Guest guest Posted July 5, 2005 Report Share Posted July 5, 2005 In a message dated 05/07/2005 22:53:28 GMT Daylight Time, julia.andnick@... writes: I'd be keen to try the LDN (quite fancy including myself as 'control' if itsa happy drug!). What I don't understand is ... does it mean you don't haveto do gf/cf cos it sorts the opioid effect or do you still have to do it ...and what about enzymes ...!!! >>>> From what I understand, its about the immune system re - righting itself when its used in these small doses. Its suppresses something (?Endorphins) for a short period during the night), which means when they come back on again, they are supercharged and shift the immune system back to where its supposed to be???? Cally understands this stuff, I shalll ask her to explain the stuff. It may or may not help with GFCF issues, we dumped the diet with HNI over 4 yeas ago now. I am going to try some on me first Mandi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2005 Report Share Posted July 5, 2005 I'd be keen to try the LDN (quite fancy including myself as 'control' if its a happy drug!). What I don't understand is ... does it mean you don't have to do gf/cf cos it sorts the opioid effect or do you still have to do it ... and what about enzymes ...!!! julia xx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2005 Report Share Posted July 5, 2005 In a message dated 06/07/2005 05:50:15 GMT Daylight Time, acfloe@... writes: Mandi, where will you get it? >>>>TD with a script from Ty at Coastal Compounding, or get a compounding chemist to ring Ty for the recipe which he will share for free, you'll still need a script or you can buy oral on the internet but you have reduce a 50mg tab to a 3mg dose. There are details of how to do this on the LDN website. http://www.low dose naltrexone.org/ I am going to try the oral on me. Cally is helping with measurement tools. Is the Breakspear a compounding pharmacy? I will ring them today. I have been sending Dr H the info the on it Mandi (will report back) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2005 Report Share Posted July 5, 2005 Mandi, where will you get it? A. Re: Re: LDN In a message dated 05/07/2005 22:53:28 GMT Daylight Time, julia.andnick@... writes: I'd be keen to try the LDN (quite fancy including myself as 'control' if itsa happy drug!). What I don't understand is ... does it mean you don't haveto do gf/cf cos it sorts the opioid effect or do you still have to do it ...and what about enzymes ...!!! >>>> From what I understand, its about the immune system re - righting itself when its used in these small doses. Its suppresses something (?Endorphins) for a short period during the night), which means when they come back on again, they are supercharged and shift the immune system back to where its supposed to be???? Cally understands this stuff, I shalll ask her to explain the stuff. It may or may not help with GFCF issues, we dumped the diet with HNI over 4 yeas ago now. I am going to try some on me first Mandi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2006 Report Share Posted April 12, 2006 We're week 9 into ldn. It is adding a mood stabilizing component; much calmer person. As an incidental, we used naltrexone in a 10 mg dose for gluten and casein withdrawal symptoms. Our 'cold turkey' intro to gfcfsf in 2000 looked very much like dt's - quite scary. The naltrexone was a big help. I didn't know about the immune benefits of low dose then. > > > > > >>We are seeing a child neuro specialized in brain surgery next week > >> > >> > >to see wether a PET scan shows a spot in the brain not functioning > >properly. > > > > > >>My son is born healthy...he ended up in the hospital at 4 months > >> > >> > >of age after receiving his 3rd DKTP/HIB shot (given at 2, months, 3 > >months and 4 months). He had severe epilepsy for 2 years. He is now > >4 does not have clinical seizures but subclinical activity in the > >left hemisfere and severe behaviour problems and autistic tendicies > >(flapping hands, toe walking etc.). He is non-verbal but makes lots > >of sounds. My son's MRI's are normal like all other tests ever > >done...the only thing we know is that he is high in lead, mercury > >and aluminium. PET scan can show if there is somewhere a spot and > >yes mercury can give damage to the brain. > > > > > >>Science is very advanced these days with brain surgery and 20% of > >> > >> > >children are candidates for operation. It is