Re: Patient Abuse Experiences / Warn Others About such Dr.s

[Guest guest]

The link split and doesn't work, but this is from um's ME

website:

___________________________________________________________

Warn Others about such Doctors

" ....... is one of the patients from the 1984 US Incline Village

ME epidemics and a patient of the dedicated Drs and Cheney

who insisted that the US CDC and government investigate the illness.

We know the rest of that story, chronicled in Hillary 's

Osler's Web : the creation of the umbrella term " CFS " to bury

neurological MEitis, despite the objections of knowledgable

physicians.

not only has experienced a lot of American ME history, he is an

original and creative thinker with the courage to express his

opinions and change them according to the evidence....... "

johanna wolf

From: " " erikj6@...

One of the first support group meetings during the Incline Village

epidemic was to hear a doctor address us about his theory.

He told us that we were just burned out, overstressed complainers

that brought this upon ourselves by bad diet and poor attitude.

I really was amazed that this person would stand there and abuse

such severely ill people who didn't seem to have suffered from a bad

diet or stress related problems until having a flu like

illness.

The thought actually crossed my mind that the audience would rise as

one and beat this psychologizer to a pulp.

I wasn't prepared for the horror that was to come.

Because the next thing that happened was NOTHING.

My amazement increased tenfold as the audience murmured a few polite

contradictions and nothing more.

In fact I heard people around me start quietly saying " Well, I guess

I could have eaten better. " and " I have been under a bit of stress

lately. "

Staggering! I couldn't believe what I was hearing.

I stood up and said:

" Look, here is the marathon runner. Here is the tennis pro, the

champion swimmer, the Hang Glider instructor. This is ridiculous. We

are all committed to a healthy mountain lifestyle in a way that few

others can match. This theory doesn't fit us at all. "

More horror was to come. Despite a few nodded agreements, people

started to tell me to shut up and that I shouldn't anger the doctor.

" Why not? He's not listening to us. This is wrong. "

The chorus of people telling me to quit causing problems grew until

I realised I wasn't making any progress. Not with the doctor and not

with the audience. So I sat down and shut up.

Now I see Incline Village as a Microcosm of the same horror that has

enveloped the world. Doctors get away with abusing their patients

with impunity for the incredible and unbelievable reason that these

patients will simply sit there and keep taking the abuse.

Once again I point out that we are being abused and the answer

is to simply agree to stop taking it. Once again I can't help but

wonder at the masses of ill people who seem agreeable to

accepting this endless tirade of " It's your fault " from doctors.

Worse, I get messages from people telling me the same

message I heard so long ago from that meeting. " You mustn't

speak against the doctors. It will only anger them and serve

nothing. "

Again I am forced to say " They aren't listening to us. This is

wrong. "

Again I am told that I cannot ask sick people to adopt a

confrontational stance against doctors. That confrontation is

already there whether anybody likes it or not. Every person who

has gone to doctor after doctor only to be told " It's all in your

head " is a victim of this " confrontation " that people tell me that I

am trying to create.

I believed right from the start that if support groups would only

agree to accompany individual members to an initial contact

with new doctors en-masse, the abuse that the single person

faced would be avoided.

With just the slightest cooperation and support from SUPPORT GROUPS,

doctor abuse could be stopped instantly.

I'm not asking for people to stand there and fight with doctors.

I just want the first few syllables of " It's all in... " to be met

with a " refusal to accept the doctors verdict " and leave.

Warn others in support groups about such doctors.

Support yourself by avoiding unsupportive doctors.

This endless cycle of sick people endlessly " doctor shopping " and

circulating amongst psychologizers means these " denier " physicians

are making entire careers out of victimising people and telling each

one " I've never heard such complaints before. " and " Your complaints

are impossible, therefore they must be imaginary. "

All it would take to stop this savagery from doctors is for people

to refuse to accept it.

Right now.

-

www.um

[Guest guest]

.

What can we all do to really UNITE and FIGHT? I try to tell at least one

person a day what mold can do. I've sold copies of Mold Warriors, called local

TV stations, and written letters. I know it isn't enought but I'm trying.

