Guest guest Posted May 23, 2012 Report Share Posted May 23, 2012 r, did u start the b12 and nexavir at the same time as gc maf? if so, how can u be sure what has helped? do u have a sense on how others are doing on gc maf? thanks, jim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2012 Report Share Posted May 23, 2012 Hi EveryOne, I have not had any negative effects from the MAF Yogurt and some would think that means it is not working. I do not think that is true, it may be because it is delivered to the body in a much more natural form. Some have claimed that the MAF Yogurt is more powerful than the injection but without the negative side effects. I have no basis of comparison. Dr E just said on a video that he feels the injection works better for many people. Perhaps those who have issues with the injection might try the yogurt and maybe one day I will try the injection. For now, I am happy with my progress on the yogurt. It also might work better for people to start with the yogurt and then switch to the injections once the body is used to it. I have good levels of Vit D and B12 not sure if that matters but it might. Peace, Love and Harmony, Bev > > dr. de meirleir's gcmaf is 35 euro per vial (the same size vial that dr enlander has, and it is also the same product made from the same source). but you have to go to see de meirleir in europe to get gcmaf from him. enlander is " only " in NYC. so enlander's gcmaf is much more expensive for the same product ($270 per vial), but it is not an int'l trip. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2012 Report Share Posted May 24, 2012 does anyone know if testing CD57 levels during treatment is important? my lab does not do this test, tho they do NK and CD20. thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2012 Report Share Posted May 24, 2012 Watching Dr. De Meirleir's presentation of Nov. 20, 2011, I found out I'm not a candidate for GcMAF because I have autoimmune disorders. Did you (or anyone else using it) have your levels of nagalase or LPS tested before starting? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2012 Report Share Posted May 24, 2012 Doesn't everyone with CFS have autoimmune problems? Ellen Re: gcmaf Watching Dr. De Meirleir's presentation of Nov. 20, 2011, I found out I'm not a candidate for GcMAF because I have autoimmune disorders. Did you (or anyone else using it) have your levels of nagalase or LPS tested before starting? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2012 Report Share Posted May 24, 2012 i have severe CFS for 20 yrs but didnt show any autoimmune problems...normal ANA, etc ________________________________ From: ellen <variegatedfoliage@...> Sent: Thursday, May 24, 2012 3:40:51 PM Subject: Re: Re: gcmaf  Doesn't everyone with CFS have autoimmune problems? Ellen Re: gcmaf Watching Dr. De Meirleir's presentation of Nov. 20, 2011, I found out I'm not a candidate for GcMAF because I have autoimmune disorders. Did you (or anyone else using it) have your levels of nagalase or LPS tested before starting? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2012 Report Share Posted May 24, 2012 i had my soluble CD14 tested..i think that is connected to LPS.....they told me it was normal (and they said it meant that gut dysbiosis is not a major problem for me) but my friend had a similar value and was told it was abnormal at another lab...and they found overgrowth of certain bacteria in her too. when she took the prescribed antibiotics, her brain fog disappeared! but it came back eventually.....then she got on gcmaf and is doing very well... ________________________________ From: Slater <diana_slater@...> Sent: Thursday, May 24, 2012 2:57:50 PM Subject: Re: gcmaf  Watching Dr. De Meirleir's presentation of Nov. 20, 2011, I found out I'm not a candidate for GcMAF because I have autoimmune disorders. Did you (or anyone else using it) have your levels of nagalase or LPS tested before starting? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2012 Report Share Posted May 24, 2012 hi jim. it is nice to get nk cell function tested but the only tests that are necessary during gcmaf, i think, are the regular bloodwork tests (wbc liver kidney etc), calcium, and both vitamin D's some people get complement CD4a tested too, to see if the inflammation is decreasing...but i dont think its necessary ________________________________ From: Jim <jims111@...> Sent: Thursday, May 24, 2012 12:29:35 PM Subject: Re: Re: GcMaf  does anyone know if testing CD57 levels during treatment is important? my lab does not do this test, tho they do NK and CD20. thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2012 Report Share Posted May 25, 2012 GcMAF can be bought online from the GcMAF UK site here http://www.gcmaf.co.uk/info/index.php?option=com_content & view=article & id=129 & Ite\ mid=48 It is expensive, but if you need a supply without visiting a far off Dr it may be the way to go. Best Simon Quote Link to comment Share on other sites More sharing options...
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