Guest guest Posted April 19, 2007 Report Share Posted April 19, 2007 The best source for news on low dose naltrexone is probablyhttp://www.low dose naltrexone.org/ldn_trials.htm which does list small new trials for Crohn's, MS and HIV.Harvard educated Dr. Bihari has long claimed that LDN monotherapy has kept his HIV patients alive and kept them from losing T cells, but the evidence has been his retrospective reporting, not clinical trials, so it will be interesting to see the results, if and when these get completed. I tried LDN for a year (while on HAART) since Dr. Bihari also maintains that his patients on HAART do not develop lipodystrophy, or if they have it, it is largely reversed. I can't say after a year that I saw any significant changes (protruding belly button being my main indicator in the stomach, and sunken cheeks in the face). I had already switched off Zerit. LDN is pretty cheap though, so I wasn't out much money. Insurance frequently will reimburse. Bihari has gotten rave reviews from his patients (per a Poz magazine poll from a few years ago) so there must be something there....Original message: low-dose naltrexone Posted by: " Goldman" yangzpa@... yangzpa Date: Wed Apr 18, 2007 9:05 pm ((PDT))The Project Inform Hot Line recently had a pharmacist from Grandpa'sCompounding Pharmacy in CA ask if there was any current info on theuse of this substance since Dr. Bihari reported it anecdotally as apossible remedy for lipodystrophy/immune enhancer last century. Hasanyone heard of any trials or drug interactions about it since then?Thanx- Goldmanjgoldman@projectinfor Ahhh...imagining that irresistible "new car" smell? Check out new cars at Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2007 Report Share Posted April 19, 2007 The best source for news on low dose naltrexone is probablyhttp://www.low dose naltrexone.org/ldn_trials.htm which does list small new trials for Crohn's, MS and HIV.Harvard educated Dr. Bihari has long claimed that LDN monotherapy has kept his HIV patients alive and kept them from losing T cells, but the evidence has been his retrospective reporting, not clinical trials, so it will be interesting to see the results, if and when these get completed. I tried LDN for a year (while on HAART) since Dr. Bihari also maintains that his patients on HAART do not develop lipodystrophy, or if they have it, it is largely reversed. I can't say after a year that I saw any significant changes (protruding belly button being my main indicator in the stomach, and sunken cheeks in the face). I had already switched off Zerit. LDN is pretty cheap though, so I wasn't out much money. Insurance frequently will reimburse. Bihari has gotten rave reviews from his patients (per a Poz magazine poll from a few years ago) so there must be something there....Original message: low-dose naltrexone Posted by: " Goldman" yangzpa@... yangzpa Date: Wed Apr 18, 2007 9:05 pm ((PDT))The Project Inform Hot Line recently had a pharmacist from Grandpa'sCompounding Pharmacy in CA ask if there was any current info on theuse of this substance since Dr. Bihari reported it anecdotally as apossible remedy for lipodystrophy/immune enhancer last century. Hasanyone heard of any trials or drug interactions about it since then?Thanx- Goldmanjgoldman@projectinfor Ahhh...imagining that irresistible "new car" smell? Check out new cars at Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2011 Report Share Posted June 27, 2011 We have a lot of past emails on naltrexone that you can read here:/msearch?query=naltrexone & submit=Search & charset=ISO-8859-1 On Mon, Jun 27, 2011 at 12:35 PM, m.serebrenik <m.serebrenik@...> wrote: Hello everyone: I was wondering if anyone has been taking low dose Naltrexone and if they are seeing any results. There is also a variation of just how much to take. When I first heard about this, it was recommended to take 3.0 mg. That dose recommendation has changed according to the website to 4.5 mg. I would appreciate any feedback from folks taking this med. Thanks, Mitch ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2012 Report Share Posted June 15, 2012 Hi EveryOne, Started LDN a few days ago and so far it seems to be helping me. Some symptoms cleared and most of all, I feel more energy....pray it lasts... Has anyone taken LDN? What was your experience with it. Have a great weekend everyone. Peace, Love and Harmony, Bev Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2012 Report Share Posted June 16, 2012 Dear Group, Can somebody tell me what is LDN? How does it work? Does it clear the mind or work to boost the immune system? How long can anybody be on this drug? Finally is it a psychiatric drug? Mira Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2012 Report Share Posted June 16, 2012 I " found " LDN in a Charlotte CFS/Fibro news letter four years ago. My integrative MD was fine with the low dose. It lifted a full body weakness. MANY with Fibro have raved about pain help from LDN. If you go on the web site, www.low dose naltrexone.org you can see all the success storys----MS, Parkinsons----and some cancers. God Bless, Sara > > Hi EveryOne, > > Started LDN a few days ago and so far it seems to be helping me. Some symptoms cleared and most of all, I feel more energy....pray it lasts... > > Has anyone taken LDN? What was your experience with it. > > Have a great weekend everyone. > > Peace, Love and Harmony, > Bev > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2012 Report Share Posted June 16, 2012 I've been using 3 mg. LDN for almost 3 years for my Hep C. My viral load dropped from over a million to the 11,000-35,000 range in all recent tests. And my liver enzymes all went to normal and have thankfully stayed there.  LDN is an immune modulator - it seems to help the immune system work at it's best.   I am also on a gluten/dairy free diet, which alone helped eliminate my IBD and made my fibro much, much better. The LDN and diet is what has worked the best for me.   LDN Science site - also has " Users' Stories " which includes a few CFS folks.  http://www.ldnscience.org/low-dose-naltrexone-ldn    Good luck!  Nola Chris  Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2012 Report Share Posted June 17, 2012 Go to www.low dose naltrexone.org for all the answers. I will NEVER stop the med., due to it's amazing help to my health. God Bless, Sara > > > Dear Group, > > Can somebody tell me what is LDN? How does it work? Does it clear the mind or work to boost the immune system? How long can anybody be on this drug? > > Finally is it a psychiatric drug? > > Mira > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2012 Report Share Posted June 18, 2012 You can always get it from one of those overseas pharmacies and dilute it yourself. Plenty of people do it that way. Ellen Re: Low Dose Naltrexone The problem with LDN is finding someone who will prescribe it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2012 Report Share Posted June 18, 2012 My integrative doc thankfully writes my prescription - I get if filled at Skip's Pharmacy (compounding pharmacy) - a 3 month supply including shipping, costs about $55.00.  This link has some pretty good info. A woman named Crystal maintains a database on docs who prescribe ldn state by state in the us and also a few docs overseas. Also, the ACAM link has a zip code search for cam/integrative doctors.  How To Obtain Low Dose Naltrexone (LDN) http://www.webspawner.com/users/howtoobtainldn/index.html  Nola Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2012 Report Share Posted June 19, 2012 what does it do for you? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2012 Report Share Posted June 19, 2012 LDN has saved me. I've always had pain since onset of FMS/CFS, but it got increasingly worse so that I could barely walk. The pain was excruitiating to the point that I wished I could die, LDN took that level of pain away. I am now fairly active in comparison & feel its all due to LDN. It would be hard to evaluate what it has done otherwise, immune system etc., but I will be taking it the rest of my life as well. Joy > > > > what does it do for you? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2012 Report Share Posted June 20, 2012 Just got a Rx for LDN. An environmental MD gave it to me primarily for my thyroiditis. He said he's had more success with it correcting thyroid problems than for CFS. Let's face it, if the thyroid isn't working right, you're gonna be tired. Can't wait to get it. Coming from a compounding pharmacy in Los Angeles. Quote Link to comment Share on other sites More sharing options...
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