Guest guest Posted July 24, 2005 Report Share Posted July 24, 2005 Glad to hear you're feeling better! And thanks for saying so. It's not always easy to remember that things can get better. Er...it's not always easy to remember anything at all, come to think of it. But I'm looking forward to it! Things are going much more slowly for me. But I figure, if I'm still at a point where even 1 skipped dose of CSM is noticeable to me, then I must still be carrying a load of toxins that are just barely on the edge of retreating into the manageable zone. I did much more this week than I have done in quite a while, located a couple of specific places where I get mold hits, and I'm really feeling it. Serena www.freeboards.net/index.php?mforum=sickgovernmentb __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2005 Report Share Posted July 24, 2005 It was an amazing feeling when my mind began to clear! It's very difficult to explain to anyone unless they have experienced the same thing. I would have to make notes for my notes just to get through a day of things to do. It was horrible!!! I never had to take the Actos. Sue Thanks, isn't it a relief when you can begin to think again? I didn't realize how much we take the ability to THINK for granted. It seems like such a simple thing, until it's messed with. Has he ever had you take Actos? The CSM definitely has helped, but my recent gains have been from Actos. Signed: Get Rid of Mold Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2005 Report Share Posted July 24, 2005 Thank you everyone for your private e-mails and forum postings. I can't wait for the kids to see Dr. S. My daughter (10) will have a much better life if she can get her mind to work again. It is just awful, to sit and watch her daily struggle just to think of things her 6 year old brother knows better than her. Her self esteem is gone. Her eyelashes are gone, as this is a nervous condition she has now picked up from frustration. We see him 2 weeks before going back to school. I hope her struggles will be less like the experiences I have heard here. How wonderful if she could just remember what 3+5 is without having to count it on her fingers. How to spell her name without having to stop and think. Also, I am using all of the info. everyone has sent me. Binaca was scared to go as needles scare her, can't blame her after all the blood test she has had to take here. But, I read some your e-mails to her and told her that this time it might really help her, and that this doctor actually knows what he is doing. So, hopefully peace will come to her. , (6) he's another story. When he see's a needle coming he goes into this sort of hysteric thing. Like something I have never seen. At the hospital it takes 5 people including myself to hold him down. Then after it is over, he doesn't remember a thing. Kind of weird. So, we'll see what happens with him. Well, thanks again everyone. Your support has helped us get thru this for the past 4 years. Re: [] Re: I'm getting better! > > > > It was an amazing feeling when my mind began to clear! It's very > difficult > to explain to anyone unless they have experienced the same thing. I would > have to make notes for my notes just to get through a day of things to > do. It > was horrible!!! > I never had to take the Actos. > > Sue > > > Thanks, isn't it a relief when you can begin to think again? I didn't > realize how much we take the ability to THINK for granted. It seems > like such a simple thing, until it's messed with. Has he ever had you > take Actos? The CSM definitely has helped, but my recent gains have > been from Actos. > > Signed: Get Rid of Mold > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2005 Report Share Posted July 24, 2005 - How good to know your kids are also able to get some support here! I think they'll like Doc Shoemaker, and I know he cares about what's happening to them Please let the kids know that when they stay strong and win, they're helping us grownups remember that we can do it, too. Serena www.freeboards.net/index.php?mforum=sickgovernmentb --------------------------------- Start your day with - make it your home page Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2005 Report Share Posted July 25, 2005 Thank you for your suggestion. The school had started this 2 years ago. But, not with the support team I wished for. Then this year we had that mold episode in her portable, and told them that if they would listen to me and let me help I would not sue them. (in so many words, not quit that bluntly) So they did. We have now had the main school tested for both of my children, and it is clear of mold. Then after 2 years of trying to get them to start a 504, out of the blue they called me, asked me to come in as they were starting one for her for this coming year. Now all we need is a letter from Dr. S, stating she and her brother have these problems and they will start her in their program for children with disabilities, but they are going to use a different term for her. This will allow the school to bring in outside tutors for her. They also put in her 504 that for the remainder of her life in schools she needs to attend a mold free environment, and if that is not possible, the school district is to provide her and her brother in home tutors for the duration or their education. For all of this I am very very happy. But, Bianca is more relieved than any of us could ever be. When she heard what they had done so far, she broke down crying with relief. She was scared everyday while attending school, that mold would make her sick again. Which, it did for a few months. But, along with the school district we