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I have 3 children with ADHD and I have ADD, which makes for interesting days let me tell you... Personally i don't remember any problems, we just stopped the drug. My oldest chased her younger brother around the house with a butcher knife, that is when we knew it was time to get off that med. The younger brother sat in a corner crying ALL the time, so we knew it wasn't for him either. When it was the 3rd childs time i said "NO WAY" to it. I discussed my concerns with her Dr. and we decided to go with Focilin. That is a refined Ritilin. This medications seems to be working well for us, she has been on the medicine for over 6 months and we have not had to uncrease it. She is on the smalles dose possible..... I know this is a little off the subject, but i really don't remember anything but just taking the child off it, Ritilan has a half life of 6 hours for the extended relief and there is no build up in the system.... TriciaNancale@... wrote: I need some help for a mom whose son has either ADD or ADHD and is on ritalin.He seems to be worse and she wants him off the drug but her doctor won't tell her how to get him off. Are there any support groups local or online that I can get info on for her? She lives in the Stockbridge area.Thanks H CaleVice President, Unlocking Autism770.463.4475 home office866.366.3361 UA Officewww.unlockingautism.orgNanCale@...Giving Mercury To Children on Purpose is STUPID!Today's mighty oak is just yesterday's nut that held it's ground!

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Hi Tricia,

That has not been our experience. My son had a good response to

Adderall but I want him off anyway. Last summer I tried to have some

drug holidays. I thought he would climb the walls! He begged for his

medicine. That's when I decided that we needed to do this slowly. I

don't know how long this would have gone on but it was just too bad to

live with. I looked online for info about getting off the drugs and

while docs routinely suggest drug holidays, the manufacturers say not

to stop them suddenly. I have been reducing his meds over the course

of the year and it has not been disruptive to his school or activities

and we hope to be drug free this summer.

The list that I posted before would be a good one for her if she is not

doing any biomed type stuff to help her child along. I was already

doing a lot of the things that are talked about since they are mostly

that same ones that we use for autism. There is also good info about

other interventions.

H.

On Mar 24, 2006, at 8:34 AM, blu wrote:

> I have 3 children with ADHD and I have ADD, which makes for

> interesting days let me tell you... Personally i don't remember any

> problems, we just stopped the drug. My oldest chased her younger

> brother around the house with a butcher knife, that is when we knew it

> was time to get off that med. The younger brother sat in a corner

> crying ALL the time, so we knew it wasn't for him either. When it was

> the 3rd childs time i said " NO WAY " to it. I discussed my concerns

> with her Dr. and we decided to go with Focilin. That is a refined

> Ritilin. This medications seems to be working well for us, she has

> been on the medicine for over 6 months and we have not had to uncrease

> it. She is on the smalles dose possible..... I know this is a little

> off the subject, but i really don't remember anything but just taking

> the child off it, Ritilan has a half life of 6 hours for the extended

> relief and there is no build up in the system....

>  

> Tricia

> Nancale@... wrote:

> I need some help for a mom whose son has either ADD or ADHD and is on

> ritalin.He seems to be worse and she wants him off the drug but her

> doctor won't tell her how to get him off. Are there any support groups

> local or online that I can get info on for her?  She lives in the

> Stockbridge area.

>

> Thanks

>

>

>

>

> H Cale

> Vice President, Unlocking Autism

> 770.463.4475 home office

> 866.366.3361 UA Office

> www.unlockingautism.org

> NanCale@...

>

> Giving Mercury To Children on Purpose is STUPID!

> Today's mighty oak is just yesterday's nut that held it's ground!

>

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I don't know about how to get him off the medicine. I would think

she needs to talk to a dr. about that. But here is something she

might want to look at for the future if she is interested in natural

approaches to helping ASD issues.

www.feingold.org

>

> I need some help for a mom whose son has either ADD or ADHD and is

on

> ritalin.He seems to be worse and she wants him off the drug but her

doctor won't tell

> her how to get him off. Are there any support groups local or

online that I

> can get info on for her?  She lives in the Stockbridge area.

