Re: Brain compression: Subjective description

[Guest guest]

---hi horror st or y dianozed with me cfs by 5 different aust

profesers a brilliant local gp in my opinion the best in nsw and

still managed to somehow to get Involved with with mental health

peorle 27 ECT LaTERthey decided it wasnt working BE VERY CAREFUL

working , " khalyal " <khalyal@...> wrote:

>

> Brain compression - feels like there is swelling in my spine, all

the

> way up to my brain, as if there is an excess amount of spinal

fluid.

> Especially pronounced at the base of the skull.

>

>

> > >

> > It goes like this -

> > > change of mood for no apparent reason, then brain compression,

then

> > > migraine, then floor. The intensification reaction is a

blessing,

> > > because I've learned to leave at mood change, and at least not

to push

> > > it past brain compression.

> > >

> >

>

[Guest guest]

geoffrey what are u talking about? it sounds interesting.

what are u supposed to do if you live in north and need to use

furnaces, head west or south?

> > > >

> > > It goes like this -

> > > > change of mood for no apparent reason, then brain compression,

> then

> > > > migraine, then floor. The intensification reaction is a

> blessing,

> > > > because I've learned to leave at mood change, and at least not

> to push

> > > > it past brain compression.

> > > >

> > >

> >

>

[Guest guest]

Have a look here

http://en.wikipedia.org/wiki/Idiopathic_intracranial_hypertension.

If you go through the backfiles there has been a fair bit of comment about

regulation of cerebrospinal fluid pressure. It seems like it might be one of

the CFS symptoms that is ignored because the spinal tap necessary to confirm

the diagnosis is a procedure not commonly used.

Both high and low pressure can cause similar symptoms.

Regards

R

Brain compression: Subjective description

> Brain compression - feels like there is swelling in my spine, all the

> way up to my brain, as if there is an excess amount of spinal fluid.

> Especially pronounced at the base of the skull.

>

>

>> >

>> It goes like this -

>> > change of mood for no apparent reason, then brain compression, then

>> > migraine, then floor. The intensification reaction is a blessing,

>> > because I've learned to leave at mood change, and at least not to push

>> > it past brain compression.

>> >

>>

>

>

>

> ------------------------------------

>

> This list is intended for patients to share personal experiences with each

> other, not to give medical advice. If you are interested in any treatment

> discussed here, please consult your doctor.

[Guest guest]

As far as toxic mold poisoning goes, here's what a doctor on my board

hypothesizes:

" We know that mold toxins create a leaky blood brain barrier. We also

know that the choroid plexus of the brain filters brain blood and

lymph into CSF. It also makes beta-2-microglobulin, a protein whose

grab free toxins in this filtrate and escort them out of the CSF

compartment.

Let's say a biotoxin exposure creates a sequence of cytokine release,

MMP-9 release, and a patch of leaky blood brain barrier. The cytokine

response moves into the brain. Depending on which part of an

individual's brain is affected, and depending on the relative state of

neurochemical balance or imbalance in various parts of that person's

brain, you might experience a sudden quickness to anger, are

reversible paralysis, brain fog, depression, or something else.

Meanwhile, the choroid plexus is receiving more toxic shipments, so it

is to crank up the volume of CSF production. The intracranial and/or

spinal CSF pressure builds, creating deep pain at the base of the

neck, top of the head, above the eyes, spine swelling, etc. You have

what almost everyone would agree is a migraine headache, but it's

really driven by the increased CSF pressure that occurs when the

choroid plexus is trying to mop up after another toxic spill type of

exposure to brain tissue. We do a spinal tap and the pressure is

abnormally high, but tapping 30 cc of fluid out of the CSF space

relieves the pressure on your brain and spinal cord and you feel

better - until the pressure builds up again. "

The other possibility is that due to the compromised BBB, other

opportunistic viral or bacterial agents could potentially create the

same effect.

Khaly

> >> >

> >> It goes like this -

> >> > change of mood for no apparent reason, then brain compression, then

> >> > migraine, then floor. The intensification reaction is a blessing,

> >> > because I've learned to leave at mood change, and at least not

to push

> >> > it past brain compression.

> >> >

> >>

> >

> >

> >

> > ------------------------------------

> >

> > This list is intended for patients to share personal experiences

with each

> > other, not to give medical advice. If you are interested in any

treatment

> > discussed here, please consult your doctor.

