New to this group

[Guest guest]

Sorry to hear about the loss of your little one. I can't imagine how

hard it is then to have to move on and deal with other issues on top

of that. You're an amazing mom.

You say your daughter has a limited diet. Do you mind sharing what

foods she will eat? Let me guess, either it is foods like mac &

cheese, bread and pizza, only dairy products or just fruit. Many

kids with autism have reactions to food that make their autistic

symptoms worse but they prefer only those foods because it is kinda

like an addiction. Sometimes the only way to get them to eat new

foods is to break the addiction by completely removing those foods.

My son had a phase where he was obsessed with pineapple. As long as

he knew there was a can of pineapple in the house, he would refuse to

eat anything else. A wise mom of another autistic child told me any

food your child obsessed over has to go - no matter how healthy it

may seem. I stopped getting pineapple and after a day of protest, he

started eating other foods again. Also to my amazement, he was much

calmer and stimmed less (pineapple is high in phenols).

For other ideas, here is a good link with ideas on how to get an

autistic child to eat: www.tacanow.com/Picky_Kids_Eat.htm

All the symptoms you mention could be related to autism. Many could

also be related to food issues. Have you tried the GFCF diet?

Enzymes?

My son has never had seizures but what you describe sounds like what

other moms have described when their child has seizures. I however

am aspergers and daydreamed alot as a child. Many times I had a hard

time separating my daydreams from reality.

As for the waking up crying, many feel autistic kids do this because

of what they call " night terrors " . I don't exactly know what makes

it different from nightmares but I do know as a child, I had very

vivid scary dreams that when I woke up was also hard to separate from

reality. I can still remember some of them 30 years later and are as

vivid as watching a movie. As an adult, I find diet has an effect on

my dreams (food additives). My autistic son used to wake up crying

all the time unconsolably but that stopped within a week of the GFCF

diet. He has only woken up crying twice in the last 5 years since.

>

> Hello:

> I'm new to this group. My 4 year old daughter is on the autism

spectrum. She was dx last year. She has a feeding disorder that the

docs think is related to the autism. She has a very, very limited

diet. She has been in therapy (speech/feeding) since she was 1 1/2

years old. We have basically gotten nowhere with the acceptance of

new foods. This is very worrisome because her blood work shows cause

for concern. She refuses to potty train as well. Been working on it

for awhile. She also has these staring episodes, sort of like she is

zoning out, that I figured she was just daydreaming or something, but

now the doc says could be possible seizures. She plays well with her

siblings and is really over friendly. She will talk to any stranger

(also very concerning from one stand point). She is very, very

active. Wakes up crying at night and is impossible to console. One

doc thinks it is sleep walking. I'm sure all of this or at least

most of it is connected to the autism. Hopefully those that have

more experience can give me some pointers on what steps to take next

or ideas and suggestions to try.

> has recently regressed some but I believe that is due to

the fact that she just lost her baby sister and it was a very

tramautic time and still is in our daily lives.

> Hoping to get some ideas on how to help her a little more.

> Thanks in advance.

> TERI

> Mommy to 5

> , 10 HH, le, 8 HH, Brittany, 5 HH; , 4 HH,

Autistic, feeding disorder; , forever 18 months, 13 days HLHS

(Modified Norwood with Sano shunt; coarctation; Glenn & tricuspid

valve repair, g-tube; became an Angel 6-22-06--I love you baby girl--

Always & Forever))

> carepage name: Girl

> http://www.carepages.com/Login?seed=844556

> http://www.babiesonline.com/babies/p/peanutbutter5/

>

[Guest guest]

Perkypup wrote:

>

>

> Hello: I'm new to this group. My 4 year old daughter is on the

> autism spectrum. She was dx last year. She has a feeding disorder

> that the docs think is related to the autism. She has a very, very

> limited diet. She has been in therapy (speech/feeding) since she was

> 1 1/2 years old. We have basically gotten nowhere with the

> acceptance of new foods. This is very worrisome because her blood

> work shows cause for concern.

