Guest guest Posted September 26, 2005 Report Share Posted September 26, 2005 > I put my story in the bmj and described the " mycotoxin connection " > between SIDS and CFS as being mediated by potentiated toxins from > common molds - and got not one single response. > I of course think that the sids can be from mold, that is how I got ill. I also have suggested to my local government that since they put the exhaust systems by windows in most new apartments, etc. that the chemicals that emit from the dryers and when people cook and shower could be a cause of sids. If the window is open and someone is using their dryer, the fumes are so bad in my apartment. Of course no one called me back. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2005 Report Share Posted September 27, 2005 Wow, you guys are going to freak when I find the article I read about what actually causes SIDS. They figured it out in New Zealand which had the highest SIDS rates in the world. It has to do with many toxic chemicals they use in baby mattresses to make them fireproof along with a fungus that likes to grow in the mattress and it all comes together with heat, like that from a baby with a fever or a heating blanket. I'll find the article, give me some time!! > > I put my story in the bmj and described the " mycotoxin connection " > > between SIDS and CFS as being mediated by potentiated toxins from > > common molds - and got not one single response. > > > I of course think that the sids can be from mold, that is how I got > ill. I also have suggested to my local government that since they > put the exhaust systems by windows in most new apartments, etc. that > the chemicals that emit from the dryers and when people cook and > shower could be a cause of sids. If the window is open and someone is > using their dryer, the fumes are so bad in my apartment. Of course no > one called me back. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2005 Report Share Posted September 27, 2005 Pizza guy is this the article you were refering to: Subject: The Cot Death Cover-Up http://www.pnc.com.au/~cafmr/reviews2.html#poison The Cot Death Cover-Up? by Dr Jim Sprott THE COT DEATH COVER-UP? is the culmination of over fifteen years of cot death research by the author, a highly respected consulting chemist and forensic scientist from New Zealand. In 1986 Sprott arrived at the conclusion that babies were succumbing to cot death because of inadvertent gaseous poisoning by an extremely toxic nerve gas generated by microbiological action on something within the baby's cot, but he wasn't able to identify the gas. Then in 1989 consulting scientist Barry , working independently in Britain came to the same conclusion and in addition identified the offending gases. It was not long before the two teamed-up to work on what they describe as the " Hypothesis " . According to Sprott the three identified gases that were generated from mattresses on which babies died of SIDS are " phosphine, arsine and stibine, all extremely toxic 'nerve gases'. They are produced by the action of the otherwise harmless fungus Scopulariopsis brevicaulis on substances containing phosphorus, arsenic and antimony. These elements are often present in cot and other mattresses. " These odourless but intensely poisonous gases, with toxicities about 100 times as great as hydrogen cyanide (prussic acid), act upon the baby's nervous system to inhibit breathing and heart function. The problem, in fact, has been first identified as far back as the 1880's when the mystery of thousands of unexpected child deaths throughout Western Europe and the UK was solved by Italian chemist Gosio. He had discovered that deaths were due to a toxic gas, arsine and/or alkyl homologues generated by the micro-organism Scopulariopsis brevicaulis (then known as Penicillium brevicaules). It acted upon copper arsenate, used in green pigments in wallpaper, and arsenious oxide, used as a preservative in wallpaper glue. THE COT DEATH COVER-UP? contains ample evidence supporting Sprott and 's findings. Among the many graphs it contains one that demonstrates the rapid drop in cot deaths in Britain in 1986- 1994. The graph, based on official statistics, shows that when the findings were first made public in mid-1989 the SIDS rate started to fall immediately, dropping 35 per cent by the time the official " Back to Sleep " campaign was launched in December 1991. In the period 1989-1994, Britain saw a staggering 70 per cent reduction in the SIDS rate. Despite these remarkable results, Sprott and were fiercely opposed by their respective country's health authorities and official SIDS groups. Their struggle for official recognition of their findings is reminiscent to that of other independent SIDS researchers such as Dr Archie Kalokerinos and Dr Glen Dettman, who had proved that severe depletion of a child's vitamin C level, precipitated by various insults including childhood vaccinations, could predispose it to SIDS. The author says that the book is not aimed at academics (although its first-class material should suffice their snobbery), but is aimed at parents - parents who have to suffer the consequences of a system that puts them and their babies last in the " war " against this human tragedy known as SIDS. Published in 1996 by Penguin Books (NZ). Available through most major bookstores. > > > I put my story in the bmj and described the " mycotoxin connection " > > > between SIDS and CFS as being mediated by potentiated toxins from > > > common molds - and got not one single response. > > > > > I of course think that the sids can be from mold, that is how I got > > ill. I also have suggested to my local government that since they > > put the exhaust systems by windows in most new apartments, etc. that > > the chemicals that emit from the dryers and when people cook and > > shower could be a cause of sids. If the window is open and someone > is > > using their dryer, the fumes are so bad in my apartment. Of course > no > > one called me back. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2005 Report Share Posted September 27, 2005 Actually I think that was the original one I saw, but I found another one while trying to find that one! It is so amazing how government values money over our lives while I'm sure I speak for all of us in that we all value our and and our families health more than anything! -- In , " tigerpaw2c " <tigerpaw2c@y...