Guest guest Posted September 17, 2005 Report Share Posted September 17, 2005 I also went to an environmental allergist who was the first one to tell me my problems were most likely due to mold, and did I have any in my home or office? Which of course was yes, I was waiting for the contractor to come any day and start getting rid of it. He also did the testing, as well as a quite in depth history and exam, which revealed a sinus infection, quite likely due to fungal infection, called allergic fungal sinusitis. I believe the new numbers by Mayo Clinic are 98%? of all sinus infections are due to fungus. Now they are finding that it is possible that much asthma is fungal in origin also. I also take allergy antigens, but through a sublingual route, which is working well. Also diflucan for the sinus infection, and some supplements, which have helped to restore my system to functionality (vitamin deficiencies due to bad digestion from- you guessed it- more mold in my GI tract.) I am off most of them by now, as my deficiencies have cleared up, except for a couple of minerals. I believe that most allergists are not trained to do anything more than the drug companies want them to- which is slanted to make them more money. The previous gains in allergy treatment from 75 years of study seems to have been abandoned, except by the environmental group. The " Science " in medical science seems to be very misplaced. > I've been on this group for several months now, and getting the individual > emails daily, and unless I've missed it along the way, I don't recall anyone > else saying anything about getting tested for allergies to mold. > > I worked for my former employer for 6 ½ years. A couple months after I > first started, I got really sick with a sinus infection and bronchitis. > After that I started to have chronic sinus infections and upper respiratory > infections, until last year when my illness gradually got worse to the point > of difficulty breathing (plus the constant headaches, body aches, post nasal > drip, vocal chord dysfunction, skin rash, fatigue, " brain fog " , mild > depression and chronic cough – to name a few). It wasn't until this January > (2005) that I noticed what appeared to be mold on the insulation that was > visible when the suspended ceiling tile collapsed due to water damage. > > When I mentioned the possible connection to my family doctor, she performed > a blood test for allergies to mold. That came back negative. She referred > me to an allergist. They performed a skin prick test, which came back > negative. Then they performed the intradermal allergy test, which also came > back negative (I now believe the nurse who performed it and read the results > did it wrong). The allergist referred me to an ENT. Then I got frustrated > and found an environmental doctor. > > This environmental doctor performed a Provocation/Neutralization allergy > testing. He tested me specifically for the molds that were found on the air > quality report from the one the landlord had done, as well as the > independent inspection that I paid for. He was able to reproduce my > symptoms in a laboratory setting – determining that I am allergic to the > molds – and then take away the symptoms with a neutralization serum. I then > bought this serum mixture of all the molds and injected myself twice a day > for about a month. Now after I have a re-exposure or symptoms, I give > myself an injection of the serum and it helps. I am basically " healed " now. > > Allergies were mentioned quite frequently in my unemployment and worker's > comp hearings. I also had to go to a doctor chosen by the WC defense > attorney to perform an independent medical exam and additional allergy > testing (like the first allergist performed – skin prick and intradermal). > Thankfully, he also determined I am allergic to mold. Had this doctor not > diagnosed me with mold allergies as well, I think I would be in for a major > battle proving the link between the mold and my illness. This IME doctor > also told me to stay away from water-damaged buildings. > > I don't know if this will help anyone else or not, but maybe if you have an > allergy test performed – whether or not it comes out positive – that could > be a step towards getting the doctors to believe that your symptoms are > related to mold exposure… especially if it were to come out positive. > Everyone knows that allergies can sometimes be debilitating, causing severe > reactions like anaphylactic shock and asthma or even death. It's not just > allergies to peanuts, shellfish, bee stings, etc. that can cause those major > problems… but, molds as well. No one knows that better than this group. I' > ve learned so much from you all and I thank you! > > I've read Dr. Shoemaker's " Mold Warriors " book and think it/he is brilliant > (and not just because he used to live in my area) and a lot of it mirrors my > life over the last 6 years of my long, low-dose exposure to molds in a > water-damaged building that was never repaired; however, for those who > cannot get to Dr. Shoemaker's, or Dr. Schaller's, or cannot tolerate the > treatment, I know from personal experience that there is another treatment > that worked for me (the neutralization allergy serum). > > God bless, > > Kim > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2005 Report Share Posted September 17, 2005 > > > I also went to an environmental allergist who was the first one to tell me my problems > were most likely due to mold, and did I have any in my home or office? Which of course > was yes, I was waiting for the contractor to come any day and start getting rid of it. > > He also did the testing, as well as a quite in depth history and exam, which revealed a > sinus infection, quite likely due to fungal infection, called allergic fungal sinusitis. I believe > the new numbers by Mayo Clinic are 98%? of all sinus infections are due to fungus. Now > they are finding that it is possible that much asthma is fungal in origin also. > > I also take allergy antigens, but through a sublingual route, which is working well. Also > diflucan for the sinus infection, and some supplements, which have helped to restore my > system to functionality (vitamin deficiencies due to bad digestion from- you guessed it- > more mold in my GI tract.) I am off most of them by now, as my deficiencies have cleared > up, except for a couple of minerals. > > I believe that most allergists are not trained to do anything more than the drug companies > want them to- which is slanted to make them more money. The previous gains in allergy > treatment from 75 years of study seems to have been abandoned, except by the > environmental group. The " Science " in medical science seems to be very misplaced. > > > --- In , " Kim Kauffman " <tkkskauffman@v...> wrote: > > I've been on this group for several months now, and getting the individual > > emails daily, and unless I've missed it along the way, I don't recall anyone > > else saying anything about getting tested for allergies to mold. > > > > I worked for my former employer for 6 ½ years. A couple months after I > > first started, I got really sick with a sinus infection and bronchitis. > > After that I started to have chronic sinus infections and upper respiratory > > infections, until last year when my illness gradually got worse to the point > > of difficulty breathing (plus the constant headaches, body aches, post nasal > > drip, vocal chord dysfunction, skin rash, fatigue, " brain fog " , mild > > depression and chronic cough – to name a few). It wasn't until this January > > (2005) that I noticed what appeared to be mold on the insulation that was > > visible when the suspended ceiling tile collapsed due to water damage. > > > > When I mentioned the possible connection to my family doctor, she performed > > a blood test for allergies to mold. That came back negative. She referred > > me to an allergist. They performed a skin prick test, which came back > > negative. Then they performed the intradermal allergy test, which also came > > back negative (I now believe the nurse who performed it and read the results > > did it wrong). The allergist referred me to an ENT. Then I got frustrated > > and found an environmental doctor. > > > > This environmental doctor performed a Provocation/Neutralization allergy > > testing. He tested me specifically for the molds that were found on the air > > quality report from the one the landlord had done, as well as the > > independent inspection that I paid for. He was able to reproduce my > > symptoms in a laboratory setting – determining that I am allergic to the > > molds – and then take away the symptoms with a neutralization serum. I then > > bought this serum mixture of all the molds and injected myself twice a day > > for about a month. Now after I have a re-exposure or symptoms, I give > > myself an injection of the serum and it helps. I am basically " healed " now. > > > > Allergies were mentioned quite frequently in my unemployment and worker's > > comp hearings. I also had to go to a doctor chosen by the WC defense > > attorney to perform an independent medical exam and additional allergy > > testing (like the first allergist performed – skin prick and intradermal). > > Thankfully, he also determined I am allergic to mold. Had this doctor not > > diagnosed me with mold allergies as well, I think I would be in for a major > > battle proving the link between the mold and my illness. This IME doctor > > also told me to stay away from water-damaged buildings. > > > > I don't know if this will help anyone else or not, but maybe if you have an > > allergy test performed – whether or not it comes out positive – that could > > be a step towards getting the doctors to believe that your symptoms are > > related to mold exposure… especially if it were to come out positive. > > Everyone knows that allergies can sometimes be debilitating, causing severe > > reactions like anaphylactic shock and asthma or even death. It's not just > > allergies to peanuts, shellfish, bee stings, etc. that can cause those major > > problems… but, molds as well. No one knows that better than this group. I' > > ve learned so much from you all and I thank you! > > > > I've read Dr. Shoemaker's " Mold Warriors " book and think it/he is brilliant > > (and not just because he used to live in my area) and a lot of it mirrors my > > life over the last 6 years of my long, low-dose exposure to molds in a > > water-damaged building that was never repaired; however, for those who > > cannot get to Dr. Shoemaker's, or Dr. Schaller's, or cannot tolerate the > > treatment, I know from personal experience that there is another treatment > > that worked for me (the neutralization allergy serum). > > > > God bless, > > > > Kim > > > > I finally posted to the Boston Globe my mold story-- I hope it made sense. I also live in northern Ca-- Berkeley. I have had to move 4 times to get away from mold. I have posted before about the fake remediation companies so if anyone wants info, please email me. The franchise ones are the worst. I am looking for a dehumidifier now and if anyone has some suggestions, please let me know. Lori and Meow Cat .....> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2005 Report Share Posted September 17, 2005 Kim, I'm glad you read Dr.Shoemaker's book, because this answers many unanswered questions. All the tests that you've had done by the allergist along with the negative results a high percentage of the time is the same results many of us also receive. This is not unusual, because we are not necessarily speaking of allergens here. It's not the mold per se that you are allergic to, it's the toxins they produce. That's why allergy tests are basically worthless and don't give a true results or even come close to what is causing the affects that you are experiencing. My wife had these done too and as ill as she was and at that time we didn't know from what, on a scale of 1-10, she only registered 1 or 2. These tests are setup for allergens, not toxins. As I have been told by an allergist, this is an invasion of the body/immune system along with attacking the central nervous system that these molds/toxins are capable of doing. This is what makes this whole issue so difficult to deal with, cause everyone reacts differently to this type of exposure and the variables that come along with it. Length of time, type of molds/toxins, your chemistry makeup, the strength of your immune system, your genotype, whether you are male or female,(body makeup is very different,hormones, reproductive organs,etc), how well your system is able to extract these toxins/allergens/irritants on its own, if at all. Some can, most can't without medication. How much damage has it caused the immune system and other organs or systems? There is no simple answer to this, I wish there were. Again, what may work for one, may not work for another. I'm very pleased to hear that these shots that you are taking are working. Fantastic! I wish at times it were that easy for alot of us. And believe me, I am honestly thrilled that they are working and you are responding greatly and feeling 100% better. In many situations those that have taken the same shots that you mentioned, have ended up in the hospital immediately for one reason or another, who knows. Severe reaction. This goes to show again that no one treatment fits all. Why you reacted so well for the better, who knows. But I'm glad it did help you.And I pray that it keeps working. This is definately good to hear for a change. Alot of the above is addressed to everyone here also. KC > I've been on this group for several months now, and getting the individual > emails daily, and unless I've missed it along the way, I don't recall anyone > else saying anything about getting tested for allergies to mold. > > I worked for my former employer for 6 ½ years. A couple months after I > first started, I got really sick with a sinus infection and bronchitis. > After that I started to have chronic sinus infections and upper respiratory > infections, until last year when my illness gradually got worse to the point > of difficulty breathing (plus the constant headaches, body aches, post nasal > drip, vocal chord dysfunction, skin rash, fatigue, " brain fog " , mild > depression and chronic cough – to name a few). It wasn't until this January > (2005) that I noticed what appeared to be mold on the insulation that was > visible when the suspended ceiling tile collapsed due to water damage. > > When I mentioned the possible connection to my family doctor, she performed > a blood test for allergies to mold. That came back negative. She referred > me to an allergist. They performed a skin prick test, which came back > negative. Then they performed the intradermal allergy test, which also came > back negative (I now believe the nurse who performed it and read the results > did it wrong). The allergist referred me to an ENT. Then I got frustrated > and found an environmental doctor. > > This environmental doctor performed a Provocation/Neutralization allergy > testing. He tested me specifically for the molds that were found on the air > quality report from the one the landlord had done, as well as the > independent inspection that I paid for. He was able to reproduce my > symptoms in a laboratory setting – determining that I am allergic to the > molds – and then take away the symptoms with a neutralization serum. I then > bought this serum mixture of all the molds and injected myself twice a day > for about a month. Now after I have a re-exposure or symptoms, I give > myself an injection of the serum and it helps. I am basically " healed " now. > > Allergies were mentioned quite frequently in my unemployment and worker's > comp hearings. I also