very scarry but I do > >know from parents who have been there that is surgery succeeds > >children will get rid of their autistic tendicied, behaviour > >problems and start to develop and the younger they are the bigger > >the chance of full recovery. > > > > > >>I have no idea if my son is a candidate for surgery...we will find > >> > >> > >out more next week. > > > > > >>Are there parents who have been through this? > >> > >>Mandy - mom to Kees (4) severly vaccin damaged > >> > >> > >> > > > > > > > > > > > > > >DISCLAIMER > >No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2006 Report Share Posted April 12, 2006 Does 10 mg Naltrexone help for gluten / casein withdrawal symptoms, does it not make it worse ?? Geir Flatabø mbrookh skrev: >We're week 9 into ldn. It is adding a mood stabilizing component; >much calmer person. As an incidental, we used naltrexone in a 10 mg >dose for gluten and casein withdrawal symptoms. Our 'cold turkey' >intro to gfcfsf in 2000 looked very much like dt's - quite scary. >The naltrexone was a big help. I didn't know about the immune >benefits of low dose then. > > > >>> >>> >>> >>> >>>>We are seeing a child neuro specialized in brain surgery next >>>> >>>> >week > > >>>> >>>> >>>> >>>> >>>to see wether a PET scan shows a spot in the brain not >>> >>> >functioning > > >>>properly. >>> >>> >>> >>> >>>>My son is born healthy...he ended up in the hospital at 4 months >>>> >>>> >>>> >>>> >>>of age after receiving his 3rd DKTP/HIB shot (given at 2, months, >>> >>> >3 > > >>>months and 4 months). He had severe epilepsy for 2 years. He is >>> >>> >now > > >>>4 does not have clinical seizures but subclinical activity in the >>>left hemisfere and severe behaviour problems and autistic >>> >>> >tendicies > > >>>(flapping hands, toe walking etc.). He is non-verbal but makes >>> >>> >lots > > >>>of sounds. My son's MRI's are normal like all other tests ever >>>done...the only thing we know is that he is high in lead, mercury >>>and aluminium. PET scan can show if there is somewhere a spot and >>>yes mercury can give damage to the brain. >>> >>> >>> >>> >>>>Science is very advanced these days with brain surgery and 20% >>>> >>>> >of > > >>>> >>>> >>>> >>>> >>>children are candidates for operation. It is very scarry but I do >>>know from parents who have been there that is surgery succeeds >>>children will get rid of their autistic tendicied, behaviour >>>problems and start to develop and the younger they are the bigger >>>the chance of full recovery. >>> >>> >>> >>> >>>>I have no idea if my son is a candidate for surgery...we will >>>> >>>> >find > > >>>> >>>> >>>> >>>> >>>out more next week. >>> >>> >>> >>> >>>>Are there parents who have been through this? >>>> >>>>Mandy - mom to Kees (4) severly vaccin damaged >>>> >>>> >>>> >>>> >>>> >>> >>> >>> >>> >>>DISCLAIMER >>>No information contained in this post is to be construed as >>> >>> >medical advice. If you need medical advice, please seek it from a >suitably qualified practitioner. > > >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2006 Report Share Posted April 12, 2006 The standard pill came in 25 mg and that did make things worse! but in retrospect, I'm not sure that it was not something in the pill that was causing the upset. Once we had it compounded and lowered the dose, it did help. It does not bind all the opiod sites but enough to be of assistance. > >>> > >>> > >>> > >>> > >>>>We are seeing a child neuro specialized in brain surgery next > >>>> > >>>> > >week > > > > > >>>> > >>>> > >>>> > >>>> > >>>to see wether a PET scan shows a spot in the brain not > >>> > >>> > >functioning > > > > > >>>properly. > >>> > >>> > >>> > >>> > >>>>My son is born healthy...he ended up in the hospital at 4 months > >>>> > >>>> > >>>> > >>>> > >>>of age after receiving his 3rd DKTP/HIB shot (given at 2, months, > >>> > >>> > >3 > > > > > >>>months and 4 months). He had severe epilepsy for 2 years. He is > >>> > >>> > >now > > > > > >>>4 does not have clinical seizures but subclinical activity in the > >>>left hemisfere and severe behaviour problems and autistic > >>> > >>> > >tendicies > > > > > >>>(flapping hands, toe walking etc.). He is non-verbal but makes > >>> > >>> > >lots > > > > > >>>of sounds. My son's MRI's are normal like all other tests ever > >>>done...the only thing we know is that he is high in lead, mercury > >>>and aluminium. PET scan can show if there is somewhere a spot and > >>>yes mercury