> wrote: > Pizza guy is this the article you were refering to: > > Subject: The Cot Death Cover-Up > > > > http://www.pnc.com.au/~cafmr/reviews2.html#poison > > The Cot Death Cover-Up? > > by Dr Jim Sprott > > THE COT DEATH COVER-UP? is the culmination of over fifteen years of > cot death research by the author, a highly respected consulting > chemist and forensic scientist from New Zealand. > > In 1986 Sprott arrived at the conclusion that babies were succumbing > to cot death because of inadvertent gaseous poisoning by an > extremely toxic nerve gas generated by microbiological action on > something within the baby's cot, but he wasn't able to identify the > gas. Then in 1989 consulting scientist Barry , working > independently in Britain came to the same conclusion and in addition > identified the offending gases. It was not long before the two > teamed-up to work on what they describe as the " > Hypothesis " . > > According to Sprott the three identified gases that were generated > from mattresses on which babies died of SIDS are " phosphine, arsine > and stibine, all extremely toxic 'nerve gases'. They are produced by > the action of the otherwise harmless fungus Scopulariopsis > brevicaulis on substances containing phosphorus, arsenic and > antimony. These elements are often present in cot and other > mattresses. " These odourless but intensely poisonous gases, with > toxicities about 100 times as great as hydrogen cyanide (prussic > acid), act upon the baby's nervous system to inhibit breathing and > heart function. > > The problem, in fact, has been first identified as far back as the > 1880's when the mystery of thousands of unexpected child deaths > throughout Western Europe and the UK was solved by Italian chemist > Gosio. He had discovered that deaths were due to a toxic gas, arsine > and/or alkyl homologues generated by the micro-organism > Scopulariopsis brevicaulis (then known as Penicillium brevicaules). > It acted upon copper arsenate, used in green pigments in wallpaper, > and arsenious oxide, used as a preservative in wallpaper glue. > > THE COT DEATH COVER-UP? contains ample evidence supporting Sprott > and 's findings. Among the many graphs it contains one > that demonstrates the rapid drop in cot deaths in Britain in 1986- > 1994. The graph, based on official statistics, shows that when the > findings were first made public in mid-1989 the SIDS rate started to > fall immediately, dropping 35 per cent by the time the > official " Back to Sleep " campaign was launched in December 1991. In > the period 1989-1994, Britain saw a staggering 70 per cent reduction > in the SIDS rate. > > Despite these remarkable results, Sprott and were > fiercely opposed by their respective country's health authorities > and official SIDS groups. Their struggle for official recognition of > their findings is reminiscent to that of other independent SIDS > researchers such as Dr Archie Kalokerinos and Dr Glen Dettman, who > had proved that severe depletion of a child's vitamin C level, > precipitated by various insults including childhood vaccinations, > could predispose it to SIDS. > > The author says that the book is not aimed at academics (although > its first-class material should suffice their snobbery), but is > aimed at parents - parents who have to suffer the consequences of a > system that puts them and their babies last in the " war " against > this human tragedy known as SIDS. > > Published in 1996 by Penguin Books (NZ). Available through most > major bookstores. > > > > > > > > > I put my story in the bmj and described the " mycotoxin > connection " > > > > between SIDS and CFS as being mediated by potentiated toxins > from > > > > common molds - and got not one single response. > > > > > > > I of course think that the sids can be from mold, that is how I > got > > > ill. I also have suggested to my local government that since > they > > > put the exhaust systems by windows in most new apartments, etc. > that > > > the chemicals that emit from the dryers and when people cook > and > > > shower could be a cause of sids. If the window is open and > someone > > is > > > using their dryer, the fumes are so bad in my apartment. Of > course > > no > > > one called me back. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2005 Report Share Posted September 27, 2005 Those of you who are using " sense of smell " to identify mold threats might want to read the " odourless " part again. - > > According to Sprott the three identified gases that were generated from mattresses on which babies died of SIDS are " phosphine, arsine and stibine, all extremely toxic 'nerve gases'. They are produced by the action of the otherwise harmless fungus Scopulariopsis brevicaulis on substances containing phosphorus, arsenic and antimony. These elements are often present in cot and other mattresses. " These odourless but intensely poisonous gases, with toxicities about 100 times as great as hydrogen cyanide (prussic acid), act upon the baby's nervous system to inhibit breathing and heart function.<< > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2005 Report Share Posted September 27, 2005 The smell thing is only part of it. Just because you don't smell it, doesn't mean it isn't there. But if you DO smell it, it's definitely there. Not everyone is blessed (or perhaps cursed) with the same olfactory acuity - even Moldies. erikmoldwarrior <erikmoldwarrior@...> wrote: Those of you who are using " sense of smell " to identify mold threats might want to read the " odourless " part again. - Serena www.freeboards.net/index.php?mforum=sickgovernmentb --------------------------------- for Good Click here to donate to the Hurricane Katrina relief effort. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2005 Report Share Posted September 27, 2005 > > > I put my story in the bmj and described the " mycotoxin connection " > > > between SIDS and CFS as being mediated by potentiated toxins from > > > common molds - and got not one single response. > > > > > I of course think that the sids can be from mold, that is how I got > > ill. I also have suggested to my local government that since they > > put the exhaust systems by windows in most new apartments, etc. that > > the chemicals that emit from the dryers and when people cook and > > shower could be a cause of sids. If the window is open and someone > is > > using their dryer, the fumes are so bad in my apartment. Of course > no > > one called me back. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2005 Report Share Posted September 27, 2005 SERENA EDWARDS < wrote: > The smell thing is only part of it. Just because you don't smell it, doesn't mean it isn't there. But if you DO smell it, it's definitely there. > Been a lot of musty places that have no effect upon me at all. I treat odors with suspicion, but nothing more. There are simply too many places that have normal deomposition, musty odors, smuts and yeasts but not toxic mold that one would have to worry needlessly about. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2005 Report Share Posted September 27, 2005 KL, PLEASE SEND ME THAT ARTICLE DIRECTLY, IF YOU WILL? THANKS! VICTORIA [] Re: Gosio's Disease/SIDS/SBS/CFS Cover-Up > >> > > I put my story in the bmj and described the " mycotoxin connection " >> > > between SIDS and CFS as being mediated by potentiated toxins from >> > > common molds - and got not one single response. >> > > >> > I of course think that the sids can be from mold, that is how I got >> > ill. I also have suggested to my local government that since they >> > put the exhaust systems by windows in most new apartments, etc. that >> > the chemicals that emit from the dryers and when people cook and >> > shower could be a cause of sids. If the window is open and someone >> is >> > using their dryer, the fumes are so bad in my apartment. Of course >> no >> > one called me back. > > > > > > FAIR USE NOTICE: > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2005 Report Share Posted September 28, 2005 > 1.smuts and yeasts but not toxic mold that one would have to > worry needlessly about. > - Mold is a natural, normal and NECESSARY part of the environment. If Moldies act like every type of mold is toxic, it will not add to our credibility. It will backfire like the concept that all bacteria must be bad simply because it IS bacteria, but without beneficial intestinal bacterial flora, the not so beneficial buggers move in. Mold is bad when it is harmful, but not when it is performing a normal environmental saprophytic function. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2005 Report Share Posted September 28, 2005 Purify the air all around you and your sense of smell will go way up, at least it did for my wife and I. When you go from really clean air to bad, you'll know instantly!! > > Those of you who are using " sense of smell " to identify mold threats > might want to read the " odourless " part again. > - > > > > Serena > www.freeboards.net/index.php?mforum=sickgovernmentb > > > --------------------------------- > for Good > Click here to donate to the Hurricane Katrina relief effort. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2005 Report Share Posted September 28, 2005 " Prof. Tang Lee " wrote: > at erikmoldwarrior@e... raises the connection between SIDS > and mould exposure, reminds me of a Ph.D students I was advising back in 1998. She was concern about aboriginal health and conducted her dissertation on this subject. I advised her to sample for moulds in houses with SIDS death as I knew they were built with dirt- covered crawlspaces and would likely have high mould concentrations. > What Dr TJ Sprott has consistently demonstrated with the BabeSafe system in the Maori Tribe in New Zealand is that controlling for potentiated mycotoxin exposure is the single most important variable. The commonality between CFS and SIDS is that the infection/cytokine events which have been heretofore implicated as causative simply do not possess the pathogenic potential when the mycotoxin exposure is eliminated. This is the precise scenario we had in Truckee High school, Ground Zero for the symptom concurrency that made the CFS syndrome apparent. The teacher cluster described in Osler's Web was repeated at North Tahoe High school but with fewer sufferers - but the same mold: Stachy. I was just visiting my old school recently and it is STILL a mold slammer - but without the accompanying cytokine challenge of the transient infectious agent - it remains a subclinical immune suppressor. As I looked in the famous " teachers lounge " where nine teachers all became chronically ill, a student was doing a " deep yawn " indicative of oxygen deprivation. One could easily dismiss this as normal student sleep disorder, but I know the sensation and that it occurs no matter how much sleep I've had - in the presence of specific mycotoxins! I challenge any " mold responder " to take the Incline Village CFS mold tour and determine for yourself if these places have the potential for such an effect! I will take you there personally. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2005 Report Share Posted September 28, 2005 I can tell if mycotoxins are present within 5-10 seconds of entering a room. I can literally sense the sudden IQ drop that comes with brain fog and sudden fatigue. > > at erikmoldwarrior@e... raises the connection between SIDS > > and mould exposure, reminds me of a Ph.D students I was advising > back in 1998. She was concern about aboriginal health and conducted > her dissertation on this subject. I advised her to sample for moulds > in houses with SIDS death as I knew they were built with dirt- > covered crawlspaces and would likely have high mould concentrations. > > > > What Dr TJ Sprott has consistently demonstrated with the BabeSafe > system in the Maori Tribe in New Zealand is that controlling for > potentiated mycotoxin exposure is the single most important variable. > The commonality between CFS and SIDS is that the infection/cytokine > events which have been heretofore implicated as causative simply do > not possess the pathogenic potential when the mycotoxin exposure is > eliminated. > This is the precise scenario we had in Truckee High school, Ground > Zero for the symptom concurrency that made the CFS syndrome apparent. > The teacher cluster described in Osler's Web was repeated at North > Tahoe High school but with fewer sufferers - but the same mold: > Stachy. > I was just visiting my old school recently and it is STILL a mold > slammer - but without the accompanying cytokine challenge of the > transient infectious agent - it remains a subclinical immune > suppressor. As I looked in the famous " teachers lounge " where nine > teachers all became chronically ill, a student was doing a " deep > yawn " indicative of oxygen deprivation. One could easily dismiss > this as normal student sleep disorder, but I know the sensation and > that it occurs no matter how much sleep I've had - in the presence > of specific mycotoxins! > I challenge any " mold responder " to take the Incline Village CFS > mold tour and determine for yourself if these places have the > potential for such an effect! > I will take you there personally. > - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2005 Report Share Posted September 28, 2005 True - however - the smell alone is reason to be particularly aware and take stock of one's surroundings. I'd really rather not be housebound for weeks or months on end because I mistakenly thought it was " just " yeast or mildew. erikmoldwarrior <erikmoldwarrior@...> wrote: > 1.smuts and yeasts but not toxic mold that one would have to > worry needlessly about. > - Mold is a natural, normal and NECESSARY part of the environment. If Moldies act like every type of mold is toxic, it will not add to our credibility. It will backfire like the concept that all bacteria must be bad simply because it IS bacteria, but without beneficial intestinal bacterial flora, the not so beneficial buggers move in. Mold is bad when it is harmful, but not when it is performing a normal environmental saprophytic function. - FAIR USE NOTICE: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2005 Report Share Posted September 28, 2005 " pizzahutoxic " < wrote: > I can tell if mycotoxins are present within 5-10 seconds of entering a room. I can literally sense the sudden IQ drop that comes with brain fog and sudden fatigue. > When I refer to " Extreme Mycotoxin Avoidance " , my premise is that almost anyone can learn to detect a " mold slam " from highly contaminated areas - and I have taught many people to perceive mold at least this much, which is fairly easy to do. When my illness failed to improve by simply moving from such " sick buildings " and staying out of these overt exposures, I concentrated on subtleties that are not so apparent. Relying on the indicators of exposure that are described in this group were not sufficient to make a significant improvement for someone at my level of reactivity. Before Melinda Ballards " toxic Tara " story broke in USA TODAY, virtually all people that I came into contact with in the Reno-Tahoe area vehemently denied that mold had any serious effects whatsoever, and that includes dozens of doctors/allergists/immunologists in Sacramento as well - so " Mold Avoidance " was a completely novel concept. As I met more people who were determining for themselves that mold was something to be avoided, their responses conveyed the impression that all I was doing was turning around and walking out of " bad places " and that they were already practicing mold avoidance by cutting mold off the cheese and throwing away old bread. I'm sure that this level of avoidance is entirely appropriate for most people, but it is not what I am describing. As I said in Mold Warriors, when I realized that these exposures resembled the simulations for Nerve agent attacks in biological warfare training, I employed the same basic avoidance and decontamination protocols I was taught in the Army. This is what separates my definition of " Extreme Avoidance " from the concept of merely staying away from sick buildings. Despite my descriptions of employing a more concerted and specialized decontamination and avoidance strategy, the impression that most people generate is that I am practicing a " No Brainer " of walking away from places that knock me flat. At the very least I can tell you that when that was all I was doing, I wound up in Dr s ampligen program being told " You are at a point where most people with CFS commit suicide " . My impression of other people with CFS is that they are avoiding " bad places " by just walking away, and their results were equally unsatisfactory. I made an experiment of taking avoidance to the level consistent with military training for battlefield nerve agent contamination, and the difficulty in making people understand this is that the mental image they tend to visualize is the allergy model in which a Hepa filter and stepping away from the offending substance is an instant restoration of health. I don't advise anyone to do it unless they ask me what I would do if I were in their place, and it may not be necessary for the majority of the population. But when I failed to improve by any other means, and the doctors had given up on me - this is what I did. I'm not asking anyone else to take such extremes, or assert that 'My way is the only way', just to understand that when I say " Extreme Avoidance " , staying out of moldy buildings does not begin to describe it. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2005 Report Share Posted September 28, 2005 and Group -- I know that everyone here would be interested in a very specific description of your avoidance protocols. I believe that you have done this within the context of many messages in the past, but a detailed description of what actions you take when you perceive exposure would be very valuable for those who are stuggling. As an example, could you please explain what you do after you inadvertently enter a building that you percieve, through a " Mold Hit " , as being contaminated. For example, what do you do in this situation if you have arrived in your vehicle? What steps to you take to avoid cross-contamination of the vehicle? Thanks -- this will help many I'm sure. Lee > > I can tell if mycotoxins are present within 5-10 seconds of > entering a room. I can literally sense the sudden IQ drop that comes > with brain fog and sudden fatigue. > > > > When I refer to " Extreme Mycotoxin Avoidance " , my premise is that > almost anyone can learn to detect a " mold slam " from highly > contaminated areas - and I have taught many people to perceive mold at > least this much, which is fairly easy to do. > When my illness failed to improve by simply moving from such " sick > buildings " and staying out of these overt exposures, I concentrated on > subtleties that are not so apparent. > Relying on the indicators of exposure that are described in this group > were not sufficient to make a significant improvement for someone at > my level of reactivity. > Before Melinda Ballards " toxic Tara " story broke in USA TODAY, > virtually all people that I came into contact with in the Reno-Tahoe > area vehemently denied that mold had any serious effects whatsoever, > and that includes dozens of doctors/allergists/immunologists in > Sacramento as well - so " Mold Avoidance " was a completely novel > concept. As I met more people who were determining for themselves > that mold was something to be avoided, their responses conveyed the > impression that all I was doing was turning around and walking out > of " bad places " and that they were already practicing mold avoidance > by cutting mold off the cheese and throwing away old bread. > I'm sure that this level of avoidance is entirely appropriate for > most people, but it is not what I am describing. > As I said in Mold Warriors, when I realized that these exposures > resembled the simulations for Nerve agent attacks in biological > warfare training, I employed the same basic avoidance and > decontamination protocols I was taught in the Army. > This is what separates my definition of " Extreme Avoidance " from the > concept of merely staying away from sick buildings. > Despite my descriptions of employing a more concerted and specialized > decontamination and avoidance strategy, the impression that most > people generate is that I am practicing a " No Brainer " of walking away > from places that knock me flat. At the very least I can tell you that > when that was all I was doing, I wound up in Dr s ampligen > program being told " You are at a point where most people with CFS > commit suicide " . My impression of other people with CFS is that they > are avoiding " bad places " by just walking away, and their results were > equally unsatisfactory. > I made an experiment of taking avoidance to the level consistent with > military training for battlefield nerve agent contamination, and the > difficulty in making people understand this is that the mental image > they tend to visualize is the allergy model in which a Hepa filter and > stepping away from the offending substance is an instant restoration > of health. > I don't advise anyone to do it unless they ask me what I would do if I > were in their place, and it may not be necessary for the majority of > the population. But when I failed to improve by any other means, and > the doctors had given up on me - this is what I did. > I'm not asking anyone else to take such extremes, or assert that 'My > way is the only way', just to understand that when I say " Extreme > Avoidance " , staying out of moldy buildings does not begin to describe > it. > - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2005 Report Share Posted September 28, 2005 For example, what do you do in this > situation if you have arrived in your vehicle? What steps to you take > to avoid cross-contamination of the vehicle?> > Thanks -- this will help many I'm sure. > > Lee > Thank you . I've wondered the same and I'm sure many on this group. Being exposed in a building recently and having to drive back home I wondered also about the cross-contamination of my vehicle. , eagerly anticipating your suggested protocols, Rosie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2005 Report Share Posted September 29, 2005 Hey , sorry if I offended you somehow. I just like sharing my experiences to help others if I can. I know that I can now smell things that are bad that I couldn't smell before really purifying the air around me!! So that helps, but I never knew how much bad air there is all over the place!! buildings , " erikmoldwarrior " <erikmoldwarrior@e...> wrote: > " pizzahutoxic " < wrote: > > I can tell if mycotoxins are present within 5-10 seconds of > entering a room. I can literally sense the sudden IQ drop that comes > with brain fog and sudden fatigue. > > > > When I refer to " Extreme Mycotoxin Avoidance " , my premise is that > almost anyone can learn to detect a " mold slam " from highly > contaminated areas - and I have taught many people to perceive mold at > least this much, which is fairly easy to do. > When my illness failed to improve by simply moving from such " sick > buildings " and staying out of these overt exposures, I concentrated on > subtleties that are not so apparent. > Relying on the indicators of exposure that are described in this group > were not sufficient to make a significant improvement for someone at > my level of reactivity. > Before Melinda Ballards " toxic Tara " story broke in USA TODAY, > virtually all people that I came into contact with in the Reno- Tahoe > area vehemently denied that mold had any serious effects whatsoever, > and that includes dozens of doctors/allergists/immunologists in > Sacramento as well - so " Mold Avoidance " was a completely novel > concept. As I met more people who were determining for themselves > that mold was something to be avoided, their responses conveyed the > impression that all I was doing was turning around and walking out > of " bad places " and that they were already practicing mold avoidance > by cutting mold off the cheese and throwing away old bread. > I'm sure that this level of avoidance is entirely appropriate for > most people, but it is not what I am describing. > As I said in Mold Warriors, when I realized that these exposures > resembled the simulations for Nerve agent attacks in biological > warfare training, I employed the same basic avoidance and > decontamination protocols I was taught in the Army. > This is what separates my definition of " Extreme Avoidance " from the > concept of merely staying away from sick buildings. > Despite my descriptions of employing a more concerted and specialized > decontamination and avoidance strategy, the impression that most > people generate is that I am practicing a " No Brainer " of walking away > from places that knock me flat. At the very least I can tell you that > when that was all I was doing, I wound up in Dr s ampligen > program being told " You are at a point where most people with CFS > commit suicide " . My impression