Re: LINK to Clinical Studies/Research on CFS/ME?

[Guest guest]

The thing that is the most proof for me is the brain scans of cfs

patients. There no arguing when you see the difference in the spect

and pet images. Are you using it to get disability?

The top link is my p.e.t. scans. I couldnt find any links other good

scans. But here are a couple other links i had saved

http://www.chronicfatiguetreatments.com/wordpress/treatments/chronic-fatigue-bra\

in-scans/

http://www.fm-cfs.ca/CFS_spect_scans.html

http://www.cfs-ireland.org/scientific/10.htm

>

> Does anyone know of a good, comprehensive webpage that lists CFS/ME

research and/or

> clinical studies that show it's a 'real disease' with real physical

abnormalities?

>

> I'm trying to put together a blog, and rather than defensively

ramble on and on, would like to

> just post a link to a page or pages that shows the scientific proof

the CFS is real.

>

> THANKS IN ADVANCE!

>

> Dan

>

> [Go to http://www.ncbi.nlm.nih.gov/sites/entrez and enter, " chronic

fatigue spect " , you will find 35 articles, most deal with FM and CFIDS]

>

[Guest guest]

I haven't had a p.e.t. or spect scan but did have a few MRI's after surgery to

remove a

pituitary tumor in 2005. The two after the surgery came up " great', but they

don't show

blood flow. Thanks for the links.

I have disability, just trying to find a page that list studies/research that

relate to/describe

the physical differences in CFS for a blog -- like a page that has links to

pubmed or other

abstracts.

thanks,

d.

> >

> > Does anyone know of a good, comprehensive webpage that lists CFS/ME

> research and/or

> > clinical studies that show it's a 'real disease' with real physical

> abnormalities?

> >

[Guest guest]

Hi Dan,

This was the document that helped me the most. The

references might also be useful to you:

http://sacfs.asn.au/download/consensus_overview_me_cfs.pdf

I suppose depending on your definition of CFS, this also may be

helpful: http://www.ahummingbirdsguide.com/methemedicalfacts.htm

Also, Rich mentioned the technetium isotope in SPECT scans uses

glutathione, that might have an effect on your scans.

[Guest guest]

Fatigue is one of the most common symptoms of illnesses. It often

leads to eople losing their jobs and healthcare. When someone gets

fatigue, its a race against time, for them to find the infection

before they lose their job, income, and access to doctors.

A diagnosis of " chronic fatigue " also makes it very difficult to get

insurance again, right? Not like cancer, but almost. It makes you

ininsurable, right?

Even if you have a curable disease causing it.

MANY (hundreds of?) kinds of infections and diseases have fatigue as a

symptom, right?

So how would that help infected people if a " diagnosis " of " fatigue "

AS AN ILLNESS leads to abandonment by the healthcare system of

millions of patients who often have curable illnesses and infectious

diseases that CAN be treated if they are simply tested for and found.

That is like a return to the Dark Ages of medicine, to the feudal system.

What is the reason, cost?

[Guest guest]

--hi jason your are spot on with these sites. They help me too.

regards geoffp- In

, " not4idiopathic "

<rutledge.jason@...> wrote:

>

> Hi Dan,

>

> This was the document that helped me the most. The

> references might also be useful to you:

> http://sacfs.asn.au/download/consensus_overview_me_cfs.pdf

>

> I suppose depending on your definition of CFS, this also may be

> helpful: http://www.ahummingbirdsguide.com/methemedicalfacts.htm

>

> Also, Rich mentioned the technetium isotope in SPECT scans uses

> glutathione, that might have an effect on your scans.

>

>

>