Re: New from India. Want to know about hypercoagulation.

[Guest guest]

The ISAC hypercoagulation panel is only run by one lab in the USA -

Esoterix (they are a subsidiary of Labcorp). The panel has specific

requirements including 1 tube of blood must arrive fresh (not frozen)

w/in 24 hours.

I was dx'd w/hpercoagulation in 2006 when Berg was still

processing the test @ Hemex. Do a Google search for * Berg Hemex

hypercoagulation* and you willl find some good articles.

If I were you I would just start taking Nattokinase. I take 2,000 FU

3 times a day - Doctor's Best brand from iherb.com. It only costs

about $15 a month.

Kendra

On 12/29/11, Deepak <deepak0625@...> wrote:

> Hello to all,

>

> Just joined this group.

>

> I am 40 years old male in India and since this year have been having most of

> the symptoms of fibromyalgia and cfs. All tests come normal and doctors

> think I am some crazy person, which is extremely frustrating.

>

> I have been reading some posts on hyper coagulation and I feel I may be

> having this problem as my fingers feel swollen and if i press them a bit the

> blood seems to be moving slower than it used to. Last week my finger

> suddenly developed a cut and started to bleed even though I dont remember

> having had any injury ( only reason I could come up with is the cold weather

> ) Also, if I lie down for a while with head pressed - the side its pressed

> feels all cold. So I am guessing its some circulation problem. Also I get

> these poky, wiry feeling in my fingers and weird sensations in my scalp like

> crawly, wiry, scratch, " pull " , etc.

>

> Could I please get some advise on what are tests I can do here to figure out

> if I indeed have hypercoagulation. Somehow I intuitively feel I do but

> dont know what to do. My ESR rate is 8, in case that helps.

>

> Can I just start taking Nattokinase and see how I feel with it ? Where can

> I order it from ?

>

> God Bless us all.

>

> With love,

> Deepak

>

>

>

> ------------------------------------

>

> This list is intended for patients to share personal experiences with each

> other, not to give medical advice. If you are interested in any treatment

> discussed here, please consult your doctor.

[Guest guest]

Thank you Kendra. I appreciate your help:) God bless.

I got a standard coagulation profile done here yesterday and these are the

results.

*Fibrinogen, Plasma 342 ( Ref range 200-400 )

aPTT 27.70 ( Ref range 30-40 seconds) *

Prothrombin time 13 ( Ref range 11-16 seconds)

PT INT value 1 ( Standard therapy INR 2-3 )

Dr has some interesting things to say about Fibrinogen and aPTT.

" Most laboratories report a normal range for Fibrinogen of 200-400 or

higher. The real range should be 200-300. Ours goes up to 315mg/dl. Most

labs don't want to deal with minor elevations in results, so they increase

the acceptable range a little. That is why patients with activated coag

systems have minor fibrinogen elevations which are very significant to us

but not to the physicians who routinely see higher normal ranges. "

" Standard coagulation workup " would NOT show any abnormalities unless the

aPTT was BELOW the normal range, which indicates a hypercoag condition, but

docs are not taught this information. The ISAC panel is like 10 - 20 times

as sensitive as the standard screening tests. "

Seems I might have this hypercoagulation problem

Would you say Dr Goldberg is amongst the best in this area of treatment. I

am eager then to maybe visit him in USA and cure myself.

I want to start Nattokinase right away. Which is the best brand to buy ?

And what would be a good dosage and also, do I need to take any precautions

while on it?

God bless all.

Deepak.

On Sat, Dec 31, 2011 at 10:09 AM, Kendra <KCuyler@...> wrote:

> **

>

>

> The ISAC hypercoagulation panel is only run by one lab in the USA -

> Esoterix (they are a subsidiary of Labcorp). The panel has specific

> requirements including 1 tube of blood must arrive fresh (not frozen)

> w/in 24 hours.

>

> I was dx'd w/hpercoagulation in 2006 when Berg was still

> processing the test @ Hemex. Do a Google search for * Berg Hemex

> hypercoagulation* and you willl find some good articles.

>

> If I were you I would just start taking Nattokinase. I take 2,000 FU

> 3 times a day - Doctor's Best brand from iherb.com. It only costs

> about $15 a month.

>

> Kendra

>

>

> On 12/29/11, Deepak <deepak0625@...> wrote:

> > Hello to all,

> >

> > Just joined this group.

> >

> > I am 40 years old male in India and since this year have been having

> most of

> > the symptoms of fibromyalgia and cfs. All tests come normal and doctors

> > think I am some crazy person, which is extremely frustrating.

