Re: The Downward Spiral

July 27, 2005

In a message dated 7/27/2005 9:32:39 AM Pacific Standard Time,

erikmoldwarrior@... writes:

For those who are stuck in that downward spiral by trying to

survive in a moldy place, it may sound callous and unsympathetic to

hear the equivalent of " Throw your chute! Get out - you fool " , but

if you view this advice from the perspective of those who've seen

what it looks like after the spiral dive ends in an impact, you'd

know just how sympathetic and caring this warning truly is.

-

,

That was extremely well put. I have seen so many crash a burn. I know you

have, too. As has Carl and KC and and and the s and Simone

and and Greg and......

It disturbs me to the point that I can barely even hang out at the glider

port anymore.

Sharon

July 27, 2005

>

> In a message dated 7/27/2005 9:32:39 AM Pacific Standard Time,

> erikmoldwarrior@e... writes:

>

> For those who are stuck in that downward spiral by trying to

> survive in a moldy place, it may sound callous and unsympathetic

to

> hear the equivalent of " Throw your chute! Get out - you fool " , but

> if you view this advice from the perspective of those who've seen

> what it looks like after the spiral dive ends in an impact, you'd

> know just how sympathetic and caring this warning truly is.

> -

>

Hi guys. I don't want to cause anything, I just want to know did you

and Sharon just get out and live in your car or pitch a tent. I would

like to hear about it. I know I still don't have the money for an RV

or to get medical care. I have no problems with moving, I have

moved 4 times since 1998, but sometimes people don't know what is

wrong. Plus most of the time you are alienated cuz you are sick. I

wound up leaving my husband for a summer cuz after the 4th move

people were getting sick of my health. Even today my husband

accomodates me but if I go someplace no one goes out of their way to

go fragrance free. I went to my sister's for 2 nights and she did

try to get rid of all chemicals and I spent the second day vomiting

for 12 hours. After a while people just grow tired of it.

July 27, 2005

sporonox, nizorol, got it from dr marinkovich.

July 27, 2005

It's not my place to tell anyone how to fly their own aircraft.

I am willing to warn people if they are discernably flying so slow

that they are on the edge of a stall, but whether they wish to

consider if this might be accurate and do something about it is

purely up to them.

People have a right to self determination.

A bunch of us " experimental aircraft pilots " saw that a very

experienced pilot had a horrible ingrained habit of correcting

tipstalls with aileron instead of rudder - a guaranteed technique to

make a tipstall progress into a wingstall-dive in the opposite

direction of the correction intended by the pilot. As a group, we

tried to warn him that this was a situation so inherent to disaster

that he should consider undergoing a flight evaluation, but his

years of not crashing had convinced him that our concerns were

unfounded.

Witnesses to the crash say it was a classic turbulence induced

stall spin into an inverted dive at two hundred feet.

A very unfortunate choice, but it was his choice.

What should we have done? Cut his flying wires and disable his

plane?

So I will tell people that ignoring certain physical signs of

impending immunological failure are done at your own peril, but that

you have a perfect right to do whatever you want.

Leave or stay, it's your choice.

My own situation is that I fought loudly and desperately with

doctors who assured me that my focus on mold was misdirected until I

reached a point in which I could no longer ignore my own perceptions

and acted in defiance of everything they claimed.

I could forgive them for this mistake, but when I identified others

in their practices as mold responders and these doctors refused to

consider the evidence of my improvement, their lack of scientific

curiosity and failure to act as competent diagnosticians became a

direct cause of harm for their patients.

Yes I did go to the desert with my camper. But it had been parked

in the shadow of the plume and was such a slammer that I was forced

to pitch a tent next to the camper and only use it for preparing

meals. So I had to get a different camper, which I tested carefully

before purchase by occupying it for several days, thanks to an

agreeable RV dealer.

(Wish I could find such cooperation in doctors and landlords)

Yes, I have run an extension cord out to a heater in a tent when it

was snowing in order to get a decent nights sleep.

It feels so much better than remaining in a moldy house that it

causes me to say " I'd rather feel good in a dumpster than hassle

with a mold-castle " although I never really slept in a dumpster.