>

> Thanks

>

>

>

>

> H Cale

> Vice President, Unlocking Autism

> 770.463.4475 home office

> 866.366.3361 UA Office

> www.unlockingautism.org

> NanCale@...

>

> Giving Mercury To Children on Purpose is STUPID!

> Today's mighty oak is just yesterday's nut that held it's ground!

>

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Guest guest

Ritalin is one of the meds that doesn't stay in the system. There is no

weaning off of the med. If you want to stop it you just stop it. It helps to

have the support of the doctor too.

Feingold is a great start in using diet to help reduce or eliminate some

behavior issues. While it works for some it doesn't work for

everyone.....but it is a great place to start.

Missy- SAHM & Angel to Warrior !!

I am who I am because that's who I am,

--, 6 Aspergers, LKS

All Kids are gifted, some just open their

packages earlier than others

-- Carr

http://www.iditarace4autism.com/index.html Race for Autism

http://www.caringbridge.org/cb/inputSiteName.do?method=search & siteName=michaelfr\

ench

Stop by and say hi to my Warrior!!

Re: Ritalin?

I don't know about how to get him off the medicine. I would think

she needs to talk to a dr. about that. But here is something she

might want to look at for the future if she is interested in natural

approaches to helping ASD issues.

www.feingold.org

>

> I need some help for a mom whose son has either ADD or ADHD and is

on

> ritalin.He seems to be worse and she wants him off the drug but her

doctor won't tell

> her how to get him off. Are there any support groups local or

online that I

> can get info on for her? She lives in the Stockbridge area.

>

> Thanks

>

>

>

>

> H Cale

> Vice President, Unlocking Autism

> 770.463.4475 home office

> 866.366.3361 UA Office

> www.unlockingautism.org

> NanCale@...

>

> Giving Mercury To Children on Purpose is STUPID!

> Today's mighty oak is just yesterday's nut that held it's ground!

>

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Guest guest

You are correct. Ritalin is not one that

has build up time or let down time.

Loff, M.Ed. Educational Consultant

K & L Solutions

www.klsolutions.org

From: autism [mailto:autism ] On Behalf Of Missy Feldhaus

Sent: Friday, March 24, 2006 11:37

AM

autism

Subject: [Norton AntiSpam] Re:

Re: Ritalin?

Ritalin is one of the meds that doesn't stay in the system. There is no

weaning off of the med. If you want to stop it you

just stop it. It helps to

have the support of the doctor too.

Feingold is a great start in using diet to help

reduce or eliminate some

behavior issues. While it works for some it

doesn't work for

everyone.....but it is a great place to start.

Missy- SAHM & Angel to Warrior !!

I am who I am because that's who I am,

--, 6 Aspergers, LKS

All Kids are gifted, some just open their

packages earlier than others

-- Carr

http://www.iditarace4autism.com/index.html

Race for Autism

http://www.caringbridge.org/cb/inputSiteName.do?method=search & siteName=michaelfrench

Stop by and say hi

to my Warrior!!

Re: Ritalin?

I don't know about how to get him off the

medicine. I would think

she needs to talk to a dr. about that. But

here is something she

might want to look at for the future if she is

interested in natural

approaches to helping ASD issues.

www.feingold.org

>

> I need some help for a mom whose son has either

ADD or ADHD and is

on

> ritalin.He seems to be worse and she wants

him off the drug but her

doctor won't tell

> her how to get him off. Are there any support

groups local or

online that I

> can get info on for her? She lives in the

Stockbridge area.

>

> Thanks

>

>

>

>

>

H Cale

> Vice President, Unlocking Autism

> 770.463.4475 home office

> 866.366.3361 UA Office

> www.unlockingautism.org

> NanCale@...

>

> Giving Mercury To Children on Purpose is

STUPID!

> Today's mighty oak is just yesterday's nut

that held it's ground!

>

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Guest guest

You are correct. Ritalin is not one that

has build up time or let down time.

Loff, M.Ed. Educational Consultant

K & L Solutions

www.klsolutions.org

From: autism [mailto:autism ] On Behalf Of Missy Feldhaus

Sent: Friday, March 24, 2006 11:37

AM

autism

Subject: [Norton AntiSpam] Re:

Re: Ritalin?