> >

> > I have been reading some posts on hyper coagulation and I feel I may be

> > having this problem as my fingers feel swollen and if i press them a bit

> the

> > blood seems to be moving slower than it used to. Last week my finger

> > suddenly developed a cut and started to bleed even though I dont remember

> > having had any injury ( only reason I could come up with is the cold

> weather

> > ) Also, if I lie down for a while with head pressed - the side its

> pressed

> > feels all cold. So I am guessing its some circulation problem. Also I get

> > these poky, wiry feeling in my fingers and weird sensations in my scalp

> like

> > crawly, wiry, scratch, " pull " , etc.

> >

> > Could I please get some advise on what are tests I can do here to figure

> out

> > if I indeed have hypercoagulation. Somehow I intuitively feel I do but

> > dont know what to do. My ESR rate is 8, in case that helps.

> >

> > Can I just start taking Nattokinase and see how I feel with it ? Where

> can

> > I order it from ?

> >

> > God Bless us all.

> >

> > With love,

> > Deepak

> >

> >

> >

> > ------------------------------------

>

> >

> > This list is intended for patients to share personal experiences with

> each

> > other, not to give medical advice. If you are interested in any treatment

> > discussed here, please consult your doctor.

[Guest guest]

Dear Deepak

I'm glad you were able to get a test. In my experience the

Nattokinase is very safe. I buy Doctor's Best brand - 2,000 FU (that

is the strength) - the dosage is 3 times per day - about every 8 hours

(more or less). I buy it at www.iherb.com for about $15 for 90

capsules. They also sell 270 caps for about $39.

I can tell when it wears off because my feet get much colder - that

is my sign. But even though natto makes me feel better my blood is

still too thick. So, I'm thinking of adding lumbrokinase - it is a

little more expensive.

You need ot figure out what is triggering the hypercoagulation and

address that issue. If you can't do that then the natto is just

giving symptom relief. But, so far that's the best I can manage. I

need oral surgery but don't have dental insurance.

Warmest regards,

Kendra

On 1/1/12, Deepak L <deepak0625@...> wrote:

> Thank you Kendra. I appreciate your help:) God bless.

>

>

> I got a standard coagulation profile done here yesterday and these are the

> results.

>

>

> *Fibrinogen, Plasma 342 ( Ref range 200-400 )

>

> aPTT 27.70 ( Ref range 30-40 seconds) *

>

> Prothrombin time 13 ( Ref range 11-16 seconds)

>

> PT INT value 1 ( Standard therapy INR 2-3 )

>

>

> Dr has some interesting things to say about Fibrinogen and aPTT.

>

> " Most laboratories report a normal range for Fibrinogen of 200-400 or

> higher. The real range should be 200-300. Ours goes up to 315mg/dl. Most

> labs don't want to deal with minor elevations in results, so they increase

> the acceptable range a little. That is why patients with activated coag

> systems have minor fibrinogen elevations which are very significant to us

> but not to the physicians who routinely see higher normal ranges. "

>

> " Standard coagulation workup " would NOT show any abnormalities unless the

> aPTT was BELOW the normal range, which indicates a hypercoag condition, but

> docs are not taught this information. The ISAC panel is like 10 - 20 times

> as sensitive as the standard screening tests. "

>

> Seems I might have this hypercoagulation problem

>

> Would you say Dr Goldberg is amongst the best in this area of treatment. I

> am eager then to maybe visit him in USA and cure myself.

>

> I want to start Nattokinase right away. Which is the best brand to buy ?

> And what would be a good dosage and also, do I need to take any precautions

> while on it?

>

> God bless all.

>

> Deepak.

>

>

> On Sat, Dec 31, 2011 at 10:09 AM, Kendra <KCuyler@...> wrote:

>

>> **

>>

>>

>> The ISAC hypercoagulation panel is only run by one lab in the USA -

>> Esoterix (they are a subsidiary of Labcorp). The panel has specific

>> requirements including 1 tube of blood must arrive fresh (not frozen)

>> w/in 24 hours.

>>

>> I was dx'd w/hpercoagulation in 2006 when Berg was still

>> processing the test @ Hemex. Do a Google search for * Berg Hemex

>> hypercoagulation* and you willl find some good articles.

>>

>> If I were you I would just start taking Nattokinase. I take 2,000 FU

>> 3 times a day - Doctor's Best brand from iherb.com. It only costs

>> about $15 a month.