I'm willing to do anything it takes!!!

Sue

[Guest guest]

Well written, to the point and hopeful. Nice job.

In a message dated 7/29/2005 10:27:20 A.M. Eastern Standard Time,

johnjmurtaughtoxicmold@... writes:

I agree that some doctors are not aware of the neurological or

rheumatological effects of the mold, but that does not mean stop looking. If

we had

stopped looking, we never would have found Dr. Shoemaker. My advice is if a

doctor doesn't believe you, move on.

My current Family Practice doctor is a customer of mine, and when I cam back

from disability, he asked me what happened. When I told him about the toxic

mold and my night sweats, peripheral neuropathy and arthritis, the first

thing he did was ask if I had a brain-spect. HE brought up the issue of the

neurological problems, so he WAS aware of it. He is very open to listening to

anything Dr. Shoemaker has to say.

A friend of my Aunt, a 17 yr. old boy, has extreme allergies to mold. So

extreme, he had to go on Xolair (which is an IgE blocker, which mediates

allergic disease). They bounced around from doctor to doctor and finally found

one

that understood. The parents of the boy had never mentioned neurological

problems, but the first things the doctor asked was " How are you thinking? " " Do

you have any tingling in your extremities? " " Do you have any arthritis or

muscle pain? " ............Although the allergic component that this boy has is

very severe, thank God it does not look like he has the toxic effects or any

sort of infection.

Do not stop looking for a doctor who understands. They are out there.

erikmoldwarrior <erikmoldwarrior@...> wrote:

The link split and doesn't work, but this is from um's ME

website:

___________________________________________________________

Warn Others about such Doctors

" ....... is one of the patients from the 1984 US Incline Village

ME epidemics and a patient of the dedicated Drs and Cheney

who insisted that the US CDC and government investigate the illness.

We know the rest of that story, chronicled in Hillary 's

Osler's Web : the creation of the umbrella term " CFS " to bury

neurological MEitis, despite the objections of knowledgable

physicians.

not only has experienced a lot of American ME history, he is an

original and creative thinker with the courage to express his

opinions and change them according to the evidence....... "

johanna wolf

From: " " erikj6@...

One of the first support group meetings during the Incline Village

epidemic was to hear a doctor address us about his theory.

He told us that we were just burned out, overstressed complainers

that brought this upon ourselves by bad diet and poor attitude.

I really was amazed that this person would stand there and abuse

such severely ill people who didn't seem to have suffered from a bad

diet or stress related problems until having a flu like

illness.

The thought actually crossed my mind that the audience would rise as

one and beat this psychologizer to a pulp.

I wasn't prepared for the horror that was to come.

Because the next thing that happened was NOTHING.

My amazement increased tenfold as the audience murmured a few polite

contradictions and nothing more.

In fact I heard people around me start quietly saying " Well, I guess

I could have eaten better. " and " I have been under a bit of stress

lately. "

Staggering! I couldn't believe what I was hearing.

I stood up and said:

" Look, here is the marathon runner. Here is the tennis pro, the

champion swimmer, the Hang Glider instructor. This is ridiculous. We

are all committed to a healthy mountain lifestyle in a way that few

others can match. This theory doesn't fit us at all. "

More horror was to come. Despite a few nodded agreements, people

started to tell me to shut up and that I shouldn't anger the doctor.

" Why not? He's not listening to us. This is wrong. "

The chorus of people telling me to quit causing problems grew until

I realised I wasn't making any progress. Not with the doctor and not

with the audience. So I sat down and shut up.

Now I see Incline Village as a Microcosm of the same horror that has

enveloped the world. Doctors get away with abusing their patients

with impunity for the incredible and unbelievable reason that these

patients will simply sit there and keep taking the abuse.

Once again I point out that we are being abused and the answer

is to simply agree to stop taking it. Once again I can't help but

wonder at the masses of ill people who seem agreeable to

accepting this endless tirade of " It's your fault " from doctors.