Ritalin is one of the meds that doesn't stay in the system. There is no

weaning off of the med. If you want to stop it you

just stop it. It helps to

have the support of the doctor too.

Feingold is a great start in using diet to help

reduce or eliminate some

behavior issues. While it works for some it

doesn't work for

everyone.....but it is a great place to start.

Missy- SAHM & Angel to Warrior !!

I am who I am because that's who I am,

--, 6 Aspergers, LKS

All Kids are gifted, some just open their

packages earlier than others

-- Carr

http://www.iditarace4autism.com/index.html

Race for Autism

http://www.caringbridge.org/cb/inputSiteName.do?method=search & siteName=michaelfrench

Stop by and say hi

to my Warrior!!

Re: Ritalin?

I don't know about how to get him off the

medicine. I would think

she needs to talk to a dr. about that. But

here is something she

might want to look at for the future if she is

interested in natural

approaches to helping ASD issues.

www.feingold.org

>

> I need some help for a mom whose son has either

ADD or ADHD and is

on

> ritalin.He seems to be worse and she wants

him off the drug but her

doctor won't tell

> her how to get him off. Are there any support

groups local or

online that I

> can get info on for her? She lives in the

Stockbridge area.

>

> Thanks

>

>

>

>

>

H Cale

> Vice President, Unlocking Autism

> 770.463.4475 home office

> 866.366.3361 UA Office

> www.unlockingautism.org

> NanCale@...

>

> Giving Mercury To Children on Purpose is

STUPID!

> Today's mighty oak is just yesterday's nut

that held it's ground!

>

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If the doctor is not supporting the wishes of the parent....then she needs a new doctor. Marilyn PylesNancale@... wrote: I need some help for a mom whose son has either ADD or ADHD and is on ritalin.He seems to be worse and she wants him off the drug but her doctor won't tell her how to get him off. Are there any support groups local or online that I can get info on for her? She lives in the Stockbridge area.Thanks H CaleVice President, Unlocking Autism770.463.4475 home office866.366.3361 UA

Officewww.unlockingautism.orgNanCale@...Giving Mercury To Children on Purpose is STUPID!Today's mighty oak is just yesterday's nut that held it's ground!

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That's exactly what I was going to say, Marilyn. If the doctor isn't willing to listen to the parent and do what is best for the child then they need to find another doc.

Missy- SAHM & Angel to Warrior !!

I am who I am because that's who I am, --, 6 Aspergers, LKS

All Kids are gifted, some just open their packages earlier than others-- Carr

http://www.iditarace4autism.com/index.html Race for Autismhttp://www.caringbridge.org/cb/inputSiteName.do?method=search & siteName=michaelfrench Stop by and say hi to my Warrior!!

Re: Ritalin?

If the doctor is not supporting the wishes of the parent....then she needs a new doctor.

Marilyn PylesNancale@... wrote:

I need some help for a mom whose son has either ADD or ADHD and is on ritalin.He seems to be worse and she wants him off the drug but her doctor won't tell her how to get him off. Are there any support groups local or online that I can get info on for her? She lives in the Stockbridge area.Thanks H CaleVice President, Unlocking Autism770.463.4475 home office866.366.3361 UA Officewww.unlockingautism.orgNanCale@...Giving Mercury To Children on Purpose is STUPID!Today's mighty oak is just yesterday's nut that held it's ground!

New Messenger with Voice. Call regular phones from your PC and save big.

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, I can not speak for anyone but myself, but my Aspergers son is on Adderal and that again has a half life if 6 hours or so. He takes it when he pleases (yes that is another issue) and Yes you can tell when he is off his meds. He has no weening needs the medicine does not build up in your system so my conclusion would have to be that something else has to be going on. These meds just don't build up in the system. Although I must say that there is a HUGE difference in the childs behavior on and off the meds. After giving the meds for a while you enjoy some sort of "honeymoon" period and then when they are off the meds they can be like the devil spawn... (atleast my children were) Good Luck, Tricia Harmon <lisaharmon@...> wrote: Hi