Hi, glad to meet you! What may be going on with her difficulty eating

certain things is a sensory problem. A lot of our kids just can't

handle certain textures in their mouths (or their hands). So it's going

to take some " dietary experimentation " on your part to identify those

textures and work around them while she's young. You can always begin

introducing them in a few years, when she's got some practice dealing

with the world. Our Louie is 26 now, and he didn't start the

wholesale acceptance of new foods until just a couple of years ago! His

housemates (all autistic) like to eat out once a week, so it was a peer

thing for him. Also, get her some of those sectioned plastic picnic

plates. A lot of our kids can't handle their food servings touching; to

them, it looks like one big unappetizing glob. Sometimes eating

improves just from the addition of one of these plates. And if she's

showing signs of being malnourished or iron anemic (which I assume is

what you mean by her bloodwork), you can always start her on a

children's multi-vitamin. Louie still takes a One A Day vitamin each

morning, but he gave up his sectioned plate when he was 11 or so...about

the time he first tried a casserole that hadn't been taken apart for him.

> She refuses to potty train as well. Been working on it for awhile.

>

Louie didn't potty train until he was almost 6. Then one day at his

developmental first grade, it suddenly dawned on him what we and his

teachers had been talking about all those years. I have a photo of

the event. He took a newspaper with him.

> She also has these staring episodes, sort of like she is zoning out,

> that I figured she was just daydreaming or something, but now the doc

> says could be possible seizures.

It could be, but it could be your daughter " going inside. " Our world is

confusing to our kids, and autistic people have the ability to just shut

that input off and relax a bit in their own heads. Or she could be

thinking hard about something, or trying to make a connection in her

mind between one concept and another. I'd just have an EEG done (we did

for Louie when he was 8, for the same reason). And if it shows nothing

(Louie's didn't), then it's probably one of the other reasons. Or

something like them.

> She plays well with her siblings and is really over friendly. She

> will talk to any stranger (also very concerning from one stand

> point).

Louie and his big sis (she's 11 years older) got along like gangbusters,

and still do! She was a tickler, and that was something Louie really

enjoyed when he was a little feller. We never had the problem of

Louie talking to strangers at that age....or anyone else. He was

non-verbal until he was almost 6. And he was a solitary boy by his

own choice...until he met his first other autistic kid his age.

> She is very, very active. Wakes up crying at night and is impossible

> to console. One doc thinks it is sleep walking. I'm sure all of

> this or at least most of it is connected to the autism.

The active part I'm not surprised at. Louie has always been a

powerhouse of energy, from his earliest years. He was an early walker,

and walked until he found out about running. It's probably why he

does so well in Special Olympic track now. The crying at night may

not be an autistic thing. It could be the " night terrors " that a lot of

kids go through at about this age. So if she tells you she's seen

monsters in her room in the night, it's time to make Monster Repellent!

You fill a spray bottle with water, a tinge of foodcoloring and a

little floral perfume. Tell your daughter that this is Monster

Repellent: monsters hate sweet smelling things, so if you spray it all

around the room, in the closet, under the bed, the monsters will stay

away and leave her alone. Many kids have gone for this hook, line, and

sinker. It's one of those little " parental secrets " you get to know

about when you are one. If she just wakes up consistently, then try

taking apples and apples products out of her diet. A lot of our kids

are sensitive to the phenols in apples; phenols disturb their sleep

patterns. Louie slept through the night for the first time in his life

when we did this at 17.

> has recently regressed some but I believe that is due to the

> fact that she just lost her baby sister and it was a very tramautic

> time and still is in our daily lives.

That's very likely it. If she can't articulate it, all you can really

do is comfort her. Louie was like this when his grandma died...and he

was 12 at the time. He needed a lot of reassurance that it wasn't going

to happen to him, or to us, any time soon. That was his major worry.

Again, glad to meet you! This is a really informative place.

Annie, who loves ya annie@...

--

Ritual is the way you carry the presence of the sacred. Ritual is the

spark that must not go out. -- Baldwin

[Guest guest]

I had similar problems with my son when he was younger. Will your daughter tolerate Pediasure Nutritional drinks? I had to supplement my sons diet with these for awhile. Fortunately as he got older he became more willing to try new foods. The pediasure was a lifesaver though. You can even make popsicles out of it which is helpful. That is what we did to get through our struggles...... Good Luck to you!!!! in Lancaster, CaPerkypup <perkypup05@...> wrote: Hello: I'm new to this group. My 4 year old daughter is on the autism spectrum. She was dx last year. She has a feeding disorder that the docs think is related to the autism. She has a very, very limited diet. She has been in therapy (speech/feeding) since she was 1 1/2 years old. We have basically gotten nowhere with the acceptance of new foods. This is very worrisome because her blood work shows cause for concern. She refuses to potty train as well. Been working on it for awhile. She also has these staring episodes, sort of like she is zoning out, that I figured she was just daydreaming or something, but now the doc says could be possible seizures. She plays well with her siblings and is really over friendly. She will talk to any stranger (also very concerning from one stand point). She is very, very