>>

>> Kendra

>>

>>

>> On 12/29/11, Deepak <deepak0625@...> wrote:

>> > Hello to all,

>> >

>> > Just joined this group.

>> >

>> > I am 40 years old male in India and since this year have been having

>> most of

>> > the symptoms of fibromyalgia and cfs. All tests come normal and doctors

>> > think I am some crazy person, which is extremely frustrating.

>> >

>> > I have been reading some posts on hyper coagulation and I feel I may be

>> > having this problem as my fingers feel swollen and if i press them a bit

>> the

>> > blood seems to be moving slower than it used to. Last week my finger

>> > suddenly developed a cut and started to bleed even though I dont

>> > remember

>> > having had any injury ( only reason I could come up with is the cold

>> weather

>> > ) Also, if I lie down for a while with head pressed - the side its

>> pressed

>> > feels all cold. So I am guessing its some circulation problem. Also I

>> > get

>> > these poky, wiry feeling in my fingers and weird sensations in my scalp

>> like

>> > crawly, wiry, scratch, " pull " , etc.

>> >

>> > Could I please get some advise on what are tests I can do here to figure

>> out

>> > if I indeed have hypercoagulation. Somehow I intuitively feel I do but

>> > dont know what to do. My ESR rate is 8, in case that helps.

>> >

>> > Can I just start taking Nattokinase and see how I feel with it ? Where

>> can

>> > I order it from ?

>> >

>> > God Bless us all.

>> >

>> > With love,

>> > Deepak

>> >

>> >

>> >

>> > ------------------------------------

>>

>> >

>> > This list is intended for patients to share personal experiences with

>> each

>> > other, not to give medical advice. If you are interested in any

>> > treatment

>> > discussed here, please consult your doctor.

[Guest guest]

Thanks Kendra.

Do you have any thoughts on my test results ??

Love,

Deepak

On Sun, Jan 1, 2012 at 11:48 AM, Kendra <KCuyler@...> wrote:

> **

>

>

> Dear Deepak

>

> I'm glad you were able to get a test. In my experience the

> Nattokinase is very safe. I buy Doctor's Best brand - 2,000 FU (that

> is the strength) - the dosage is 3 times per day - about every 8 hours

> (more or less). I buy it at www.iherb.com for about $15 for 90

> capsules. They also sell 270 caps for about $39.

>

> I can tell when it wears off because my feet get much colder - that

> is my sign. But even though natto makes me feel better my blood is

> still too thick. So, I'm thinking of adding lumbrokinase - it is a

> little more expensive.

>

> You need ot figure out what is triggering the hypercoagulation and

> address that issue. If you can't do that then the natto is just

> giving symptom relief. But, so far that's the best I can manage. I

> need oral surgery but don't have dental insurance.

>

> Warmest regards,

> Kendra

>

>

> On 1/1/12, Deepak L <deepak0625@...> wrote:

> > Thank you Kendra. I appreciate your help:) God bless.

> >

> >

> > I got a standard coagulation profile done here yesterday and these are

> the

> > results.

> >

> >

> > *Fibrinogen, Plasma 342 ( Ref range 200-400 )

> >

> > aPTT 27.70 ( Ref range 30-40 seconds) *

>

> >

> > Prothrombin time 13 ( Ref range 11-16 seconds)

> >

> > PT INT value 1 ( Standard therapy INR 2-3 )

> >

> >

> > Dr has some interesting things to say about Fibrinogen and aPTT.

> >

> > " Most laboratories report a normal range for Fibrinogen of 200-400 or

> > higher. The real range should be 200-300. Ours goes up to 315mg/dl. Most

> > labs don't want to deal with minor elevations in results, so they

> increase

> > the acceptable range a little. That is why patients with activated coag

> > systems have minor fibrinogen elevations which are very significant to us

> > but not to the physicians who routinely see higher normal ranges. "

> >

> > " Standard coagulation workup " would NOT show any abnormalities unless the

> > aPTT was BELOW the normal range, which indicates a hypercoag condition,

> but

> > docs are not taught this information. The ISAC panel is like 10 - 20

> times

> > as sensitive as the standard screening tests. "

> >

> > Seems I might have this hypercoagulation problem

> >

> > Would you say Dr Goldberg is amongst the best in this area of treatment.

> I

> > am eager then to maybe visit him in USA and cure myself.

> >

> > I want to start Nattokinase right away. Which is the best brand to buy ?

> > And what would be a good dosage and also, do I need to take any

> precautions

> > while on it?