had to go to a doctor chosen by the WC defense > attorney to perform an independent medical exam and additional allergy > testing (like the first allergist performed – skin prick and intradermal). > Thankfully, he also determined I am allergic to mold. Had this doctor not > diagnosed me with mold allergies as well, I think I would be in for a major > battle proving the link between the mold and my illness. This IME doctor > also told me to stay away from water-damaged buildings. > > I don't know if this will help anyone else or not, but maybe if you have an > allergy test performed – whether or not it comes out positive – that could > be a step towards getting the doctors to believe that your symptoms are > related to mold exposure… especially if it were to come out positive. > Everyone knows that allergies can sometimes be debilitating, causing severe > reactions like anaphylactic shock and asthma or even death. It's not just > allergies to peanuts, shellfish, bee stings, etc. that can cause those major > problems… but, molds as well. No one knows that better than this group. I' > ve learned so much from you all and I thank you! > > I've read Dr. Shoemaker's " Mold Warriors " book and think it/he is brilliant > (and not just because he used to live in my area) and a lot of it mirrors my > life over the last 6 years of my long, low-dose exposure to molds in a > water-damaged building that was never repaired; however, for those who > cannot get to Dr. Shoemaker's, or Dr. Schaller's, or cannot tolerate the > treatment, I know from personal experience that there is another treatment > that worked for me (the neutralization allergy serum). > > God bless, > > Kim > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2005 Report Share Posted September 17, 2005 ANYBODY HAVE MANIC DEPRESSION, OR ANXIETY ATTACKS, SECONDARY TO TOXIC MOLD EXPOSURE? YOU CAN EMAIL ME PRIVATELY, IF YOU WANT TO....I'M JUST CHECKING SOME THINGS OUT. THANKS! V. [] Re: Allergy Testing? > > I've been on this group for several months now, and getting the > > individual > > emails daily, and unless I've missed it along the way, I don't recall > > anyone > > else saying anything about getting tested for allergies to mold. > > > > I worked for my former employer for 6 ½ years. A couple months after I > > first started, I got really sick with a sinus infection and bronchitis. > > After that I started to have chronic sinus infections and upper > > respiratory > > infections, until last year when my illness gradually got worse to the > > point > > of difficulty breathing (plus the constant headaches, body aches, post > > nasal > > drip, vocal chord dysfunction, skin rash, fatigue, " brain fog " , mild > > depression and chronic cough - to name a few). It wasn't until this > > January > > (2005) that I noticed what appeared to be mold on the insulation that > > was > > visible when the suspended ceiling tile collapsed due to water damage. > > > > When I mentioned the possible connection to my family doctor, she > > performed > > a blood test for allergies to mold. That came back negative. She > > referred > > me to an allergist. They performed a skin prick test, which came back > > negative. Then they performed the intradermal allergy test, which also > > came > > back negative (I now believe the nurse who performed it and read the > > results > > did it wrong). The allergist referred me to an ENT. Then I got > > frustrated > > and found an environmental doctor. > > > > This environmental doctor performed a Provocation/Neutralization allergy > > testing. He tested me specifically for the molds that were found on the > > air > > quality report from the one the landlord had done, as well as the > > independent inspection that I paid for. He was able to reproduce my > > symptoms in a laboratory setting - determining that I am allergic to the > > molds - and then take away the symptoms with a neutralization serum. I > > then > > bought this serum mixture of all the molds and injected myself twice a > > day > > for about a month. Now after I have a re-exposure or symptoms, I give > > myself an injection of the serum and it helps. I am basically " healed " > > now. > > > > Allergies were mentioned quite frequently in my unemployment and > > worker's > > comp hearings. I also had to go to a doctor chosen by the WC defense > > attorney to perform an independent medical exam and additional allergy > > testing (like the first allergist performed - skin prick and > > intradermal). > > Thankfully, he also determined I am allergic to mold. Had this doctor > > not > > diagnosed me with mold allergies as well, I think I would be in for a > > major > > battle proving the link between the mold and my illness. This IME > > doctor > > also told me to stay away from water-damaged buildings. > > > > I don't know if this will help anyone else or not, but maybe if you have > > an > > allergy test performed - whether or not it comes out positive - that > > could > > be a step towards getting the doctors to believe that your symptoms are > > related to mold exposure. especially if it were to come out positive. > > Everyone knows that allergies can sometimes be debilitating, causing > > severe > > reactions like anaphylactic shock and asthma or even death. It's