Re: methylation and other problems

[Guest guest]

Thanks for your report " from the front lines " . I'm glad you are making progress.

It's always helpful to know what has helped someone else. I'm interested in your

comment about the GAP diet lining up with methylation issues. I will have to

look into that diet.

Marcia on

in Salem, Massachusetts

On Jan 16, 2012, at 11:09 AM, anneb wrote:

> I collapsed with CFS in 2000. It took me 2 years to figure out what was going

on, or to put a name to it. Then it took another 6 years of trying to fix it,

with little info, until as a 'last' resort we did IV vitamins, minerals and

amino acids. I realize there are many 'causes' of CFS. However, I continue to

find that there are 'natural' causes of the failings. The IVs provifded a new

foundation for building health. There was noticable improvement after the IVs

but it has taken another 4 years to get to where I can work at an acceptable

level. Recently, I started HCL, hydrochloric acid. It was one of MANY hits, and

sometimes misses, I have trid over the years. After taking ONE TABLET, ALL of my

wheat allergies symptoms went away. I am still allergic (I believe, as a blood

test shows an allergic reaction going on strong because I 'cheat'), but all the

symptoms are gone- bloating, diahrrhea and severe depression after cheating.

>

> Now, I have started on a comprehensive probiotic from the developer of the

GAPS diet. After a fair amount of stress the past few weeks I am not fading as

before. I will start the actual diet soon as I can get supplies in an attempt to

alleviate the continous brain fog I still have. While I am able to do a fair

amount of work that is just physical, my mental/cognitive abilities are still

scarily weak.

>

> I am sharing this info now because in reading about methylation issues I

remember reading the 'true' explanation in the GAPS diet book I just read over

the weekend. It makes COMPLETE sense that there is a specific failing somewhere

in the whole body system for there to be a problem. I tried targeting the

problems I found throughout the years through testing- irregular levels of

minerals, vitamins (malnutrition), amino acids, etc. It did not help. Now I know

it is because my gut was compromised and could not absorb appropriately.

>

> Hippocrates said, " all disease starts in the gut " . It does not make sense

until one reads on it, and then it makes perfect sense when one understands the

necessary balance the gut needs to assist life, and is a major part of the

immunity system.

> The division of medicine has us chasing too many roads to find the cure, the

reason for CFS as well as all other autoimmune diseases. The GAPS diet explains

it.

>

> I will report any and all progress.

> anne

>

>

[Guest guest]

Hi Anne,

Thank you for sharing all of this and saying that you will report all progress,

it will be very helpful.

Can i just clarify about the methylation aspect. Are you saying that from your

reading you mean the methylation cycle is not working due to poor gut function

and that if you repair the gut function the methylation will start to improve

too? Or are you saying the methylation causes the poor gut function? Sorry am

a bit unclear.

Anyway, iwish you all the best of luck on this approach. The SCD diet is not

an easy one so hope it goes ok. I'd be interested to know how you don't get too

hungry on it.

Best wishes

bel

>

> I collapsed with CFS in 2000. It took me 2 years to figure out what was going

on, or to put a name to it. Then it took another 6 years of trying to fix it,

with little info, until as a 'last' resort we did IV vitamins, minerals and

amino acids. I realize there are many 'causes' of CFS. However, I continue to

find that there are 'natural' causes of the failings. The IVs provifded a new

foundation for building health. There was noticable improvement after the IVs

but it has taken another 4 years to get to where I can work at an acceptable

level. Recently, I started HCL, hydrochloric acid. It was one of MANY hits, and

sometimes misses, I have trid over the years. After taking ONE TABLET, ALL of my

wheat allergies symptoms went away. I am still allergic (I believe, as a blood

test shows an allergic reaction going on strong because I 'cheat'), but all the

symptoms are gone- bloating, diahrrhea and severe depression after cheating.

>

> Now, I have started on a comprehensive probiotic from the developer of the

GAPS diet. After a fair amount of stress the past few weeks I am not fading as

before. I will start the actual diet soon as I can get supplies in an attempt

to alleviate the continous brain fog I still have. While I am able to do a fair

amount of work that is just physical, my mental/cognitive abilities are still

scarily weak.

>

> I am sharing this info now because in reading about methylation issues I

remember reading the 'true' explanation in the GAPS diet book I just read over

the weekend. It makes COMPLETE sense that there is a specific failing somewhere

in the whole body system for there to be a problem. I tried targeting the

problems I found throughout the years through testing- irregular levels of

minerals, vitamins (malnutrition), amino acids, etc. It did not help. Now I know

it is because my gut was compromised and could not absorb appropriately.

>

> Hippocrates said, " all disease starts in the gut " . It does not make sense

until one reads on it, and then it makes perfect sense when one understands the

necessary balance the gut needs to assist life, and is a major part of the

immunity system.

> The division of medicine has us chasing too many roads to find the cure, the

reason for CFS as well as all other autoimmune diseases. The GAPS diet explains

it.

>

> I will report any and all progress.

