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Re: Re: I'm getting better! LINDA

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,

Can't you take those test results to an infectious disease doctor in your

local area or next large city and get help with that. It would seem if

tests show you are sick, that not to treat it would be malpractice on

doctors part. If you have systemic, it would be infectious disease doctor's

area mainly or doctor who specializes in environmental illness, which is

newer specialty than infectious diseases as a specialty. Certainly there is

an ID doctor who will help you with this I would think. If you don't want

to waste your time, write a letter describing your delema of retired doctor

and say you are looking for treatment of his diagnosis, instead of making an

appt and then being disappointed. Usually a University affiliated hospital

are more up on the latest in treatment. If you have a university town

nearby and a teaching hospital where medical students from that university

go to, try sending one letter to Infectious Disease Dept there and other

places. BarbB

----- Original Message -----

>>Dr. Johanning he resigned a couple of weeks after my wasted

>> visit. I had the best insurance then. I was told at that time I

>> had systematic fungal disease but I was left for dead. Very sick of

>> this crap. .

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,

I can relate. I've had the same thought. Hope springs eternal though and

we suffer on, perhaps some day to feel better?

If you went to Dr S and you had no insurance, perhaps he could run fewer

tests. He runs ALOT of tests, lots, like someone here said he counted 34

blood tests.

I always had wished doctors IN GENERAL would run more tests. They seem to

like to GUESS and usually there guess is wrong. My guess however has

usually been right regarding my own situation, afterall 'knowing the

patient' is of most important in getting diagnosis correct and we know

ourselves best.

I have been without insurance before also. It's tough.

Perhaps you can get a doctor to prescribe cholestyramine for you and follow

this very important part of his protocol. Do you have high cholesterol. If

you don't know if you could get a doctor to prescribe it for the off-label

use of toxin binding, you could ask for it to lower your cholesterol. BarbB

----- Original Message -----

From: " ldelp84227 " <ldelp84227@...>

> Are you saying it costs about $5,000. Guess I will die from this

> then. Sometimes I just feel like having myself put down like they do

> do animals.

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