Guest guest Posted July 8, 2012 Report Share Posted July 8, 2012 Great news! What form have you been taking GcMAF in? acidophilus or injections? what was your dosage? Regards Gordon GcMAF - good results Hello. Just wanted to reiterate that I am doing much better on GcMAF, after 20 years' illness. I get it from Dr. Enlander. My NK cell function has risen to normal levels. I have more energy and less inflammation after 4 months of use. I know several who have almost recovered on the compound. It is a compound that activates the macrophages, which then destroy cells that are infected. Rate of improvement depends on many variables, including length of illness. There are those who do not respond, but the majority do. It is being used by Dr. Enlander. Dr. DeMeirleir, Dr. Beiger, Dr. Bradstreet, Dr. Klinghardt, and several others. ------------------------------------------------------------------------------ No virus found in this message. Checked by AVG - www.avg.com Version: 10.0.1424 / Virus Database: 2437/5118 - Release Date: 07/08/12 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2012 Report Share Posted July 8, 2012 Great news Sue, Did you start with a small dose and slowly increase? Did you have any side effects? Hope your progress continues, wonderful! Peace, Love and Harmony, Bev > > Hello. Just wanted to reiterate that I am doing much better on GcMAF, after 20 years' illness. I get it from Dr. Enlander. My NK cell function has risen to normal levels. I have more energy and less inflammation after 4 months of use. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2012 Report Share Posted July 8, 2012 Hello! I am taking the injections, not the yogurt. I started with 10 ng and moved up slowly, since I was severely ill and had so much inflammation already. I am now on 20 ng. ________________________________ From: falcrest <falcrest@...> Sent: Sunday, July 8, 2012 3:11:13 PM Subject: Re: GcMAF - good results  Great news! What form have you been taking GcMAF in? acidophilus or injections? what was your dosage? Regards Gordon GcMAF - good results Hello. Just wanted to reiterate that I am doing much better on GcMAF, after 20 years' illness. I get it from Dr. Enlander. My NK cell function has risen to normal levels. I have more energy and less inflammation after 4 months of use. I know several who have almost recovered on the compound. It is a compound that activates the macrophages, which then destroy cells that are infected. Rate of improvement depends on many variables, including length of illness. There are those who do not respond, but the majority do. It is being used by Dr. Enlander. Dr. DeMeirleir, Dr. Beiger, Dr. Bradstreet, Dr. Klinghardt, and several others. ---------------------------------------------------------- No virus found in this message. Checked by AVG - www.avg.com Version: 10.0.1424 / Virus Database: 2437/5118 - Release Date: 07/08/12 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2012 Report Share Posted July 8, 2012 I would love to know how and where I can get this you are taking.  Mapp-Stokes  From: Sue <suebackagain123@...> Subject: Re: GcMAF - good results " " < > Date: Sunday, July 8, 2012, 9:51 PM  Hello! I am taking the injections, not the yogurt. I started with 10 ng and moved up slowly, since I was severely ill and had so much inflammation already. I am now on 20 ng. ______ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2012 Report Share Posted July 8, 2012 Dear , I would like to know what you can do now after the 4 months on GcMaf as compared to what you were able to do before you started to take the medication. This is very important because those of us who are thinking very seriously about taking it would like to have that information. Are you able to walk outside more? Can you do more housework? Is the brain fog lighter? Can you concentrate and remember things better? Is walking up the stairs easier now then it was before taking the GcMaf? If you ever did some light weight lifting exercises at home, are you able to do more of them? Mira Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2012 Report Share Posted July 8, 2012 Dear , The 10 ng and the 20 ng that you are on right now, is this every week? Do you have side effects after each injection? Love, Mira ---------------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2012 Report Share Posted July 9, 2012 Does anyone know of a GcMAF doctor in Arizona?  Preferably Phoenix area or north?  Thanks.  Kay  Hello! I am taking the injections, not the yogurt. I started with 10 ng and moved up slowly, since I was severely ill and had so much inflammation already. I am now on 20 ng. ______ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2012 Report Share Posted July 9, 2012 Hi . There are many places. You can order without a prescription also, but I would recommend you be followed by a doctor, if possible. I believe regular bloodwork (anemia, WBC, liver kidney function etc etc) is required + calcium and both vitamin D's (25 and 1,25) at regular intervals.  