can give damage to the brain. > >>> > >>> > >>> > >>> > >>>>Science is very advanced these days with brain surgery and 20% > >>>> > >>>> > >of > > > > > >>>> > >>>> > >>>> > >>>> > >>>children are candidates for operation. It is very scarry but I do > >>>know from parents who have been there that is surgery succeeds > >>>children will get rid of their autistic tendicied, behaviour > >>>problems and start to develop and the younger they are the bigger > >>>the chance of full recovery. > >>> > >>> > >>> > >>> > >>>>I have no idea if my son is a candidate for surgery...we will > >>>> > >>>> > >find > > > > > >>>> > >>>> > >>>> > >>>> > >>>out more next week. > >>> > >>> > >>> > >>> > >>>>Are there parents who have been through this? > >>>> > >>>>Mandy - mom to Kees (4) severly vaccin damaged > >>>> > >>>> > >>>> > >>>> > >>>> > >>> > >>> > >>> > >>> > >>>DISCLAIMER > >>>No information contained in this post is to be construed as > >>> > >>> > >medical advice. If you need medical advice, please seek it from a > >suitably qualified practitioner. > > > > > >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2006 Report Share Posted April 13, 2006 Well perhaps that is the reason why, a Heroin addict now using Naltrexone ( Revia) half the dose of what is recommended also feels it takes away the Heroin Craving ! Geir Flatabø mbrookh skrev: >The standard pill came in 25 mg and that did make things worse! but >in retrospect, I'm not sure that it was not something in the pill >that was causing the upset. Once we had it compounded and lowered >the dose, it did help. It does not bind all the opiod sites but >enough to be of assistance. > > > >>>>> >>>>> >>>>> >>>>> >>>>> >>>>> >>>>>>We are seeing a child neuro specialized in brain surgery next >>>>>> >>>>>> >>>>>> >>>>>> >>>week >>> >>> >>> >>> >>>>>> >>>>>> >>>>>> >>>>>> >>>>>> >>>>>> >>>>>to see wether a PET scan shows a spot in the brain not >>>>> >>>>> >>>>> >>>>> >>>functioning >>> >>> >>> >>> >>>>>properly. >>>>> >>>>> >>>>> >>>>> >>>>> >>>>> >>>>>>My son is born healthy...he ended up in the hospital at 4 >>>>>> >>>>>> >months > > >>>>>> >>>>>> >>>>>> >>>>>> >>>>>> >>>>>> >>>>>of age after receiving his 3rd DKTP/HIB shot (given at 2, >>>>> >>>>> >months, > > >>>>> >>>>> >>>>> >>>>> >>>3 >>> >>> >>> >>> >>>>>months and 4 months). He had severe epilepsy for 2 years. He is >>>>> >>>>> >>>>> >>>>> >>>now >>> >>> >>> >>> >>>>>4 does not have clinical seizures but subclinical activity in >>>>> >>>>> >the > > >>>>>left hemisfere and severe behaviour problems and autistic >>>>> >>>>> >>>>> >>>>> >>>tendicies >>> >>> >>> >>> >>>>>(flapping hands, toe walking etc.). He is non-verbal but makes >>>>> >>>>> >>>>> >>>>> >>>lots >>> >>> >>> >>> >>>>>of sounds. My son's MRI's are normal like all other tests ever >>>>>done...the only thing we know is that he is high in lead, >>>>> >>>>> >mercury > > >>>>>and aluminium. PET scan can show if there is somewhere a spot >>>>> >>>>> >and > > >>>>>yes mercury can give damage to the brain. >>>>> >>>>> >>>>> >>>>> >>>>> >>>>> >>>>>>Science is very advanced these days with brain surgery and 20% >>>>>> >>>>>> >>>>>> >>>>>> >>>of >>> >>> >>> >>> >>>>>> >>>>>> >>>>>> >>>>>> >>>>>> >>>>>> >>>>>children are candidates for operation. It is very scarry but I >>>>> >>>>> >do > > >>>>>know from parents who have been there that is surgery succeeds >>>>>children will get rid of their autistic tendicied, behaviour >>>>>problems and start to develop and the younger they are the >>>>> >>>>> >bigger > > >>>>>the chance of full recovery. >>>>> >>>>> >>>>> >>>>> >>>>> >>>>> >>>>>>I have no idea if my son is a candidate for surgery...we will >>>>>> >>>>>> >>>>>> >>>>>> >>>find >>> >>> >>> >>> >>>>>> >>>>>> >>>>>> >>>>>> >>>>>> >>>>>> >>>>>out more next week. >>>>> >>>>> >>>>> >>>>> >>>>> >>>>> >>>>>>Are there parents who have been through this? >>>>>> >>>>>>Mandy - mom to Kees (4) severly vaccin damaged >>>>>> >>>>>> >>>>>> >>>>>> >>>>>> >>>>>> >>>>>> >>>>> >>>>> >>>>>DISCLAIMER >>>>>No information contained in this post is to be construed as >>>>> >>>>> >>>>> >>>>> >>>medical advice. If you need medical advice, please seek it from a >>>suitably qualified practitioner. >>> >>> >>> >>> >>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2006 Report Share Posted May 16, 2006 Autism_LDN (you have to join) Natasa > > Is their a group just for Autisim using LDN? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2006 Report Share Posted May 16, 2006 Autism_LDN (you have to join) Natasa > > Is their a group just for Autisim using LDN? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2010 Report Share Posted January 3, 2010 Lorene is supposed to be getting it for us, think she gets it from Italy. Vicky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2010 Report Share Posted January 3, 2010 We get a px from my gp and then fax it to gideon drugs in NY It has very good reputation .i can dig out fax num if you wish.. Caroline Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2010 Report Share Posted January 3, 2010 That's OK. I'll look it up. I guess LDN is not available over here. hmm maybe I'll ask my doctor on Germany if it's over there and if not get a script from him for the American pharmacy. Thanks! jcbgalvin schrieb: > > We get a px from my gp and then fax it to gideon drugs in NY It has > very good reputation .i can dig out fax num if you wish.. Caroline > > > ------------------------------------------------------------------------ > > > No virus found in this incoming message. > Checked by AVG - www.avg.com > Version: 8.5.431 / Virus Database: 270.14.124/2597 - Release Date: 01/02/10 08:22:00 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2010 Report Share Posted January 3, 2010 We had td LDN from the Breakspear Hospital, you may need to be a patient to get it prescribed? > > Does anybody know where I can get LDN?? > > Thanks, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2010 Report Share Posted January 3, 2010 So that might mean it's available in Europe. I think I'll approach my doctor about it...Thx.From: nm44714 <nikki-mills@...>Autism Treatment Sent: Sunday, 3 January, 2010 17:28:47Subject: Re: LDN We had td LDN from the Breakspear Hospital, you may need to be a patient to get it prescribed? > > Does anybody know where I can get LDN?? > > Thanks, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2010 Report Share Posted January 3, 2010 hi it definitely WAS available in Europe, don’t know if still the case but worth joining ldn groups (or MS ones) for current info on how they get it... I will forward the info to you pm, of few years back, maybe still valid natasa So that might mean it's available in Europe. I think I'll approach my doctor about it...Thx. From: nm44714 <nikki-mills@...> Autism Treatment Sent: Sunday, 3 January, 2010 17:28:47 Subject: Re: LDN We had td LDN from the Breakspear Hospital, you may need to be a patient to get it prescribed? > > Does anybody know where I can get LDN?? > > Thanks, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2010 Report Share Posted January 3, 2010 Hi, we got some LDN just a few months ago from Italy. We're in France, and just needed a prescription from our DAN here in order to get it. The pharmacy is called Farmacia Fiorentini in Brescia. > > > > Does anybody know where I can get LDN?? > > > > Thanks, > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2010 Report Share Posted January 3, 2010 OK I am noting everything Thx!!julieFrom: peche95 <angela.chelet@...>Autism Treatment Sent: Sunday, 3 January, 2010 20:02:47Subject: Re: LDN Hi, we got some LDN just a few months ago from Italy. We're in France, and just needed a prescription from our DAN here in order to get it. The pharmacy is called Farmacia Fiorentini in Brescia. > > > > Does anybody know where I can get LDN?? > > > > Thanks, > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2010 Report Share Posted January 3, 2010 Hello, You can also order it from Farmacia Legnani in Milano <lab@...>. Greet > > > > > > Does anybody know where I can get LDN?? > > > > > > Thanks, > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2010 Report Share Posted January 6, 2010 Hi What good news. Thanks for responding with your experience of LDN. I'm just being cautious because things are on a nice even keel, peace has broken out. I'm one of the old timers I suppose, but things are ever changing and there is always more to learn, things to re-visit and things never tried, doesn't help having one of the hard nuts to crack I suppose. LDN is a new thing for so even though all the children are different it's good to get feedback. I hope things continue to go well for Joe. Vicky > > > > > > In a message dated 06/01/2010 16:43:31 GMT Standard Time, MaddiganV@ > > writes: > > > > Guess what though, used the alphabet sign that has just been posted for M > > and he said it!!!!!! > > Actually he said it