the upholstered furniture, but the clothes worked ok. This laundry routine wouldn't work for my friend, due to the extreme nature of the sensitivity. Who knows if it will work for me forever either? But for now, it is what I can deal with. They say there is no way to reliable get mold/mycotoxin out of clothing, but soaking in ammonia can redue the mycotoxin levels. I realize there are some contradictions in what I have written, but that is how I find the information, thought you could puzzle it out as best as I could. If you are having this effect on other people, yet are no longer sick yourself, wow- what an immune system! PS- I had a dr accuse me of hypocondria, etc. and it wasn't funny....but at least I knew he was wrong, because I have to believe what my body is telling me...... --- In , Gerardo <thunder_road2000@y...> wrote: > Hi Serena, your response essentially confirms my fears..... You mention a second guy that walks on the bus and his clothes pass the mold on to you... so it is, to say the least, feasible.... I am saying that I believe I may be that second guy and that I don't know how to get rid of the mold left over, particles, spores, toxins or whatever it is.... the man you say was passing you the spores would not remain oblivious to the fact for a very long time if it keeps happening in smaller venues other than a bus, don't you think? I've already moved from my old apartment. The incidents I speak of are not random or sporadic, but rather consistent and repetitive patterns. I don't know what to do.... the only other option left that I haven't tried is using a hepa hand vacuum cleaner on my hair and clothes...... if anyone has any other suggestions...... I really wish these were delusions or hypochondria, as I would be more hopeful as far as solving the problem goes..... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2005 Report Share Posted June 21, 2005 I can't comment as to how to clean up the clothes, , but the detox for the body doesn't make any sense to me ( " to me " being the operative phrase there.) I like a good sauna, myself. Or a nice soak in some epsom salts. Or better yet, a nice bask in the sun on the beach (yum!). But none of these methods make much sense to me in terms of mycotoxins. Mycotoxins are excreted through the intestine, either in a normal person or in a person on cholestyramine. There may certainly be other toxins which can be excreted through the pores, so it's all good - but I would not count on that as a way to unload mycotoxins. Because, if you COULD do that, then every person exposed to a mold-contaminated environment actually would be a walking source of illness to us even clean and in new clothes, and it just doesn't work out that way. But we kind of touched on again that a week or two back - the idea that it's the mold itself that triggers the allergic reaction. As far as I know, the toxins themselves don't have such a big part to play in the initial allergic response. I have seen a second type of delayed allergic reaction described - but when I read the details of this, they were really talking about the symptoms of neurotoxin-mediated illness - which is not allergy at all. It's poisoning, pure and simple. My allergic reactions don't guarantee I've been exposed to any mycotoxins, since not every form of mold produc es toxins. But it's enough to convince me to get the heck out of Dodge. Idle thought - just how DO you neutralize mycotoxins, anyway? They aren't alive, so you can't kill 'em like you can kill the mold that produced them. They get flushed down the toilet, and wind up in sewage treatment plants. And then what? For the most part, the rest of the world doesn't want to admit these toxins even exist. So you can bet they aren't actually being measured or treated specifically. Do they just get circulated into the water system again? Are they unintentionally neutralized by the processes used to clean up sewage? Or do they have a " shelf life " and degrade on their own eventually? Enquiring minds... Serena www.freeboards.net/index.php?mforum=sickgovernmentb __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2005 Report Share Posted June 21, 2005 Thank you, . I'm overwhelmed and don't know what to do. How can I be fairly okay and still cause the reactions? that is what is so strange.... i'm thinking that it may be related to the issue of mold that is dead and alive. My family doctor referred me to a psychologist. Maybe if he gets the allergic reactions I might start getting some help from doctors.... kl_clayton <kl_clayton@...> escribió: Gerardo, I think you both are making very good points here. I have some thoughts on this. I know someone who is very sensitive to mold and also mycotoxins. More than me, and I am pretty bad. If some comes around, that person needs to detoxify them selves extensively before their presence is tolerable. This is part of the routine: (I believe that it is reccommended by the Dallas clinic for that specific person) New clothes, washed in soda, borax and ?, to get the chemicals out. 3 changes of new clothes. First day, sauna, then bath, then new clothes. 