You can get all the information you want on this forum:  http://forums.phoenixrising.me/index.php?forums/gcmaf.10/ ________________________________ From: STOKES <stokesdjc@...> Sent: Sunday, July 8, 2012 10:55:35 PM Subject: Re: GcMAF - good results  I would love to know how and where I can get this you are taking.  Mapp-Stokes  From: Sue <mailto:suebackagain123%40.ca> Subject: Re: GcMAF - good results " mailto:%40 " <mailto:%40> Date: Sunday, July 8, 2012, 9:51 PM  Hello! I am taking the injections, not the yogurt. I started with 10 ng and moved up slowly, since I was severely ill and had so much inflammation already. I am now on 20 ng. ______ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2012 Report Share Posted July 9, 2012 Hi, Mira! Well, I was totally bedridden before and was pretty sure I was about to die. Please keep in mind that I have had this over 20 yrs so it will take a long time to have huge improvement...but after 4 months, I can cook, clean, and maybe do some laundry. On some days, I feel well enough to go shopping. This is MAJOR for me. I was probably one of the most severe cases as far as the fog was concerned...it is better now, but not gone. I suspect that if this continues to work, it will take another several months before I can think clearly again.  Of course, no one with CFS has taken GcMAF more than 2 years so far so no one knows what will really happen long term....but I was desperate and had nothing to lose.  xoxo ________________________________ From: Mira Ghoshal <mirasghoshal@...> Sent: Monday, July 9, 2012 1:07:41 AM Subject: RE: GcMAF - good results  Dear , I would like to know what you can do now after the 4 months on GcMaf as compared to what you were able to do before you started to take the medication. This is very important because those of us who are thinking very seriously about taking it would like to have that information. Are you able to walk outside more? Can you do more housework? Is the brain fog lighter? Can you concentrate and remember things better? Is walking up the stairs easier now then it was before taking the GcMaf? If you ever did some light weight lifting exercises at home, are you able to do more of them? Mira Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2012 Report Share Posted July 9, 2012 Hi Mira. I am on 20 ng weekly. I get a little extra inflammation for a few days after, because I just increased the dose from 18 to 20 ng. I started on 10 ng, which most who are very ill are doing.  xoxo ________________________________ From: Mira Ghoshal <mirasghoshal@...> Sent: Monday, July 9, 2012 1:12:06 AM Subject: RE: GcMAF - good results  Dear , The 10 ng and the 20 ng that you are on right now, is this every week? Do you have side effects after each injection? Love, Mira ---------------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2012 Report Share Posted July 9, 2012 Hi Kay. Your best bet is to post this question on this forum. There are people from all over taking GcMAF:  http://forums.phoenixrising.me/index.php?forums/gcmaf.10/  Dr. Bradstreet has been using it for quite a while. He is in Atlanta I think, but is Adjunct Professor at the Southwest College of Naturopathic Medicine in Arizona....perhaps you can call the Medical Center there and see if they work with GcMAF.  xoxoxo ________________________________ From: Kay Siegrist <ksiegr@...> " " < > Sent: Monday, July 9, 2012 10:00:27 AM Subject: Re: GcMAF - good results  Does anyone know of a GcMAF doctor in Arizona?  Preferably Phoenix area or north?  Thanks.  Kay  Hello! I am taking the injections, not the yogurt. I started with 10 ng and moved up slowly, since I was severely ill and had so much inflammation already. I am now on 20 ng. ______ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2012 Report Share Posted July 9, 2012 Dear Mira,  I am following people's experiences with Gcmaf with great interest too. As it often the case, I know some people are noticing significant benefits, like , which is great, but some arent, as you are probably aware.  I just spoke with someone who took Gcmaf for a good few months prescribed by Dr KDM in Belgium. Unfortunately, it didn't help her at all and she had real problems with increased inflammation despite i think lowering the dose. She had tested quite a few years ago bacterial infections to do with lyme.  Her testing for lyme with KDM came up negative but she says that KDM has now better testing for lyme than when she saw him and for those patients he tests and they show lyme infections he suggests they should be treated before trying Gcmaf.  Hope this may be of help.   From: Mira Ghoshal <mirasghoshal@...> Sent: Monday, 9 July 2012, 6:07 Subject: RE: GcMAF - good results  Dear , I would like to know what you can do now after the 4 months on GcMaf as compared to what you were able to do before you started to take the medication. This is very important because those of us who are thinking very seriously about taking it would like to have that information. Are you able to walk outside more? Can you do more housework? Is the brain fog lighter? Can you concentrate and remember things better? Is walking up the stairs easier now then it was before taking the GcMaf? If you ever did some light weight lifting exercises at home, are you able to do more of them? Mira Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2012 Report Share Posted July 9, 2012 Dear bel, I have heard from many people and especialy from my Doctor, Dr. Enlander, that I am a good candidate for GcMaf because as CFS goes I am a high functioning patient. I have never been bed ridden in the course of 21 years since I got sick. I have always been able to take care of myself, that is do the shopping, drive a car, do the laundry. I even have 40 cats and 3 dogs at home because I rescue animals, and somehow I am able to keep the place relatively clean. I am not able to work even part time and that is devastating for me. I got tick bites twice in my life and the last time it happened was at the end of May. I took 30 days of Doxycycline and was tested for Lyme and nothing could be detected. So far so good. I really want to try the GcMaf because it just might free me from 21 years of suffering. I will keep in mind what you wrote about the Lyme co-infections when I see Dr. Enlander next time. We will see what he says about me taking the GcMaf after being treated for a tick bite. Mira Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2012 Report Share Posted July 9, 2012 its true that some lyme patients have a big more of a complicated situation. also keep in mind that when doctors first started using GcMAF, they were using a higher dose - 100 ng, intended for cancer or HIV i thnk. now they are using much lower doses and it is going much better. dr. jeff bradstreet, who treats autism with GcMAF, uses ultra low doses. i believe autism and CFS are caused by similar and as-yet-undiscovered infection. ________________________________ From: annabel schleutker <abschleutker@...> " " < > Sent: Monday, July 9, 2012 1:57:23 PM Subject: Re: GcMAF - good results  Dear Mira,  I am following people's experiences with Gcmaf with great interest too. As it often the case, I know some people are noticing significant benefits, like , which is great, but some arent, as you are probably aware.  I just spoke with someone who took Gcmaf for a good few months prescribed by Dr KDM in Belgium. Unfortunately, it didn't help her at all and she had real problems with increased inflammation despite i think lowering the dose. She had tested quite a few years ago bacterial infections to do with lyme.  Her testing for lyme with KDM came up negative but she says that KDM has now better testing for lyme than when she saw him and for those patients he tests and they show lyme infections he suggests they should be treated before trying Gcmaf.  Hope this may be of help.   From: Mira Ghoshal <mailto:mirasghoshal%40hotmail.com> mailto:%40 Sent: Monday, 9 July 2012, 6:07 Subject: RE: GcMAF - good results  Dear , I would like to know what you can do now after the 4 months on GcMaf as compared to what you were able to do before you started to take the medication. This is very important because those of us who are thinking very seriously about taking it would like to have that information. Are you able to walk outside more? Can you do more housework? Is the brain fog lighter? Can you concentrate and remember things better? Is walking up the stairs easier now then it was before taking the GcMaf? If you ever did some light weight lifting exercises at home, are you able to do more of them? Mira Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2012 Report Share Posted July 9, 2012 Hi Sue, If you were totally bedridden (sorry to hear that, I have been there, thankfully for only 16 months and it's so hard. Now semi bed bound) may I ask how did you manage to get the injections from Dr Enlander as I'm presuming if you were bedridden you couldn't get to his office. Many thanks bel Sent from my iPhone On 9 Jul 2012, at 02:51, Sue <suebackagain123@...