Re: Chronic Fatigue, Fibromyalgia, Stage 4 Endometriosis and Panic attacks...

[Guest guest]

fyi...anxiety and panic attacks are far more common in patients with autonomic

neuropathy  have to wonder if many 'illnesses' arent tied together  dont know

about depression...for a long time i have wondered if cfs didnt have a

neurologic component..i too have add treated for depression, anxiety...i ended

up at the mayo clinic for my neuropathy diagnosis and many years ago was

diagnosed with cfs by a dr in royal oak and at U of M..so many symptoms

overlap      m          ps there is a dr of neurology at wayne state

i am thinking of going to...read his research and like what i have read..i

wonder if he couldnt send a patient to a good cfs dr   not that it is popular

to have cfs these days...

________________________________

From: anonamissemail <anonamissemail@...>

Sent: Monday, July 16, 2012 1:15 PM

Subject: Chronic Fatigue, Fibromyalgia, Stage 4

Endometriosis and Panic attacks...

 

Please help.

I have been suffering for a very long time. I have seen doc after doc, and all

they ever seem to do is give me meds for Depression and Axiety. I have always

believed that their is a physical underlying cause of all my symptoms, including

my ADD and Stage 4 Endometriosis.

It seems... depending on the Doctor I see, it is a question of what came

first... the chicken or the egg. Most... always believe that I was born with a

genetic predisposition to depression and anxiety, and simply will not do any

further testing.

There is also mounting evidence that Panic Attacks could actually be partial

seizures, in some people. I have never been checked for epilepsy, and when I

mentioned this to my doctor, she just said she believed that I have depression /

axiety, that it is genetic, and would not even consider having me test for

partial seizures / epilepsy.

I was looking through some past blood tests and came across a d-dimer of 2300.

When I asked my MD about it, she said that the d-dimer is not a good test, and

refused to re-check it.

I have Photo sensitivity, feel like I will pass out if I sit in the sun too

long.

I feel twitching all over my body and have heart palpatations.

I have been reading about Hemex Labs and their thoughts about hypercoagulation.

It does make a lot of sense to me, even as a possible cause of my panic attacks,

as I believe that thick blood would cause poor circulation to the brain. My

limbs constantly fall asleep or tingle.

I don't believe there is a doctor in Michigan ( near Ann Arbor ) that would even

understand all of this.

What should I do ???

AnonaMiss

[Guest guest]

{Moderator: Please trim posts}

Anona.....if you are looking for a good neurologist who knows about CFS, dr.

benjamin natleson in NJ might be a good option. i have never seen him myself....

 

d-dimer means you have infection or inflammation of some kind.

 

there is always dr. a. martin lerner in bloomfield MI but he must be 90 by now!

still practicing though. CFS specialist with interest in the heart and

antivirals.

 

 

________________________________

From: mary marcus <mjklein8408@...>

" " < >

Sent: Monday, July 16, 2012 7:46:29 PM

Subject: Re: Chronic Fatigue, Fibromyalgia, Stage 4

Endometriosis and Panic attacks...

 

fyi...anxiety and panic attacks are far more common in patients with autonomic

neuropathy  have to wonder if many 'illnesses' arent tied together  dont know

about depression...for a long time i have wondered if cfs didnt have a

neurologic component..i too have add treated for depression, anxiety...i ended

up at the mayo clinic for my neuropathy diagnosis and many years ago was

diagnosed with cfs by a dr in royal oak and at U of M..so many symptoms

overlap      m          ps there is a dr of neurology at wayne state

i am thinking of going to...read his research and like what i have read..i

wonder if he couldnt send a patient to a good cfs dr   not that it is popular

to have cfs these days...

________________________________

From: anonamissemail <mailto:anonamissemail%40>

mailto:%40

Sent: Monday, July 16, 2012 1:15 PM

Subject: Chronic Fatigue, Fibromyalgia, Stage 4

Endometriosis and Panic attacks...

 

Please help.

[Guest guest]

Hi,

You should trust yourself and if you know that there is something physically

wrong with you, you need to find someone to treat it. Your symptoms are similar

to those many of us have had. If there is an ME/CFS support group in your area,

look online or in the phone book and contact them for recommended doctors.

Perhaps someone here will know of doctors in your area.

Endometriosis can be a sign of low thyroid hormone. Just a thought, not a

diagnosis.

Don't give up find the help you need and you can feel better.

Peace, Love and Harmony,

Bev

>

> Please help.

>

> I have been suffering for a very long time. I have seen doc after doc, and

all they ever seem to do is give me meds for Depression and Axiety. I have

always believed that their is a physical underlying cause of all my symptoms,

including my ADD and Stage 4 Endometriosis.

>

> It seems... depending on the Doctor I see, it is a question of what came

first... the chicken or the egg. Most... always believe that I was born with

a genetic predisposition to depression and anxiety, and simply will not do any

further testing.

>

> There is also mounting evidence that Panic Attacks could actually be partial

seizures, in some people. I have never been checked for epilepsy, and when I

mentioned this to my doctor, she just said she believed that I have depression /

axiety, that it is genetic, and would not even consider having me test for

partial seizures / epilepsy.

>

> I was looking through some past blood tests and came across a d-dimer of 2300.

When I asked my MD about it, she said that the d-dimer is not a good test, and

refused to re-check it.

>

> I have Photo sensitivity, feel like I will pass out if I sit in the sun too

long.

>

> I feel twitching all over my body and have heart palpatations.

>

> I have been reading about Hemex Labs and their thoughts about

hypercoagulation.

>

> It does make a lot of sense to me, even as a possible cause of my panic

attacks, as I believe that thick blood would cause poor circulation to the

brain. My limbs constantly fall asleep or tingle.

>

> I don't believe there is a doctor in Michigan ( near Ann Arbor ) that would

even understand all of this.

>

> What should I do ???

>

> AnonaMiss

>

[Guest guest]

{BEV - Please trim your posts - it requires a lot of work on my part to trim

every single post!}

Hi EveryOne,

CFS has been described as a neuro-immune illness so that includes the nervous

and immune systems. I had central nervous system symptoms like encephalitis

and meningitis for three years every time I had a relapse. Myalgic

Encephalomyelitis definitely include neurological symptoms. Not ever body gets

them but a lot do.

If the cause is a virus or bacteria or retrovirus or mycoplasma, they can all

get past the blood brain barrier and infect the nervous system.

Hopefully there will be treatments for all of this soon.

Peace, Love and Harmony,

Bev

>

> fyi...anxiety and panic attacks are far more common in patients with autonomic

neuropathy  have to wonder if many 'illnesses' arent tied together  dont know

about depression...for a long time i have wondered if cfs didnt have a

neurologic component..i too have add treated for depression, anxiety...i ended

up at the mayo clinic for my neuropathy diagnosis and many years ago was

diagnosed with cfs by a dr in royal oak and at U of M..so many symptoms

overlap      m          ps there is a dr of neurology at wayne state

i am thinking of going to...read his research and like what i have read..i

wonder if he couldnt send a patient to a good cfs dr   not that it is popular

to have cfs these days...

>