Tricia,That has not been our experience. My son had a good response to Adderall but I want him off anyway. Last summer I tried to have some drug holidays. I thought he would climb the walls! He begged for his medicine. That's when I decided that we needed to do this slowly. I don't know how long this would have gone on but it was just too bad to live with. I looked online for info about getting off the drugs and while docs routinely suggest drug holidays, the manufacturers say not to stop them suddenly. I have been reducing his meds over the course of the year and it has not been disruptive to his school or activities and we hope to be drug free this summer.The list that I posted before would be a good one for her if she is not doing any biomed type stuff to help her child along. I was already doing a lot of the things that are talked about since they are mostly that same ones that we use for autism. There is also good

info about other interventions. H.On Mar 24, 2006, at 8:34 AM, blu wrote:> I have 3 children with ADHD and I have ADD, which makes for > interesting days let me tell you... Personally i don't remember any > problems, we just stopped the drug. My oldest chased her younger > brother around the house with a butcher knife, that is when we knew it > was time to get off that med. The younger brother sat in a corner > crying ALL the time, so we knew it wasn't for him either. When it was > the 3rd childs time i said "NO WAY" to it. I discussed my concerns > with her Dr. and we decided to go with Focilin. That is a refined > Ritilin. This medications seems to be working well for us, she has > been on the medicine for over 6 months and we have not had to uncrease > it. She is on the smalles dose possible..... I know this is a little > off the subject, but i really don't remember

anything but just taking > the child off it, Ritilan has a half life of 6 hours for the extended > relief and there is no build up in the system....> > Tricia> Nancale@... wrote:> I need some help for a mom whose son has either ADD or ADHD and is on > ritalin.He seems to be worse and she wants him off the drug but her > doctor won't tell her how to get him off. Are there any support groups > local or online that I can get info on for her? She lives in the > Stockbridge area.>> Thanks> >>>> H Cale> Vice President, Unlocking Autism> 770.463.4475 home office> 866.366.3361 UA Office> www.unlockingautism.org> NanCale@...>> Giving Mercury To Children on Purpose is STUPID!> Today's mighty oak is just yesterday's nut that held it's ground!>

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Tricia,

Maybe because he takes it intermittently he would not have a problem

stopping it but my son has been taking it steadily for 5 years and he

did have a problem. If it doesn't build up in the system, why does the

drug info say that it may take 3 to 4 weeks to get full benefit from it

and why do they suggest that you not stop it suddenly? If you google

Adderall + withdrawal you will find a good bit of info about it. Some

of the most instructive I found was posts on lists from adults who have

stopped taking it. They all say it takes a long time til they feel it

is all gone. If you google the other drugs and withdrawal there does

not seem to be so much about it since alot of them are shorter acting.

But really, the point I was trying to make was not that it stays in his

body any particular amount of time but that he feels like he needs it.

Like any other kind of dependency, it does so much for him that when he

is without it he feels bad. Anybody ever try to give up caffein cold

turkey? Anyway, I believe that his behavior when he stopped taking it

was way beyond the rebound effect or my not being used to the behavior.

I just couldn't see going off cold and wrecking his life. I think he

would have ended up back on at some point because he would not have had

time to adjust.

So with a child having a bad reaction to a drug, I agree that they need

to be off it as quickly as possible but I just don't think it is always

as simple as just throwing away the bottle.

H.

IOn Mar 24, 2006, at 2:23 PM, blu wrote:

> ,

>  

> I can not speak for anyone but myself, but my Aspergers son is on

> Adderal and that again has a half life if 6 hours or so. He takes it

> when he pleases (yes that is another issue) and Yes you can tell when

> he is off his meds. He has no weening needs the medicine does not

> build up in your system so my conclusion would have to be that

> something else has to be going on. These meds just don't build up in

> the system. Although I must say that there is a HUGE difference in the

> childs behavior on and off the meds. After giving the meds for a while

> you enjoy some sort of " honeymoon " period and then when they are off

> the meds they can be like the devil spawn... (atleast my children

> were)

> Good Luck,

> Tricia

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Our son has taken Ritalin, then adderall. After testing showed he still

had attention problems, even taking the adderall, we decided to take

him off meds since they weren't addressing his attention problems. We

had a major rebound taking him off the adderall, even though he was on

a low dose. New psychiatrist also said adderall has some similar

effects as the antipsychotic meds. After a few months, we tried

risperdal and have seen a good improvement even on a very low dose. He

needs the little extra edge from the meds. Ritalin was the worst thing

we could have done to him - allowed him to focus on his worries without

alleviating his The adderal helped but mainly because of the anti-

psychotic qualities of the med. He really didn't need ADD/ADHD meds but

has autism, highly visual learner.