Worse, I get messages from people telling me the same

message I heard so long ago from that meeting. " You mustn't

speak against the doctors. It will only anger them and serve

nothing. "

Again I am forced to say " They aren't listening to us. This is

wrong. "

Again I am told that I cannot ask sick people to adopt a

confrontational stance against doctors. That confrontation is

already there whether anybody likes it or not. Every person who

has gone to doctor after doctor only to be told " It's all in your

head " is a victim of this " confrontation " that people tell me that I

am trying to create.

I believed right from the start that if support groups would only

agree to accompany individual members to an initial contact

with new doctors en-masse, the abuse that the single person

faced would be avoided.

With just the slightest cooperation and support from SUPPORT GROUPS,

doctor abuse could be stopped instantly.

I'm not asking for people to stand there and fight with doctors.

I just want the first few syllables of " It's all in... " to be met

with a " refusal to accept the doctors verdict " and leave.

Warn others in support groups about such doctors.

Support yourself by avoiding unsupportive doctors.

This endless cycle of sick people endlessly " doctor shopping " and

circulating amongst psychologizers means these " denier " physicians

are making entire careers out of victimising people and telling each

one " I've never heard such complaints before. " and " Your complaints

are impossible, therefore they must be imaginary. "

All it would take to stop this savagery from doctors is for people

to refuse to accept it.

Right now.

-

www.um

FAIR USE NOTICE:

[Guest guest]

I agree that some doctors are not aware of the neurological or rheumatological

effects of the mold, but that does not mean stop looking. If we had stopped

looking, we never would have found Dr. Shoemaker. My advice is if a doctor

doesn't believe you, move on.

My current Family Practice doctor is a customer of mine, and when I cam back

from disability, he asked me what happened. When I told him about the toxic

mold and my night sweats, peripheral neuropathy and arthritis, the first thing

he did was ask if I had a brain-spect. HE brought up the issue of the

neurological problems, so he WAS aware of it. He is very open to listening to

anything Dr. Shoemaker has to say.

A friend of my Aunt, a 17 yr. old boy, has extreme allergies to mold. So

extreme, he had to go on Xolair (which is an IgE blocker, which mediates

allergic disease). They bounced around from doctor to doctor and finally found

one that understood. The parents of the boy had never mentioned neurological

problems, but the first things the doctor asked was " How are you thinking? " " Do

you have any tingling in your extremities? " " Do you have any arthritis or muscle

pain? " ............Although the allergic component that this boy has is very

severe, thank God it does not look like he has the toxic effects or any sort of

infection.

Do not stop looking for a doctor who understands. They are out there.

erikmoldwarrior <erikmoldwarrior@...> wrote:

The link split and doesn't work, but this is from um's ME

website:

___________________________________________________________

Warn Others about such Doctors

" ....... is one of the patients from the 1984 US Incline Village

ME epidemics and a patient of the dedicated Drs and Cheney

who insisted that the US CDC and government investigate the illness.

We know the rest of that story, chronicled in Hillary 's

Osler's Web : the creation of the umbrella term " CFS " to bury

neurological MEitis, despite the objections of knowledgable

physicians.

not only has experienced a lot of American ME history, he is an

original and creative thinker with the courage to express his

opinions and change them according to the evidence....... "

johanna wolf

From: " " erikj6@...

One of the first support group meetings during the Incline Village

epidemic was to hear a doctor address us about his theory.

He told us that we were just burned out, overstressed complainers

that brought this upon ourselves by bad diet and poor attitude.

I really was amazed that this person would stand there and abuse

such severely ill people who didn't seem to have suffered from a bad

diet or stress related problems until having a flu like

illness.

The thought actually crossed my mind that the audience would rise as

one and beat this psychologizer to a pulp.

I wasn't prepared for the horror that was to come.

Because the next thing that happened was NOTHING.

My amazement increased tenfold as the audience murmured a few polite

contradictions and nothing more.

In fact I heard people around me start quietly saying " Well, I guess

I could have eaten better. " and " I have been under a bit of stress

lately. "

Staggering! I couldn't believe what I was hearing.

