Re: Re: Homepage Update

[Guest guest]

I'm so glad you made these changes Marti.  Thank-you so much.  Kay

________________________________

From: marti_zavala <marti_zavala@...>

Sent: Tuesday, January 24, 2012 11:36 AM

Subject: Re: Recent Thought

 

Hi There,

I am one of the moderators. I have updated the Home page and made various

changes per your suggestion. I have used the new description based on the

International Consensus Criteria for Myalgic Encephalomyelitis as published in

Journal for Internal Medicine.

I also updated the picture to include a scaled down version of the criteria.

Here is the description and the reason why they have chosen to use solely ME

rather than including CFS, CFIDS, FMS, etc. We will continue to use these terms

on the home page to help people find the forum.

http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2796.2011.02428.x/full

" Myalgic encephalomyelitis is an acquired neurological disease with complex

global dysfunctions. Pathological dysregulation of the nervous, immune and

endocrine systems, cardiovascular abnormalities, impaired cellular energy

metabolism and ion transport.

In view of more recent research and clinical experience that strongly point to

widespread inflammation and multisystemic neuropathology, it is more appropriate

and correct to use the term `myalgic encephalomyelitis' (ME) because it

indicates an underlying pathophysiology. It is also consistent with the

neurological classification of ME in the World Health Organization's

International Classification of Diseases (ICD G93.3). "

Paraphrased criteria (see Journal article for full description)

International Consensus Criteria for Myalgic Encephalomyelitis

A. Postexertional neuroimmune exhaustion (PENE)

[Compulsory]

1. Marked, rapid physical and/or cognitive fatigability in response to exertion

2. Postexertional symptom exacerbation

3. Postexertional exhaustion -immediate or delayed by hours or days

4. Recovery period is prolonged

5. Low threshold of physical and mental fatigability (lack of stamina)

6. results in a substantial reduction in pre-illness activity level

B. Neurological impairments

[1 symptom from 3 categories]

1. Neurocognitive impairments

2. Pain

3. Sleep disturbance

4. Neurosensory, perceptual and motor disturbances

C. Immune, gastro-intestinal and genitourinary Impairments

[1 symptom from 3 categories]

1. Flu-like symptoms -recurrent or chronic, activate or worsen with exertion

2. Susceptibility to viral infections with prolonged recovery periods

3. Gastro-intestinal tract

4. Genitourinary

5. Sensitivities to food, medications, odours or chemicals

D. Energy production/transportation impairments

[At least 1 symptom]

1. Cardiovascular - Orthostatic Intolerance, Neurally Mediated Hypotension,

Postural Orthostatic Tachycardia Syndrome, Palpitations

2. Respiratory

3. Loss of thermostatic stability

4. Intolerance of extremes of temperature

Journal of Internal Medicine, Volume 270, Issue 4, pages 327–338, Oct 2011

Thanks,

Marti

>

> I don't know who moderates this group, but I would like to recommend that on

the home page of this forum that the first thing written in the description is

something like this:

>

> " CFS/ME is a multi-system disease adversely affecting the heart, brain, immune

system, nervous system, circulatory systems and muscles, including

post-exertional malaise and neurological/ cognitive manifestations. "

>

> Be well.

> www.cfsstraighttalk.blogspot.com

>