2nd day: sauna, bath new clothes again. 3rd day, same routine. Old clothes thrown out or given to the Goodwill. After 3 days of it, and no new exposure, the toxins should be gone from the body. If you took objects from your old moldy home, they are contaminated. They can contaminate your clothes, which can affect sensitive people. It is also possible that you are detoxing the mold from your body still, and that may be part of it, which will be over when you are not having to detox any more, which I assume would be when your body is completely free of any fungal infection. Some people have had surgery, to later find out from the tissue samples taken that they had fungal disease in that organ. I find that a sauna makes me feel better- some people say it helps the body to detoxify from the molds. Maybe if you are detoxing, it might help. I wash in detergent and borax, or detergent and a little bleach (with 2 rinses). I saw a study on PubMed that some researchers washed things 6 times in detergent and bleach and couldn't get any mold to grow, and couldn't find any traces of mycotoxins in the clothing. As I recall, nothing worked for the carpet in that experiment, or the upholstered furniture, but the clothes worked ok. This laundry routine wouldn't work for my friend, due to the extreme nature of the sensitivity. Who knows if it will work for me forever either? But for now, it is what I can deal with. They say there is no way to reliable get mold/mycotoxin out of clothing, but soaking in ammonia can redue the mycotoxin levels. I realize there are some contradictions in what I have written, but that is how I find the information, thought you could puzzle it out as best as I could. If you are having this effect on other people, yet are no longer sick yourself, wow- what an immune system! PS- I had a dr accuse me of hypocondria, etc. and it wasn't funny....but at least I knew he was wrong, because I have to believe what my body is telling me...... --- In , Gerardo <thunder_road2000@y...> wrote: > Hi Serena, your response essentially confirms my fears..... You mention a second guy that walks on the bus and his clothes pass the mold on to you... so it is, to say the least, feasible.... I am saying that I believe I may be that second guy and that I don't know how to get rid of the mold left over, particles, spores, toxins or whatever it is.... the man you say was passing you the spores would not remain oblivious to the fact for a very long time if it keeps happening in smaller venues other than a bus, don't you think? I've already moved from my old apartment. The incidents I speak of are not random or sporadic, but rather consistent and repetitive patterns. I don't know what to do.... the only other option left that I haven't tried is using a hepa hand vacuum cleaner on my hair and clothes...... if anyone has any other suggestions...... I really wish these were delusions or hypochondria, as I would be more hopeful as far as solving the problem goes..... FAIR USE NOTICE: --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2005 Report Share Posted June 21, 2005 Are you SURE you are not getting exposed? Anyway, the same guy that called me a hypochondriac recommended counseling, so I go to a guy, he is familiar with some kinds of mold- the upshot is, it causes brain effects. Many kinds of mold and mycotoxins are neurotoxic. You may have a fungal sinus infection, which would be constantly exposing you. I get reactive to mold on rainy days. It really affects my train of thought. There are many avenues of exposure that could be having an effect on you. And even if you might benefit from some supportive therapy, it might not be all on your head, it might be all in your brain, if you get my meaning. I have improved as my exposure goes down. Many other people have had this experience, as well. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2005 Report Share Posted June 22, 2005 I went to a psychiatrist today as advised by family doctor and he told me that he does believe that I am releasing mold fragments causing allergies to others and that I am probably delusional. He states that what I am telling him is not medically feasible. He offered some medicines, but I declined. kl_clayton <kl_clayton@...