of other people with CFS is that they > are avoiding " bad places " by just walking away, and their results were > equally unsatisfactory. > I made an experiment of taking avoidance to the level consistent with > military training for battlefield nerve agent contamination, and the > difficulty in making people understand this is that the mental image > they tend to visualize is the allergy model in which a Hepa filter and > stepping away from the offending substance is an instant restoration > of health. > I don't advise anyone to do it unless they ask me what I would do if I > were in their place, and it may not be necessary for the majority of > the population. But when I failed to improve by any other means, and > the doctors had given up on me - this is what I did. > I'm not asking anyone else to take such extremes, or assert that 'My > way is the only way', just to understand that when I say " Extreme > Avoidance " , staying out of moldy buildings does not begin to describe > it. > - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2005 Report Share Posted September 29, 2005 " pizzahutoxic " <pizzahutoxic@y...> wrote: > Hey , sorry if I offended you somehow. I just like sharing my > experiences to help others if I can. I know that I can now smell > things that are bad that I couldn't smell before really purifying the > air around me!! So that helps, but I never knew how much bad air > there is all over the place!! > Have you attempted to remediate objects that still give you a slam? Do they have any detectable odor? While I've certainly had major mold slams in moldy places, the cross contamination and toxin exposed objects that can still be a driving force in my response so far outnumber and outweigh the exposures which have an accompanying odor that I decided using sense of smell is far too unreliable to use as an indicator - especially since there are so many musty places that have no effect on me. For example, Spirit Cave NV where ancient mummified remains of NON native American origins were discovered. http://www.cabrillo.edu/~crsmith/spiritman.html Very musty and full of mouse urine, but didn't bother me a bit. If I had been all freaked because there was mold, I wouldn't have been able to visit this fantastic archeological site. I've seen people who identify mold as a driving force in symptoms get absolutely wild over every mold or musty odor they encounter. After having your life destroyed, I can understand the sentiment, but others can not. Blaming every type of mold doesn't fit the facts and is counterproductive - in addition to making you appear obsessively crazy. So I try to head this off by getting people to pay attention to CNS responses and capillary hypoperfusion instead. This whole thing is crazy enough, so I'd rather not be any more crazy than is absolutely required. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2005 Report Share Posted September 29, 2005 No, it's not any of my stuff that messes me up. My exposure was purely at work! I've always had a tremendous sense of smell and now that my nose is clean, from always breathing purified air at home, it seems to be even more sensitive to bad smells. Like the library at school, I never noticed a smell there, but now I notice that it is a little musty and the librarians are always congested. I guess now that I think about it, the first thing I notice if I'm really paying attention if I enter a bad place is my sinus airways will tighten up a little, less oxygen, but the stupids come quick for me, usually before I notice that. I'm sure your exposure was longer and more severe, making you more hypersensitive than me, but mine was enough. One day if I get the go ahead, I'll post some pics in the photos section and maybe some video to, so you all can see what I was exposed to. I've certainly seen worse pics of peoples houses, but this was at a restaurant with an open makeline and moldy, extremely smelly delivery bags. Not right!! > > Hey , sorry if I offended you somehow. I just like sharing my > > experiences to help others if I can. I know that I can now smell > > things that are bad that I couldn't smell before really purifying > the > > air around me!! So that helps, but I never knew how much bad air > > there is all over the place!! > > > > > Have you attempted to remediate objects that still give you a slam? > Do they have any detectable odor? > > While I've certainly had major mold slams in moldy places, the cross > contamination and toxin exposed objects that can still be a driving > force in my response so far outnumber and outweigh the exposures which > have an accompanying odor that I decided using sense of smell is far > too unreliable to use as an indicator - especially since there are so > many musty places that have no effect on me. > For example, Spirit Cave NV where ancient mummified remains of NON > native American origins were discovered. > http://www.cabrillo.edu/~crsmith/spiritman.html > Very musty and full of mouse urine, but didn't bother me a bit. > If I had been all freaked because there was mold, I wouldn't have been > able to visit this fantastic archeological site. > > I've seen people who identify mold as a driving force in symptoms get > absolutely wild over every mold or musty odor they encounter. > After having your life destroyed, I can understand the sentiment, but > others can not. Blaming every type of mold doesn't fit the facts and > is counterproductive - in addition to making you appear obsessively > crazy. > So I try to head this off by getting people to pay attention to CNS > responses and capillary hypoperfusion instead. > This whole thing is crazy enough, so I'd rather not be any more crazy > than is absolutely required. > - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2005 Report Share Posted September 29, 2005 , You make a good point as far as sense of smell and I can relate to this in several ways. 1. Where my wife worked had absolutely no odor of mold,mildew or dirt smell. I had been in the building many times and it wasn't all that old, 5-6 years. The mold/spores were coming strickly from the HVAC system directly above her head. 2.We've been at a family members house visiting and I walked in the door first and using my sense of smell it just hit me in the face, that musty, mildewy, dampness smell. I don't ususally panic but I turned immediately to keep my wife from coming in, because I know what this could have done to her and she could have been in bed for a week to two weeks. But we had driven so far and some family members were a bit skeptical, to say the least. So we decided that she would go in slowly and just standing at the door. She felt nothing, not even the simplest signs that she would normally be aware of. Could not believe it. Six hours later, absolutely nothing and even the days to follow. I guess it just goes to show, even though we smell the mold and mildew coming from the basement, obviously the toxins it was emitting were not the same ones that nail her previously, that causes her system to go haywire. 