But then, as a group, those of us who have survived the crash can

only offer others the option of learning from our example.

It is up to each and every individual how they wish to use this

information. What can we do? Burn down your house?

-

July 27, 2005

Sharon,

What kind of antifungal did you take and for how long?

When you say mold-free diet, are you referring to a low carb diet, or did

you avoid wheat, yeast, etc also? Where did you get your mold-free diet

advice?

Thanks BarbB

----- Original Message -----

From: <snk1955@...>

>

> attribute much of my regained health to this fact. The rest, to

> antifungals and a

> mold free diet.

>

July 27, 2005

In a message dated 7/27/2005 7:24:04 PM Pacific Standard Time, bbw@...

writes:

Sharon,

So you had a 'systemic fungal' infection then, or, did you take the

antifungals for lung infection?? I don't know if they Rx antifungals for

lung infections.

Thanks

I was coughing up some pretty nasty thick white stuff.( sorry for graphic

detail) I lost 30 lbs in a month and a half. I was continually belching. I

had blurred vision. Some of my hair fell out. I had numbness in my arms and

legs. Slurred speech. Ringing in my ears. And a feeling of something in my

lower left lung. And I was flat out nutty. Couldn't remember anything,

couldn't do math, was scared out of my mind. Cried easily.

My daughter, got it in her lungs and her sinuses. And other organs. But not

the nutty part. She is on Sporonox for the rest of her life. She has CF and

so mold was really not a good thing. But she is doing great, now.

I don't know if you call it a systemic infection or not. I would think

probably so. I was diagnosed with a severe form of HP. Which is farmer's

lung.

But farmer's lung doesn't just affect the lungs. It is a Type III reaction

that mimics autoimmune diseases. Got tested for MS, brain tumor, AIDs, carpel

tunnel, had tons of useless blood work. Had I can't even remember how many

xrays and CT scans. What an incredible waste of money. Wish I could go

back and say " Um, don't need those tests, but can I have the money you are

about

to waste to give to some people who really use it? " It is sickening how

much was wasted.

Some, who have had the same symptoms I have had are diagnosed and treated

for a toxicosis. They have success with that, too.

Whether one is treated from an immunological aspect or a toxicological

aspect, the key component in both is that one has to be removed from the antigen

that is causing the illness in the first place. If you stay in a moldy

environment, no amount of any kind of medicine is going to make you better. And

as

I understand it, the longer one waits to get treatment and stays exposed to

the antigen, the tougher it is to treat and get your health back completely.

Sharon

July 28, 2005

Sharon,

So you had a 'systemic fungal' infection then, or, did you take the

antifungals for lung infection?? I don't know if they Rx antifungals for

lung infections.

Thanks

----- Original Message -----

From: <snk1955@...>

> sporonox, nizorol, got it from dr marinkovich.

July 28, 2005

Sharon,

I have the constant belching. That was one of my first 'weird' symptoms. I

called it 'empty stomach belching'. Normal belching is so much food that

there is no room for air, after a large meal, complements to the cook or

belching caused by upper stomach gas from food. However my belching seemed

unrelated to food. I belched alot when I first woke up in the am. I could

belch a dozen times before even getting out of bed. I have blurry vision,

headaches. I could go on. I just wondered what your diagnosis. Sporonax

doesn't sound like something an allergist would diagnose. That's why I

asked. BarbB

----- Original Message -----

From: <snk1955@...>

>

> I was coughing up some pretty nasty thick white stuff.( sorry for graphic

> detail) I lost 30 lbs in a month and a half. I was continually

> belching. I

> had blurred vision.

July 31, 2005

I have the same problems with the belching, before I went to bed and the

pressure build up while laying down trying to go to sleep. I would have to

either get up or turn over and start belching again. I am taking Acipex now once

a day. It is a timed release pill and seems to halp a little. Now I don't have

to walk around holding my stomach area all the time. I also have the headaches

24/7 and blurred vision. I aslso could go on and on but most of you know what I

mean.

Sincerely hope that help comes some for us all. I have lost so much weight,

there is not much of me left. :-(

Peace,

Marcie

Barbra BW <bbw@...> wrote: