Re: Kutapressin for CFS

[Guest guest]

wasnt kutapressin just the old name of nexavir?

________________________________

From: yoganandaom <OM@...>

Sent: Friday, July 6, 2012 4:17:20 PM

Subject: Kutapressin for CFS

 

Hi EveryOne,

Just ran across this old (1996) study of Kutapressin in the treatment of CFS.

Thought it was interesting and somewhat surprising that given great results and

no side effects that it has not been commonly used ever since,

http://www.me-cvs.nl/index.php?pageid=3423 & printlink=true & highlight=cfs

I am using a similar product from Dr. Enlander and believe it is indeed helping

me. I tested high for Epstein Barr, HHV6 and Parvo 19 antibodies. Haven't been

tested since starting the protocol.

Peace, Love and Harmony,

Bev

[Guest guest]

Bev--

I was on Kutapressin for several months in 2004 and unfortunately it was to no

avail.  (The doctor who prescribed it was based in Yonkers, NY.  He has since

passed away.)  I too am seeing Dr. Enlander and am on some of his treatment

protocol.  If you don't mind me asking, what are you taking from Dr. Enlander?

 Good luck--

Joe P.

[Guest guest]

Is kutapressin available in the USA? I looked it up on epocrates and found

nothing. I checked under both kutapressin and hepapressin. A related drug,

sorafenib (Nexavar) is available with an Rx in the US. Nexavar has been

described as " next generation " kutapressin. Does Nexavar/sorafenib work on

CFS patients?

Steve M in PA

Wikipedia - Hepapressin

Hepapressin is an amino acid complex prepared from Argentinian bovine

liver. It is used to normalize immune dysfunction. Kutapressin, previously

manufactured by Schwarz Pharma, is a similar substance which was previously

used in these conditions. Hepapressin does not contain preservatives and

should be refrigerated. Hepapressin is used in ME/ CFS Chronic fatigue

syndrome and Fibromyalgia. It is considered to act on the methylation cycle

methylation cycle which may have a defect in ME/CFS.

On Jul 6, 2012 5:57 PM, " yoganandaom " <OM@...> wrote:

Hi EveryOne,

Just ran across this old (1996) study of Kutapressin in the treatment of

CFS. Thought it was interesting and somewhat surprising that given great

results and no side effects that it has not been commonly used ever since,

http://www.me-cvs.nl/index.php?pageid=3423 & printlink=true & highlight=cfs

I am using a similar product from Dr. Enlander and believe it is indeed

helping me. I tested high for Epstein Barr, HHV6 and Parvo 19 antibodies.

Haven't been tested since starting the protocol.

Peace, Love and Harmony,

Bev

On Jul 6, 2012 5:57 PM, " yoganandaom " <OM@...> wrote:

> Hi EveryOne,

>

> Just ran across this old (1996) study of Kutapressin in the treatment of

> CFS. Thought it was interesting and somewhat surprising that given great

> results and no side effects that it has not been commonly used ever since,

>

> http://www.me-cvs.nl/index.php?pageid=3423 & printlink=true & highlight=cfs

>

> I am using a similar product from Dr. Enlander and believe it is indeed

> helping me. I tested high for Epstein Barr, HHV6 and Parvo 19 antibodies.

> Haven't been tested since starting the protocol.

>

> Peace, Love and Harmony,

> Bev

>

>

>

> ------------------------------------

>

> This list is intended for patients to share personal experiences with each

> other, not to give medical advice. If you are interested in any treatment

> discussed here, please consult your doctor.

[Guest guest]

Bev,

I was given Kutapressin in the early 90s. I tried it for 6 months with no

improvement. I think I had to give myself one or two injections a day. It was

very expensive. Insurance doesn't cover it. At the time, I had been sick for

about 5 years or so. I wouldn't waste my money.

I know it's hard. You get so sick and tired of being sick and tired that you're

about to try anything to feel better and get your life back.

Sue

>

> Hi EveryOne,

>

> Just ran across this old (1996) study of Kutapressin in the treatment of CFS.

Thought it was interesting and somewhat surprising that given great results and

no side effects that it has not been commonly used ever since,

>

> http://www.me-cvs.nl/index.php?pageid=3423 & printlink=true & highlight=cfs

>

> I am using a similar product from Dr. Enlander and believe it is indeed

helping me. I tested high for Epstein Barr, HHV6 and Parvo 19 antibodies.

Haven't been tested since starting the protocol.

>

> Peace, Love and Harmony,

> Bev

>

[Guest guest]

Yes. I tried the Nexavir transdermal gel, but I had a reaction to the phenol

preservative.

Ellen

Kutapressin for CFS

Hi EveryOne,

Just ran across this old (1996) study of Kutapressin in the treatment of CFS.

Thought it was interesting and somewhat surprising that given great results and

no side effects that it has not been commonly used ever since,

http://www.me-cvs.nl/index.php?pageid=3423 & printlink=true & highlight=cfs

I am using a similar product from Dr. Enlander and believe it is indeed

helping me. I tested high for Epstein Barr, HHV6 and Parvo 19 antibodies.

Haven't been tested since starting the protocol.

Peace, Love and Harmony,

Bev

[Guest guest]

Yes

>

> wasnt kutapressin just the old name of nexavir?

[Guest guest]

Hi Joe,

I started seeing Dr. Enlander about 6 months ago. What a relief to find a doctor

who knew more about ME/CFS than I did and who understood what I was talking

about!

I take, Immunoprop, Immunoplus, Catapult, Lectrolyte (daily) and weekly

Hepapressin injections I give myself. About two weeks ago I started LDN after

reading about it and finding it on Dr. Enlander's website. So far so good.

I also have taken many supplements, herbs, vitamins, minerals etc for years. In

addition I have hypothyroidism and adrenal insufficiency, wether from genetics

or ME/CFS I can't tell, so I take natural thyroid hormone and a small amount of

cortisol every day for those.

I am having very good results since starting Dr. Enlander's supplements, slow

and steady in a positive direction so far. Am wondering though whether I will

have to keep taking all of these in order to keep the good results going, a

treatment rather than a cure?

It bothers me that there may be who knows what.... mycoplasmsa or brucellosis or

even a retrovirus underlying ME/CFS and wondering if the best we can do is to

get the immune system able to keep them at bay or whether or not something like

doxycycline would get rid of them altogether. Obviously I will take what I can

get but would feel better if some virus or bacteria was not waiting in the

wings...

I am very grateful for the improvement because I was having encephalitis

symptoms every time I relapsed and that doesn't happen at all any more. If this

is as far as it goes, it is good, if it can go further, all the better.

How about you?

Peace, Love and Harmony,

Bev

>

> Bev--

>

> I was on Kutapressin for several months in 2004 and unfortunately it was to no

avail.  (The doctor who prescribed it was based in Yonkers, NY.  He has since

passed away.)  I too am seeing Dr. Enlander and am on some of his treatment

protocol.  If you don't mind me asking, what are you taking from Dr. Enlander?

 Good luck--

>

> Joe P.

>

>

[Guest guest]

Hmm, maybe that is why Dr. Enlander gives the Hepapressin once a week 10ml

rather than once a day and a lesser amount. Once a week is enough to have to

give oneself a shot.

Also he uses Hepapressin which does not have the preservative that some people

are allergic to. Therefore the Hepapressin must be refrigerated.

In addition he adds other ingredients like B12 and magnesium sulphate and as I

recall Glutathione to the injection so that may make a difference in

effectiveness a well.

I cannot say what is working but something is.....I haven't had a relapse in

months and no more encephalitis symptoms....that is significant!

EveryOne is different and no one thing is right for everyone but I believe

Dr.Enlander has taken the things that over the years he has found works the best

for ME/CFS and combined them together and that is what he offers on his website.

If you haven't tried them altogether and you can afford to do so for at least

six months it is certainly worth a try. I have been sick since the late 1980's

so for me this is terrific.