fixed it. Portables will no longer be used in our district, and I am working with the district to set up protocols with in each of the schools. So, life for us at this moment is great as far as school goes. I wish everyone else had the good fortune that we have had here. The fight is hard with districts. We just had the blatant proof, right in their faces proof, that mold can cause my children to become so sick that it disables them. They got to see it first hand. Thank you again for you suggestion. I wish I would have known about this group when all this first started, it could have been a savior for us. But, atleast we have all of you now, and you have us too. [] Re: I'm getting better! > , > > Why don't you consider asking your daughter's school to provide her > with " Specially Designed Instruction " through Special Education due to > a Health Impairment? Seems like it would be a reasonable thing to do > until she can recover. > > Signed: Get Rid of Mold > > > said: " My daughter (10) will have a much better life if she can > get her mind to work again. It is just awful, to sit and watch her > daily struggle just to think of things her 6 year old brother knows > better than her. Her self esteem is gone... I hope her struggles will > be less like the experiences I have heard here. How wonderful if she > could just remember what 3+5 is without having to count it on her > fingers. How to spell her name without having to stop and think. " > > > > > > FAIR USE NOTICE: > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2005 Report Share Posted July 25, 2005 Beware if you have a tutor come into your house. If they bring any books or other materials with them they can make your children sick at home. Everythiing should be new and brought from the school bldg. Even the tutor's clothes could be loaded with mycotoxins. The school could order new books and have them sent directly to you. I'd ask Dr. Shoemaker what he thinks. Sue Thank you for your suggestion. The school had started this 2 years ago. But, not with the support team I wished for. Then this year we had that mold episode in her portable, and told them that if they would listen to me and let me help I would not sue them. (in so many words, not quit that bluntly) So they did. We have now had the main school tested for both of my children, and it is clear of mold. Then after 2 years of trying to get them to start a 504, out of the blue they called me, asked me to come in as they were starting one for her for this coming year. Now all we need is a letter from Dr. S, stating she and her brother have these problems and they will start her in their program for children with disabilities, but they are Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2005 Report Share Posted July 26, 2005 I second that. Thought I'd just drop a line and let everyone know I had to change e-mail accounts. My other one was not getting all the postings. This morning I had 7 in this one, and in the old one not any. So, if you e-mailed me and I didn't respond, please feel free to send it to this account. I wasn't ignoring you, just didn't get it. -(blackmold@...) [] Re: I'm getting better! Hi Jules, I hope you can go and I hope he can help you get better. Yep, I agree, I've begun to think that our health is the single most important thing in a person's life. Without it nothing else seems to make a lot of difference. Get Rid of Mold > Thanks so much for the info. It's definitely worth every penny if > it makes you feel better. I'm absolutely considering it. I have to also allow for airfare/hotel costs coming from California, so it > would be very costly. Hoping my HMO will treat me using Dr. S's > protocol, but not holding my breath either.... > I was feeling VERY healthy prior to working in a sick building(2001- > 2003), and a sick house to top it off (2002-2004). Would love to > feel healthy again some day....It's worth a lot! Everything, really. > > Thanks again, > Jules > FAIR USE NOTICE: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2005 Report Share Posted July 26, 2005 Hi , We have not seen Dr. S yet, but have an appointment. After we sent in the paperwork with the initial fee's they were able to give me general idea of costs for the kids & codes. But, said they couldn't be certain as to which tests they were going to have to run or how many. Will your insurance cover the cost if you have a referral to use another besides Quest? I believe I agree though, with the$5000.00 quote. I believe I was told $3,500 on an average, depending on how many labs they need to take. They are very nice there. When you send in your paperwork, write a note and ask them to send you each lab code. Then you can call your insurance and make sure what is covered before going. (just a suggestion) [] Re: I'm getting better! Can anyone who has been to Dr Shoemaker tell me the breakdown of lab fees by lab? ie How much for the Quest tests, how much for the other labs he uses? I ask because my insurance only covers Quest, so I'm trying to figure out how much the rest of it will cost me out-of-pocket. Is there anyplace on his website that will tell how much each lab test costs?? Thanks! From: " ridofmold " <getridofmold@...> The lab testing so far has been billed at about $5,300. but it looks like the insurance company will pay much less than that for the lab tests in the end. The costs for Dr. Shoemaker are separate from that; you'll have to contact his office for information on that. He takes Medicare patients, if that helps at all. FAIR USE NOTICE: Quote Link to comment Share on other sites More sharing options...
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