Re: Webinar - Going with the Flow - Dr. Marvin Medow - OLD POST

[Guest guest]

Hi group

As I am researching POTS (again), I ran across an OLD POST from a webinar that I

watched in March 2010.

We lose blood from the thorax area to the splanchnic (upper abdomen) and very

little (same as controls) in the pelvis and legs.

This is why I no longer wear compression hose (and for other reasons - too hot,

too expensive, too hard to get on, etc).

Here is the webinar by Dr. Medow on hypoperfusion and he felt the percentanges

were greater in the splanchic area so I am not sure how effective compression

hose or suits are.

Here is link to the webinar:

http://www.cfids.org...i-march2010.wmv

and to the slides

http://www.cfids.org...lides-32510.pdf

If you notice on Pg 19, the thorax area loses 30% and the splanchnic gains 30%

then the pelvis and leg are at about 10% (the SAME as the controls).

then page 35 - the brain loses 20% blood flow during TTT.

I am assuming that this cerebral hypoperfusion is the cause of our brain fog.

Marti

>

> Hi all,

>

> For those that missed the CAA Webinar today, here are some links to the

presentation. I learned several worthwhile things. One thing that I learned

was the the negative blood volume in the thoracic area went primarily to the

abdominal area and very little went to the upper legs and lower legs. So while

most websites on OI mention compression socks - they are either knee highs or

thigh highs. Very little mention of compression for the gut area. (there are

waist high compression hose - but I am not sure that I would have the energy to

put them on!). I tried a g suit which has the abdominal compression but I

didn't have a good size and they leaked. I am now wearing a girdle and that is

helping a lot - (Walmart - 10.00). I don't wear it at home - just when I go

grocery shopping. It is a girdle panty and is easy to get on because the

compression comes when you snap it closed - very easy! Basically, duplicating

the g-suit without the bulk.

>

> http://www.cfids.org/webinar/series2010.asp

>

> http://www.youtube.com/solvecfs

>

> Some general info on Hypotension:

>

> http://www.cfids.org/about-cfids/orthostatic-intolerance.asp

>

> www.dinet.org

>

> HTH,

> Marti

>

[Guest guest]

Marti writes:

> As I am researching POTS (again), ...

POTS has a lot to do with all hormones and neurotransmitters,

also related TCM (chinese medicine) factors, etc. I'd test and

optimize all that first, then see if you still have a problem

after that. How all that is done (testing, interpretation

of tests, treatment approach) varies and can make all the the

difference. It's an address to whole person, whole system.

Carol W.

willis_protocols

[Guest guest]

Hi Carol,

Yes, I used to know more of connection with POTS and the endocrine system but I

have forgotten most of it. So, relearning and researching.

I have an appt with my endocrinologist who is POTS friendly and will be

requesting a full workup (I have had most of the basic tests done but not

renin/aldosterone.) Also, catecholemine while standing (and laying). Not sure

if she will be open to this.

I have had some autonomic testing by a specialist near me:

Sweat Test, Heart Rate during Deep Breathing (HRDB)Test,

Valsalva Test, The Tilt Table Test

Then I will be seeing Dr. Levine in Dallas in mid-March. I would like

to be able to go to Vanderbilt or the Mayo Clinic as they have additional

testing procedures but that's not likely.

I have noticed that my POTS is worse now that I am menopausal and my

electrolytes have been a little low.

Thanks for your input. Curious if you are familiar with diabetes insipidus.

From my research, this is more common for POTS patients than diabetes mellitus

but it isn't tested. This is what contributes to poor carbohydrate digestion

and triggers a POTS episode after ingestion of carbs. I am going to ask for

this test. Luckily, my endo is open to working with the electrophysiologist but

I am needing a neurologist to tie it all together. Not open to meds but I am

open to testing so I can use natural solutions. I don't mind trying some meds

to verify or confirm a diagnosis but then replacing them with natural

substances.

Marti

>

>

> Marti writes:

> > As I am researching POTS (again), ...

>

>

> POTS has a lot to do with all hormones and neurotransmitters,

> also related TCM (chinese medicine) factors, etc. I'd test and

> optimize all that first, then see if you still have a problem

> after that. How all that is done (testing, interpretation

> of tests, treatment approach) varies and can make all the the

> difference. It's an address to whole person, whole system.

>

>

> Carol W.

> willis_protocols

>