Peace, Love and Harmony,

Bev

>

> Yes. I tried the Nexavir transdermal gel, but I had a reaction to the phenol

preservative.

>

> Ellen

>

>

[Guest guest]

Hi Joe,

I forgot to mention I also bought the MAF 878 from Dr. Enlander in January and

February and then started making my own yogurt using some of the culture from

the last batch of MAF878 and I have been making it ever since and eat at about 6

ounces a day of that too.

Peace, Love and Harmony,

Bev

>

> Bev--

>

> I was on Kutapressin for several months in 2004 and unfortunately it was to no

avail.  (The doctor who prescribed it was based in Yonkers, NY.  He has since

passed away.)  I too am seeing Dr. Enlander and am on some of his treatment

protocol.  If you don't mind me asking, what are you taking from Dr. Enlander?

 Good luck--

>

> Joe P.

>

>

[Guest guest]

{Moderator: Bev, Please trim your posts. Thanks!}

Nexavir says it is the same as Kutapressin.

Hepapressin that Dr. Enlander uses is from beef not pork and does not have a

preservative added. He also ads other ingredients to it that he has found

helpful in treating people with ME.CFS. I wrote about the additional ingredients

in a separate post.

Peace, Love and Harmony,

Bev

>

> Is kutapressin available in the USA? I looked it up on epocrates and found

> nothing. I checked under both kutapressin and hepapressin. A related drug,

> sorafenib (Nexavar) is available with an Rx in the US. Nexavar has been

> described as " next generation " kutapressin. Does Nexavar/sorafenib work on

> CFS patients?

>

> Steve M in PA

>

> W

[Guest guest]

I did 6 months on kutapression in 1994 I an in Canada, it had to be approved by

emergency Heath ca. I had considerable improvement by 6 months not enough to go

bac to work by far ans still crashes but less and most not as severe. I went out

and got a bike again still has to keep my heart rate down. It was more like

living again not the living dead. I was sent to a shrink in 96 for problems

inherent with M.E. and extensive psychiatric drugging started and I quickly

deteriorated in the 1st year and ended up being permanently damged physically

for life repeatly for which I I have received no medical care for an

D no dic for8 years

Nexlar is repeatly said not to be as strong and higher /more shots needed, a

generic version of kutapression. Heparession isn't the same. I haven't heard

much regarding outcomes only that dr enlander prescribes it

http://www.prohealth.com/me-cfs/blog/boardDetail.cfm?id=1253675

You can google both companies on the web. And you doc can order via fax if you

have one & the money to wire transfer or send.

If kutapression was still around and I had a dic I'd be on it in ASAP. Google

for blogs as well hoe patients are responding or not to each

[Guest guest]

Hi Cheryl. Could you please tell me how you got kutapressin approved by

emergency health? did they pay for it?

 

Thanks

xoxox

________________________________

From: Cheryl Benson <cheryl.benson@...>

" " < >

Sent: Sunday, July 8, 2012 10:28:20 AM

Subject: Re: Kutapressin for CFS

 

I did 6 months on kutapression in 1994 I an in Canada, it had to be approved by

emergency Heath ca. I had considerable improvement by 6 months not enough to go

bac to work by far ans still crashes but less and most not as severe. I went out

and got a bike again still has to keep my heart rate down. It was more like

living again not the living dead. I was sent to a shrink in 96 for problems

inherent with M.E. and extensive psychiatric drugging started and I quickly

deteriorated in the 1st year and ended up being permanently damged physically

for life repeatly for which I I have received no medical care for an

D no dic for8 years

Nexlar is repeatly said not to be as strong and higher /more shots needed, a

generic version of kutapression. Heparession isn't the same. I haven't heard

much regarding outcomes only that dr enlander prescribes it

http://www.prohealth.com/me-cfs/blog/boardDetail.cfm?id=1253675

You can google both companies on the web. And you doc can order via fax if you

have one & the money to wire transfer or send.

If kutapression was still around and I had a dic I'd be on it in ASAP. Google

for blogs as well hoe patients are responding or not to each