active. Wakes up crying at night and is impossible to console. One doc thinks it is sleep walking. I'm sure all of this or at least most of it is connected to the autism. Hopefully those that have more experience can give me some pointers on what steps to take next or ideas and suggestions to try. has recently regressed some but I believe that is due to the fact that she just lost her baby sister and it was a very tramautic time and still is in our daily lives. Hoping to get some ideas on how to help her a little more. Thanks in advance. TERIMommy to 5, 10 HH, le, 8 HH, Brittany, 5 HH; , 4 HH, Autistic, feeding disorder; , forever 18 months, 13 days HLHS (Modified Norwood with Sano shunt; coarctation; Glenn & tricuspid valve

repair, g-tube; became an Angel 6-22-06--I love you baby girl--Always & Forever))carepage name: Girlhttp://www.carepages.com/Login?seed=844556http://www.babiesonline.com/babies/p/peanutbutter5/

Get your own web address for just $1.99/1st yr. We'll help. Small Business.

[Guest guest]

Annie, I just have to say even though your response was not to me, that you are just so sweet and welcoming and reassuring.... Everytime I read one of your posts I always feel better....... what a gift you have...... in Lancaster, CaAnnie <annie@...> wrote: Perkypup wrote:>>> Hello: I'm new to this group. My 4 year old daughter is on the> autism spectrum. She was dx last year. She has a feeding disorder> that

the docs think is related to the autism. She has a very, very> limited diet. She has been in therapy (speech/feeding) since she was> 1 1/2 years old. We have basically gotten nowhere with the> acceptance of new foods. This is very worrisome because her blood> work shows cause for concern.Hi, glad to meet you! What may be going on with her difficulty eatingcertain things is a sensory problem. A lot of our kids just can'thandle certain textures in their mouths (or their hands). So it's goingto take some "dietary experimentation" on your part to identify thosetextures and work around them while she's young. You can always beginintroducing them in a few years, when she's got some practice dealingwith the world. Our Louie is 26 now, and he didn't start thewholesale acceptance of new foods until just a couple of years ago! Hishousemates (all autistic) like to eat out once a week, so it was a peerthing

for him. Also, get her some of those sectioned plastic picnicplates. A lot of our kids can't handle their food servings touching; tothem, it looks like one big unappetizing glob. Sometimes eatingimproves just from the addition of one of these plates. And if she'sshowing signs of being malnourished or iron anemic (which I assume iswhat you mean by her bloodwork), you can always start her on achildren's multi-vitamin. Louie still takes a One A Day vitamin eachmorning, but he gave up his sectioned plate when he was 11 or so...aboutthe time he first tried a casserole that hadn't been taken apart for him. > She refuses to potty train as well. Been working on it for awhile.>Louie didn't potty train until he was almost 6. Then one day at hisdevelopmental first grade, it suddenly dawned on him what we and histeachers had been talking about all those years. I have a photo ofthe event. He took a newspaper

with him. > She also has these staring episodes, sort of like she is zoning out,> that I figured she was just daydreaming or something, but now the doc> says could be possible seizures.It could be, but it could be your daughter "going inside." Our world isconfusing to our kids, and autistic people have the ability to just shutthat input off and relax a bit in their own heads. Or she could bethinking hard about something, or trying to make a connection in hermind between one concept and another. I'd just have an EEG done (we didfor Louie when he was 8, for the same reason). And if it shows nothing(Louie's didn't), then it's probably one of the other reasons. Orsomething like them. > She plays well with her siblings and is really over friendly. She> will talk to any stranger (also very concerning from one stand> point).Louie and his big sis (she's 11 years older) got along like

gangbusters,and still do! She was a tickler, and that was something Louie reallyenjoyed when he was a little feller. We never had the problem ofLouie talking to strangers at that age....or anyone else. He wasnon-verbal until he was almost 6. And he was a solitary boy by hisown choice...until he met his first other autistic kid his age. > She is very, very active. Wakes up crying at night and is impossible> to console. One doc thinks it is sleep walking. I'm sure all of> this or at least most of it is connected to the autism.The active part I'm not surprised at. Louie has always been apowerhouse of energy, from his earliest years. He was an early walker,and walked until he found out about running. It's probably why hedoes so well in Special Olympic track now. The crying at night maynot be an autistic thing. It could be the "night terrors" that a lot ofkids go through at about this age.

