Guest guest Posted September 28, 2002 Report Share Posted September 28, 2002 In a message dated 9/28/02 9:57:42 AM Pacific Daylight Time, writes: Message: 7 Date: Sat, 28 Sep 2002 01:14:03 -0000 From: "jillcasey2002" <jillcasey2002@...> Subject: need info Hello everyone. My daughter, Jackie who is only 19 years old just found out she has AIH last month. She has been in the hospital twice since mid-August. All of her tests have came back neg. for everything until the liver biopsy which the drs. believe it is autoimmune hepatitis. She has been sick for a long time and we didn't know why until she had jaundice and was in the hospital. She is very depressed and I am very worried about her. She is currently taking steriods to treat the illness but they are causing bad side effects. What exactly do I need to expect from this disease and how to deal with it. Should I get a second opinion? Please help! Thank you for your time and take care. Jill Jill, as Amber and Jerry said, AIH affects each of us differently. It is far from an automatic death sentence. One study shows that most people who respond to standard therapy have normal life spans. The drugs do have side effects; they affect some people a great deal and others far less. Many of the side effects, particularly the cosmetic ones and mood swings, will lessen as the dosages are decreased. Your daughter will have frequent blood tests to monitor her response to the drugs so her dosage can be adjusted as needed. Be aware that the drug therapy increases the risk of osteoporosis, diabetes, hypertension, glaucoma, and cataracts. Ask your doctor what steps you and your daughter need to take to guard against these problems. You will want to get one of the basic reference books, such as Palmer's Guide to Liver Disease. If you can't find it in a local bookstore, you can get it through her website, liverdisease.com, or from Amazon.com. Another very similar book is by G. Worman. Genny -- I'm so glad to hear from you. Harper Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2002 Report Share Posted September 29, 2002 In order ot dertimined if you have autoimunne Hep, show everyone have a biopsy done? I'm new to this and I really want to know..Thanks you ....... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2002 Report Share Posted September 29, 2002 Thanks alot for your answer I'm so new to this that makes me feel dum asking this questions, but let me know how your biopsy goes ok..... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2002 Report Share Posted September 29, 2002 Dear , Please don't feel that your questions are dumb. Even after being through this a few times in the past, I went to my doctor last week with a whole list of questions. I'm not very worried about the biopsy because I had one in the past that went very smoothly. I know I need to have it before he'll prescribe the medication that will control my AIH. Thanks for your concern. By the way, if you have any other questions, this is the right place to ask. Sharon >From: Angellover6761@... >Reply- > >Subject: Re: [ ] Digest Number 2513 >Date: Sun, 29 Sep 2002 15:08:44 EDT > > > > Thanks alot for your answer I'm so new to this that makes me feel dum >asking this questions, but let me know how your biopsy goes ok..... _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2002 Report Share Posted September 29, 2002 Dear -- Unfortunately this is still the way doctors will determine if you do in fact have AIH. After being diagnosed in 1989, I did not have aflare-up until 2000, and the first thing the doctor did was a biopsy! If you're worried about the procedure itself -- don't -- It's no big deal; quick and relatively painless. I wish you luck, ! Nick > > In order ot dertimined if you have autoimunne Hep, show everyone have a > biopsy done? I'm new to this and I really want to know..Thanks you > ....... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2002 Report Share Posted September 29, 2002 What is meant by a " flare-up " ? Shireen >From: " nicklabrie " <nicklabrie@...> >Reply- > >Subject: [ ] Re: Digest Number 2513 >Date: Mon, 30 Sep 2002 00:08:26 -0000 > >Dear -- > >Unfortunately this is still the way doctors will determine if you do >in fact have AIH. After being diagnosed in 1989, I did not have >aflare-up until 2000, and the first thing the doctor did was a >biopsy! If you're worried about the procedure itself -- don't -- >It's no big deal; quick and relatively painless. > >I wish you luck, ! > >Nick > > > > > > In order ot dertimined if you have autoimunne Hep, show everyone >have a > > biopsy done? I'm new to this and I really want to know..Thanks >you > > ....... > _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2002 Report Share Posted September 29, 2002 What is meant by a " flare-up " ? Shireen >From: " nicklabrie " <nicklabrie@...