> >

> > God bless all.

> >

> > Deepak.

> >

> >

> > On Sat, Dec 31, 2011 at 10:09 AM, Kendra <KCuyler@...> wrote:

> >

> >> **

>

> >>

> >>

> >> The ISAC hypercoagulation panel is only run by one lab in the USA -

> >> Esoterix (they are a subsidiary of Labcorp). The panel has specific

> >> requirements including 1 tube of blood must arrive fresh (not frozen)

> >> w/in 24 hours.

> >>

> >> I was dx'd w/hpercoagulation in 2006 when Berg was still

> >> processing the test @ Hemex. Do a Google search for * Berg Hemex

> >> hypercoagulation* and you willl find some good articles.

> >>

> >> If I were you I would just start taking Nattokinase. I take 2,000 FU

> >> 3 times a day - Doctor's Best brand from iherb.com. It only costs

> >> about $15 a month.

> >>

> >> Kendra

> >>

> >>

> >> On 12/29/11, Deepak <deepak0625@...> wrote:

> >> > Hello to all,

> >> >

> >> > Just joined this group.

> >> >

> >> > I am 40 years old male in India and since this year have been having

> >> most of

> >> > the symptoms of fibromyalgia and cfs. All tests come normal and

> doctors

> >> > think I am some crazy person, which is extremely frustrating.

> >> >

> >> > I have been reading some posts on hyper coagulation and I feel I may

> be

> >> > having this problem as my fingers feel swollen and if i press them a

> bit

> >> the

> >> > blood seems to be moving slower than it used to. Last week my finger

> >> > suddenly developed a cut and started to bleed even though I dont

> >> > remember

> >> > having had any injury ( only reason I could come up with is the cold

> >> weather

> >> > ) Also, if I lie down for a while with head pressed - the side its

> >> pressed

> >> > feels all cold. So I am guessing its some circulation problem. Also I

> >> > get

> >> > these poky, wiry feeling in my fingers and weird sensations in my

> scalp

> >> like

> >> > crawly, wiry, scratch, " pull " , etc.

> >> >

> >> > Could I please get some advise on what are tests I can do here to

> figure

> >> out

> >> > if I indeed have hypercoagulation. Somehow I intuitively feel I do but

> >> > dont know what to do. My ESR rate is 8, in case that helps.

> >> >

> >> > Can I just start taking Nattokinase and see how I feel with it ? Where

> >> can

> >> > I order it from ?

> >> >

> >> > God Bless us all.

> >> >

> >> > With love,

> >> > Deepak

> >> >

> >> >

> >> >

> >> > ------------------------------------

> >>

> >> >

> >> > This list is intended for patients to share personal experiences with

> >> each

> >> > other, not to give medical advice. If you are interested in any

> >> > treatment

> >> > discussed here, please consult your doctor.

[Guest guest]

Kendra, did you have any tests to know your blood is too thick ??

On Sun, Jan 1, 2012 at 5:33 PM, Deepak L <deepak0625@...> wrote:

> Thanks Kendra.

>

> Do you have any thoughts on my test results ??

>

> Love,

> Deepak

>

>

> On Sun, Jan 1, 2012 at 11:48 AM, Kendra <KCuyler@...> wrote:

>

>> **

>>

>>

>> Dear Deepak

>>

>> I'm glad you were able to get a test. In my experience the

>> Nattokinase is very safe. I buy Doctor's Best brand - 2,000 FU (that

>> is the strength) - the dosage is 3 times per day - about every 8 hours

>> (more or less). I buy it at www.iherb.com for about $15 for 90

>> capsules. They also sell 270 caps for about $39.

>>

>> I can tell when it wears off because my feet get much colder - that

>> is my sign. But even though natto makes me feel better my blood is

>> still too thick. So, I'm thinking of adding lumbrokinase - it is a

>> little more expensive.

>>

>> You need ot figure out what is triggering the hypercoagulation and

>> address that issue. If you can't do that then the natto is just

>> giving symptom relief. But, so far that's the best I can manage. I

>> need oral surgery but don't have dental insurance.

>>

>> Warmest regards,

>> Kendra

>>

>>

>> On 1/1/12, Deepak L <deepak0625@...> wrote:

>> > Thank you Kendra. I appreciate your help:) God bless.

>> >

>> >

>> > I got a standard coagulation profile done here yesterday and these are

>> the

>> > results.

