ricketssia, enterovirus, hhv6 and parvo tests

[Guest guest]

Is there any point in getting these tests?

[Moderator: Yes -- some viral infections can be treated with transfer factor --

Laurie was PCR positive for EBV ===> after transfer factor **for** EBV she was

negative. The tests should include Q-Fever, Mycoplasma, Lyme, Chly., Rickettsia

etc -- and those infections can be treated by antibiotics]

I was hyped up about the viral stuff aftere seeing dr peterson speak.

My dr says why get the tests since what is the treatment?

We already know the immune is low.

But I ahve the tests in hand, for PCR, are they useful?

I think alot depends on the way theyt est it (PCR versus other), as

well as the lab.

so I avhe in hand a drs random guess at what /where to test.

do these viruses ahve any treatments at all?? is it importatnt to know

as part of the cfids, mercury, metals, mold package before treateing

theset things just what viruses you ahvea also?

amy

[Guest guest]

I want to know what makes me so ill, so I did have those tests.

Since I have had those test, that all came back highly positive,

another piece of the puzzle fell into place and now we finally can

start a treatment plan. If you don't know what you need to treat how

can you expect to get well?

Yes it is treatable and frankly I personally don't want to live with a

couple of viruses or bacteria that has taken up house in my brain,

heart and other organs causing enormous damage and wrecking havoc.

They already caused an inflammation that has affected my heart.

Problem with these infections is that they take up house in your cells

and not your blood making it difficult for the immune system to

recognize them.

The plan we currently have made and it gets adjusted every week or

with every new test we get results from is to support and nourish the

body as natural as possible, strengthen the immune system and the

killer cells, establish a good sleep pattern if possible. We have been

doing that for a while and I'm now starting on the shortened Yasko

protocol and plan to start treatment of the viral and bacterial

infections somewhere next year. That treatment is not a quick solution

but will take 3-4 years. As I se it there really isn't a choice. If we

do nothing I will probably die within the next year or so, at least by

treating it I will have a chance, I still might get horribly sick from

the kill-off and might not make it but at least I've tried.

Test showed I have been infected with 8 viral infection and at least 6

bacterial, I have been ill since 1972 and I have been searching

especially the last few years why I didn't get any better. Well now I

know and I'm glad I did because now I can do something.

We didn't do a random test, I went to the FFC and they have a specific

set of test they preform, they actually know what to look for. They

want 37 vials of blood and do a lot tests.

I also did the genetic detox profile and the neuro genetic profile

which also made a lot of things clear.

The treatment will consists of the transfer factor Ken also mentioned,

anti-viral agents and antibiotics. If you have a look at for instance

CPNHelp they have a lot of info http://www.cpnhelp.org/ There are

different protocols you can follow.

Portland, OR

On Nov 29, 2008, at 7:57 PM, amydent9 wrote:

> Is there any point in getting these tests?

> [Moderator: Yes -- some viral infections can be treated with

> transfer factor -- Laurie was PCR positive for EBV ===> after

> transfer factor **for** EBV she was negative. The tests should

> include Q-Fever, Mycoplasma, Lyme, Chly., Rickettsia etc -- and

> those infections can be treated by antibiotics]

>

> I was hyped up about the viral stuff aftere seeing dr peterson speak.

>

> My dr says why get the tests since what is the treatment?

>

> We already know the immune is low.

>

> But I ahve the tests in hand, for PCR, are they useful?

>

> I think alot depends on the way theyt est it (PCR versus other), as

> well as the lab.

>

> so I avhe in hand a drs random guess at what /where to test.

>

> do these viruses ahve any treatments at all?? is it importatnt to

> know

> as part of the cfids, mercury, metals, mold package before treateing

> theset things just what viruses you ahvea also?