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I have four children, 3 of whom have autism (yes, 3) all with different characteristics and behaviors. 2 of them are on risperdal, differing doses. My oldest tried the adderall for 6 months, and regressed in that all of her anxiety and OCD stim like behaviors that she did not have in years returned. We stopped it, and things are great again. I have a wonderful neurologist here in Savannah, and he says medications can have a different effect on children with autism vs. other children. Risperdal is not usually given for anxiety, but that was the original reason we put our oldest on it. She had just started Kindergarten and started to pull her hair out. Anyway, thats my two cents, feel free to email me for anything, I feel like I've been through it all!

By the way, my oldest has such severe oral sensory issues that she is G-tube fed, anyone else out there like this?

Thanks!!

-------------- Original message -------------- From: "Jackie" <realjackie@...> Our son has taken Ritalin, then adderall. After testing showed he still had attention problems, even taking the adderall, we decided to take him off meds since they weren't addressing his attention problems. We had a major rebound taking him off the adderall, even though he was on a low dose. New psychiatrist also said adderall has some similar effects as the antipsychotic meds. After a few months, we tried risperdal and have seen a good improvement even on a very low dose. He needs the little extra edge from the meds. Ritalin was the worst thing we could have done to him - allowed him to focus on his worries without alleviating his The adderal helped but mainly because of the anti-psychotic qualities of the med. He really didn't need ADD/ADHD meds but has autism, highly visual learner.

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  • 6 years later...
Guest guest

I was on Ritalin for four years and it gave me enough energy that I could work

for those years. It wasn't a high feeling, just like I popped awake. I have

palpitations though and my doctor was concerned because it is hard on your

heart. So they took me off of it and I haven't been able to work since. In 17

years it is the only thing I have taken that helped with the fatigue without the

added issue of anxiety. I wish I could still take it.

Char Irvine- Florida

On May 2, 2012, at 5:14 AM, " grammie2304 " <sarawilliams.williams@...>

wrote:

> My husband is ADD---taking 10 mg of Ritalin twice a day. Recently I choose to

try 1/4 of a 10 mg pill. It gave me amazing energy---not a high, but longevity

for the day. Has anyone used Ritalin successfully?

>

> God Bless,

> Sara

>

>

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Dear Sara,

I wonder how you felt the next day after you took the 1/4 of 10 mg pill of

Ritalin? Did you feel much more tired, i.e., did the post exertion fatigue

really hit you?

Mira

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Dear Barbara,

Did your son's doctor explain why it worked well for some patients? Does ritalin

calm the brain down enough so that we feel better?

Does anyone know what is the mechanism that makes some patients with CFS have

more energy?

Mira

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It helped me think clearly, and have the energy to finish lots of jobs.

I've done more house cleaning in last three days then in years!! It's not

making me feel anything but healthy----not jittering. Remember the dose was

low---2-3mg. Did NOT feel tired next day. Friend told me of a new ADD

med-----Vyvanse---doing well for many.

My 64 year old body, which is not used to labor, does ask for rest once in a

while :)

God bless,

Sara

>

> Dear Barbara,

>

> Did your son's doctor explain why it worked well for some patients? Does

ritalin calm the brain down enough so that we feel better?

>

> Does anyone know what is the mechanism that makes some patients with CFS have

more energy?

>

> Mira

>

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Ritalin is a synthetic stimulant, similar to amphetamines. It alters

dopamine and norepinephrine.