> >Reply- > >Subject: [ ] Re: Digest Number 2513 >Date: Mon, 30 Sep 2002 00:08:26 -0000 > >Dear -- > >Unfortunately this is still the way doctors will determine if you do >in fact have AIH. After being diagnosed in 1989, I did not have >aflare-up until 2000, and the first thing the doctor did was a >biopsy! If you're worried about the procedure itself -- don't -- >It's no big deal; quick and relatively painless. > >I wish you luck, ! > >Nick > > > > > > In order ot dertimined if you have autoimunne Hep, show everyone >have a > > biopsy done? I'm new to this and I really want to know..Thanks >you > > ....... > _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2002 Report Share Posted September 30, 2002 Thanks for the kind words, sometimes I just really get down, This suppoert group has been wonderful, Thanks again............ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2004 Report Share Posted April 1, 2004 In a message dated 4/1/2004 4:29:00 PM Eastern Standard Time, writes: Date: Thu, 01 Apr 2004 17:20:18 -0000 From: " Stanley " <johnny_tesla@...> Subject: Re: need help with whey gone bad --- In , " " <jendd2@h...> wrote: > I made whey awhile ago from pasteurized yogurt from the store > - the biodynamic kind. [snip] > Does anyone have experience with knowing when whey can turn > harmful? I don't have the answer to your question, but I will say that yogurt culture is not particularly robust. Yogurt will putrify in the fridge in less than two weeks while kefir can remain fresh and edible for many times longer. I once had a jar of kefir whey sit in the fridge for a couple months, and no nasties grew in it (i.e., nothing visibly icky or smelly developed). My suggestion: get some kefir grains and start using kefir whey. .. .. .. Dear That's not my experience with homemade yoghurt. It is stable and good for at least two weeks when NOT refrigerated. Under refrigerations mine is good for well over a month. I fully culture my yoghurt as I am sensitive to lactase. It is cultured for at least 24 hours. I make it a couple times a week. I lost my Kefir grains accidently, so haven't had any for over a year. mjh mjh http://foxhillfarm.us/FireBasil/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2004 Report Share Posted April 1, 2004 In a message dated 4/1/2004 4:29:00 PM Eastern Standard Time, writes: Message: 7 Date: Thu, 01 Apr 2004 18:37:43 -0000 From: " Anja " <schnittie01734@...> Subject: Re: coconut oil candy Katja, I just made my first kefir smoothie with vco and can now imagine what your ingredients were doing in that blender I now have a smoothie with little bits of vco floating in it. I guess the solution is to put the vco in a warm water quench? It melts at about body temperature, which isn't *hot*. CU Anja .. .. Virgin cococut oil melts at about 76 degrees Fahrenheit. mjh http://foxhillfarm.us/FireBasil/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2005 Report Share Posted August 2, 2005 Hello all! I have been a silent reader for quite some time. I am presently in the supposedly the most mold studied building in the country. I work at 25 Sigourney Street, Hartford, CT. NIOSH is making it's 3rd trip here to poke and study. Our bldg was renovated and people continue to get sick. Just recently we have had 3 cancer deaths within 3 weeks of each other. They tell us none of them were building related deaths. We continue to get sick with no one to help us. Lung disease is rampant (my diagnosis)and so are upper airways disease. I see that this is a national problem and not just regional. I am always surprised to read how medical and management individuals have a same universal response to this issue. If I were a conspiracy theorist I would say this was known to cause disease and death years ago and they have been preparing for it way before we even knew these things existed. I had a microbiologist tell me, after I sent him a copp of the different type of molds found in this building, that they have know about toxic mold since the 70's and are aware of the cost to fix it and could not afford to so they would just deny, deny and deny. 4 years later they have followed his words to the letter. Even with all the tests they still deny any new cases of sickness in this building and I talk to people everyday who have gotten sick since renovations. I worry about the cumulative affect on my body especially since I have been exposed to asbestos on the job as well! I pray a lot! Quote Link to comment Share on other sites More sharing options...
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