Guest guest Posted May 6, 2012 Report Share Posted May 6, 2012 hi joy. do you have high antibbody titres to the herpes viruses? if you become more fluish on a drug, it is usually considered a good sign. ________________________________ From: Joy <joyhealth08@...> Sent: Sunday, May 6, 2012 1:25:21 PM Subject: Antivirals - again! Â I started the topic of antivirals a while back, but need some input. I tried acyclovir a couple of times (varying dosages) and didn't do well - got way more fluish. Started generic valacyclovir (can't remember the mfg right now, but asked pharmasist for the brand that the group recommended). I am having terrible headaches - not the ordinary ones, but ones that keep me awake at night. I cut back the dosage to 500mg daily & still have the problem (as well as slight dizziness, which is tolerable). I'm in a quandry as I know my viruses are out of control & really need an antiviral, but at the same time, I can't seem to tolerate them very well. I know my doc will tell me to quit taking them, but that leaves me still with rampant viruses. Would the brand Valtrex be worth trying - I know its very expensive, or should I be trying Famvir or anything else? Should I hang in there in hopes that things will get better? Appreciate any input! Joy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2012 Report Share Posted May 7, 2012 I have active EBV & CMV. I guess I ride this out - thanks! > > hi joy. do you have high antibbody titres to the herpes viruses? if you become more fluish on a drug, it is usually considered a good sign. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2012 Report Share Posted May 8, 2012 I am far from the best medical knowledge on this form, but can relate to tolerating the antivirals and antibiotics. Did a serious four months of both several years ago. Knowing it would be a rough road I allowed myself to get in quite a bad state----fevers, weakness, housebound. When I started to loose bladder control I threw up the red flag and with MD's direction tappered down. It was well worth the above, as I am much stronger. God Bless, Sara > > I started the topic of antivirals a while back, but need some input. I tried acyclovir a couple of times (varying dosages) and didn't do well - got way more fluish. Started generic valacyclovir (can't remember the mfg right now, but asked pharmasist for the brand that the group recommended). I am having terrible headaches - not the ordinary ones, but ones that keep me awake at night. I cut back the dosage to 500mg daily & still have the problem (as well as slight dizziness, which is tolerable). I'm in a quandry as I know my viruses are out of control & really need an antiviral, but at the same time, I can't seem to tolerate them very well. I know my doc will tell me to quit taking them, but that leaves me still with rampant viruses. Would the brand Valtrex be worth trying - I know its very expensive, or should I be trying Famvir or anything else? Should I hang in there in hopes that things will get better? Appreciate any input! > > Joy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2012 Report Share Posted May 8, 2012 Hi Joy and EveryOne, This brings up a question for me. I tested high for antibodies to HHV6, EBV and Parvo virus but antibodies, even high ones above the normal range, don't necessarily indicate an active infection. Still something is causing the ME and relapses I have been having for years. My theory that the viruses mentioned above reactivate or it could be a retrovirus....or..... Anybody have any ideas about the connection between high antibodies and reactivation? Peace, Love and Harmony, Bev > > > > hi joy. do you have high antibbody titres to the herpes viruses? if you become more fluish on a drug, it is usually considered a good sign. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2012 Report Share Posted May 9, 2012 Thanks for the discussion - I do feel that these viruses are BIG issues & even though I see 2 docs (Dantini & Klimas/Rey) I don't think anyone really has the answers. When I had my bloodwork done, Dr Rey said that I had active mono. She didn't push antivirals or discourage either. When I was worried about being contagious with a baby in the family, she told me that I had to worry about ME catching something not passing it to others. Because I knew from the sore throats, swollen glands & fatigue that this was major for me, I decided to forge ahead with the antivirals. Because it has been such a difficult road, I just was looking for reassurance that maybe suffering through would lead to eventual control over these buggers! Bev - I do not know how to read the test results as far as antibodies & reactivation, I was going on what the doc told me about it being active. Probably don't need a test for us to know when they are active - right? Joy > > I'm not the only one with HHV6, EBV, parvo, etc. Hmmm. I don't feel I am > contagious but can sure tell when my glands under my throat swell and > hurt. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2012 Report Share Posted May 9, 2012 i wonder if you'd respond to nexavir (the injectable pig liver stuff) better than the other antivirals. does anyone know if nexavir would be like the equivalent of valtrex, another antiviral? here is a link re: nexavir and cfs http://livingwithchronicfatiguesyndrome.wordpress.com/2010/10/25/nexavir-kutapre\ ssin-for-cfs/ rivka > > I started the topic of antivirals a while back, but need some input. I tried acyclovir a couple of times (varying dosages) and didn't do well - got way more fluish. Started generic valacyclovir (can't remember the mfg right now, but asked pharmasist for the brand that the group recommended). I am having terrible headaches - not the ordinary ones, but ones that keep me awake at night. I cut back the dosage to 500mg daily & still have the problem (as well as slight dizziness, which is tolerable). I'm in a quandry as I know my viruses are out of control & really need an antiviral, but at the same time, I can't seem to tolerate them very well. I know my doc will tell me to quit taking them, but that leaves me still with rampant viruses. Would the brand Valtrex be worth trying - I know its very expensive, or should I be trying Famvir or anything else? Should I hang in there in hopes that things will get better? Appreciate any input! > > Joy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2012 Report Share Posted May 9, 2012 It is my understanding that only a high IgM indicates an active infection by most doctors. Also a low WBC is considered indicative of a viral infection. A high WBC is a bacterial infection. There are always exceptions to the rule. There is a lot on line CFS doctors consider all high anti-bodies significant of viral activity. It is good to be tested for these plus the IgG subsets(4) The five major types of antibodies are: * IgA. IgA antibodies are found in areas of the body such the nose, breathing passages, digestive tract, ears, eyes, and vagina. IgA antibodies protect body surfaces that are exposed to outside foreign substances. This type of antibody is also found in saliva, tears, and blood. About 10% to 15% of the antibodies present in the body are IgA antibodies. A small number of people do not make IgA antibodies. * IgG. IgG antibodies are found in all body fluids. They are the smallest but most common antibody (75% to 80%) of all the antibodies in the body. IgG antibodies are very important in fighting bacterial and viral infections. IgG antibodies are the only type of antibody that can cross the placenta in a pregnant woman to help protect her baby (fetus). * IgM. IgM antibodies are the largest antibody. They are found in blood and lymph fluid and are the first type of antibody made in response to an infection. They also cause other immune system cells to destroy foreign substances. IgM antibodies are about 5% to 10% of all the antibodies in the body. * IgE. IgE antibodies are found in the lungs, skin, and mucous membranes. They cause the body to react against foreign substances such as pollen, fungus spores, and animal dander. They may occur in allergic reactions to milk, some medicines, and some poisons. IgE antibody levels are often high in people with allergies. * IgD. IgD antibodies are found in small amounts in the tissues that line the belly or chest. How they work is not clear. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2012 Report Share Posted May 11, 2012 Hi Group, I take Nexivar when I think I have an exacerbation, it helps allot, even flu, i took Valtex and it worked wonders, but..I became allergic, you don't get die off i was told by my physician. I only need a very small amount of Nexivar injectable to get job done about 1/10 of usual dose..I have had this syndrome for 33 years now, so my liver is compromised, and small amounts are better in most cases with drugs. I have been on the Methyl B 12 , and Folate for partial block A1289 in liver, and have got thru the die off..just maintaining now, it's been about 4 months..I stopped several times to let system clear, and to have nice Holidays over Christmas and New Years..I hope to get some relief at 6 months but only time will tell..I take supplements for my Mitro problems, didn't have test, just know..Carol in Seattle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2012 Report Share Posted May 12, 2012 {Moderator: Please trim posts} Hi EveryOne, Thank you for responding to my questions about high antibodies to HHV6, EBV Parvo etc. I have been taking Hepapressin injections (similar to Nexavir) combination from Dr. Enlander for 4 months and it has helped me a lot! I also take the GcMAF Yogurt daily. plus the Immunoprop, Immunoplus and Catapult for the methylation cycle from Dr. Enlander. The Immunoprop supplements are available online. My last relapse was in March, and it was milder than the ones I had been having every three months since 2009. It also did not last as long. That was encouraging and I continue to feel better and better. I am also able to sleep all night without any meds or supplements at all. Recently I've changed my diet to the one recommended by Dr. Fuhrman in his book " Eat to Live " and that seems to be going well too. It provides a lot of nutrition but also the option for the body to detox. I recently did a three day fast which helped a lot too. Then I read Dr. Furhman's book about Fasting and got interested in his program. Chronic Fatigue Syndrome New York | Chronic Fatigue Syndrome ... Hepapressin ( generic Kutapressin ) injection Hepapressin (generic Kutapressin) injection is an amino acid complex derived from Argentinean bovine liver (see .... www.enlander.com/treatment.html - The intention is to build up the immune system so that it can fight off the infections itself. It is working! Peace, Love and Harmony, Bev > > i wonder if you'd respond to nexavir (the injectable pig liver stuff) better than the other antivirals. does anyone know if nexavir would be like the equivalent of valtrex, another antiviral? > > here is a link re: nexavir and cfs > http://livingwithchronicfatiguesyndrome.wordpress.com/2010/10/25/nexavir-kutapre\ ssin-for-cfs/ > > rivka > Quote Link to comment Share on other sites More sharing options...
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