not > > just > > allergies to peanuts, shellfish, bee stings, etc. that can cause those > > major > > problems. but, molds as well. No one knows that better than this group. > > I' > > ve learned so much from you all and I thank you! > > > > I've read Dr. Shoemaker's " Mold Warriors " book and think it/he is > > brilliant > > (and not just because he used to live in my area) and a lot of it > > mirrors my > > life over the last 6 years of my long, low-dose exposure to molds in a > > water-damaged building that was never repaired; however, for those who > > cannot get to Dr. Shoemaker's, or Dr. Schaller's, or cannot tolerate the > > treatment, I know from personal experience that there is another > > treatment > > that worked for me (the neutralization allergy serum). > > > > God bless, > > > > Kim > > > > I finally posted to the Boston Globe my mold story-- I hope it made > > sense. I also live in northern Ca-- Berkeley. I have had to move 4 times to get away from mold. I have posted before about the fake remediation companies so if anyone wants info, please email me. The franchise ones are the worst. I am looking for a dehumidifier now and if anyone has some suggestions, please let me know. Lori and Meow Cat .....> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2005 Report Share Posted September 17, 2005 Oh my Gawd! On AUG 28TH a Sunday I was relaxing out with a friend from work, no stress what so ever, I broke out in a cold drenching sweat, felt very weird, my heart became very rapid and I got extremely dizzy, by the time I got home I passed out cold. When I revived I was totally soaked, I had to change clothes. The next day Monday I called the doctor, when I saw him the following morning my blood pressure was so low he pulled me out of work for 6-8 weeks and scheduled me for more tests. I had blood work the first week of august and my potassium was real low. He put me on Slow K and scheduled me for upper GI x-rays and more blood work to re-test my levels on Sept 20th, he also is getting me an appointment with a specialist in gastroenterology* (spelling?)which I may not be able to see until Nov or Dec. Is this attack what you are describing? > ANYBODY HAVE MANIC DEPRESSION, OR ANXIETY ATTACKS, SECONDARY TO TOXIC MOLD > EXPOSURE? YOU CAN EMAIL ME PRIVATELY, IF YOU WANT TO....I'M JUST CHECKING > SOME THINGS OUT. > > THANKS! > V. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2005 Report Share Posted September 17, 2005 not exactly, but anxiety would be a part of that, i'd think?????? a former coworker of mine had to have cardiac ablation (where they have to intervene to " burn " the places in her heart where it was " firing " or transmitting the signal to pump wayyyyyy too fast, etc., from her exposure to our VERY moldy former workplace.) she has a pacemaker now--but looks good, the last i saw her. as for me--when i first got sooooooooo sick & spent a month in the acute care hospitals (3 to be exact), my BP dropped to 64/40. the place (where i worked) nearly killed me...... take care, & call 911 if that happens again!!!!!!!! victoria :>( [] Re: Allergy Testing? > Oh my Gawd! On AUG 28TH a Sunday I was relaxing out with a friend > from work, no stress what so ever, I broke out in a cold drenching > sweat, felt very weird, my heart became very rapid and I got > extremely dizzy, by the time I got home I passed out cold. When I > revived I was totally soaked, I had to change clothes. The next day > Monday I called the doctor, when I saw him the following morning my > blood pressure was so low he pulled me out of work for 6-8 weeks and > scheduled me for more tests. I had blood work the first week of > august and my potassium was real low. He put me on Slow K and > scheduled me for upper GI x-rays and more blood work to re-test my > levels on Sept 20th, he also is getting me an appointment with a > specialist in gastroenterology* (spelling?)which I may not be able > to see until Nov or Dec. Is this attack what you are describing? > > >> ANYBODY HAVE MANIC DEPRESSION, OR ANXIETY ATTACKS, SECONDARY TO > TOXIC MOLD >> EXPOSURE? YOU CAN EMAIL ME PRIVATELY, IF YOU WANT TO....I'M JUST > CHECKING >> SOME THINGS OUT. >> >> THANKS! >> V. > > > > > > > > > > > FAIR USE NOTICE: > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2005 Report Share Posted September 17, 2005 Better yet , I don't plan on going back to work in that building until all the tests are done or if ever. My friend(who is 10 yrs younger than me) just had heart surgery after working there less than a year, she now looks like crap, she used to look her age but now looks 20 yrs older, she is haggard and her color is way off. Others at work are off for " heart problems " , is this connected to what you are talking about? Oh, and by the way, they had been calling ambulances " at least " once a week at work, now the policy has changed to get a co-worker drive them to the hospital instead of calling an ambulance. Are they allowed to do this? we are in Canada. Take care of yourself, > not exactly, but anxiety would be a part of that, i'd think?????? a former > coworker of mine had to have cardiac ablation (where they have to intervene > to " burn " the places in her heart where it was " firing " or transmitting the > signal to