3. Other buildings that we have gone into, if I'm with her, I always take the first step in the door. Many times I see or smell nothing and then she follows. Sometimes it could be an immediate effect and we leave immediately or she will say there is nothing in here, I'm ok and then all of a sudden, it could be 15 minutes, an hour or later, come to find out there was something there and she had a delayed reaction. This delayed response can be as long as the following day and it will still keep her in bed for 2-3 days. We have learned over time and it is a difficult thing to do, the difference between a chemical hit and a mold hit. She reacts differently betweent the two and of course it could be very mild to very severe. KC > > Hey , sorry if I offended you somehow. I just like sharing my > > experiences to help others if I can. I know that I can now smell > > things that are bad that I couldn't smell before really purifying > the > > air around me!! So that helps, but I never knew how much bad air > > there is all over the place!! > > > > > Have you attempted to remediate objects that still give you a slam? > Do they have any detectable odor? > > While I've certainly had major mold slams in moldy places, the cross > contamination and toxin exposed objects that can still be a driving > force in my response so far outnumber and outweigh the exposures which > have an accompanying odor that I decided using sense of smell is far > too unreliable to use as an indicator - especially since there are so > many musty places that have no effect on me. > For example, Spirit Cave NV where ancient mummified remains of NON > native American origins were discovered. > http://www.cabrillo.edu/~crsmith/spiritman.html > Very musty and full of mouse urine, but didn't bother me a bit. > If I had been all freaked because there was mold, I wouldn't have been > able to visit this fantastic archeological site. > > I've seen people who identify mold as a driving force in symptoms get > absolutely wild over every mold or musty odor they encounter. > After having your life destroyed, I can understand the sentiment, but > others can not. Blaming every type of mold doesn't fit the facts and > is counterproductive - in addition to making you appear obsessively > crazy. > So I try to head this off by getting people to pay attention to CNS > responses and capillary hypoperfusion instead. > This whole thing is crazy enough, so I'd rather not be any more crazy > than is absolutely required. > - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2005 Report Share Posted September 29, 2005 > I guess now that I think about it, the first thing I notice if I'm really paying attention if I enter a bad place is my sinus airways will tighten up a little, less oxygen, but the stupids come quick for me, usually before I notice that. I'm sure your exposure was longer and more severe, making you more hypersensitive than me, but mine was enough. > That's the description I was looking for! If you really pay attention to the " less oxygen " feeling and inexplicable sudden onsets of " The Stupids " , you may find, in time, that these episodes occur in the oddest and most unexpected places - Completely inconsistent with " where one would expect to find mold " . When I was in a preliminary stage, I tried to associate my symptoms to where mold would be a reasonable thing to encounter - and the LACK of positive correlation put me off the trail. It seemed like mold just could not possibly be where I was feeling the " hits " I thought were from mold, and then many times a place that was reeking with mold FAILED to have any effect. It's ironic that being at a lesser stage gave me less control over my reactivities because I simply couldn't sense the primary irritant well enough to identify the specificity and take proactive measures. In a way, it was the best thing that could have happened to me to be pushed into total devastating illness. Otherwise, I think that I would have just remained as I was, getting kicked around and never knowing what on Earth I could do about it. When I was feeling infinitely better after putting my stuff in storage and camping out, I was climbing up on Donner Pass and a motorcycle race was blazing down Old Hwy 40 past the old Transcontinental Railroad Showsheds where NitroGlycerin was introduced in this country for the first time to blast through the rocks. (They had to abandonon it. More people were being killed than with Black Powder. But Hey, it was worth a shot - but I digress...) I raised my green waterproof binoculars to my eyes, which I had got out of storage, and BLAM. No Oxygen! The Stupids. Heart palpitations. Desperation! Just from some stinking binoculars which had been washed! That was the moment when I completely abandoned trying to predict where I was going to be slammed based on whether it was moldy or not and paid total attention to the CNS and circulatory signs of a response that could occur from a contaminated object. The binoculars certainly never bothered me before they were contaminated so the MCSers assertions that I must have soaked them in chemicals didn't fit the facts. And I've had countless other possessions which turned from good to bad after being in a mold place. Virtually everyone around me was literally bending reality to invent some convoluted grasping explanation for the way something that " didn't used to bother me suddenly does " when the simplest explanation of all - fit all the facts " : " It was exposed to mold " . - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2005 Report Share Posted September 29, 