So if she tells you she's seenmonsters in her room in the night, it's time to make Monster Repellent!You fill a spray bottle with water, a tinge of foodcoloring and alittle floral perfume. Tell your daughter that this is MonsterRepellent: monsters hate sweet smelling things, so if you spray it allaround the room, in the closet, under the bed, the monsters will stayaway and leave her alone. Many kids have gone for this hook, line, andsinker. It's one of those little "parental secrets" you get to knowabout when you are one. If she just wakes up consistently, then trytaking apples and apples products out of her diet. A lot of our kidsare sensitive to the phenols in apples; phenols disturb their sleeppatterns. Louie slept through the night for the first time in his lifewhen we did this at 17. > has recently regressed some but I believe that is due to the> fact that she just lost her baby sister

and it was a very tramautic> time and still is in our daily lives.That's very likely it. If she can't articulate it, all you can really do is comfort her. Louie was like this when his grandma died...and he was 12 at the time. He needed a lot of reassurance that it wasn't going to happen to him, or to us, any time soon. That was his major worry. :)Again, glad to meet you! This is a really informative place. :)Annie, who loves ya annie@...-- Ritual is the way you carry the presence of the sacred. Ritual is thespark that must not go out. -- Baldwin

All-new - Fire up a more powerful email and get things done faster.

[Guest guest]

Teri,

I am so sorry for your loss. I, too, am a mom of an angelic baby

girl. My heart and prayers go out to you at this very difficult time

in your life.

Unfortunately I cannot offer any help with your daughter. We are in

the process of getting a dx for my son and do not have the expertise

that the others do.

>

> Hello:

> I'm new to this group. My 4 year old daughter is on the autism

spectrum. She was dx last year. She has a feeding disorder that

the docs think is related to the autism. She has a very, very

limited diet. She has been in therapy (speech/feeding) since she was

1 1/2 years old. We have basically gotten nowhere with the

acceptance of new foods. This is very worrisome because her blood

work shows cause for concern. She refuses to potty train as well.

Been working on it for awhile. She also has these staring episodes,

sort of like she is zoning out, that I figured she was just

daydreaming or something, but now the doc says could be possible

seizures. She plays well with her siblings and is really over

friendly. She will talk to any stranger (also very concerning from

one stand point). She is very, very active. Wakes up crying at

night and is impossible to console. One doc thinks it is sleep

walking. I'm sure all of this or at least most of it is connected

to the autism. Hopefully those that have more experience can give

me some pointers on what steps to take next or ideas and suggestions

to try.

> has recently regressed some but I believe that is due to

the fact that she just lost her baby sister and it was a very

tramautic time and still is in our daily lives.

> Hoping to get some ideas on how to help her a little more.

> Thanks in advance.

> TERI

> Mommy to 5

> , 10 HH, le, 8 HH, Brittany, 5 HH; , 4 HH,

Autistic, feeding disorder; , forever 18 months, 13 days HLHS

(Modified Norwood with Sano shunt; coarctation; Glenn & tricuspid

valve repair, g-tube; became an Angel 6-22-06--I love you baby girl--

Always & Forever))

> carepage name: Girl

> http://www.carepages.com/Login?seed=844556

> http://www.babiesonline.com/babies/p/peanutbutter5/

>

[Guest guest]

Hi and welcome!

I haven't heard of the cholestyramine protocol. Can

you tell me what it is?

Thanks,

Willow

--- <jacob7715@...> wrote:

> Hi,

> I'm and I'm new to this group.

> I live in S.F. and no that isn't southern florida!

> I struggle with fibro, CFS and chronic headaches.

> I will be starting the Cholestyramine Protocol soon.

> For that I am grateful.

>

>

>

>

[Guest guest]

In a message dated 6/7/2007 6:06:03 PM Eastern Daylight Time,

erinfroland@... writes:

It funny they call them " well baby " visits when the topic of

conversation is when they plan on injecting poison into our kids!

Amen!!!

