Does CFS cause premature death? afraid of what I have uncovered

[Guest guest]

There is a study by I believe Dr. , that showed 25 years off the

lifespan on average for CFS; I also believed this may have been

referenced by Cheney in one of his lectures, so one may believe he

thought it was valid.

On the other hand, 'Mortality in a cohort of chronically fatigued

patients' by and Noonan did not find a reduced life span. I

think I also saw Cort mention in another thread [i lurk here a

lot] that lifespans were not reduced.

Anyone know the answer to this? Im especially interested in what long

time CFS doctors who have been treating patients for decade may think

[if anyone has first hand knowledge of their thoughts];. They

probably have good experience seeing thousands of patients to follow

their lives.

Being 26 years old, I am afraid of my future.

[Moderator: I'm a former member of the American Statistical Association, getting

solid real world statistics is difficult without unified comprehensive access to

patient's life-long records. There are only a few countries where that is

possible, for example Iceland.

My model of CFIDS is that it is an interaction of inherited coagulation defect

and chronic infection. In my case, family medical tree sluthing identified that

the first came from my father and the second from my mother. I have **because of

CFIDS** now have knowledge of these issues and can take preventative actions

against them. I expect my life expectancy to be greater than my father (84) and

likely will exceed my mother's (99). If I was not aware of them (and thus

effective treatment) -- then it is likely life expectancy will be less.

The hypercoagulation aspect over time impacts all of the major organs and it is

through these secondary impacts that the risk of death would likely increase.

On that one point alone, getting the full testing for inherited coagulation

defect has a 80% chance of finding a defect --- if you do appropriate life-long

compensation, then you would likely increase your life expectancy above what it

would have been without CFIDS - IMHO]

[Guest guest]

Surely an average CFS lifespan is reduced on the simple basis that our

lack of exercise must make us more prone to being overweight and have

less muscle mass with all of the risks that entails such as cancer and

cardiovascular disease. I am sure some of us are slim but I would be

interested to compare us to the wider population

[Guest guest]

i have heard of reduced life expectanty with cfids due to certain cancers but i

choose to

ignore the info.