2005 So, it seems like people are getting hypersensitive to a certain type of mold, not all molds. It must be the certain mycotoxins they were overexposed to that give them hits now. This makes since because molds can have many mycotoxins and all are different chemical combinations. I also know that there are mcs'ers who get mcs from being over exposed to specific chemicals like boat resin while building boats. In the 2 work samples we sent in, there were 5 different genus types identified, so that is an assortment of mycotoxins for sure. Aspergillus/Cladossporium/Penicillium/Epicoccum and Curvularia. I think the first 3 I mentioned are the most common found indoors so maybe that is why usually when I smell something musty it gives me a hit. This is all making more since now. Almost all molds make mycotoxins. So if I were exposed to say a million times more mycotoxins than normally occur on specific molds indoors then that could have caused my hypersensitivity, which now leads to hits from the same molds growing indoors with normal levels of mycotoxins. My work was the perfect place for molds to grow. There was a double decker oven constantly on at 450 +, a foot away from a walkin refrigerator and it was also about 3 -4 feet from a walk-in freezer. The ceiling leaked everytime it rained, the drains backed up with sewage occasionally, the place was very dirty with vegetable oil on everything and food particles sticking to that and that's just for starters. Who knows how many more molds there were there. Only the many more samples we took will tell, but this time we'll be going for species id unless I can find someplace to do species and specific mycotoxin id. 2obuildings , " erikmoldwarrior " <erikmoldwarrior@e...> wrote: > > I guess now that I think about it, the first thing I notice if > I'm really paying attention if I enter a bad place is my sinus > airways will tighten up a little, less oxygen, but the stupids come > quick for me, usually before I notice that. I'm sure your exposure > was longer and more severe, making you more hypersensitive than me, > but mine was enough. > > > > > That's the description I was looking for! > If you really pay attention to the " less oxygen " feeling and > inexplicable sudden onsets of " The Stupids " , you may find, in time, > that these episodes occur in the oddest and most unexpected places - > Completely inconsistent with " where one would expect to find mold " . > > When I was in a preliminary stage, I tried to associate my symptoms > to where mold would be a reasonable thing to encounter - and the > LACK of positive correlation put me off the trail. It seemed like > mold just could not possibly be where I was feeling the " hits " I > thought were from mold, and then many times a place that was reeking > with mold FAILED to have any effect. > > It's ironic that being at a lesser stage gave me less control over > my reactivities because I simply couldn't sense the primary irritant > well enough to identify the specificity and take proactive measures. > In a way, it was the best thing that could have happened to me to be > pushed into total devastating illness. Otherwise, I think that I > would have just remained as I was, getting kicked around and never > knowing what on Earth I could do about it. > > When I was feeling infinitely better after putting my stuff in > storage and camping out, I was climbing up on Donner Pass and a > motorcycle race was blazing down Old Hwy 40 past the old > Transcontinental Railroad Showsheds where NitroGlycerin was > introduced in this country for the first time to blast through the > rocks. (They had to abandonon it. More people were being killed > than with Black Powder. But Hey, it was worth a shot - but I > digress...) I raised my green waterproof binoculars to my eyes, > which I had got out of storage, and BLAM. > No Oxygen! The Stupids. Heart palpitations. Desperation! > Just from some stinking binoculars which had been washed! > > That was the moment when I completely abandoned trying to predict > where I was going to be slammed based on whether it was moldy or not > and paid total attention to the CNS and circulatory signs of a > response that could occur from a contaminated object. > > The binoculars certainly never bothered me before they were > contaminated so the MCSers assertions that I must have soaked them > in chemicals didn't fit the facts. And I've had countless other > possessions which turned from good to bad after being in a mold > place. Virtually everyone around me was literally bending reality > to invent some convoluted grasping explanation for the way something > that " didn't used to bother me suddenly does " when the simplest > explanation of all - fit all the facts " : " It was exposed to mold " . > - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2005 Report Share Posted September 30, 2005 > So, it seems like people are getting hypersensitive to a certain type of mold, not all molds. It must be the certain mycotoxins they were overexposed to that give them hits now. This makes since because molds can have many mycotoxins and all are different chemical combinations. I also know that there are mcs'ers who get mcs from being over exposed to specific chemicals like boat resin while building boats. < Or the type of toxin produced by different species. Fusarium and Stachy are both Trichothecene producers but it may be that Stachy just does a better job of it. A friend of mine who works with resins and was becoming hypersensitive, but was also in a mold plume recently called me from the new place he relocated to, (we checked it out and it feels good) and says that he can feel " hits " from the equipment he brought out with him but that the potency is gradually fading away. His reactivity to the resins seems to be less intense as well. As far as the cars, the only thing that has been effective for me is to test the area before I leave the vehicle. I've made the mistake of leaving a car in a mold plume and had to pay for that mistake with lots of avoidable misery. Much better to use ones perceptions to " perceptify " the area just as one would do when entering a suspicious building. " An ounce of prevention... " - Quote Link to comment Share on other sites More sharing options...
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