>

> amy

[Guest guest]

does medicare cover transfer factor for us

or how much does it cost and for how long?

is it still advised for people with lyme and fungal infections,

mercury too?

amy

[Moderator: It is unlikely that medicare will cover it because it is

non-prescription. Generics can be cheap, but specialized items, like Transfer

Factor 7000( " This specific transfer factor offers enhanced activity for Candida

albicans " ) runs $160+ for 30 capsules see

http://www.transferfactor-priceinfo.com/ for prices versus type]

[Guest guest]

Do they have a plan to treat the enterovirus and the parvovirus?  At the FFC  my

tests in 2006 were:

 

Parvovirus B-19 antibodies (IGG) - 5.56 which was high.

sackie b6 ( IGG)  - 8 high

 

They said they were high but never game me a plan and told me they couldn't

treat them, only improve my immune system.

 

[Moderator: Treatment by using Transfer Factor created specifically for each

infection is a technically viable treatment course (possibly also using phages

from Russia). The unfortunate economic reality is that drug companies have no

reason to educate doctors on these approaches because they are really not

patentable and thus not profitable. These items are likely hand-crafted

orders... ]

[Guest guest]

Yes, we plan on treating it with transfer factor and I think that

stabilizing the cytokines dysregulation(immune system) is part of the

treatment plan.

I think that the FFC have improved a great deal over the past years(in

knowledge) and I think it differs from FFC to FCC. I was very

reluctant to go even though they are located around the corner from

where I live. For years I thought of them as money making scam clinics

but when my resources run out and I wanted someone who would treat the

whole issue and who could see the whole picture and not just send me

to different 'specialists' for every symptom, I did turn to the FFC. A

new Naturopath was hired and I saw an interview with him on the local

ABC where he spoke about FMS and CFIDS. He came across as someone who

I could relate to and more important who could relate to me and we

could work together.

It was my lucky day because he's really a fantastic compassionate

physician who thinks outside the box and values my input and research.

They do start with improving the immune system and make sure you can

properly detox before starting treatment, they don't want you to get

more ill than you already are. I know they have frequent workshops

with dr. Teitelbaum and my dr. just went to one where the simplified

and short Yasko protocol that Rich works with was taught and

discussed. They now have a few patients, I am among them, who they

treat with the short Yasko protocol with excellent results.

With every new research that becomes available they update their

treatments, or so it seems to me.

There is an abstract available that speaks of successful treatment

with immunoglobulin IV's in London.

R. Kerr1 Contact Information and A. J. Tyrrell2

(1) Department of Microbiology, Royal Brompton Hospital, National

Heart & Lung Institute, Imperial College London, Sydney Street, SW3

6NP London, UK

(2) CFS Research Foundation, Salisbury, Wiltshire

Abstract Human parvovirus B19 infection has been associated with

various clinical manifestations of a rheumatic nature such as

arthritis, fatigue, and chronic fatigue syndrome (CFS), which can

persist for years after the acute phase. The authors have demonstrated

recently that acute B19 infection is accompanied by raised circulating

levels of IL-1β, IL-6, TNF-α, and IFN-γ and that raised circulating

levels of TNF-α and IFN-γ persist and are accompanied by MCP-1 in

those patients who develop CFS. A resolution of clinical symptoms and

cytokine dysregulation after intravenous immunoglobulin (IVIG)

therapy, which is the only specific treatment for parvovirus B19

infection, also has been reported. Although CFS may be caused by

various microbial and other triggers, that triggered by B19 virus is

clinically indistinguishable from idiopathic CFS and exhibits similar

cytokine abnormalities and may represent an accessible model for the

study of CFS.

[end quote]

http://www.springerlink.com/content/2373300r5h00v622/

ProHealth has a longer article about it.

Successful Intravenous Immunoglobulin Therapy in 3 Cases of Parvovirus

B19-Associated Chronic Fatigue Syndrome

http://www.prohealth.com/library/showarticle.cfm?id=4809 & t=CFIDS_FM

--

[MODERATOR: My impression of the FCC centers is that they keep current on the

literature and follow much of it. This means that they deliver a higher quality

and knowledge of service than you will get elsewhere. Unfortunately the

literature is full of speculation and theories. In theory, given their large

patient base -- they should be able to publish heavily on experieces versus

treatment versus tests --- unfortunately they have not :-( ]

On Dec 4, 2008, at 11:11 AM, lisa mueller wrote:

> Do they have a plan to treat the enterovirus and the parvovirus? At

> the FFC my tests in 2006 were:

>

> Parvovirus B-19 antibodies (IGG) - 5.56 which was high.

