Guest guest Posted May 20, 2012 Report Share Posted May 20, 2012 Alan, whats a good site to know more about hcg diet ?? Deepak On Sun, May 20, 2012 at 4:56 PM, alan parker <pilotdad28645@...>wrote: > ** > > > Maybe the food your eating is what's causing fibro. > > ________________________________ > From: MG <happytrails@...> > > Sent: Saturday, May 19, 2012 1:23 PM > > Subject: Re: Re: gluten > > > > I also lost 64 lbs on the hcg diet and felt great while on the hcg, but > after the diet ended, the pain ALL came back and it's really hard not to > let > the weight come back as well. I always felt there was really something to > the fact that all the fibro patients felt so well while taking even the > homeopathic hcg. I wish the results lasted. But I wonder what the > connection is. > > Marcia > > Re: gluten > > Good for you for looking further!!! I too lost 60 lbs on the HCG diet. > Dr. Teitlebaum has some posts referring the HCG helping with fibro pain. > Have you looked into LDN?? It is a big help for Fibro and other health > issues. > > God Bless, > Sara > > > > > > My wife was diagnosed fibromyalgia 5 years ago. She went to doctors with > > her health deteriorating, much weight gain, gall bladder removal and > knee > > problems that doctors recommended knee replacement saying all was fibro > > related. Being 42 I thought there had to be a alternative. I researched > > other alternatives and decided to go with a new alternative called > > prolotherapy. This dr. told her he didn't think she had fibro and tested > > her for gluten intolerance, hormone in balance and thyroid. She test > > positive for all these even though her other doctors had tested for > these > > they showed negative. Her doctor recommended the hcg diet in which he is > > on, go on a gluten free diet, take thyroid medication, hormone > medication > > and prolotherapy injections in her knees which is extremely painful. > > Started july 2011 and lost 68 pounds, no more fibro type pain, sleeping > > really great and knees are not better but no pain as long as she don't > > over do it. She still undergoing > > prolo. But feels great. > > > > Just letting everyone know just in case of a misdiagnosis and hope it > > helps someone. > > Alan > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2012 Report Share Posted May 20, 2012 Who cares what the FDA says? Are we sheep that we need the FDA to tell us 500 calories is not safe!!!???!!! If you are not going to follow the diet to the letter then you are putting your health at risk. Doing the entire HCG diet is safe if you do it right. Pregnant women are doing it all the time, all over the world since the beginning of time. Doing the 500 calories without HCG is risky and I don't think anyone is saying that. Please don't criticize what you don't understand. http://en.wikipedia.org/wiki/Albert_T._W._Simeons the original manuscript (ignore the text in red at the top) http://www.slimdownhcg.com/resources/dr-simeons-manuscript.pdf If you have not read Dr. Simeons ENTIRE manuscript, then you have no business doing the diet or commenting about it. Marti > > FDA says 500 calorie diet not healthy. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2012 Report Share Posted May 20, 2012 I have been gluten free for about 16 years now and I have a lot less pain than I used to have. I hadnt made the connection that the gluten free diet might be contributing to the improvement in my pain since there are other factors too. I had prolotherapy on my lower back that also helped with that. Beverly H Where did this start " HCG works well for fibro pain " ? Please provide links from PubMed or a reliable source (not a website selling it). HCG has nothing to do with relieving pain of any kind, period. HCG is the chemical in a pregnant woman's urine that changes the metabolism that protects the fetus from feast or famine effects. I lost 45 lbs on the diet and some days it was difficult to eat more 300 calories and some days it was hard to stay at 500 calories. Basically, you are living off your own fat and the fresh food is providing your daily minerals. I also found, by accident, that my body LOVES the food that is approved on the diet. I also realized how badly my body feels with carbs and fat (I knew this already just not the extent). So, while I don't eat 500 calories, I still eat the foods on the approved list. I can digest them so much better. Perhaps people mean by staying off carbs/gluten, they have less muscle pain? Please let's clarify this or people are going to start ordering HCG to handle their pain. You can stay off carbs/gluten and feel better without taking HCG. Marti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2012 Report Share Posted May 20, 2012 You didn't read all my post!! And don't criticize me. I was merely answering a question from a member why it was banned. My wife lost now 70 lbs. on this diet. I was posting progress to maybe help people that have fibro. And saying maybe they have a gluten intolerance instead.  