> anne

>

[Guest guest]

Hi Anne

I totally agree with you, and yes my path to recovery has been very similar when

I tried a comprehensive supplement and detox regime, that was also the

foundation I started to build my recovery on. Then doing my methylation

genetics and adding basic methylation sups really helped but all these sups are

only managing this situation, I have found that the toxins depleting glutathione

are coming from the bowel.

GAPS & SCD I believe are definitely the way to go but this is just part of it,

if your gut flora is really damaged and there is a lot of inflammation then the

good flora do not adhere and set up home. This is the problem I have

encountered and in the GAPS book Dr Natasha does say that probiotic supplements

do not adhere, they are only transitory, you also need to heal the gut walls.

This is proving to be the tricky part. Tests show that I don't have leaky gut

any more but still have malabsorption. New research just out also states that in

autistic children the epithilial cells are different than non autistic children

–

http://mbio.asm.org/content/3/1/e00261-11.full?sid=397c05fd-ebe8-41d6-a184-3be96\

537d74a

So if your gut flora is decimated as mine is from years and years of antibiotics

then the supplements don't do anything once you stop them. Hence I have gone for

donor stool infusion which was performed by a gastroenterologist here in Syd

Aut. (There is a centre in the US now doing donor stool infusion) (I believe

the enormous amount of toxins coming from the bowel if not started the

methylation cycle block are what are keeping me in the glutathione depleted

state).

But even after two weeks of daily infussion within a couple of months my stool

tests showed still no good flora and an overgrowth of the undesirable, which I

already knew as all my symptoms were coming back. But when I did the antibiotics

and biofilm treatment then donor stool infusion it turned my life around and

convinced me that that is the root of my illness, just as you are starting to

realise. I have been taught how to do it at home and have a donor that has been

screened both stool and blood and given approval as a donor. When I do the

infusions my energy and cognitive ability improve markedly. They don't know why

the flora is not adhering, they still don't have all the answers. But I believe

the above article is now starting to identify it is not just the luminal

contents but also what is happening and what is in epithilial cells.

The have also found that EBV resides in the epithelial cells

http://mbio.asm.org/content/3/1/e00290-11

I have EBV active maybe this is why my gut is not allowing the good flora to

imbed and establish themselves in my bowel despite the massive amounts of

probiotics from donor stool. I am about to see a Dr in Austria where I am going

to be taught how to make MAF 314 and purchase 6 months worth. This is still in

the trial stages but they are finding it is reducing the inflammation in the gut

wall and assisting the immune system to do its work and kill bacteria. I am also

on GcMaf weekly injections. Hopefully these two will enable my immune system to

control and suppress EBV and other bacteria in my bowel. Maybe then my immune

system will heal and will allow good gut flora to flourish from donor stool,

when that happens then I might be able to reduce my supplements considerably

because my gut and gut flora will be doing the job of absorbing nutrients that

they are supposed to do and the amount of toxins will be considerably less

therefore allowing my methylation to work effectively and reducing my need for

supps. Fingers crossed but I am committed to curing my cfs and it requires a

multi layered approach, a lot of work and money.

>

> I collapsed with CFS in 2000. It took me 2 years to figure out what was going

on, or to put a name to it. Then it took another 6 years of trying to fix it,

with little info, until as a 'last' resort we did IV vitamins, minerals and

amino acids. I realize there are many 'causes' of CFS. However, I continue to

find that there are 'natural' causes of the failings. The IVs provifded a new

foundation for building health. There was noticable improvement after the IVs

but it has taken another 4 years to get to where I can work at an acceptable

level. Recently, I started HCL, hydrochloric acid. It was one of MANY hits, and

sometimes misses, I have trid over the years. After taking ONE TABLET, ALL of my

wheat allergies symptoms went away. I am still allergic (I believe, as a blood

test shows an allergic reaction going on strong because I 'cheat'), but all the

symptoms are gone- bloating, diahrrhea and severe depression after cheating.

>

> Now, I have started on a comprehensive probiotic from the developer of the

GAPS diet. After a fair amount of stress the past few weeks I am not fading as

before. I will start the actual diet soon as I can get supplies in an attempt

to alleviate the continous brain fog I still have. While I am able to do a fair

amount of work that is just physical, my mental/cognitive abilities are still

scarily weak.

>

> I am sharing this info now because in reading about methylation issues I

remember reading the 'true' explanation in the GAPS diet book I just read over

the weekend. It makes COMPLETE sense that there is a specific failing somewhere

in the whole body system for there to be a problem. I tried targeting the

problems I found throughout the years through testing- irregular levels of

minerals, vitamins (malnutrition), amino acids, etc. It did not help. Now I know

it is because my gut was compromised and could not absorb appropriately.

>

> Hippocrates said, " all disease starts in the gut " . It does not make sense

until one reads on it, and then it makes perfect sense when one understands the

necessary balance the gut needs to assist life, and is a major part of the

immunity system.

> The division of medicine has us chasing too many roads to find the cure, the

reason for CFS as well as all other autoimmune diseases. The GAPS diet explains

it.

>

> I will report any and all progress.

> anne

>