> sackie b6 ( IGG) - 8 high

>

> They said they were high but never game me a plan and told me they

> couldn't treat them, only improve my immune system.

>

> [Moderator: Treatment by using Transfer Factor created specifically

> for each infection is a technically viable treatment course

> (possibly also using phages from Russia). The unfortunate economic

> reality is that drug companies have no reason to educate doctors on

> these approaches because they are really not patentable and thus not

> profitable. These items are likely hand-crafted orders... ]

[Guest guest]

Did they have you do the Methylation Profile from Vitamin Diagnostics

to see if you actually have a methylation defect prior to having you

do the simplified Yasko protocol?

Or they just start you on it, without testing?

Yannick

>

> > Do they have a plan to treat the enterovirus and the parvovirus?

At

> > the FFC my tests in 2006 were:

> >

> > Parvovirus B-19 antibodies (IGG) - 5.56 which was high.

> > sackie b6 ( IGG) - 8 high

> >

> > They said they were high but never game me a plan and told me they

> > couldn't treat them, only improve my immune system.

> >

> > [Moderator: Treatment by using Transfer Factor created

specifically

> > for each infection is a technically viable treatment course

> > (possibly also using phages from Russia). The unfortunate economic

> > reality is that drug companies have no reason to educate doctors

on

> > these approaches because they are really not patentable and thus

not

> > profitable. These items are likely hand-crafted orders... ]

>

[Guest guest]

Yannick,

No, they didn't make me do anything, that's not how it works ;-)

We discussed it, my physician and I, and we asked Rich for advice.

Rich advised doing the profile from Vitamin Diagnostics in addition to

the already Genomic Detox that I took. From the Genomic Detox it was

obvious I have a methylation problem and especially a Glutathione

problem as I miss both genes on the GSTM1.

My physician asked both Labs for information to see what was most cost

effective, the Neuro Genomic profile from Genova or the profile from

Vitamin Diagnostics, both cover basically the same. I choose to go

with the Neuro Genomic test, because it was cheaper and it was faster.

The Methylation Profile from Vitamin Diagnostics would haven take

another 4 - 6 weeks and would have set me back an extra 100 USD.

So no, they work(or at least my physician works) according Rich/Yasko

directions, as I wrote before my physician took a workshop at dr.

Teitelbaum's where he was briefed about Rich's research and treatment

plan. I'm expecting the results of the NeuroGenomic test this week.

--

Portland, OR

On Dec 7, 2008, at 2:24 PM, yannick_amar wrote:

> Did they have you do the Methylation Profile from Vitamin Diagnostics

> to see if you actually have a methylation defect prior to having you

> do the simplified Yasko protocol?

>

> Or they just start you on it, without testing?

>

> Yannick

[Guest guest]

Get the viral tests asap and see a good virologist if you have any positives. 

My general Doc and even the local virologist failed to test me for anything

other than HHV1 and 2 and HIV and said the same thing - there was nothing he

could do anyway (NOT TRUE) so it took 2 years before another Doc did perform the

tests and found I had EBV, HSV6, CMV, Varicella.  They put me on Valtrex that

day.  I have perm problems now since it took so long to get a real diagnosis but

Im hoping I can overcome.  Gettting better every day.  Yes Valtrex can help

all.  Must stay very quiet and rest and let the body heal too.

Plus you can take transfer factor, oral IGG, and the methylation process also

helps kill the viruses

[Guest guest]

>

> Yannick,

> No, they didn't make me do anything, that's not how it works ;-)

>

> We discussed it, my physician and I, and we asked Rich for advice.

> Rich advised doing the profile from Vitamin Diagnostics in addition to

> the already Genomic Detox that I took. From the Genomic Detox it was

> obvious I have a methylation problem and especially a Glutathione

> problem as I miss both genes on the GSTM1.