I wrote to the FDA to the reason why they banned hcg. They sent me to a FDA website stating the 500 calorie diet was unsafe. I wrote them back stating my sister in-law just had most of her stomach removed, part of her intestine and was her calorie intake is 400 a day for weight loss. Now which is the most unsafe? They didn't respond. ________________________________ From: marti_zavala <marti_zavala@...> Sent: Sunday, May 20, 2012 2:06 PM Subject: Re: gluten  Who cares what the FDA says? Are we sheep that we need the FDA to tell us 500 calories is not safe!!!???!!! If you are not going to follow the diet to the letter then you are putting your health at risk. Doing the entire HCG diet is safe if you do it right. Pregnant women are doing it all the time, all over the world since the beginning of time. Doing the 500 calories without HCG is risky and I don't think anyone is saying that. Please don't criticize what you don't understand. http://en.wikipedia.org/wiki/Albert_T._W._Simeons the original manuscript (ignore the text in red at the top) http://www.slimdownhcg.com/resources/dr-simeons-manuscript.pdf If you have not read Dr. Simeons ENTIRE manuscript, then you have no business doing the diet or commenting about it. Marti > > FDA says 500 calorie diet not healthy. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2012 Report Share Posted May 20, 2012 So sorry! You're right, I didn't mean to come down hard on you. I didn't catch why you stated that. I just get frustrated when people start bashing things they don't know about. And I am angry with the government and doctors right now so I'm a little touchy. And it is frustrating when people start making claims without backing them up. Someone sent a link that Teitelbaum posted something about pain and HCG but I have a hard time believing that. The link was broken so hopefully they will repost. By the way, I meant to thank you for getting on the forum with good news. that is always good to hear and very few people do that. I am very glad your wife is better. After I hit send, I thought perhaps I was too harsh! Thanks for clarifying. Marti > > > > FDA says 500 calorie diet not healthy. > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2012 Report Share Posted May 21, 2012 Thanks so much Marti. I am in India, not in USA . But will enquire here. Btw have you ever tried Lauricidin ? On Mon, May 21, 2012 at 12:33 PM, marti_zavala <marti_zavala@...>wrote: > ** > > > Hi Deepak, > > Any doctor that is willing to learn. EDS is not new but it was considered > benign until a few years ago (10 years). Much is still not know but 5 or 6 > types have been identified. Only two types offer testing (genetic), the > others are diagnosed based on physical evaluation. > > Typically, a neurologist or a rheumatologist would be a good doc to start > with but if you have a good PCP, that is fine too. > > If, based on the major and minor criteria, it looks like a fit, then you > can be sent to a geneticist for confirmation (genetic tests for the 2 types > if symptoms warrant). There is no test for the hypermobility type ( > previously known as Type III). > > It is important to know as there are some things that you can do to feel > better and some things to be aware of in terms of medical care. > > One way to find a doc is to call the nearest teaching hospital and locate > the EDS geneticist. There is usually a long waiting time but ask the nurse > for a name of a neurologist or rheumy that that doctor works with who will > pre-screen you. > > > Marti > > > > > > > ** > > > > > > > > > > Thanks for being so understanding. I didn't notice the sender - just > saw > > > the line and I saw red! > > > > > > I have recently been evaluated by a brilliant diagnostician and he > found > > > that I have EDS - Ehlers Danos Syndrome. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2012 Report Share Posted May 21, 2012 Marti I don't rely on any mainstream web sites for comformation on a treatment. I've discovered over the 15 years of CFS, mainstream is decades behind, so I rely on integrative MD's. As to where to find the information----looks like the posts following mine are good enough. I'm sure Dr. Teitlebaum will come out with an announcement when ready. IF the FDA stops something it is a sure sign that it was working and Big Pharma didn't like it. God Bless, Sara > > Its just my own experience and the experience of many many others with fibro > on hcg chat groups of dieters, I interracted with them a lot over the last > year of dieting. I'm not aware this has ever been studied, it's strictly > people's experience. > > marcia > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2012 Report Share Posted May 21, 2012 Marcia and Sara, Excellent points, both of you. I just find it very hard to believe but I promise to keep an open mind. It just brings to mind ladies who are pregnant who have chronic pain issues who cannot take meds. I have been on some forums where women did not have children because of the chronic pain and not being able to take meds. i guess a round of HCG would answer that question for them without putting a fetus in danger. ..I just hope people realize that HCG is not a good method to control pain. And I hope that people would get off carbs (gluten or otherwise) to see if that affects their pain without buying HCG in case that is effective. Actually, LDN lists some restrictions in order for it to work better. Gluten and casein and alcohol are 3 restrictions - I forget if there are more. So, those things would be good to help get control of pain. Good discussion, Marti > > > > Its just my own experience and the experience of many many others with fibro > > on hcg chat groups of dieters, I interracted with them a lot over the last > > year of dieting. I'm not aware this has ever been studied, it's strictly > > people's experience. > > > > marcia > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2012 Report Share Posted May 21, 2012 I dont eat wheat, barley, rye or oats. Now that contamination free oats are available, I might try give oats a trial to see if it gives me problems. I am supposedly not gluten intolerant but I'm not sure I trust the MDs info. I'm getting the impression that there are at least 2 kinds of gluten intolerance - one is true coeliac disease and the other may be more like an allergy. Or maybe I am just allergic to wheat. Whatever - it made a big difference when I went off of it and I've been able to stay clear of it for a long time. I wish I could eat less corn too but it is just too hard to not eat wheat and avoid all corn. My half sister who has a fibro diagnosis says she can tell that she is a lot better if she stays away from all grains but I think she does have them sometimes. I do eat corn, buckwheat, rice, quinoa, amaranth, millet. There are so many more gluten free products available today but some are probably too high of a glycemic index for me now. I had gotten into the habit of buying Pamela's gluten free cookies and they are way too high in sugar now that I know that I have hypoglycemia. I have a problem with the guar gum and xantham gum that are put into many gluten free products. If there is too much of it I get really bad gas. They even put the stuff in the coconut milk yougurt. The brand that I can get at the regular grocery store has way too much but the health food store brand is OK. Beverly Bev, You have other grains but not wheat ? Deepak On Mon, May 21, 2012 at 12:13 AM, Beverly <bevbh@...>wrote: > ** > > > I have been gluten free for about 16 years now and I have a lot less pain > than I used to have. I hadnt made the connection that the gluten free diet > might be contributing to the improvement in my pain since there are other > factors too. I had prolotherapy on my lower back that also helped with > that. > Beverly H >- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2012 Report Share Posted May 21, 2012 We even have to get coffee beans to grind because they put flour in the ground coffee So the ground coffee will slide off the machine. If it don't say gluten free on the package assume it has gluten. ________________________________ From: Beverly <bevbh@...> Sent: Monday, May 21, 2012 2:59 PM Subject: Re: Re: gluten  I dont eat wheat, barley, rye or oats. Now that contamination free oats are available, I might try give oats a trial to see if it gives me problems. I am supposedly not gluten intolerant but I'm not sure I trust the MDs info. I'm getting the impression that there are at least 2 kinds of gluten intolerance - one is true coeliac disease and the other may be more like an allergy. Or maybe I am just allergic to wheat. Whatever - it made a big difference when I went off of it and I've been able to stay clear of it for a long time. I wish I could eat less corn too but it is just too hard to not eat wheat and avoid all corn. My half sister who has a fibro diagnosis says she can tell that she is a lot better if she stays away from all grains but I think she does have them sometimes. I do eat corn, buckwheat, rice, quinoa, amaranth, millet. There are so many more gluten free products available today but some are probably too high of a glycemic index for me now. I had gotten into the habit of buying Pamela's gluten free cookies and they are way too high in sugar now that I know that I have hypoglycemia. I have a problem with the guar gum and xantham gum that are put into many gluten free products. If there is too much of it I get really bad gas. They even put the stuff in the coconut milk yougurt. The brand that I can get at the regular grocery store has way too much but the health food store brand is OK. Beverly Bev, You have other grains but not wheat ? Deepak On Mon, May 21, 2012 at 12:13 AM, Beverly <bevbh@...