>> >

>> >

>> > *Fibrinogen, Plasma 342 ( Ref range 200-400 )

>> >

>> > aPTT 27.70 ( Ref range 30-40 seconds) *

>>

>> >

>> > Prothrombin time 13 ( Ref range 11-16 seconds)

>> >

>> > PT INT value 1 ( Standard therapy INR 2-3 )

>> >

>> >

>> > Dr has some interesting things to say about Fibrinogen and aPTT.

>> >

>> > " Most laboratories report a normal range for Fibrinogen of 200-400 or

>> > higher. The real range should be 200-300. Ours goes up to 315mg/dl. Most

>> > labs don't want to deal with minor elevations in results, so they

>> increase

>> > the acceptable range a little. That is why patients with activated coag

>> > systems have minor fibrinogen elevations which are very significant to

>> us

>> > but not to the physicians who routinely see higher normal ranges. "

>> >

>> > " Standard coagulation workup " would NOT show any abnormalities unless

>> the

>> > aPTT was BELOW the normal range, which indicates a hypercoag condition,

>> but

>> > docs are not taught this information. The ISAC panel is like 10 - 20

>> times

>> > as sensitive as the standard screening tests. "

>> >

>> > Seems I might have this hypercoagulation problem

>> >

>> > Would you say Dr Goldberg is amongst the best in this area of

>> treatment. I

>> > am eager then to maybe visit him in USA and cure myself.

>> >

>> > I want to start Nattokinase right away. Which is the best brand to buy ?

>> > And what would be a good dosage and also, do I need to take any

>> precautions

>> > while on it?

>> >

>> > God bless all.

>> >

>> > Deepak.

>> >

>> >

>> > On Sat, Dec 31, 2011 at 10:09 AM, Kendra <KCuyler@...> wrote:

>> >

>> >> **

>>

>> >>

>> >>

>> >> The ISAC hypercoagulation panel is only run by one lab in the USA -

>> >> Esoterix (they are a subsidiary of Labcorp). The panel has specific

>> >> requirements including 1 tube of blood must arrive fresh (not frozen)

>> >> w/in 24 hours.

>> >>

>> >> I was dx'd w/hpercoagulation in 2006 when Berg was still

>> >> processing the test @ Hemex. Do a Google search for * Berg Hemex

>> >> hypercoagulation* and you willl find some good articles.

>> >>

>> >> If I were you I would just start taking Nattokinase. I take 2,000 FU

>> >> 3 times a day - Doctor's Best brand from iherb.com. It only costs

>> >> about $15 a month.

>> >>

>> >> Kendra

>> >>

>> >>

>> >> On 12/29/11, Deepak <deepak0625@...> wrote:

>> >> > Hello to all,

>> >> >

>> >> > Just joined this group.

>> >> >

>> >> > I am 40 years old male in India and since this year have been having

>> >> most of

>> >> > the symptoms of fibromyalgia and cfs. All tests come normal and

>> doctors

>> >> > think I am some crazy person, which is extremely frustrating.

>> >> >

>> >> > I have been reading some posts on hyper coagulation and I feel I may

>> be

>> >> > having this problem as my fingers feel swollen and if i press them a

>> bit

>> >> the

>> >> > blood seems to be moving slower than it used to. Last week my finger

>> >> > suddenly developed a cut and started to bleed even though I dont

>> >> > remember

>> >> > having had any injury ( only reason I could come up with is the cold

>> >> weather

>> >> > ) Also, if I lie down for a while with head pressed - the side its

>> >> pressed

>> >> > feels all cold. So I am guessing its some circulation problem. Also I

>> >> > get

>> >> > these poky, wiry feeling in my fingers and weird sensations in my

>> scalp

>> >> like

>> >> > crawly, wiry, scratch, " pull " , etc.

>> >> >

>> >> > Could I please get some advise on what are tests I can do here to

>> figure

>> >> out

>> >> > if I indeed have hypercoagulation. Somehow I intuitively feel I do

>> but

>> >> > dont know what to do. My ESR rate is 8, in case that helps.

>> >> >

>> >> > Can I just start taking Nattokinase and see how I feel with it ?

>> Where

>> >> can

>> >> > I order it from ?

>> >> >

>> >> > God Bless us all.

>> >> >

>> >> > With love,

>> >> > Deepak

>> >> >

>> >> >

>> >> >

>> >> > ------------------------------------

>> >>

>> >> >

>> >> > This list is intended for patients to share personal experiences with

>> >> each

>> >> > other, not to give medical advice. If you are interested in any

>> >> > treatment

>> >> > discussed here, please consult your doctor.