twice, not NET just his cards and words, so the word > > was moon, been working on it forever, showed him the sign for M, then the > > letter M, then the picture of the moon, he straight away said Moo, [ no N] and > > looked up at the sky. > > I'm rambling but if he hadn't repeated it I would doubt I had really heard > > it. > > > > > > > > >>OMG Vicky ths is awesome!!!!!!!!!!!!!! go !!!!!!!!!!!! > > > > Mandi x > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2012 Report Share Posted February 20, 2012 Hi Gail, Thanks for responding to this post. I have not had good internet due to storms. Yes, that is exactly how I do it. I order every 3 months and I order many things from there. I forgot to mention the shipping. I usually split the order with someone locally and that helps. But I order so much that I don't stress about it. I use a pay as you go Credit card which isn't attached to my bank accounts. I pay $1 plus a small percentage (1% or so) for an international transaction. HTH, Marti > > > > > > > > Has anyone with Fibromyalgia ever experienced stomach cramps? I don't mean related to GI issues. This is definitely cramping. I've had it off and on for the last year. It's not when I'm having any GI related issues. Is there any way to prevent or treat them or any sort of stretching I could do? > > > > > > > > I've had Fibromyalgia for over 25 years. The last few years I've been having more muscle pain than ever. > > > > > > > > Thank you! > > > > > > > > Sue > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2012 Report Share Posted February 27, 2012 Alldaychemist now only takes VISA and a number of the pay-as-you-go VISA cards only work for USA merchants and with AllDayChemist, you need an international VISA card. So, please check this out before you invest in the card if it's primarily to order Naltrexone. Other sources are http://riverpharmacy.com also ships out of India. United Pharmacies has good prices, too. http://www.unitedpharmacies.com/customer/search.php?substring=naltrexone. I have a script for Naltrexone and do my own dilutions. I pay about $50.00 per year using http://costco.com The problem with chronic illnesses is that we can get broke really quickly in seeking to improve the quality of our lives. Hope this helps, mjh > > > > > > > > > > Has anyone with Fibromyalgia ever experienced stomach cramps? I don't mean related to GI issues. This is definitely cramping. I've had it off and on for the last year. It's not when I'm having any GI related issues. Is there any way to prevent or treat them or any sort of stretching I could do? > > > > > > > > > > I've had Fibromyalgia for over 25 years. The last few years I've been having more muscle pain than ever. > > > > > > > > > > Thank you! > > > > > > > > > > Sue > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2012 Report Share Posted February 27, 2012 Hi EveryOne, I have never used LDN but I noticed that anti-aging systems has an article about LDN and already diluted LDN for sale without Rx. http://bit.ly/xPZ8ey Peace, Love and Harmony, Bev > > > > > > > > > > > > Has anyone with Fibromyalgia ever experienced stomach cramps? I don't mean related to GI issues. This is definitely cramping. I've had it off and on for the last year. It's not when I'm having any GI related issues. Is there any way to prevent or treat them or any sort of stretching I could do? > > > > > > > > > > > > I've had Fibromyalgia for over 25 years. The last few years I've been having more muscle pain than ever. > > > > > > > > > > > > Thank you! > > > > > > > > > > > > Sue > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2012 Report Share Posted February 29, 2012 I would be concerned about a medication being sold over the counter?? If it is still to be prescribed, how or why are they selling this form? God Bless, Sara > > > > > > > > > > > > > > Has anyone with Fibromyalgia ever experienced stomach cramps? I don't mean related to GI issues. This is definitely cramping. I've had it off and on for the last year. It's not when I'm having any GI related issues. Is there any way to prevent or treat them or any sort of stretching I could do? > > > > > > > > > > > > > > I've had Fibromyalgia for over 25 years. The last few years I've been having more muscle pain than ever. > > > > > > > > > > > > > > Thank you! > > > > > > > > > > > > > > Sue > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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