Guest guest Posted February 13, 2012 Report Share Posted February 13, 2012 If you read carefully , you would see that I went to the F & F Center as a first step. I did not know any other doctors in this field.  It was working with Dr. Teitelbaum AFTER  the heart attack that I came to the understanding and realization of his inability to help improve my situation. It was  Dr. Teitelbaum himself......  who directed me to go to Dr. Cheney. I was getting worse under Dr. Teitelbaum's collaborative efforts with my brother. The echos that were done proved it.... My ejection fraction had gone down to 29% ( with low normal 50%) I was being asked to have tests done for a defibrillator or heart implant at that sta ge. Dr. Teitelbaum did not have indepth understanding of this illness, even though he attended yearly group meetings with all the CFS experts in the field. He may be helpful in less severe cases of fatigue, but at the time he did not fully understand MY illness or that his protocol could be harmful.  Dr. Teitelbaum asked for my hospital records to be sent to him, I thought it was intended for my care. But I now believe differently. Prior to that time,  I trusted Dr. Teitelbaum implicitly. In fact the sun, moon and stars shone on him , in my eyes. Quite frankly, I believe  Dr. Teitelbaum wanted to know if the F & F Centers could be blamed for the heart attack on the cardiologist's report. That is a very severe comment, but I believe it to be accurate. When the cardiologist who did my catherization after the heart attack  asked that I see the hospital endocrinologist, because he felt my heart attack was caused by the T3, I never knew or  understood why he was suggesting it.  ( Remember my free T3 and free T4 levels were in the high normal range prior to getting the T3 from Dr. Perotti) I thought they ( the hospital endocrinologists) were going to tell me to stop everything I was doing because they didn't understand that they were 20 years behind the times.. as Dr. Teitelbaum had told me. I thought I wouldn't get well if I didn't follow Dr. Teitelbaum's protocol. So I declined the very tests that would prove beyond a shadow of a doubt the F & F Center's culpability. Dr. Teitelbaum knew that because he had my hospital records. It was only after the heart attack I started researching and determined the reason for my heart attack. It was Dr. Cheney in Asheville, North Carolina, who confirmed it as blatant medical malpractice and was willing to state it. There had already been a fatal heart attack in Florida with the use of T3. Why I am alive today, I have no clue.  Dr. Teitelbaum may be good at mild illnesses of fatigue, but he didn't have the expertise for more severe cases. I am going to be brutally honest,  I personally have talked with at least a half dozen patients that saw him when he was practicing in land  and spent thousands of dollars for his care. They were not helped. They were bombarded with too many treatments at one time. If there was one thing that was troublesome, the patient wouldn't be able to determine it... because everything was done at once.  I also spoke with a disabled patient that lived near his office who  asked that she be included in his studies. He would not take anyone that was disabled. So his studies  were skewed as to not include very ill patients. This alone would tend to make his success rates high. As to the effectiveness of Dr. Teitelbaum today, I cannot be the judge. Only one can know by making the appointment and determining whether he has grown in his ability to treat us. Dr. Teitelbaum does have useful ideas in his book,, but they have been in the alternative world prior to his publishing them. I was aware of many of them prior to reading his books.    http://forums.phoenixrising.me/showthread.php?1701-Heart-Attack-from-CFS-Treatme\ nt & highlight=Fibro+Fatigue+heart+attack Kathleen Re: FFC -Kathleen  Kathleen, if you had those two diagnosis, why did you go to the FFC? I know your brother, an MD, was trying hard to also help you. Would you agree that the SHINE protocol under the correct supervision is a solid base? God Bless, Sara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2012 Report Share Posted February 17, 2012 I was just reviewing something when I found my last echo.. The segmental left ventricular function is abnormal. The entire apex and mid and distal anterior septu m are akinteic. The mid lateral wall is hypokinetic. The mid anterior wall, mid posterior wall, mid inferior wall and mid inferoseptum are severely hypokinetc. The estimated ejection fraction is 35-40% ( normal 55-75%) Kathleen Re: FFC -Kathleen  Kathleen, if you had those two diagnosis, why did you go to the FFC? I know your brother, an MD, was trying hard to also help you. Would you agree that the SHINE protocol under the correct supervision is a solid base? God Bless, Sara Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.