> wrote: > Hello! I am taking the injections, not the yogurt. I started with 10 ng and moved up slowly, since I was severely ill and had so much inflammation already. I am now on 20 ng. > > ______ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2012 Report Share Posted July 9, 2012 Hi Sue, I also meant to say it's wonderful you've made such improvements. You must be so delighted from going from bedridden to being up. I know you ate still far from well but what great improvements All the very best for the coming months bel Sent from my iPhone Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2012 Report Share Posted July 9, 2012 Dear Mira, That's wonderful you sound like a good candidate for Gcmaf and you can get it through Dr Enlander. I wish you all the very best in trying it and hope you come back here with updates :-) bel x Sent from my iPhone On 9 Jul 2012, at 20:58, Mira Ghoshal <mirasghoshal@...> wrote: > > Dear bel, > > I have heard from many people and especialy from my Doctor, Dr. Enlander, that I am a good candidate for GcMaf because as CFS goes I am a high functioning patient. I have never been bed ridden in the course of 21 years since I got sick. I have always been able to take care of myself, that is do the shopping, drive a car, do the laundry. I even have 40 cats and 3 dogs at home because I rescue animals, and somehow I am able to keep the place relatively clean. I am not able to work even part time and that is devastating for me. I got tick bites twice in my life and the last time it happened was at the end of May. I took 30 days of Doxycycline and was tested for Lyme and nothing could be detected. So far so good. I really want to try the GcMaf because it just might free me from 21 years of suffering. > > I will keep in mind what you wrote about the Lyme co-infections when I see Dr. Enlander next time. We will see what he says about me taking the GcMaf after being treated for a tick bite. > > Mira > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2012 Report Share Posted July 9, 2012 Hi bel,  When I say bedridden, I mean it was very diffcult for me to get out of bed and not feel awful, get chest pain, have trouble breathing, etc etc. but I was desperate and knew I would end up in a nursing home within a year...so I just had to get to NYC. I became very sick as a result of the overnight trip, but I just did it. You can use wheelchairs, get help, take pills, move very slowly, whatever you need to do.  xoxo ________________________________ From: bel <abschleutker@...> " " < > Cc: " " < > Sent: Monday, July 9, 2012 8:18:41 PM Subject: Re: GcMAF - good results  Hi Sue, If you were totally bedridden (sorry to hear that, I have been there, thankfully for only 16 months and it's so hard. Now semi bed bound) may I ask how did you manage to get the injections from Dr Enlander as I'm presuming if you were bedridden you couldn't get to his office. Many thanks bel Sent from my iPhone On 9 Jul 2012, at 02:51, Sue <mailto:suebackagain123%40.ca> wrote: > Hello! I am taking the injections, not the yogurt. I started with 10 ng and moved up slowly, since I was severely ill and had so much inflammation already. I am now on 20 ng. > > ______ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2012 Report Share Posted July 10, 2012 Hi Sue, Thanks for explaining. I'm glad your gamble paid off. Im currently semi bed bound and have been completely bedbound in the past (needed 24/7 personal and domestic care) and I can't sit up for more than a few minutes at any one time (suspect i have pots) without crashing which can take months to recover from. I crashed badly two years ago from which I still haven't fully recovered. So for me even using wheelchairs is not possible, eg I had been that tiny bit better (still housebound) and used my stairlift to get to my garden pots below, something I hadn't done in months, a neighbour came and said hello, I was not up to talking, even though was sitting on a stool stick, nonetheless I politely chatted for a couple of minutes. By this time my body needed to lie down but I still had to get on the stairlift back upstairs. Ideally I should have laid on the pavement but was wet so had to go straight back up. This has caused a bad crash and I'm confined to bed apart from trips using my rollator to sit on to loo Therefore, even with wheelchairs/ambulances i don't think I could travel to a docs office unless I knew the treatment had a very high success rate. I cant face needing 24/7 care again which at my present level of health could easily happen. You were very brave to take that risk and I'm glad even though the trip made you ill the Gcmaf was a success and you are now improved Take care bel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2012 Report Share Posted July 10, 2012 sue, how mmany ng's are there per mL? are u assuming 0.20ng = 0.20 mL? i asked dr enlander how many ng's per vial, and he said he didn't know. thanks, jim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2012 Report Share Posted July 10, 2012 thank you, and i hope the same for you!!! ________________________________ From: bel <abschleutker@...