Re: Re: Elavil or amytriptaline

[Guest guest]

i too take a high dose (225mg) each night to sleep. been on it for 15 years.

[Guest guest]

I tried a related drug, imipramine. Couldn't tolerate it at a fraction of the

dose. Woke up the first night with tachycardia. But I generally do poorly with

pharmaceuticals.

Ellen

> I am wondering if amytriptaline (sp) at 5 mg. has been helpful for anyone

> during severe relapse or is it just tricking the body/brain into only

> thinking it is feeling better and essentially robbing peter to pay paul. I

> am desperate with pain, nausea and malaise after hysterectomy but been in

> severe relapse- getting worse for 3 months leading up to this major surgery.

>

> Thank you so much, might have trouble responding back as bed laptop not

> scrolling my gmail acct. since they made changes and can't really be up.

> Robbi

[Guest guest]

Thank you so much for this information, Jane and everyone.

Yesterday the surgeon told me she'd never seen another patient with the leg

and groin pain and numbness I have, which I find hard to believe. She wants

to refer me to physical therapy--and I am too sick to even be out of bed.

Now I am afraid I have healed with pinched nerves and the pain won't ever

go away. Yesterday I had hope of being reassured. Now, I am lost, as

usual, with no idea what will happen.

Jane, my dog and cats are my best companions too. Thank you for sharing

your story. I will have to hang onto the hope that I will at least get back

to feeling a little bit better than I do now. That's about all I have.

Best wishes and love to all, Robbi

On Fri, Dec 30, 2011 at 8:43 PM, Jane M <janeandhound@...> wrote:

> **

>

>

> Hi Robbie,

> I'm so sorry that you've had to endure this major surgery while ill

> already with CFS/ME. I was fortunate in that when I had a major

> hysterectomy I was healthier; didn't even KNOW I had this illness and was

> still working back then although there had been occasional 'hints.' I'd

> shrugged these things off as no doctor connected the dots. What I do

> remember was that the surgery was a major shock to my body. As it had come

> about from a cancer diagnosis which was something of a surprise I did not

> HAVE any weeks leading up to even think of what was going to happen. Had a

> week to 'get my affairs in order.' (Meaning boarding the cats, dog, etc).

> things turned out well, BUT .. the recovery period was pretty awful. For a

> time I used to think I MIGHT have contracted some viral stuff then, but I

> think I have always had this; it was only in stages where it would become

> worse with STRESS. I cannot recall which antidepressant they had me on. The

> pain meds varied; began with something quite strong, and then went down

> from there... while I agree with the robbing to pay ideology, I

> also think that something which MIGHT trick the brain/ psyche into

> Everything Isn't So Bad could sort of help -- meaning anti depressant. I

> just know very little about pain meds though. I wanted to post as I wished

> to help; I DID come out of how dreadful I felt. It helped me that friends

> visited and helped out. I DO hope that this can be done for you; support

> means everything even when just by phone, but in person? Even better. My

> cats helped even... One seemed to be my little body guard since the dog

> wasn't there! This was kind of funny as they never did like the dog.

> Best and slow but steady recovery!

> Jane, the one with the hound,

> NYC

>

>

>

> >

> > Hi,

> > I am wondering if amytriptaline (sp) at 5 mg. has been helpful for

> >anyone> during severe relapse or is it just tricking the body/brain >into

> only> thinking it is feeling better and essentially robbing peter to pay

> paul. I> am desperate with pain, nausea and malaise >after hysterectomy but

> been in> severe relapse- getting worse for 3 >months leading up to this

> major surgery.

> > Thank you so much, might have trouble responding back as bed >laptop

> not> scrolling my gmail acct. since they made changes and can't really >be

> up.

> > Robbi

> >

> >

> >

[Guest guest]

Thank you so much, everyone has been so helpful with responses.

Gail, you sound much like me. I'll have to comment more when feeling

better.

Love to all, Robbi

On Sat, Dec 31, 2011 at 10:45 AM, wanda85929 <wanda85929@...> wrote:

> **

>

>

> Hi Robbi,

>

> It helps with pain, sleeping, blood flow (according to the post that was

> posted) and helps cfs. I've been on it since the getgo, 24 years now, so

> sick I thought I'd die. Too much to go into really. Occasionally I would

> try and come off it, but within a few days I'd relapse and quickly went

> back on it. Eventually got much better due to a multiple of things. During

> the 'well' phase of this illness, I decided to come off the amytriptaline

> and was able to stay off it for a few years. I was more energetic and only

> then realised it drugs you. However, when unrelentless and unexpected

> stress came my way, I again started relapsing and haven't really ever

> gotten back the health I had those few years. I am again back on the drug

> and will stay on it unless a miracle happens. It does help, but I still

> struggle with replases that are severe. It's no cure, but I wouldn't want

> to be without it. And I've also noticed it helps with stamina, especially

> in the afternoon when I usually start to fade. Anything that helps, even a

> little, is worth using, imo.

>

> btw, my husband is on it for his neuropathy; he's a diabetic. My neighbor,

> who had shingles, was also on it.

>

> Gail

>

>

>

> >

> > Hi,

> >

> > I am wondering if amytriptaline (sp) at 5 mg. has been helpful for anyone

> > during severe relapse or is it just tricking the body/brain into only

> > thinking it is feeling better and essentially robbing peter to pay paul.

> I

> > am desperate with pain, nausea and malaise after hysterectomy but been in

> > severe relapse- getting worse for 3 months leading up to this major

> surgery.

> >

> > Thank you so much, might have trouble responding back as bed laptop not

> > scrolling my gmail acct. since they made changes and can't really be up.

> > Robbi

> >

> >

> >