I stood up and said:

" Look, here is the marathon runner. Here is the tennis pro, the

champion swimmer, the Hang Glider instructor. This is ridiculous. We

are all committed to a healthy mountain lifestyle in a way that few

others can match. This theory doesn't fit us at all. "

More horror was to come. Despite a few nodded agreements, people

started to tell me to shut up and that I shouldn't anger the doctor.

" Why not? He's not listening to us. This is wrong. "

The chorus of people telling me to quit causing problems grew until

I realised I wasn't making any progress. Not with the doctor and not

with the audience. So I sat down and shut up.

Now I see Incline Village as a Microcosm of the same horror that has

enveloped the world. Doctors get away with abusing their patients

with impunity for the incredible and unbelievable reason that these

patients will simply sit there and keep taking the abuse.

Once again I point out that we are being abused and the answer

is to simply agree to stop taking it. Once again I can't help but

wonder at the masses of ill people who seem agreeable to

accepting this endless tirade of " It's your fault " from doctors.

Worse, I get messages from people telling me the same

message I heard so long ago from that meeting. " You mustn't

speak against the doctors. It will only anger them and serve

nothing. "

Again I am forced to say " They aren't listening to us. This is

wrong. "

Again I am told that I cannot ask sick people to adopt a

confrontational stance against doctors. That confrontation is

already there whether anybody likes it or not. Every person who

has gone to doctor after doctor only to be told " It's all in your

head " is a victim of this " confrontation " that people tell me that I

am trying to create.

I believed right from the start that if support groups would only

agree to accompany individual members to an initial contact

with new doctors en-masse, the abuse that the single person

faced would be avoided.

With just the slightest cooperation and support from SUPPORT GROUPS,

doctor abuse could be stopped instantly.

I'm not asking for people to stand there and fight with doctors.

I just want the first few syllables of " It's all in... " to be met

with a " refusal to accept the doctors verdict " and leave.

Warn others in support groups about such doctors.

Support yourself by avoiding unsupportive doctors.

This endless cycle of sick people endlessly " doctor shopping " and

circulating amongst psychologizers means these " denier " physicians

are making entire careers out of victimising people and telling each

one " I've never heard such complaints before. " and " Your complaints

are impossible, therefore they must be imaginary. "

All it would take to stop this savagery from doctors is for people

to refuse to accept it.

Right now.

-

www.um

FAIR USE NOTICE:

[Guest guest]

Murtaugh wrote:

> I agree that some doctors are not aware of the neurological or

rheumatological effects of the mold, but that does not mean stop

looking. If we had stopped looking, we never would have found Dr.

Shoemaker. My advice is if a doctor doesn't believe you, move on.

>

, where did you see anything about " stop looking " ?

I've been in support groups where people comparing their doctor

experiences find that they all went to see the same doctors and each

sufferer was told " I never heard of anything like your complaints

before " .

But of course they had to pay for the appointment anyway.

So it appears that the diagnostic terms: " That's Impossible "

and " I've never heard of this before " are actually " dr. Short-hand "

for " I have no idea " and " I don't want to deal with you " (But I

still want to be paid for this appointment anyway).

Doctors are not going to warn you beforehand that they don't wish to

help you and that finding out for yourself is going to cost!

So the only alternative is for sufferers to " Warn others about such

doctors " .

And as I propose, the appointment with a prospective doctor must be

made beforehand with the understanding that " The Dismissal

Diagnosis " will not be acceptible.

Take witnesses. Take a copy of Mold Warriors. Take the reams of data

supporting the toxigenic effects of molds. Inform the doctor that

the days of his " free ride " of just pushing troublesome unfamiliar

complaints out the door with a grasping and idiotic diagnosis

of " mental illness " are both INEXCUSABLE and OVER!.

It'll be tough for an individual to bring this type of concerted

pressure for a realistic " doctor response " without support.

That's what " support groups " are supposed to be for.

We have the data. We have the science. We have the evidence.

We don't have to accept abuse and denial from doctors and be forced

to pay for it anymore.

-