Holly

************************************** See what's free at http://www.aol.com.

[Guest guest]

Interesting. Does Canada let you have exemptions then? I was under the

impression that they did not.

in Colorado

new to this group

I'm new to this group, but not new to supporting non-vaccination. I

have a 1 month old baby boy and he will not be vaccinated. I had a

visit today from the public health nurse and she was pushing the

vaccines. I had made up my mind on the subject even before I was

pregnant, but I just let her go on, not stating my opinions. I am

really not looking forward to the conversations that will follow with

the public health nurse, or the doctor, when I say my child will not

be vaccinated. I live in a small town in Alberta and have yet to

befriend another parent who thinks the way I do, so I enjoy opening up

my email and reading all the posts from this group. It's nice to not be

alone in this fight for health. Because I live where I do, there is

really no alternative to seeing a medical doctor. However I would

like to take my baby to a holistic doctor in one of the cities near

here. If anyone has any advice on choosing a holistic pediatrician in

either Edmonton or Calgary (or just in general)I would love to hear.

The idea of not vaccinating is so not supported by my family doctor,

and I really don't like having to defend myself at each " well baby "

visit. It funny they call them " well baby " visits when the topic of

conversation is when they plan on injecting poison into our kids!

[Guest guest]

,

Check out MotheringDotCommune, if you haven't already.

http://www.mothering.com/discussions/forumdisplay.php?f=47

Good luck!

~Robyn

erinfroland wrote:

> I'm new to this group, but not new to supporting non-vaccination. I

> have a 1 month old baby boy and he will not be vaccinated. I had a

> visit today from the public health nurse and she was pushing the

> vaccines. I had made up my mind on the subject even before I was

> pregnant, but I just let her go on, not stating my opinions. I am

> really not looking forward to the conversations that will follow with

> the public health nurse, or the doctor, when I say my child will not

> be vaccinated. I live in a small town in Alberta and have yet to

> befriend another parent who thinks the way I do, so I enjoy opening up

> my email and reading all the posts from this group. It's nice to not be

> alone in this fight for health. Because I live where I do, there is

> really no alternative to seeing a medical doctor. However I would

> like to take my baby to a holistic doctor in one of the cities near

> here. If anyone has any advice on choosing a holistic pediatrician in

> either Edmonton or Calgary (or just in general)I would love to hear.

> The idea of not vaccinating is so not supported by my family doctor,

> and I really don't like having to defend myself at each " well baby "

> visit. It funny they call them " well baby " visits when the topic of

> conversation is when they plan on injecting poison into our kids!

>

>

--

Robyn Robyn and Jack

You know you're from the Bay Area when: You could sell your home and

live like a king in 99% of the rest of the world, but don't because it

would be difficult to move back.

robyn@... <mailto:%20robyn@...>

http://www.rmcsquared.net/

Sign up for fun, free eco-living tips at www.idealbite.com

<http://www.idealbite.com/dailytip/link.php?URL=aHR0cDovL3d3dy5pZGVhbGJpdGUuY29t\

YWRtaW4vY29udGVudC9Mb2NhbCBTZXR0aW5ncy9UZW1wb3JhcnkgSW50ZXJuZXQgRmlsZXMvT0xLREMv\

d3d3LmlkZWFsYml0ZS5jb20%3D & Name= & EncryptedMemberID=OTI1MzA%3D & CampaignID=1 & Campa\

ignStatisticsID=178 & Demo=0 & Email=robynalumni (DOT) cmu.edu>

[Guest guest]

Welcome.

IT was the one year old series that put my 13 year old in ER for two days and

she endured 2 spinal taps for them to say they dont' know what it is. By the

grace of God she made it.

I kept vacc'ing, but she was okay -- as far as I know. She has horrible

allergies.

My second child got Juvenile Rhuematoid Arthritis after her one year old series.

I can pinpoint that like it was yesterday. She was on horrible meds for two

years. I never vacc'ed any of them again.

My son is 17 months old and hte healthiest, and unvacc'ed of them all. I no

longer vaccinate my dogs, my horses, myself or my children. Everyday I live with

this choice only makes me more convinced that I'm right. Vaccines are hte

biggest marketing scam ever to hit mankind if you ask me.

My mother died of ALS and the medical trial she was a part of wanted to know

about all her vaccines -- a lot. At her age she would have gotten the original

polio vax. Read The Virus and the Vaccine You'll never think the same way again.

Read, and wait, IMO.