> escribió:Are you SURE you are not getting exposed? Anyway, the same guy that called me a hypochondriac recommended counseling, so I go to a guy, he is familiar with some kinds of mold- the upshot is, it causes brain effects. Many kinds of mold and mycotoxins are neurotoxic. You may have a fungal sinus infection, which would be constantly exposing you. I get reactive to mold on rainy days. It really affects my train of thought. There are many avenues of exposure that could be having an effect on you. And even if you might benefit from some supportive therapy, it might not be all on your head, it might be all in your brain, if you get my meaning. I have improved as my exposure goes down. Many other people have had this experience, as well. FAIR USE NOTICE: --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2005 Report Share Posted June 22, 2005 Gerardo wrote: > I went to a psychiatrist today as advised by family doctor and he told me that he does believe that I am releasing mold fragments causing allergies to others and that I am probably delusional. He states that what I am telling him is not medically feasible. He offered some medicines, but I declined. > Gerardo, did the doctor even consider a controlled test of your capacity to induce response in others? I confess that your case has got me bamboozled. The symptoms you describe in others sound more consistent with classical allergies instead of mold toxicity, but after living through this mold paradigm shift in society, I don't feel that it is appropriate to dismiss a claim like yours as psychological when it can be so easily tested. During the Incline Village CFS epidemic, we had people apparently become reactive to their own perspiration. When you combine this anomaly with Dr Hokamas finding of a Ciguatoxin Antigen epitope in CFS sufferers, and consider that Ciguatoxin is more than toxic enough to induce an immunological response at parts per million, the feasibility of inducing an aberrant response in others with a functional immune capacity which can recognize the potential of such a threat - the possibility of such person to person induced responses becomes a distinct possibility. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2005 Report Share Posted June 22, 2005 From: " Gerardo " <thunder_road2000@...> < > Sent: Tuesday, June 21, 2005 8:28 PM Subject: RE: [] Re: ancient mold detoxification I went to a psychiatrist today as advised by family doctor and he told me that he does believe that I am releasing mold fragments causing allergies to others and that I am probably delusional. He states that what I am telling him is not medically feasible. He offered some medicines, but I declined....>> Hi Gerardo: Gerardo did the physchiatrist have any adverse physical reactions to you that you could notice? What about the M.D. that referred you to him; did he react to you? And their office staff? Do let me know; totally fascinating with this and also concerned for your distress. Rosie -- No virus found in this outgoing message. Checked by AVG Anti-Virus. Version: 7.0.323 / Virus Database: 267.7.9/23 - Release Date: 6/20/2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2005 Report Share Posted June 22, 2005 no, he just told me that he was not experiencing allergies while talking to me and told me that releasing spores to other was very far fetched and that he would not be able to convince me otherwise because I was fixated that I was carrying these mold fragments with me. He offered me medication for stress, depression, etc.... asked me to take or lleave, so I declined. He also recommended something called cognitive psychology, so I can use reason to brooaden my perception of " the mold issue " . erikmoldwarrior <erikmoldwarrior@...> escribió:Gerardo wrote: > I went to a psychiatrist today as advised by family doctor and he told me that he does believe that I am releasing mold fragments causing allergies to others and that I am probably delusional. He states that what I am telling him is not medically feasible. He offered some medicines, but I declined. > Gerardo, did the doctor even consider a controlled test of your capacity to induce response in others? I confess that your case has got me bamboozled. The symptoms you describe in others sound more consistent with classical allergies instead of mold toxicity, but after living through this mold paradigm shift in society, I don't feel that it is appropriate to dismiss a claim like yours as psychological when it can be so easily tested. During the Incline Village CFS epidemic, we had people apparently become reactive to their own perspiration. When you combine this anomaly with Dr Hokamas finding of a Ciguatoxin Antigen epitope in CFS sufferers, and consider that Ciguatoxin is more than toxic enough to induce an immunological response at parts per million, the feasibility of inducing an aberrant response in others with a functional immune capacity which can recognize the potential of such a threat - the possibility of such person to person induced responses becomes a distinct possibility. - FAIR USE NOTICE: --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2005 Report Share Posted June 22, 2005 I think you have to 'ventilate' buildings adequately and have a way for gases in home to escape. --- In , SERENA EDWARDS <pushcrash@y...