[Guest guest]

Hi Deepak,

 

You may want to google FL1953, recently named protomyxozoa to familiarize

yourself with this possibility as the cause of your coagulation.  It is a

malaria-like protozoan spread by mosquito, tick, and flea bites.  Dr.

Fry, founder of Fry Laboratories, discovered it.  It hides in biofilm in blood

vessels. 

 

Dr. Fry and Berg were among the small group considered biofilm and

coagulation experts who shared information at last year's Washington DC biofilm

and coagulation conference.  Dr. Fry considers CFS to be a vascular disease

of blood vessels clogged with biofilm including those that carry blood from

the head to the heart. 

 

Like you, I have experienced head aches and unusual uncomfortable head

sensations and symptoms since my CFS onset that could be due to clogged blood

vessels impeding blood flow. 

 

All the best to you,

Kay  

________________________________

 

You need ot figure out what is triggering the hypercoagulation and

address that issue. If you can't do that then the natto is just

giving symptom relief. But, so far that's the best I can manage. I

need oral surgery but don't have dental insurance.

Warmest regards,

Kendra

On 1/1/12, Deepak L <deepak0625@...> wrote:

> Thank you Kendra. I appreciate your help:) God bless.

>

>

> I got a standard coagulation profile done here yesterday and these are the

> results.

>

>

> *Fibrinogen, Plasma 342 ( Ref range 200-400 )

>

> aPTT 27.70 ( Ref range 30-40 seconds) *

>

> Prothrombin time 13 ( Ref range 11-16 seconds)

>

> PT INT value 1 ( Standard therapy INR 2-3 )

>

>

> Dr has some interesting things to say about Fibrinogen and aPTT.

>

> " Most laboratories report a normal range for Fibrinogen of 200-400 or

> higher. The real range should be 200-300. Ours goes up to 315mg/dl. Most

> labs don't want to deal with minor elevations in results, so they increase

> the acceptable range a little. That is why patients with activated coag

> systems have minor fibrinogen elevations which are very significant to us

> but not to the physicians who routinely see higher normal ranges. "

>

> " Standard coagulation workup " would NOT show any abnormalities unless the

> aPTT was BELOW the normal range, which indicates a hypercoag condition, but

> docs are not taught this information. The ISAC panel is like 10 - 20 times

> as sensitive as the standard screening tests. "

>

> Seems I might have this hypercoagulation problem

>

> Would you say Dr Goldberg is amongst the best in this area of treatment. I

> am eager then to maybe visit him in USA and cure myself.

>

> I want to start Nattokinase right away. Which is the best brand to buy ?

> And what would be a good dosage and also, do I need to take any precautions

> while on it?

>

> God bless all.

>

> Deepak.

>

>

> On Sat, Dec 31, 2011 at 10:09 AM, Kendra <KCuyler@...> wrote:

>

>> **

>>

>>

>> The ISAC hypercoagulation panel is only run by one lab in the USA -

>> Esoterix (they are a subsidiary of Labcorp). The panel has specific

>> requirements including 1 tube of blood must arrive fresh (not frozen)

>> w/in 24 hours.

>>

>> I was dx'd w/hpercoagulation in 2006 when Berg was still

>> processing the test @ Hemex. Do a Google search for * Berg Hemex

>> hypercoagulation* and you willl find some good articles.

>>

>> If I were you I would just start taking Nattokinase. I take 2,000 FU

>> 3 times a day - Doctor's Best brand from iherb.com. It only costs

>> about $15 a month.

>>

>> Kendra

>>

>>

>> On 12/29/11, Deepak <deepak0625@...> wrote:

>> > Hello to all,

>> >

>> > Just joined this group.

>> >

>> > I am 40 years old male in India and since this year have been having

>> most of

>> > the symptoms of fibromyalgia and cfs. All tests come normal and doctors

>> > think I am some crazy person, which is extremely frustrating.

>> >

>> > I have been reading some posts on hyper coagulation and I feel I may be

>> > having this problem as my fingers feel swollen and if i press them a bit

>> the

>> > blood seems to be moving slower than it used to. Last week my finger

>> > suddenly developed a cut and started to bleed even though I dont

>> > remember

>> > having had any injury ( only reason I could come up with is the cold

>> weather

>> > ) Also, if I lie down for a while with head pressed - the side its

>> pressed

>> > feels all cold. So I am guessing its some circulation problem. Also I

>> > get

>> > these poky, wiry feeling in my fingers and weird sensations in my scalp

>> like

>> > crawly, wiry, scratch, " pull " , etc.