ANna in Colorado

New to this group

Hello everyone. First off let me say that I've never been a part of a

web group and I'm still learning my way around...so you guys have a

heads up

Here is what's going on with me. Our son is now one year old. We have

gotten all of his shots so far because before he was born we felt is

was the right thing to do. Then, all of the sudden I became a mom and

something inside me woke up and won't quick researching, questioning,

and trying to protect him. This mother's instinct is no joke! At

his recent visit I declined all of his shots because he was sick with

a cold even though the dr said it would be fine to get them...I just

didn't feel right about it. Besides that they wanted to give him the

chx pox mixed with the MMR...I'm just so not ready for that one. I

was supposed to go back last Friday for them (I did call ahead to

tell them I didn't want the two mixed and we'd be skipping the MMR

for now) but called and to cancel because he still seemed under the

weather and deep down I think I'm totally trying to avoid them.

My problem is that I'm scared to death to get his shots but I'm also

scared to not get them. This new world of motherhood is so very

confusing to me...

So now I'm at the point where I need to figure out what to do....I'm

sure there is somewhere in this group that has talked about a limited

schedule of shots...the pros/cons... .which ones to avoid, how long

you can wait on the MMR for it to be safe, or is there such a thing,

etc. Can anyone point me in some kind of direction...

[Guest guest]

There’s nothing to say you have to keep those appointments. It’s just a

push for vaccines really, imo. Though they do do a physical exam and

make sure everything is where it’s supposed to be etc.. but I gave up on

well baby checks a long time ago. If the kid was healthy when she went

in the door, wasn’t when she went out.. tooooooo many germs at the

doctors office and the ones that do separate.. it’s a joke. At least at

my current ped’s office. The military had 2 completely different rooms

for well and sick babies.

But if you do the WBC’s, I’d go in as Mama Bear.. they’ll pressure you

like crazy to do those shots.

Now my current ped didn’t say a word when he saw at 13 months and

the fact he hadn’t laid eyes on the child since he was 1 month!

Just say NO. this is your child. Not their child. Don’t do anything you

feel uncomfortable doing and don’t do shots until you do.. (and if you

never do, oh well. That’s even better).. it’s like Dave Ramsey says w/

investments: if the person can’t explain it and you can’t understand it,

don’t do it.

So why do we throw all that out the window when it comes to the doctor

opening their mouth? Do they really have any clue what is going on? No.

I’ve heard “I have no idea” from their lips WAY too many times to think

they’re God anymore! There is a reason they call it a “practice”.

Because they are.

Once you learn more, you won’t be afraid to NOT do the shots! Right now

your instincts and your common sense is kicking in and that is why you

are feeling scared to. Run with it and listen to that little internal

voice.

Nita, yes my hands are full, but not my heart: 14, Jon 12,

10, 8, 6, Christian (RIP: 7/16/03 to 8/22/04), 1,

and due 2/08

Some minds are like concrete:

Thoroughly mixed up and permanently set.

_,_._,___

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Checked by AVG Free Edition.

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9/18/2007 11:53 AM

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Checked by AVG Free Edition.

Version: 7.5.487 / Virus Database: 269.13.22/1015 - Release Date:

9/18/2007 11:53 AM

[Guest guest]

Dear confusedmomma-

I felt exactly the same way almost 2 years ago. My first daughter was

vaccinated until 18 months. I started questioning the doctor during the

course of her getting shots because it did not feel right. I then came

across info. on the website curezone.com that explained that vaccines are

not safe and can cause autism, among other things. You are right to follow

you instincts. The first book I started my research with is What your doctor

may not tell you about children's vaccinations. After that I read How to

raise a Healthy child in spite of your doctor. I then took Sheri Nakken's

vaccine course.

There is no safe age for vaccines and no safe vaccine.

Welcome and Good Luck!

Kim

[Guest guest]

Clarence E. Grim, BS, MS, MD

On Saturday, March 01, 2008, at 08:46PM, " timothy.corey "

<timothy.corey@...> wrote:

>Hi,

>

>I have some very basic questions I'm sure people have already answered. If you

could

>point me in the right direction that would be great. I was diagnosed with PA in

2006 and

>had surgery to remove my right adrenal. This was welcome news that the mystery

of my

>high BP was finally solved after seven years. I had doctors tell me to lose

weight and they

>kept trying multiple medications.

>

>My current doctor told me to exercise more. I did and for a year kept at it

(now four years)

>and lost 20lbs. My doctor sent me to a nephrologist and he figured it out. My

doctor was

>pretty embarassed that he didn't get it sooner. My bp is normal at 123/71 with

hyzaar as

>my only med now. I don't watch my salt intake but we eat pretty healthy.

If he did not tell you to DASH he is about 10 years behind the times.