> wrote: > I can't comment as to how to clean up the clothes, , but the detox for the body doesn't make any sense to me ( " to me " being the operative phrase there.) I like a good sauna, myself. Or a nice soak in some epsom salts. Or better Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2005 Report Share Posted June 22, 2005 I was with my family doctor for about 10 minutes and with the psychiatrist for 30 to 45 minutes and both stated they did not have a reaction. While waiting outside to see my family doctor the recepptionist did have a coughing fit and was sniffling. , didn't Dr. Klein affirm that spores on his son's hair was causing him reactions? On the other hand, his son was not experiencing symptoms? Healthier4all <Healthier4All@...> escribió: From: " Gerardo " <thunder_road2000@...> < > Sent: Tuesday, June 21, 2005 8:28 PM Subject: RE: [] Re: ancient mold detoxification I went to a psychiatrist today as advised by family doctor and he told me that he does believe that I am releasing mold fragments causing allergies to others and that I am probably delusional. He states that what I am telling him is not medically feasible. He offered some medicines, but I declined....>> Hi Gerardo: Gerardo did the physchiatrist have any adverse physical reactions to you that you could notice? What about the M.D. that referred you to him; did he react to you? And their office staff? Do let me know; totally fascinating with this and also concerned for your distress. Rosie -- No virus found in this outgoing message. Checked by AVG Anti-Virus. Version: 7.0.323 / Virus Database: 267.7.9/23 - Release Date: 6/20/2005 FAIR USE NOTICE: --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2005 Report Share Posted June 22, 2005 Gerardo, I don't know you, so I couldn't possibly know the truth o fthe situation for sure. But I am sympathetic. So many of us have been sent off to shrinks and handed prescriptions over the years (yours truly included). Sure, it's entirely possible to have a psychiatric ailment along with a vulnerability to mold toxins. Mold toxins are equal opportunity poisons. I think the only thing that bothered me a little about what you have said, is that your perceived effect on others disturbs YOU so much. That's a quality of life issue - another thing people around here have had to put up with plenty of! Here's an idea, if you want to try it: ignore the whole thing for a week. I mean, totally, totally ignore it. If you can, then cool. If you can't, then that's what they call intrusive thoughts. Doesn't mean you ought to necessarily eat pills or anything. Just means something is wrong, and it deserves further attention on your part. Many physical illnesses, poisons, and prescription medications can cause problems like that. So can real living issues that demand your attention. Serena www.freeboards.net/index.php?mforum=sickgovernmentb --------------------------------- Mobile Take with you! Check email on your mobile phone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2005 Report Share Posted June 22, 2005 Wouldn't it disturb you in your social interactions with others? I don't see how I can just ignore it, which was a suggestion of my doctor as well... this has stopped me from doing all kinds of things and its become a stressful nightmare? I feel like I have leprosy or something like that. I was reading Doctor ph Klein's website and he states that his son was causing him allergies through his hair. I shaved my hair off and still did not get rid of this stuff. I am afraid there has been some cross contamination from my old place to the new one, but what is really puzzling is that I don't have any significant respiratory symptoms anymore and yet I am causing all these coughing fits and exagerated sniffling in others. that is my unusual story which my doctors don't even want to consider as hypothesis to explore. The solutions offered by are not feasible for me, I can not afford to do what he did. I am just going to try out the HEPA vacuum cleaner and perhaps the white vinegar and see how that goes. How can I just ignore it? What am I supposed to do when getting close to individuals and they start getting these persistent and exagerated allergic symptoms? SERENA EDWARDS <pushcrash@...> escribió: Gerardo, I don't know you, so I couldn't possibly know the truth o fthe situation for sure. But I am sympathetic. So many of us have been sent off to shrinks and handed prescriptions over the years (yours truly included). Sure, it's entirely possible to have a psychiatric ailment along with a vulnerability to mold toxins. Mold toxins are equal opportunity poisons. I think the only thing that bothered me a little about what you have said, is that your perceived effect on others disturbs YOU so much. That's a quality of life issue - another thing people around here have had to put up with plenty of! Here's an idea, if you want to try it: ignore the whole thing for a week. I mean, totally, totally ignore it. If you can, then cool. If you can't, then that's what they call intrusive thoughts. Doesn't