pump wayyyyyy too fast, etc., from her exposure to our VERY moldy > former workplace.) she has a pacemaker now--but looks good, the last i saw > her. > > as for me--when i first got sooooooooo sick & spent a month in the acute > care hospitals (3 to be exact), my BP dropped to 64/40. the place (where i > worked) nearly killed me...... > > take care, & call 911 if that happens again!!!!!!!! > > victoria :>( > [] Re: Allergy Testing? > > > > Oh my Gawd! On AUG 28TH a Sunday I was relaxing out with a friend > > from work, no stress what so ever, I broke out in a cold drenching > > sweat, felt very weird, my heart became very rapid and I got > > extremely dizzy, by the time I got home I passed out cold. When I > > revived I was totally soaked, I had to change clothes. The next day > > Monday I called the doctor, when I saw him the following morning my > > blood pressure was so low he pulled me out of work for 6-8 weeks and > > scheduled me for more tests. I had blood work the first week of > > august and my potassium was real low. He put me on Slow K and > > scheduled me for upper GI x-rays and more blood work to re-test my > > levels on Sept 20th, he also is getting me an appointment with a > > specialist in gastroenterology* (spelling?)which I may not be able > > to see until Nov or Dec. Is this attack what you are describing? > > > > --- In , " " <toria@b...> wrote: > >> ANYBODY HAVE MANIC DEPRESSION, OR ANXIETY ATTACKS, SECONDARY TO > > TOXIC MOLD > >> EXPOSURE? YOU CAN EMAIL ME PRIVATELY, IF YOU WANT TO....I'M JUST > > CHECKING > >> SOME THINGS OUT. > >> > >> THANKS! > >> V. > > > > > > > > > > > > > > > > > > > > > > FAIR USE NOTICE: > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2005 Report Share Posted September 18, 2005 i really can't answer all your questions, mary--wish i could, but i'm not qualified. i just STRONGLY believe that my coworkers " potts syndrome " (tachycardia) was / is related to our moldy environment. and can you believe this!!: she's still trying to work there, part time! she's a very foolish girl. as far as getting coworkers to take other workers to the hospital instead of calling 911? i think they're setting themselves up for a HUGE lawsuit. take care of YOU too, mary, & thanks. victoria [] Re: Allergy Testing? > Better yet , I don't plan on going back to work in that > building until all the tests are done or if ever. My friend(who is > 10 yrs younger than me) just had heart surgery after working there > less than a year, she now looks like crap, she used to look her age > but now looks 20 yrs older, she is haggard and her color is way off. > Others at work are off for " heart problems " , is this connected to > what you are talking about? Oh, and by the way, they had been > calling ambulances " at least " once a week at work, now the policy > has changed to get a co-worker drive them to the hospital instead of > calling an ambulance. Are they allowed to do this? we are in Canada. > > Take care of yourself, > > > >> >> ANYBODY HAVE MANIC DEPRESSION, OR ANXIETY ATTACKS, SECONDARY TO >> > TOXIC MOLD >> >> EXPOSURE? YOU CAN EMAIL ME PRIVATELY, IF YOU WANT TO....I'M > JUST >> > CHECKING >> >> SOME THINGS OUT. >> >> >> >> THANKS! >> >> V. >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > FAIR USE NOTICE: >> > >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2005 Report Share Posted September 18, 2005 I did have panic attacks when I was becoming very ill. That was part of it. I would never suggest anyone try it without knowledgeable medical supervision, but DHEA was the answer for that. I had absolutely no bad side effects, the panic attacks stopped very quickly, and a subsequent blood test showed that the DHEA was in fact being metabolized. Of all the many OTC supplements I tried, this one got the job done. I stopped taking it just before I got on Shoemaker's regular protocol, and the panic attacks did not return. This is one of the clear winners in my trash bag. YMMV, but DHEA earns a Hefty Award from me Serena www.freeboards.net/index.php?mforum=sickgovernmentb __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2005 Report Share Posted September 18, 2005 But did you feel fear or panic? You know - like in " panic attack " ? I'm not poking fun. It's a real question. msheeh02 <msheeh02@...> wrote:Oh my Gawd! On AUG 28TH a Sunday I was relaxing out with a friend from work, no stress what so ever, I broke out in a cold drenching sweat, felt very weird, my heart became very rapid and I got extremely dizzy, by the time I got home I passed out cold. When I revived I was totally soaked, I had to change clothes. The next day Monday I called the doctor, when I saw him the following morning my blood pressure was so low he pulled me out of work for 6-8 weeks and scheduled me for more tests. I had blood work the first week of august and my potassium was real low. He put me on Slow K and scheduled me for upper GI x-rays and more blood work to re-test my levels on Sept 20th, he also is getting me an appointment with a specialist in gastroenterology* (spelling?)which I may not be able to see until Nov or Dec. Is this attack what you are describing? Serena www.freeboards.net/index.php?mforum=sickgovernmentb --------------------------------- for Good Click here to donate to the Hurricane Katrina relief effort. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2005 Report Share Posted September 18, 2005 Serena: I did not feel fear OR panic, I just felt weird! I was relaxing and talking to a friend when it hit. I wasn't upset, we were having a fun conversation and both laughing then...bam! My heart started racing, you know the rest of the story. About 15 mins later is when I started to get scared as I reallized that I was actually going to pass out. It scared my Doctor enough to pull me outta work until we find out what's going on with me. MARY Oh my Gawd! On AUG 28TH a Sunday I was relaxing out with a friend > from work, no stress what so ever, I broke out in a cold drenching > sweat, felt very weird, my heart became very rapid and I got > extremely dizzy, by the time I got home I passed out cold. When I > revived I was totally soaked, I had to change clothes. The next day > Monday I called the doctor, when I saw him the following morning my > blood pressure was so low he pulled me out of work for 6-8 weeks and > scheduled me for more tests. I had blood work the first week of > august and my potassium was real low. He put me on Slow K and > scheduled me for upper GI x-rays and more blood work to re-test my > levels on Sept 20th, he also is getting me an appointment with a > specialist in gastroenterology* (spelling?)which I may not be able > to see until Nov or Dec. Is this attack what you are describing? > > > > Serena > www.freeboards.net/index.php?mforum=sickgovernmentb > > > --------------------------------- > for Good > Click here to donate to the Hurricane Katrina relief effort. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2005 Report Share Posted September 18, 2005 That is weird, .I don't think we could rightly call it a panic attack, but parts of it sound identical. Serena www.freeboards.net/index.php?mforum=sickgovernmentb --------------------------------- for Good Click here to donate to the Hurricane Katrina relief effort. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2006 Report Share Posted January 3, 2006 Hi!! I am looking into this right now. I ordered supplies thru Great Plains Lab. They will send you all the info and testing supplies. You need to send back a prescription note with docs signature and dx code. The website is great. It will list the disorders and then what tests would be good for that one. I already had my son do the stratch test last year in the allergists office. He found to be allergic to casein/dairy, eggs, mold, dust, feathers, cats, dogs. They never tested for gluten/wheat. We did a 3 weeks dairy/egg free trial. I saw zero improvement in behavior. But with his dairy--we realize that his groin/leg rash and itchy anus is due to the dairy. So we left him on the dairy-free. Eggs is really hard to due. He is going back in on the 10th to get the gluten tested and I want egg retested. I'm waiting for my lab supplies to get here. The tests they run thru the private lab is so much more extensive then the allergists. I'm starting to think my son has leaking gut and the casein/gluten free diet will help. Holly --5yo Bipolar HFA Anxiety Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2006 Report Share Posted January 7, 2006 I had always heard of the GFCF diet but ruled it out as impossible because that was all Connor ate too-- he would actually drink a quart of 1-2% milk a day. The pediatrician urged us to change to 1% or skim so he wouldn't fill up on it but my in-laws felt he needed all the fat he could get and would give me grief for not giving him whole milk! With a diminishing food repetoire, we tried to make all he did eat as healthy as possible (organic milk, peanut butter, bread & chips). I felt I could not consider a GFCF diet until I read one thing from a link from this site--it stated that kids who have food sensitivities often become addicted to the foods they are sensitive as it will create an opiate like effect on them. That really blew me away because I was definitely seeing highs and lows--wildness and then, crashing. Couple that with seeing the conference by Dr. Scherr and I was ready to give it a try. We explained to Connor (age 6) that milk and wheat may be the reason why he " got wild " , then felt tired, had dark circles under his eyes and " fell apart " (tantruming). He never complained of belly aches, head aches or anything. We also told him we had heard that the diet was not forever but just so his insides could heal. Here is what we replaced: PB & J sandwiches= GF crisp bread with PB spread on or rice bread toast with PB (same PB as before) Van's regular waffles with maple syrup= Van's GF waffles with maple syrup Chips= corn chips, rice chips, Veggie Booty, potato chips French fries= French fries Corn bread= GF Pantry cornbread mix Cookies= Cherrybrook sugar cookie mix, Arrowroot cookies, GF gingerbread mix Milk=water (surprisingly) and seltzer water Cereal= any Barbara's GF cereals seem to be a big hit with rice milk (has tried rice milk plain with mixed reviews) Snacks= ANDI bars (protein bars that are made for kids GFCF, I order them on the web) or GF pretzels and PB Applesauce (his only fruit)= applesauce with the probiotic in it (he loves opening the capsule and dumping the