[Guest guest]

>

> Meanwhile, the choroid plexus is receiving more toxic shipments, so it

> is to crank up the volume of CSF production. The intracranial and/or

> spinal CSF pressure builds, creating deep pain at the base of the

> neck, top of the head, above the eyes, spine swelling, etc. You have

> what almost everyone would agree is a migraine headache, but it's

> really driven by the increased CSF pressure that occurs when the

> choroid plexus is trying to mop up after another toxic spill type of

> exposure to brain tissue. We do a spinal tap and the pressure is

> abnormally high, but tapping 30 cc of fluid out of the CSF space

> relieves the pressure on your brain and spinal cord and you feel

> better - until the pressure builds up again. "

>

This is the premise (excess CSF with protein fragments) for Dr.

Baraniuk's study at town. Most people that I have spoken to

(around 5 people) have relief after the spinal tap where they remove

20cc (or 25 cc's) of fluid. He has found some protein fragments in

the CSF which he hopes to identify.

I believe this study is still underway. I learned quite a bit in

participating.

Marti

[Guest guest]

Here is the correct link without the period. You can end a link URL

with a period, it won't work.

http://en.wikipedia.org/wiki/Idiopathic_intracranial_hypertension

Edgar

On Dec 22, 2008, at 10:00 PM, Windsor wrote:

> Have a look here

> http://en.wikipedia.org/wiki/Idiopathic_intracranial_hypertension.

[Guest guest]

Sorry about the period, gremlins [Moderator: and not Christmas Elves] have

struck

Regards

R

Re: Brain compression: Subjective description

> Here is the correct link without the period. You can end a link URL

> with a period, it won't work.

>

> http://en.wikipedia.org/wiki/Idiopathic_intracranial_hypertension

>

> Edgar

[Guest guest]

Here's a recent conversation I had with about mold toxins and

brain compression:

I think the migraines are usually toxin-induced. I suppose they could

happen during a detox period, but for me they come on strong when I've

been in a continuous exposure scenario for a period of time. The

period of time has become much shorter as I've become more successful

in avoiding mold toxins.

When I first evacuated the mold house last year, the first time, it

took me a little while to really notice and examine the changes my

body experienced when faced with a new exposure. After a while, they

became pronounced and quicker. It would go like this - change of mood

(depression), tightening in the head and neck (brain compression),

then, if I hadn't left, migraine. Then floor. It was a good training

exercise because it taught me to pay a huge amount of attention to the

depression. Evacuating at slight mood change saves me a lot of grief.

Migraine for me, at this point, is accompanied by swelling in the

spine. It didn't always. This happened over time. It also is a

precurser of the disconnect between brain and body. I start losing

control of small motor functions, and if unchecked, progresses to

Hepburn-bobbling and drooling.

-Khaly

This is the specific mechanism that what I am doing with the avoidance

strategy, somehow manages to intercede.

This is the process that requires direct research.

-

>

> Sorry about the period, gremlins [Moderator: and not Christmas

Elves] have struck

> Regards

> R

> Re: Brain compression: Subjective

description

>

>

> > Here is the correct link without the period. You can end a link URL

> > with a period, it won't work.

> >

> > http://en.wikipedia.org/wiki/Idiopathic_intracranial_hypertension

> >

> > Edgar

>

[Guest guest]

One of the things that prompted me to find this board was after a bout

of an especially bad headache, like wanting to tear your hair out kind

of headache. I hadnt had one that bad before but my cfs/fm did start

out with a headache years ago, a daily one for like a year. Its

interesting you bring up ich because I was just researching it again

as have had a flare of head and spinal pain again, its not over the

top but not fun either.

This recent one came on after getting myofascial/cranial sacral work

and doing some yoga, 2 potentially good things that can also be bad

for me if get too much. I think it increases the flow of spinal fluid

sometimes and causes these pain increases. Dr Cheney also believes

there is a brain swelling with m.e./cfs tht can aggravate in some

people spinal pain. I have neck issues so it can hurt easily with

activity but when in a flare up I will get that pain all down the spine.

so what to do though? getting some sort of spinal puncture sounds so

extreme, I dont know if I have the heart for that, is it painful,

risky? and secondly, I doubt it would be that easy to convince a doc

to order one?

I have found benadryl somewhat helpful at times for headaches, but its

such a dull medication to take frequently, read the side effects of

that one on wikipedia.

Have any of you found somewhat helpful meds/supps to deal with

increased swelling/pain?

>

> > Have a look here

> > http://en.wikipedia.org/wiki/Idiopathic_intracranial_hypertension.

>