I have used generic Ritalin extended release, as well as Adderall,

Concerta, and Dexedrine for ADD, CFIDS, & narcolepsy.

methylphenidate ER (generic Ritalin LA)- prescribed for ADD (no H)- helped

with attention for 1-1.5 hours, helped with CFS related fatigue for almost

exactly two hours (sometimes a little less). After it wore off, I suffered

moderate to severe rebound fatigue for an hour or two, but none the next

day.

Adderall XR (mixed amphetamine salts, amphetamine/dextroamphetamine,

Amphetamine)- prescribed for ADD (no H)- helped with attention for 3 hours,

kicked back in an hour later, lasted another 3.5 hours (Adderall XR doesn't

utilize a slow release mechanism, it releases one half of the medication

immediately, then releases the second half as a bolus four hours after the

first). It significantly helped with CFS related fatigue for three hours,

then for about an hour, still helped mildly, then it significantly helped

for another four hours, then it began to wear off. Never had rebound

fatigue.

Concerta (slow release methylphenidate) - prescribed for ADD, CFIDS, &

narcolepsy- It had no effect on my ADD or narcolepsy, but it had a mild

effect on CFIDS related fatigue. Caused moderate rebound fatigue the next

day.

Mixed Amphetamine Salts (Adderall)- prescribed for ADD, CFIDS, &

narcolepsy- when taken every three hours, three times a day, it all but

wiped out my ADD & narcolepsy. It also helped with my CFIDS fatigue more

than anything else than I've tried. No rebound fatigue.

dextroamphetamine ER (generic Dexedrine)- prescribed to replace amphetamine

salts during last shortage- worked just as well as Adderall, but leaves me

feeling a little wired (like one too many coffees) every now and again. No

rebound fatigue.

I hope this helps.

Steve M in PA

These are my experiences, everyone's experiences will differ. Do not start,

stop, or change ANY medication without consulting a doctor, pharmacist, or

other qualified professional.

On May 2, 2012 2:13 PM, " Mira Ghoshal " <mirasghoshal@...> wrote:

Dear Barbara,

Did your son's doctor explain why it worked well for some patients? Does

ritalin calm the brain down enough so that we feel better?

Does anyone know what is the mechanism that makes some patients with CFS

have more energy?

Mira

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Guest guest

Steve,

I wonder if you continue to take any of these stimulants...I'm curious if you're

taking them regularly long term, or only on an occasional as-desired basis.

And after taking them for a while, do you have any misgivings about using

them...physical misgivings, I mean.

RE: Re: Ritalin?

Ritalin is a synthetic stimulant, similar to amphetamines. It alters

dopamine and norepinephrine.

I have used generic Ritalin extended release, as well as Adderall,

Concerta, and Dexedrine for ADD, CFIDS, & narcolepsy.

consulting a doctor, pharmacist, or

other qualified professional.

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Guest guest

do u still use these, how often?

>

> Dear Barbara,

>

> Did your son's doctor explain why it worked well for some patients? Does

> ritalin calm the brain down enough so that we feel better?

>

> Does anyone know what is the mechanism that makes some patients with CFS

> have more energy?

>

> Mira

>

>

>

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Guest guest

Because of the shortage of Adderall, I switched to dextroamphetamine ER a

few months back and except for the rare occasion when I forget or wake up

after 4 pm I do take it every day, just like I did with the Adderall.

Steve M in PA

On May 6, 2012 2:30 PM, " donnaskuhn " <donnaskuhn@...> wrote:

do u still use these, how often?

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Maybe I should ask the rheumy to give me the Adderall again. I used to take

it - didn't notice a big improvement but now am close to housebound. Might

make a difference.

> Adderall XR (mixed amphetamine salts, amphetamine/dextroamphetamine,

> Amphetamine)- prescribed for ADD (no H)- helped with attention for 3

hours,

> kicked back in an hour later, lasted another 3.5 hours (Adderall XR

doesn't

> utilize a slow release mechanism, it releases one half of the medication

> immediately, then releases the second half as a bolus four hours after the

> first). It significantly helped with CFS related fatigue for three hours,

> then for about an hour, still helped mildly, then it significantly helped

> for another four hours, then it began to wear off. Never had rebound

> fatigue.

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