>

>I was told if I keep losing weight and exercise I'll be fine. It would be great

to get off the

>last med. My bp is a good ten points over normal without it.

this helps very few people with difficult HTN.

>

>Questions:

>

>What is the cause of Conn's? Read my paper on evolution of PA. There are many

causes.

>

>Have people been able to get of meds with weight loss, exercise etc.? What else

could I

>do?

>

No almost all need to lower sodium intake and increase K intake. AKA DASHing.

>Do we know of any issues post surgery into the future for people with PA?

Yes. What exactly was the pathology of your gland. Plese get the path report

for your files and send to us as well.

Some will be cured for several years. Others will have HTN return as other gland

is almost always involved as well.

We are just uploading the abstracts on Conn's for the last year from Pub Med

that you can peruse.

Ask you surgeon how many he has followed for over 5 years and what his cure rate

has been. By cure we mean no

BP meds required.

BTW ARBS (HYZAAR) do not work in PA as your Dr must know. What was your post op

aldo and renin?

>

>I noticed a picture of a licorice tree on this site. Does licorice help with

BP?

No it increases it and can cause severe low K.

>

>

>Thanks

>

>

>Tim

>

>

>

>

>

[Guest guest]

HI (I'm assuming) Nichole

Welcome to our family group, we all would love to hear about Colby. I'm Kathy

mom to a 16 yr old daughter with DS ............ she would tell you she's 16 and

1/2 17 in Nov. lol I am in TN so I can't help you with the playgroup thing.

Kathy mom to Sara 16.5 lol

From: nichole standridge

Sent: Tuesday, July 15, 2008 6:16 PM

Subject: new to this group

I am used to the NDSS discussion board so I'm still unsure how this one

works basically I have a 4 year old named colby who has downs also I

missed 3 years of his life do to some mistakes I made so there is alot

that I don't know I have been trying to play catch up for almost a year

now I live in the state of Washington and am looking for local people

that might know local resources play groups and such also i would just

love to get back into the comunity

[Guest guest]

Hi Nichole,

 

How are you?  I am glad you found this group.  This is a nice group of

people who are VERY friendly, welcoming, non-judgemental, knowledgeable and

experienced (and I wasn't even paid to say all that. lol!...It's so true!!!).  I

am new(er) to this world, too.  My son, Chase, is 19 months.  There is alot to

learn and much to grab hold of in the future (from how it seems to me. ).

I am glad you found us. 

Welcome Nichole and Colby!!!!!

Wife to Ted, mom to n (4/03) and Chase (11/06), Ds & recovered IS

 

 

new to this group

I am used to the NDSS discussion board so I'm still unsure how this one

works basically I have a 4 year old named colby who has downs also I

missed 3 years of his life do to some mistakes I made so there is alot

that I don't know I have been trying to play catch up for almost a year

now I live in the state of Washington and am looking for local people

that might know local resources play groups and such also i would just

love to get back into the comunity

[Guest guest]

Hi,

Welcome to the group! There are a lot of awesome moms and Grandmoms in the group. My son, Gabe, is 9 with autism, Apraxia speech disorder and Asthma. He was diagnosed at 7year old. We have an awesome team at his school and use a lot of social stories with his behaviors. He used to hit and throw a lot until just 6 month ago. Now we are working on his hurtful and destructive words with social stories.

New to this group

Hi everyone, my name is and I joined this group as part of an assignment for school. I am currently enrolled in the Educational Assistant program and would love the chance to learn from all of you about what strategies work for you, and even what doesn't. I am in the process of completing my placement where I am working in an elementary school with children with special needs, in particular autism. I love what I do and would love any advice from anyone. Thanks!

[Guest guest]

All the kids are different; The best thing for you to do would be to ask the parents what works with their child. With Karac, to prevent meltdowns, it helps to keep his mind occupied. Watch for signs of agitation and give him space. Always use a calm respectful voice. Never tell him no, but tell him what to do instead. i.e. rather than "no screaming" say, "be calm and quiet" He likes music and singing. All autistic kids are not visual learners. Karac is an auditory learner and the school made the mistake of using Pecs with him and almost eliminated his language. I taught Karac to read using Edmark. The school has finally learned that Karac likes words better than pictures; so they make his schedule with sentences. These kids can learn; find out how each child learns, be creative; teach them; love them, and they will bring you joy. Pat K

New to this group

Hi everyone, my name is and I joined this group as part of an assignment for school. I am currently enrolled in the Educational Assistant program and would love the chance to learn from all of you about what strategies work for you, and even what doesn't. I am in the process of completing my placement where I am working in an elementary school with children with special needs, in particular autism. I love what I do and would love any advice from anyone. Thanks!

