Re: Question for those with Fibromyalgia

[Guest guest]

Hi, Sue.

Low Dose Naltrexone is the highest patient-rated treatment for fibromyalgia on

the CureTogether.com site. Maybe it would help you.

There is information about it at www.low dose naltrexone.org.

Best regards,

Rich

>

> I've had Fibromyalgia and also CFS for over 25 years. The last year, the

muscle pain has gotten pretty bad. Has anyone experienced the feeling that your

insides are cramping? It's not just my back. It feels as if all of my organs

are cramping. It's nothing GI going on. It feels like cramping. Am I the only

one?

>

> What has helped you with your muscle pain and cramping?

>

> Thank you.

>

> Sue

>

[Guest guest]

What has helped me the most, and I've had Fibro since 1988, is a low oxalate

diet, no nitrates, no gluten, no sugar, no caffeine and also no artificial

flavors like those on chips etc. I take pro-biotics every day. Treating yeast

and taking Nystatin helps with food sensitivities which in turn helps with the

pain reaction from leaky gut. You MUST take a LOT of magnesium. That helps the

muscles in every way. Treating the adrenals by taking Cortef and cutting out the

caffeine have been huge in terms of energy. Also, I take an epsom salt bath

every other day and this helps when I feel " toxic " like I've had a night of

drinking but haven't. OH!! and two more recommendations - control the bugs with

herbals and I also take Molybdenum everyday.

Hope this helps.

 

________________________________

From: sb2boys <sb2boys@...>

Sent: Thursday, January 26, 2012 3:58 PM

Subject: Question for those with Fibromyalgia

 

I've had Fibromyalgia and also CFS for over 25 years. The last year, the muscle

pain has gotten pretty bad. Has anyone experienced the feeling that your

insides are cramping? It's not just my back. It feels as if all of my organs

are cramping. It's nothing GI going on. It feels like cramping. Am I the only

one?

What has helped you with your muscle pain and cramping?

Thank you.

Sue

[Guest guest]

I've experienced EXACTLY what you're describing. Unfortunately, the

only thing that helped me was oxycodone and later fentanyl. I've had

Fibromyalgia for as long as I can remember (since I was a toddler),

but I didn't develop CFS until a few years ago. I wish I had some

advise for you, but, sadly, I do not.

Steve M in PA

On Thu, Jan 26, 2012 at 3:58 PM, sb2boys <sb2boys@...> wrote:

I've had Fibromyalgia and also CFS for over 25 years.  The last year,

the muscle pain has gotten pretty bad.  Has anyone experienced the

feeling that your insides are cramping?  It's not just my back.  It

feels as if all of my organs are cramping.  It's nothing GI going on.

It feels like cramping.  Am I the only one?

What has helped you with your muscle pain and cramping?

Thank you.

Sue