>wrote: > ** > > > I have been gluten free for about 16 years now and I have a lot less pain > than I used to have. I hadnt made the connection that the gluten free diet > might be contributing to the improvement in my pain since there are other > factors too. I had prolotherapy on my lower back that also helped with > that. > Beverly H >- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2012 Report Share Posted May 21, 2012 I hope you find a solution. You seem to be pretty intelligent to research your problems and get headed in the right track. ________________________________ From: marti_zavala <marti_zavala@...> Sent: Sunday, May 20, 2012 11:19 PM Subject: Re: gluten  Thanks for being so understanding. I didn't notice the sender - just saw the line and I saw red! I have recently been evaluated by a brilliant diagnostician and he found that I have EDS - Ehlers Danos Syndrome. He wants me to be checked for Chiari Malformation (which I have known about for 13 years as being part of the differential for ME/CFIDS but which I could never have done as no one would do a brain MRI). I have wasted money on copays to find a neurologist or neurosurgeon to evaluate my MRI's. Just getting them to run the right kind of MRI is like pulling teeth. In line with your original post, everyone should evaluate themselves for EDS as it is confused with ME/CFIDS and/or Fibromyalgia. http://www.ehlersdanlosnetwork.org/hypermobility.html I can actually handle a little gluten so I would say I am gluten intolerant rather than celiac. I can have a little one day but not two days in a row. I notice a bigger difference in the amount of carbs I have (gluten or otherwise). My body just does not know what to do with carbs or fat. I take prescription enzymes at every meal, acid before the meal and baking soda after. I found out that I have gastric emptying delay as part of my EDS - it takes 30 minutes to digest 16% of what I have eaten. So, I eat something with carbs right before I run errands and that keeps me from cheating while out and about since I feel full. I really did well on the HCG diet due to the very low fat component. Funny thing is, the diet for people with gastric emptying delay is VERY similar to the HCG diet. The same ratios of fat/carbs/protein. I find that I gain weight when I add fat and sugar - for example, the icing on a cupcake or a meat that is not the chicken or beef liver. When I start to gain, I just do a day or two of the HCG foods but at a higher caloric level and it comes back down. I have never been able to do the 6 apple day or the apple/steak day. I need to eat a little more often. As far as the pain, I am going to research this as see if there is any scientific fact. Dr. Teitelbaum has a blurb but the link to more info is broken or the info has been removed. Does anyone have access to this site or know which article he is referencing? http://www.endfatigue.com/newsletters-2/nl_2011-01-11.html Marti > > I understand! You are exactly right with the hcg diet. My wife has gone off hcg for a month and she didn't gain any of her weight back. She stays off the gluten though. But when she does mistakenly eat gluten, makes her sick. I'm sure you know this. >  I'm angry with the government also, that's why the letter to the FDA. I feel it's all about greed. And i'm a product of Dr. greed myself. I can barely hear out of one ear because a dr. wanted to have a income from keeping my ear bad when i was a little kid. My adult ear Dr. confirmed this. If you have Netflix there is a movie on there called Burenski, maybe not spelled right. But this Dr. successfully had a treatment for cancer and the FDA tried to have him imprisoned. Watch it and it will make you even more angry. >  But thanks to people like you and joanna sharing what we have learned maybe we can make a difference in someones life. > > > > ________________________________ > From: marti_zavala <marti_zavala@...> > > Sent: Sunday, May 20, 2012 5:23 PM > Subject: Re: gluten > > >  > So sorry! You're right, I didn't mean to come down hard on you. > Quote Link to comment Share on other sites More sharing options...
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