>> >

>> > Could I please get some advise on what are tests I can do here to figure

>> out

>> > if I indeed have hypercoagulation. Somehow I intuitively feel I do but

>> > dont know what to do. My ESR rate is 8, in case that helps.

>> >

>> > Can I just start taking Nattokinase and see how I feel with it ? Where

>> can

>> > I order it from ?

>> >

>> > God Bless us all.

>> >

>> > With love,

>> > Deepak

>> >

>> >

>> >

>> > ------------------------------------

>>

>> >

>> > This list is intended for patients to share personal experiences with

>> each

>> > other, not to give medical advice. If you are interested in any

>> > treatment

>> > discussed here, please consult your doctor.

[Guest guest]

Hi Kay,

Thanks for the info. Did you test for FL1953 ? I am not sure if we have

this testing here in India.

Did anything help you for the head sensations and are you taking any

anticoagulants ??

Regards,

Deepak

On Sun, Jan 1, 2012 at 10:47 PM, Kay Siegrist <ksiegr@...> wrote:

> **

>

>

> Hi Deepak,

>

> You may want to google FL1953, recently named protomyxozoa to familiarize

> yourself with this possibility as the cause of your coagulation. It is a

> malaria-like protozoan spread by mosquito, tick, and flea bites. Dr.

> Fry, founder of Fry Laboratories, discovered it. It hides in

> biofilm in blood vessels.

>

> Dr. Fry and Berg were among the small group considered biofilm and

> coagulation experts who shared information at last year's Washington DC

> biofilm and coagulation conference. Dr. Fry considers CFS to be a vascular

> disease of blood vessels clogged with biofilm including those that carry

> blood from the head to the heart.

>

> Like you, I have experienced head aches and unusual uncomfortable head

> sensations and symptoms since my CFS onset that could be due to clogged

> blood vessels impeding blood flow.

>

> All the best to you,

> Kay

>

>

> ________________________________

>

>

>

> You need ot figure out what is triggering the hypercoagulation and

> address that issue. If you can't do that then the natto is just

> giving symptom relief. But, so far that's the best I can manage. I

> need oral surgery but don't have dental insurance.

>

> Warmest regards,

> Kendra

>

> On 1/1/12, Deepak L <deepak0625@...> wrote:

> > Thank you Kendra. I appreciate your help:) God bless.

> >

> >

> > I got a standard coagulation profile done here yesterday and these are

> the

> > results.

> >

> >

> > *Fibrinogen, Plasma 342 ( Ref range 200-400 )

> >

> > aPTT 27.70 ( Ref range 30-40 seconds) *

> >

> > Prothrombin time 13 ( Ref range 11-16 seconds)

> >

> > PT INT value 1 ( Standard therapy INR 2-3 )

> >

> >

> > Dr has some interesting things to say about Fibrinogen and aPTT.

> >

> > " Most laboratories report a normal range for Fibrinogen of 200-400 or

> > higher. The real range should be 200-300. Ours goes up to 315mg/dl. Most

> > labs don't want to deal with minor elevations in results, so they

> increase

> > the acceptable range a little. That is why patients with activated coag

> > systems have minor fibrinogen elevations which are very significant to us

> > but not to the physicians who routinely see higher normal ranges. "

> >

> > " Standard coagulation workup " would NOT show any abnormalities unless the

> > aPTT was BELOW the normal range, which indicates a hypercoag condition,

> but

> > docs are not taught this information. The ISAC panel is like 10 - 20

> times

> > as sensitive as the standard screening tests. "

> >

> > Seems I might have this hypercoagulation problem

> >

> > Would you say Dr Goldberg is amongst the best in this area of treatment.

> I

> > am eager then to maybe visit him in USA and cure myself.

> >

> > I want to start Nattokinase right away. Which is the best brand to buy ?

> > And what would be a good dosage and also, do I need to take any

> precautions

> > while on it?

> >

> > God bless all.

> >

> > Deepak.

> >

> >

> > On Sat, Dec 31, 2011 at 10:09 AM, Kendra <KCuyler@...> wrote:

> >

> >> **

> >>

> >>

> >> The ISAC hypercoagulation panel is only run by one lab in the USA -

> >> Esoterix (they are a subsidiary of Labcorp). The panel has specific

> >> requirements including 1 tube of blood must arrive fresh (not frozen)

> >> w/in 24 hours.