powder in the applesauce cup and mixing it up). Mac & Cheese= he does really miss this, rice noodles with GF butter spread are a substitute but not equal. Corn niblets (prefers on the cob)=still can have Rice= can still have He has become more open to trying new foods. The doc says his texture issues will lift as he heals. I am a bit worried because if he comes back as being sensitive to PB and corn (which the doctor suspects), I do not know what we will do for protien. The doc asked Connor to try fish but he refused. Connor only ever ate chicken nuggets in the past and he gave that up a year ago--he is totally meat free. Dr. Scherr started talking Quinoa and Kasha? I don't know much about them or how I could present them to him in a form that will look familiar. I do have an appointment with the nutritionist at his wellness center to go over it all. I can let you know what she says but the doctor says he has only ever had a child go 7 days without eating! (yikes!!) Let's hope I can move ahead as smoothly as it has already been going. The school is aware and had GFCF snacks for Connor for special occasions that I sent in. His lunch ticket is also on hold. Any suggestions are greatly appreciated--hope this is helpful, Chris!! Alison Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2006 Report Share Posted January 8, 2006 Hhhmmmm....it makes a lot of sense about the " high " effect from foods they are sensitive to.....definitely something to look into. I also think the picky eater issue with AS kids can be a form of control.....you know how they crave routine and sameness (predictability)....trying new foods goes against that....it might be scary to them....it's not predictable and safe in their eyes....hard to tell. Thanks for your post, Chris > > > > I had always heard of the GFCF diet but ruled it out as impossible because > that was all Connor ate too-- he would actually drink a quart of 1- 2% milk a > day. The pediatrician urged us to change to 1% or skim so he wouldn't fill up on > it but my in-laws felt he needed all the fat he could get and would give me > grief for not giving him whole milk! With a diminishing food repetoire, we > tried to make all he did eat as healthy as possible (organic milk, peanut butter, > bread & chips). I felt I could not consider a GFCF diet until I read one > thing from a link from this site--it stated that kids who have food sensitivities > often become addicted to the foods they are sensitive as it will create an > opiate like effect on them. That really blew me away because I was definitely > seeing highs and lows--wildness and then, crashing. Couple that with seeing > the conference by Dr. Scherr and I was ready to give it a try. > > We explained to Connor (age 6) that milk and wheat may be the reason why > he " got wild " , then felt tired, had dark circles under his eyes and " fell > apart " (tantruming). He never complained of belly aches, head aches or anything. > We also told him we had heard that the diet was not forever but just so his > insides could heal. Here is what we replaced: > > PB & J sandwiches= GF crisp bread with PB spread on or rice bread toast with PB > (same PB as before) > Van's regular waffles with maple syrup= Van's GF waffles with maple syrup > Chips= corn chips, rice chips, Veggie Booty, potato chips > French fries= French fries > Corn bread= GF Pantry cornbread mix > Cookies= Cherrybrook sugar cookie mix, Arrowroot cookies, GF gingerbread mix > Milk=water (surprisingly) and seltzer water > Cereal= any Barbara's GF cereals seem to be a big hit with rice milk (has > tried rice milk plain with mixed reviews) > Snacks= ANDI bars (protein bars that are made for kids GFCF, I order them on > the web) or GF pretzels and PB > Applesauce (his only fruit)= applesauce with the probiotic in it (he loves > opening the capsule and dumping the powder in the applesauce cup and mixing it > up). > Mac & Cheese= he does really miss this, rice noodles with GF butter spread > are a substitute but not equal. > Corn niblets (prefers on the cob)=still can have > Rice= can still have > > He has become more open to trying new foods. The doc says his texture issues > will lift as he heals. I am a bit worried because if he comes back as being > sensitive to PB and corn (which the doctor suspects), I do not know what we > will do for protien. The doc asked Connor to try fish but he refused. Connor > only ever ate chicken nuggets in the past and he gave that up a year ago--he is > totally meat free. Dr. Scherr started talking Quinoa and Kasha? I don't > know much about them or how I could present them to him in a form that will look > familiar. I do have an appointment with the nutritionist at his wellness > center to go over it all. I can let you know what she says but the doctor says he > has only ever had a child go 7 days without eating! (yikes!!) Let's hope I > can move ahead as smoothly as it has already been going. > > The school is aware and had GFCF snacks for Connor for special occasions that > I sent in. His lunch ticket is also on hold. > > Any suggestions are greatly appreciated--hope this is helpful, Chris!! > Alison > > > Quote Link to comment Share on other sites More sharing options...
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