Guest guest Posted April 7, 2012 Report Share Posted April 7, 2012 Hi Marti, I haven't stopped by this group in ages, but caught your message and just wanted to pass on info that a woman who posts over on Cort's forums found that her OI/POTS finally disappeared after she did the Spectracell nutrient panel (which measures nutrients in white blood cells -- much more accurate) and gradually improved by supplementing those that she was deficient in. Dan > > Hi group, > I just got back from a grueling 4 days of testing by a cardiologist with a specialty of Electrophysiology. > > He found balance problems (no surprise) as well as a connective tissue disorder - EDS. He also found delayed gastric emptying. > > I had VO2 Max testing (so I didn't have to travel to Florida or Oregon). > > I had about 24 tests run - I will report on them later as I recover. > > Anyway, I just wanted to encourage everyone to keep looking for answers. I am focusing on my POTS/OI which is how I found this doc. He is a testing type doc where most of them are not so I was fortunate. > > Secondly, I realize now that I have made an error in always choosing HMO's. Those physicians are bound by the medical bean counters. Since I switched this year to a PFFS plan (similar to PPO), I have been getting more testing done. > > Hang in there and keep searching, > Marti > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2012 Report Share Posted April 7, 2012 Hi Dan, That is a great test. I don't know why I have never had it done but it has been on my list for years. Great suggestion. Thanks! Marti > > > > Hi group, > > I just got back from a grueling 4 days of testing by a cardiologist with a specialty of Electrophysiology. > > > > He found balance problems (no surprise) as well as a connective tissue disorder - EDS. He also found delayed gastric emptying. > > > > I had VO2 Max testing (so I didn't have to travel to Florida or Oregon). > > > > I had about 24 tests run - I will report on them later as I recover. > > > > Anyway, I just wanted to encourage everyone to keep looking for answers. I am focusing on my POTS/OI which is how I found this doc. He is a testing type doc where most of them are not so I was fortunate. > > > > Secondly, I realize now that I have made an error in always choosing HMO's. Those physicians are bound by the medical bean counters. Since I switched this year to a PFFS plan (similar to PPO), I have been getting more testing done. > > > > Hang in there and keep searching, > > Marti > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.