Guest guest Posted October 11, 2005 Report Share Posted October 11, 2005 Before I became ill I had a health consulting practice and saw a number of clients on steroids (prednisone) so have a little knowledge in this area. First, would you share the age of your SIL, how long your SIL has been on steroids, what dose she's taking, when she takes it and also any other meds or OTC drugs/supplements/herbs she taking. All this factors into the side effects of the steroids. I'm assuming your SIL is only ill due to toxic mold exposure. Is she still in the toxic environment? Thanks, Rosie From: " ethanhannahbigtoptents " <ethanhannahbigtoptents@...> >I am trying to find someone to who has been treated with steroids for > the joint pain caused by this illness. I have a sisiter in law who > has been recently diagnosed who has been on Decadron since June. The > side effects form this treatment alone are horrible. We are trying to > understand what are the steroid side effects and what is from the > illness. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2005 Report Share Posted October 11, 2005 I HOPE SHE'S NOT ON HIGH-DOSE DECADRON, ETHAN. IT CAN CAUSE SUCH THINGS AS OSTEOPOROSIS, AVN (AVASCULAR NECROSIS), WHICH SHE DEFINITELYYYYYYYY DOESN'T WANT, HIGH BLOOD SUGARS, WEIGHT GAIN & " MOON FACE " , AMONGST MANY OTHER PROBLEMS. I WAS ON HIGH DOSE DECADRON & SOLU-MEDROL AT FIRST. THANK GOD, I NO LONGER HAVE TO HAVE THAT......THEY WERE IV DRUGS AT ONSET, CAUSE I WAS SO SICK I NEARLY DIED.... TAKE CARE, VICTORIA [] toxic mold illness >I am trying to find someone to who has been treated with steroids for > the joint pain caused by this illness. I have a sisiter in law who > has been recently diagnosed who has been on Decadron since June. The > side effects form this treatment alone are horrible. We are trying to > understand what are the steroid side effects and what is from the > illness. > > > > > > > > > FAIR USE NOTICE: > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2005 Report Share Posted October 11, 2005 I can not believe that a doctor put someone on steriods for that long of a period. It can destroy your bones (make them very brittle) and does not do a great job on your heart or liver. I have to take sterriods once in awhile for my MS when I have bad attacks. I have never been on them longer than a week at a time. Even when it is so bad I can't walk very well. Tell your sister-in-law to see another doctor. That is crazy!!!!! Marcie <toria@...> wrote: I HOPE SHE'S NOT ON HIGH-DOSE DECADRON, ETHAN. IT CAN CAUSE SUCH THINGS AS OSTEOPOROSIS, AVN (AVASCULAR NECROSIS), WHICH SHE DEFINITELYYYYYYYY DOESN'T WANT, HIGH BLOOD SUGARS, WEIGHT GAIN & " MOON FACE " , AMONGST MANY OTHER PROBLEMS. I WAS ON HIGH DOSE DECADRON & SOLU-MEDROL AT FIRST. THANK GOD, I NO LONGER HAVE TO HAVE THAT......THEY WERE IV DRUGS AT ONSET, CAUSE I WAS SO SICK I NEARLY DIED.... TAKE CARE, VICTORIA [] toxic mold illness >I am trying to find someone to who has been treated with steroids for > the joint pain caused by this illness. I have a sisiter in law who > has been recently diagnosed who has been on Decadron since June. The > side effects form this treatment alone are horrible. We are trying to > understand what are the steroid side effects and what is from the > illness. > > > > > > > > > FAIR USE NOTICE: > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2005 Report Share Posted October 11, 2005 I WAS ON IV DECADRON, IV SOLU-MEDROL AT FIRST, MARCIE--THEN WEANED TO ORAL PREDNISONE, & THEN COMPLETELY OFF BY LIKE 3 WEEKS, I THINK.......NOT A FUN TIME OF MY LIFE! VICTORIA [] toxic mold illness > > >>I am trying to find someone to who has been treated with steroids for >> the joint pain caused by this illness. I have a sisiter in law who >> has been recently diagnosed who has been on Decadron since June. The >> side effects form this treatment alone are horrible. We are trying to >> understand what are the steroid side effects and what is from the >> illness. >> >> >> >> >> >> >> >> >> FAIR USE NOTICE: >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2005 Report Share Posted October 11, 2005 Marcie, unfortunately some people with auto-immune disease have been on steroids for years; yes years and they cannot get off them. What we try to do if they cannot be weaned from steroids is complementary protocols meaning we assess the potential side effects and nutrient depletions of the steroids and other long term Rx meds needed and supplement accordingly. Dosage also matters with short term and long term side effects. I also was on steroids (IV at first) when hospitalized and then switched to oral. The prednisone was a major factor that I'm still here today when I was so ill initially. Rosie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2005 Report Share Posted October 11, 2005 , How are you doing now? I sure hope that things are better......let me know and I will say extra prayers for you and of course everyone cursed with this awful illness. Sincerely, Marcie <toria@...