mean you ought to necessarily eat pills or anything. Just means something is wrong, and it deserves further attention on your part. Many physical illnesses, poisons, and prescription medications can cause problems like that. So can real living issues that demand your attention. Serena www.freeboards.net/index.php?mforum=sickgovernmentb --------------------------------- Mobile Take with you! Check email on your mobile phone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2005 Report Share Posted June 22, 2005 > , didn't Dr. Klein affirm that spores on his son's hair was causing him reactions? On the other hand, his son was not experiencing symptoms? > Yes, but the symptoms Dr Klein described were much different from sneezing and coughing. What you describe is puzzling and interesting but the response to mold is such that sufferers would give anything they own to be able to compare their reactivity to allergies. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2005 Report Share Posted June 22, 2005 Gerardo, Please realize that allergies are very much on the rise. It could be that more people around you are developing allergies and you perceive it to be your fault. I don't know, just guessing. Point would be, are 'they' accusing you of being the source of irritation or moving away from you? If I tried everything I could and kept happening, if people weren't blaming me, I think I'd leave it alone and be glad it isn't physically bothering you. Perhaps that is selfish but...? There really is NO way to be sure it is YOU. In mean time, you are disturbing yourself with these thoughts and something else could be triggering these in other people. I would say, " Be Happy, Don't Worry " myself. > Wouldn't it disturb you in your social interactions with others? I don't see how I can just ignore it, which was a suggestion of my doctor as well... this has stopped me from doing all kinds of things and its become a stressful nightmare? I feel like I have leprosy or something like that. I was Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2005 Report Share Posted June 23, 2005 I have similar situation. I have a lady that comes and helps me with the house every week. She is always sneezing. I thought it was my house. I asked her, does she sneeze this much when she isn't here. She said NO!!! So of course I felt awful. Now I have much improved air and professional air tests have been excellent. I sneeze myself only rarely but I notice when she comes over she is still sneezing. Finally I noticed she arrived at my door on occasion already with runny nose so I realized that it wasn't my house. Perhaps she felt if I thought she was a sick person I wouldn't want her around or perhaps she felt I would think she shouldn't come over here 'like that'. I asked because I was worried it could be house as I was working on it but it wasn't. > Gerardo, this is good news if the doctor didn't react to " you " . So, perhaps > it's not you but you are just aware of others' physical symptoms. For > example, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2005 Report Share Posted June 23, 2005 Gerardo. This must be infuriating when the underlying cause for your observations is shifted to a speculative emphasis upon a possible somatization or obsessive behavior without even a cursory test to determine if the anomaly exists. Given the variability of allergies in individuals + the ability of someone to suppress overt signs like holding a cough until your back is turned, the physicians lack of allergic response is not conclusive. I suggest that you enlist someone to help you videotape examples of the response you have on others. And keep a detailed log of ALL your locations and transits. The way I figured out the mycotoxin connection was by correlating immunological responses with locations that I had been - four hours previously! It's the time-lag delayed response that people fail to note, and the lack of direct cause-effect in timing appears so contradictory that it makes people dismiss the entire mold concept despite the obvious clues. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2005 Report Share Posted June 24, 2005 I had observed and meticulously written out what my body was doing. The doctor thought that was evidence of my being mentally ill. He didn't have the decency to say this to my face, but wrote it in my chart, which another allergist reviewed- and started treating me as if I were crazy without giving me a hearing. My whole medical record at this place is contaminated by his bias. I may never go back, I don't know. I felt totally betrayed. I was having anaphylactic attacks, for heavens sake! When I went to the other allergist, who had seen it before, he knew right away how all the symptoms fit together. I haven't decided wether to have the new " good " doc send him a report to rub his nose in his failing to diagnose a serious medical condition, or just to forget it. --- In , " erikmoldwarrior " <erikmoldwarrior@e...