> " " < > Sent: Monday, July 9, 2012 8:22:45 PM Subject: Re: GcMAF - good results  Hi Sue, I also meant to say it's wonderful you've made such improvements. You must be so delighted from going from bedridden to being up. I know you ate still far from well but what great improvements All the very best for the coming months bel Sent from my iPhone Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2012 Report Share Posted July 10, 2012 bel.....ok.....you can also order it at GcMAF.eu.  I wish so much I could help you. I know the hell you are in, believe me. If I were you, I would order it...what have you got to lose?  Dr. Jeff Bradsreet uses the same GcMAF source. ________________________________ From: bel <abschleutker@...> " " < > Sent: Tuesday, July 10, 2012 12:27:36 PM Subject: Re: GcMAF - good results  Hi Sue, Thanks for explaining. I'm glad your gamble paid off. Im currently semi bed bound and have been completely bedbound in the past (needed 24/7 personal and domestic care) and I can't sit up for more than a few minutes at any one time (suspect i have pots) without crashing which can take months to recover from. I crashed badly two years ago from which I still haven't fully recovered. So for me even using wheelchairs is not possible, eg I had been that tiny bit better (still housebound) and used my stairlift to get to my garden pots below, something I hadn't done in months, a neighbour came and said hello, I was not up to talking, even though was sitting on a stool stick, nonetheless I politely chatted for a couple of minutes. By this time my body needed to lie down but I still had to get on the stairlift back upstairs. Ideally I should have laid on the pavement but was wet so had to go straight back up. This has caused a bad crash and I'm confined to bed apart from trips using my rollator to sit on to loo Therefore, even with wheelchairs/ambulances i don't think I could travel to a docs office unless I knew the treatment had a very high success rate. I cant face needing 24/7 care again which at my present level of health could easily happen. You were very brave to take that risk and I'm glad even though the trip made you ill the Gcmaf was a success and you are now improved Take care bel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2012 Report Share Posted July 10, 2012 Hi Jim. In the injectible GcMAF, I think it is 100 ng per 10 ml.......that's what I was always told. Each vial is 10 ml. ________________________________ From: Jim <jims111@...> Sent: Tuesday, July 10, 2012 12:47:40 PM Subject: Re: GcMAF - good results  sue, how mmany ng's are there per mL? are u assuming 0.20ng = 0.20 mL? i asked dr enlander how many ng's per vial, and he said he didn't know. thanks, jim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2012 Report Share Posted July 11, 2012 Hi Sue, Thank you for your kind words and support. I am giving serious thought to ordering it. I suppose my fear about what I've got ti lose is whether I unknowingly am one of the people with other bacterial co infections that may not tolerate gcmaf. You are right that docs are now suggesting on a low dose to try and avoid excess inflammation. I do know of one person who massively reduced their dose and still couldn't tolerate it but she has suspected Lyme I am giving it serious thought. At present I'm trying LDn. I want to give that a good try and am titrating up very slowly I've heard depending on the source of gcmaf the strength varies. Do you know whether the gcmaf Dr Enlander uses is the same as the gcmaf.eu? Many thanks for your time and help and I hope you continue ti make improvements bel x Sent from my iPhone On 11 Jul 2012, at 02:05, Sue <suebackagain123@...> wrote: > bel.....ok.....you can also order it at GcMAF.eu. > > I wish so much I could help you. I know the hell you are in, believe me. If I were you, I would order it...what have you got to lose? > > Dr. Jeff Bradsreet uses the same GcMAF source. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2012 Report Share Posted July 11, 2012 Ps sorry forgot to ask in previous reply. When you say Dr Jeff Bradsreet uses the same source do you mean the same source as gcmaf.eu? Many thanks x Sent from my iPhone On 11 Jul 2012, at 02:05, Sue <suebackagain123@...> wrote: > bel.....ok.....you can also order it at GcMAF.eu. > > I wish so much I could help you. I know the hell you are in, believe me. If I were you, I would order it...what have you got to lose? > > Dr. Jeff Bradsreet uses the same GcMAF source. > Quote Link to comment Share on other sites More sharing options...
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