[Guest guest]

Very good advice pat!!!!!! ((HUGS)) Lois

Re: New to this group

[Guest guest]

One of the things that I love about children with autism is that they are all so

different. Although it takes time to figure each one out, it is worth all of

your time and effort in the end when you are actually able to help them out. It

is a wonderful reward! I only started my placement a couple of weeks ago so the

first couple of days I spent mainly observing just to allow the children to get

to know me and get comfortable with me being around. I am working with children

with all different types of exceptionalities with autism being the largest

population. I love reading all of your stories and advice to one another. I

think it is great to have these groups available to talk to one another and

learn from one another!

>

> All the kids are different; The best thing for you to do would be to ask the

parents what works with their child. With Karac, to prevent meltdowns, it helps

to keep his mind occupied. Watch for signs of agitation and give him space.

Always use a calm respectful voice. Never tell him no, but tell him what to do

instead. i.e. rather than " no screaming " say, " be calm and quiet " He likes music

and singing. All autistic kids are not visual learners. Karac is an auditory

learner and the school made the mistake of using Pecs with him and almost

eliminated his language. I taught Karac to read using Edmark. The school has

finally learned that Karac likes words better than pictures; so they make his

schedule with sentences. These kids can learn; find out how each child learns,

be creative; teach them; love them, and they will bring you joy. Pat K

>

>

>

>

>

> New to this group

>

>

>

>

> Hi everyone, my name is and I joined this group as part of an assignment

for school. I am currently enrolled in the Educational Assistant program and

would love the chance to learn from all of you about what strategies work for

you, and even what doesn't. I am in the process of completing my placement where

I am working in an elementary school with children with special needs, in

particular autism. I love what I do and would love any advice from anyone.

Thanks!

>

[Guest guest]

Where are you from? Lois

Re: New to this group

[Guest guest]

Thanks Lois, how did hubby take the Cowboy loss? Did he think they should get rid of Wade?

Re: New to this group

Very good advice pat!!!!!! ((HUGS)) Lois

Re: New to this group

[Guest guest]

I think you will do well and your students will be blessed. Pat K

New to this group

>

>

>

>

> Hi everyone, my name is and I joined this group as part of an assignment for school. I am currently enrolled in the Educational Assistant program and would love the chance to learn from all of you about what strategies work for you, and even what doesn't. I am in the process of completing my placement where I am working in an elementary school with children with special needs, in particular autism. I love what I do and would love any advice from anyone. Thanks!

>

[Guest guest]

Pat,

Jake said that Wade makes the defense better. Jake said the offernisve line didn't protect Tony. The Other teams Defense was all over Tony. Jake said that Jerry just resigned Wade for next year. Lois (:

Re: New to this group

[Guest guest]

Welcome to the group, Donna! I have heard good things about TOPS. Yes, I know my emotions get tangled in food too. I look forward to getting to know you and cheer you on your journey!

From: Donna h

Sent: Wednesday, April 13, 2011 2:45 PM

100-plus

Subject: New to this group

Hi My name is Donna and I am new to this group. I have been trying to losweight for some time and do believe that I am an emotional eater. I preently beelong to TOPS and for a while I was doing ok and then I started to gain again. I dokeep afood journal but at times I go off it which knwo is not good. Today is the frst day to start over and I know that cando this and I willkeep trying. ------------------------------------

[Guest guest]

Welcome to the group Donna. My name is Stacey. I am mom to 5 kids. My dh and I are american but live overseas. Good luck on this journey! I had a great start and lost 20 pounds in the first 6 weeks of the year. I've kinda hit a plateau and need to step it up. I have 100 pounds to go. I look forward to getting to know you better. StaceySent from my BlackBerry® wireless device from STCFrom: "Donna h" <dhutchins44@...>Sender: 100-plus Date: Thu, 14 Apr 2011 00:45:48 -0000<100-plus >Reply 100-plus Subject: New to this group Hi My name is Donna and I am new to this group. I have been trying to losweight for some time and do believe that I am an emotional eater. I preently beelong to TOPS and for a while I was doing ok and then I started to gain again. I dokeep afood journal but at times I go off it which knwo is not good. Today is the frst day to start over and I know that cando this and I willkeep trying.