> wrote: > Gerardo. > This must be infuriating when the underlying cause for your > observations is shifted to a speculative emphasis upon a possible > somatization or obsessive behavior without even a cursory test to > determine if the anomaly exists. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2005 Report Share Posted June 24, 2005 , Dont feel bad. This is common. Apparently this arrogant people get angry when they don't know how to treat something. I went to an 'endocrinologist' because I was putting on unexplained weight. I was up to 147 on 5'3 " (and now down to 107 also without dieting). I think it was mold exposure and mycotoxins. However I had had a high blood sugar reading on a blood test a year earlier and wondered if I was developing diabetes which is on the rise. He gave me the blood and urine tests, etc. Then I realized my parents took me to him YEARS before for weight gain also. He was of no help. I was found to have a low thyroid by another doctor and problem solved (by other doctor). I mentioned I had been there before and he asked about it. I said it turns out I had low thyroid. I figured he may feel I was insulting him as he didn't solve problem but can't help that. Anyway, he found nothing and wrote report to my internist. Next time I went to my internist, while I was there he was looking through my file and trying to refresh his memory about what was going on, saw letter from endocrinologist and instead of reading it silently to himself, since it was about me, read it out loud. In letter after slight review of zero results, no diabetes, endocrinologist made suggestion that I see a psychiatrist. My internist laughed, looked a little startled, glanced at me and smiled like 'I wonder what provocoked that' and then just went on reading. This little twerp was just angry since he was insulted that I saw someone else when I was about THIRTEEN and found help through someone else, something he should have been able to do. Person who said my thyroid was low and gave me thyroid was just a GP. However it did the trick for my weight problem. (I was eating way below a thousand calories) and my periods came back. Ten years later my own thyroid started to function okay on its own and I went off the medicine. Anyway, no mention of something as controversial as MOLD, nothing really. I guess he was saying " I was always imagine myself to have weight problem = I need psychiatric help. However 150 is heavy for 5'3 " not eating much and I had VERY low thyroid when I had problem as teenager, so neither one was a psychiatric problem but there it was in a letter to my doctor who works with me very well and treats me with respect, possibly slanting his view of me. That's why I say, getting this on computer would be TERRIBLE for many patients, particularly ones that are 'invisible' illnesses, or unsolved illnesses that are real but not solved yet as to treatment or cause. --- In , " kl_clayton " <kl_clayton@y...> wrote: > > > I had observed and meticulously written out what my body was doing. The doctor thought > that was evidence of my being mentally ill. He didn't have the decency to say this to my > face, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2006 Report Share Posted October 6, 2006 I haven't written for awhile, but I am noticing that the long term medications that my idiot pychiatrist put me on years ago has some of the same long term effects as molds cause. The medicine is Parnate. He also used me as a human guinea pig for 15 years. I can pretty much tell when I am being hit by mold, but not the long term effects. My charming psychiatrist wrote on my chart that I was being silly about the mold and that I was " being litigious as usual " . These records of course harmed my mold case. He left about 7 years ago to work elsewhere but has now started up his practice again where I now reside. I am furious at the harm he did to me. I wouldn't want anyone else to see this jerk who practices in Berkeley Ca. At anyrate, the combo of mold and these medications is costing almost 6,000 dollars in dental work besides the wear and tear on my body. If anyone has any ideas how to take my power back from this Dr., please let me know. BTW, a friend of mine does research on section 8 housing, and when there is a mold problem she gives out my number for people to call me. I can't believe how many have already called. On a good note, in a few months I celebrate 12 years cancer free. Sometimes, I am just too tired to enjoy it. Sorry for the long post. Take Care, Lori and Meow Cat > > > > I had observed and meticulously written out what my body was doing. The doctor thought > that was evidence of my being mentally ill. He didn't have the decency to say this to my > face, but wrote it in my chart, which another allergist reviewed- and started treating me as > if I were crazy without giving me a hearing. My whole medical record at this place is > contaminated by his bias. I may never go back, I don't know. I felt totally betrayed. I was > having anaphylactic attacks, for heavens sake! > > When I went to the other allergist, who had seen it before, he knew right away how all the > symptoms fit together. > > I haven't decided wether to have the new " good " doc send him a report to rub his nose in > his failing to diagnose a serious medical condition, or just to forget it. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2006 Report Share Posted October 7, 2006 Lori and Kathleen, Having your symptoms of mold illness described as crazy is more or less par of the course. I went to a endocrinologist to be tested for diabetes due to fact I was gaining weight and not eating differently (this was before I suddently lost weight with cancer), and he stated in letter to my internist I came to see him for weight gain but my sugar was fine and suggested I might benefit from a counselor...i.e. anorexia I guess but I was 130 pounds. I also had noted that sugar made me feel sick. If medical records start to be computerized mistakes will just be magnified as one doctor's mistake gets compounded by the next. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2006 Report Share Posted October 7, 2006 From what I have read in legal case files, I don't think that this kind of treatment is at all unusual, or that it would necessarily hurt your case. Almost everybody has had their share of bad experiences with medical know-it-alls these days. Mold victims have almost always had more than their share and then some.. Just make sure you get to tell your side of the story.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2006 Report Share Posted October 7, 2006 I need to add that MANY doctors are not rude or 'know it alls'.. But HMOs are making THEIR lives hell - they get something like 6 minutes per patient now.. if they spend more time on one patient, they have to spend less on another.. They just don't have the time to do anything unusual.. like read about something new.. When they get home, they are probably dead tired.. The paperwork is out of control..And often, insurers leave them holding the bag for bills.. Thats why more and more doctors are dropping out of the system and declining to deal with these 'insurers'. But they are expensive.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2006 Report Share Posted October 8, 2006 My doctors have their records on the computer already. I am concerned about somebody getting into those records. bbw <barb1283@...> wrote: Lori and Kathleen, Having your symptoms of mold illness described as crazy is more or less par of the course. I went to a endocrinologist to be tested for diabetes due to fact I was gaining weight and not eating differently (this was before I suddently lost weight with cancer), and he stated in letter to my internist I came to see him for weight gain but my sugar was fine and suggested I might benefit from a counselor...i.e. anorexia I guess but I was 130 pounds. I also had noted that sugar made me feel sick. If medical records start to be computerized mistakes will just be magnified as one doctor's mistake gets compounded by the next. --------------------------------- Stay in the know. Pulse on the new .com. Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2006 Report Share Posted October 9, 2006 Re weight gain/crazy for being concerned: Shoemaker says people freq have weight gain as body puts on fat to store toxins to protect body from them. Then I developed cancer and it all came off very fast, actually at first I was dieting to take it off, so perhaps I forced toxins in to body by losing the weight. I remember avoiding every carb and still having a tough time, so I thought perhaps I'm diabetic. Why does one need to be crazy to be trying to figure out cause. I think due to 'doctor egos', if 'I' can't figure it out, person must be imagining symptoms, to get attention, etc... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 .. > Why does one need to be crazy to be trying to > figure out cause. I think due to 'doctor egos', > if 'I' can't figure it out, person must be > imagining symptoms, to get attention, etc... I have a general mistrust of doctors. They seem to me to be more like priests in a privileged profession than teachers (which is where the word 'doctor' comes from) of wellness. Not all drs get my dander up, but most do, especially the ones who don't listen but reach immediately for their Rx pad... On top of that, drs aren't the only ones who deem those 'crazy' who're trying to figure out their malady. I've had friends and family members tell me everything I've suffered is due to anything from depression to perimenopause to just plain 'getting older.' And there's always a pill that can fix me... Cathe Quote Link to comment Share on other sites More sharing options...
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