> >>

> >> I was dx'd w/hpercoagulation in 2006 when Berg was still

> >> processing the test @ Hemex. Do a Google search for * Berg Hemex

> >> hypercoagulation* and you willl find some good articles.

> >>

> >> If I were you I would just start taking Nattokinase. I take 2,000 FU

> >> 3 times a day - Doctor's Best brand from iherb.com. It only costs

> >> about $15 a month.

> >>

> >> Kendra

> >>

> >>

> >> On 12/29/11, Deepak <deepak0625@...> wrote:

> >> > Hello to all,

> >> >

> >> > Just joined this group.

> >> >

> >> > I am 40 years old male in India and since this year have been having

> >> most of

> >> > the symptoms of fibromyalgia and cfs. All tests come normal and

> doctors

> >> > think I am some crazy person, which is extremely frustrating.

> >> >

> >> > I have been reading some posts on hyper coagulation and I feel I may

> be

> >> > having this problem as my fingers feel swollen and if i press them a

> bit

> >> the

> >> > blood seems to be moving slower than it used to. Last week my finger

> >> > suddenly developed a cut and started to bleed even though I dont

> >> > remember

> >> > having had any injury ( only reason I could come up with is the cold

> >> weather

> >> > ) Also, if I lie down for a while with head pressed - the side its

> >> pressed

> >> > feels all cold. So I am guessing its some circulation problem. Also I

> >> > get

> >> > these poky, wiry feeling in my fingers and weird sensations in my

> scalp

> >> like

> >> > crawly, wiry, scratch, " pull " , etc.

> >> >

> >> > Could I please get some advise on what are tests I can do here to

> figure

> >> out

> >> > if I indeed have hypercoagulation. Somehow I intuitively feel I do but

> >> > dont know what to do. My ESR rate is 8, in case that helps.

> >> >

> >> > Can I just start taking Nattokinase and see how I feel with it ? Where

> >> can

> >> > I order it from ?

> >> >

> >> > God Bless us all.

> >> >

> >> > With love,

> >> > Deepak

> >> >

> >> >

> >> >

> >> > ------------------------------------

> >>

> >> >

> >> > This list is intended for patients to share personal experiences with

> >> each

> >> > other, not to give medical advice. If you are interested in any

> >> > treatment

> >> > discussed here, please consult your doctor.

[Guest guest]

berg told me I had massive fibrin problems based on my esoterix labs. He

said the infection was causing the fibrin..but he said I did not have hypercoag

per se.. my body was just working overtime to break down the fibrin.

I really wonder about this Fry protozoa...There always seems to be another

bug...

Sorry.. just weary of the ever moving goal posts.

Still haven't found a txtment for my fibrin issue. 40mg of lumbrokinase helps

but causes too much of a herx or reaction.

> >> > Hello to all,

> >> >

> >> > Just joined this group.

> >> >

> >> > I am 40 years old male in India and since this year have been having

> >> most of

> >> > the symptoms of fibromyalgia and cfs. All tests come normal and doctors

> >> > think I am some crazy person, which is extremely frustrating.

> >> >

> >> > I have been reading some posts on hyper coagulation and I feel I may be

> >> > having this problem as my fingers feel swollen and if i press them a bit

> >> the

> >> > blood seems to be moving slower than it used to. Last week my finger

> >> > suddenly developed a cut and started to bleed even though I dont

> >> > remember

> >> > having had any injury ( only reason I could come up with is the cold

> >> weather

> >> > ) Also, if I lie down for a while with head pressed - the side its

> >> pressed

> >> > feels all cold. So I am guessing its some circulation problem. Also I

> >> > get

> >> > these poky, wiry feeling in my fingers and weird sensations in my scalp

> >> like

> >> > crawly, wiry, scratch, " pull " , etc.

> >> >

> >> > Could I please get some advise on what are tests I can do here to figure

> >> out

> >> > if I indeed have hypercoagulation. Somehow I intuitively feel I do but

> >> > dont know what to do. My ESR rate is 8, in case that helps.

> >> >

> >> > Can I just start taking Nattokinase and see how I feel with it ? Where

> >> can

> >> > I order it from ?

> >> >

> >> > God Bless us all.

> >> >

> >> > With love,

> >> > Deepak

> >> >

> >> >

> >> >

> >> > ------------------------------------

> >>

> >> >

> >> > This list is intended for patients to share personal experiences with

> >> each

> >> > other, not to give medical advice. If you are interested in any

> >> > treatment

> >> > discussed here, please consult your doctor.