> My physician asked both Labs for information to see what was most cost

> effective, the Neuro Genomic profile from Genova or the profile from

> Vitamin Diagnostics, both cover basically the same. I choose to go

> with the Neuro Genomic test, because it was cheaper and it was faster.

Hi ,

My son was about to take the VD Methy. Panel test but I am interested

in comparing the Neuro Genomic profile you mentioned.

I searched their website but could not find the test. Can you tell me

the name of the test again? I would love to have the test sooner and

for less money as we are strapped.

Thanks,

Marti

[Guest guest]

> Hi ,

> My son was about to take the VD Methy. Panel test but I am interested

> in comparing the Neuro Genomic profile you mentioned.

>

> I searched their website but could not find the test. Can you tell me

> the name of the test again? I would love to have the test sooner and

> for less money as we are strapped.

>

> Thanks,

> Marti

>

Hi ,

Never mind. I called the company and found the link. It is

Neurogenomic without a space. I couldn't find it with the space.

It is an interesting test. I would like to have this done but the VD

test is slightly different so we are going to go ahead with that one.

Thanks for posting.

Marti

[Guest guest]

Where do you get oral IGG?

>

> Plus you can take transfer factor, oral IGG, and the methylation

process also helps kill the viruses

>

[Guest guest]

Hi ,

So they based their decision to put you on the simplified Yasko

protocol on the results of the Genova Genomic Detox test?

How and when will they decide/measure that your methylation is up to

par?

You mentionned in your first email that you saw a naturopath at the

FFC? They didn't have you see a physician (MD) ?

Yannick

[Guest guest]

Yannick,

In my eyes, but this could turn in a discussion so lets not go there,

a Naturopath is a physician.

Because he is trained as a Naturopath he is much more open to view the

body and illness in whole instead of just symptoms.

He does and is allowed to prescribe pharmaceutical medications and

does not treat as many people think with only 'natural' substances.

But besides that he's not the only physician at the clinic they also

have a MD and various NP's.

To be honest I don't like the way you put these questions. The way you

put them makes it sound like the forced or told me to do something.

_They_ don't do anything, we, my physician and I, discuss my and his

research on the subject, discuss test results and the best way and

plan of action. The decision is mine. A dialogue in my opinion is a

two way street.

I gathered all Rich research on Yasko, he had already taken workshop/

briefings by dr. Teitelbaum on the subject and together we looked what

and if it could work for me.

That's the way I like to work with a physician, and that's the way I

think it's suppose to be. I understand that some people like to be

told what to do and what's best for them, I'm not one of them. It's my

body and I like to be in charge.

To answer your other question, no we did not based it solely on the

Detox profile, we had loads of other test info that I had done (15 to

20 pages) and we used the Neuro Genomic test to get more info on the

methylation cycle. We will test again in a few months because we're

going very slowly with this protocol. Because I miss certain genes I

can not detox very well and need to be careful.

Hope this answers your questions.

--

Portland, OR

On Dec 10, 2008, at 10:20 AM, yannick_amar wrote:

> So they based their decision to put you on the simplified Yasko

> protocol on the results of the Genova Genomic Detox test?

>

> How and when will they decide/measure that your methylation is up to

> par?

>

> You mentionned in your first email that you saw a naturopath at the

> FFC? They didn't have you see a physician (MD) ?

[Guest guest]

Hi ,

I think you misunderstood me. I understand that they did not force

you to do anything. I am simply trying to understand what data they

use to give you recommendations. My interest lies in the process. I

would be interested to know how they decide if they should recommend

the methylation treatment or whether they recommend it to evrybody.

I am interested in the tests that they perform to decide where to

start and how to proceed.

I understand that a naturopath can do a lot of things. Again, I was

simply trying to understand how they function at the FFC. I was

under the impression that they had patients seen and followed by an

MD.

Yannick

>

> > So they based their decision to put you on the simplified Yasko

> > protocol on the results of the Genova Genomic Detox test?

> >

> > How and when will they decide/measure that your methylation is up

to

> > par?

> >

> > You mentionned in your first email that you saw a naturopath at

the

> > FFC? They didn't have you see a physician (MD) ?

>