> wrote: I WAS ON IV DECADRON, IV SOLU-MEDROL AT FIRST, MARCIE--THEN WEANED TO ORAL PREDNISONE, & THEN COMPLETELY OFF BY LIKE 3 WEEKS, I THINK.......NOT A FUN TIME OF MY LIFE! VICTORIA [] toxic mold illness > > >>I am trying to find someone to who has been treated with steroids for >> the joint pain caused by this illness. I have a sisiter in law who >> has been recently diagnosed who has been on Decadron since June. The >> side effects form this treatment alone are horrible. We are trying to >> understand what are the steroid side effects and what is from the >> illness. >> >> >> >> >> >> >> >> >> FAIR USE NOTICE: >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2005 Report Share Posted October 11, 2005 Hi Marcie: I'm so pleased you don't require the steroids any longer. What hurts me are the little ones with kidney disease that must be put on steroids and often their growth will be stunted. Also those with RA and Lupus require steroids long term in order to function at all. It's very difficult as you well know. I'm so glad you are receiving the IVIG treatments and I'll pray that they will help you. Rosie > I know that some people stay on them for awhile. I took Methaprednisone > and Prednisone. My face got very bloated and gained weight. I felt good > for awhile but it did not last long. If they could find other treatment > for the joint pain I would do it. I have had Multiple Sclerosis since 1989 > and have only taken steriods several times. I try to avoid them.......to > each his own I guess. I did have to take major steriods after most of my > Brain Tumor was removed just to keep my brain from swelling.....so I do > understand the use of steriods. > I have IVIG treatments for a very low Immune System every 4 weeks ( thanks > to Stachybotrys) but have not been back on steriods. > Take care, > Marcie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2005 Report Share Posted October 12, 2005 HI MARCIE, & THANKS. I COULD SAY " YEP, I'M GREAT! " , MARCIE, BUT I WON'T LIE. I'LL NEVER BE WELL-MY SPINAL CORD IS DAMAGED, GIRL--WHICH MEANS MY BOWEL & BLADDER CONTROL ARE NON-EXISTENT, MY SEX LIFE IS AS WELL, MY BALANCE ABSOLUTELY STINKS, & I HAVE WHAT I CALL " FREEZE/BURN " PAIN FROM MY TUSH DOWN. I'M NOT COMPLAINING, THOUGH--JUST TELLIN IT HOW IT IS, YA KNOW? AT LEAST I HAVE MY (ALMOST!) 3 GRANDCHILDREN TO LOVE & ADORE, & LOTS & LOTS OF HOBBIES TO KEEP ME BUSY...THANK GOD FOR THAT. I WON'T STOP TRYING TO GET PEOPLE TO LISTEN TO ME, THOUGH. THERE ARE NOW LIKE 12+ PEOPLE FROM THAT BUILDING, SUDDENLY UNABLE TO WALK......'CAUSE ITS FILLED WITH TOXIC BLACK MOLD. I WROTE A LETTER & SUBMITTED IT TO A MAGAZINE FOR ? PUBLICATION, YA KNOW? IT WAS RETURNED. THEY SAID " WE DON'T PUBLISH FICTION! " ITS HARD SOMETIMES NOT TO GIVE UP--BUT I'LL KEEP AT IT, ONE WAY OR ANOTHER. TAKE CARE, ALL-- VICTORIA [] toxic mold illness >> >> >>>I am trying to find someone to who has been treated with steroids for >>> the joint pain caused by this illness. I have a sisiter in law who >>> has been recently diagnosed who has been on Decadron since June. The >>> side effects form this treatment alone are horrible. We are trying to >>> understand what are the steroid side effects and what is from the >>> illness. >>> >>> >>> >>> >>> >>> >>> >>> >>> FAIR USE NOTICE: >>> >>> >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2005 Report Share Posted October 12, 2005 WHAT WERE YOUR INITIAL SYMPTOMS, ROSIE, CAN I ASK? V. Re: [] toxic mold illness > Marcie, unfortunately some people with auto-immune disease have been on > steroids for years; yes years and they cannot get off them. What we try > to > do if they cannot be weaned from steroids is complementary protocols > meaning > we assess the potential side effects and nutrient depletions of the > steroids > and other long term Rx meds needed and supplement accordingly. Dosage > also > matters with short term and long term side effects. > I also was on steroids (IV at first) when hospitalized and then switched > to > oral. The prednisone was a major factor that I'm still here today when I > was so ill initially. > > Rosie > > > > > FAIR USE NOTICE: > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2005 Report Share Posted October 12, 2005 , I am very sorry to hear you are soooo sick.(I really didn't know) Let me tell you and the others one thing. I have to children (6 & 10) who pray each and every night for all of you. They have in the past 3 weeks also been praying every night for the Katrina victims, and pray that they won't get sick like them, and the rest of you from mold. As always I am so happy that I found this group. Wish I had it when all this started 4 years ago. But, I didn't even know that anything existed like this. The information we get here, the support, being with others that don't think were crazy, the knowledge, and friendship is just wonderful. Also, having KC and Sharon there for help and support and knowledge has been great. Sharon has helped me understand my daughters illnesses, and triggers more than I could ever imagine. She has made having sick children so much less complicated for me, and my daughter. It doesn't matter how sick she is, she is always there to help me. Our families prayers and love go out to each and everyone of you, who have to live with this. [] toxic mold illness >>> >>> >>>>I am trying to find someone to who has been treated with steroids for >>>> the joint pain caused by this illness. I have a sisiter in law who >>>> has been recently diagnosed who has been on Decadron since June. The >>>> side effects form this treatment alone are horrible. We are trying to >>>> understand what are the steroid side effects and what is from the >>>> illness. >>>> >>>> >>>> >>>> >>>> >>>> >>>> >>>> >>>> FAIR USE NOTICE: >>>> >>>> >>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2005 Report Share Posted October 12, 2005 Of course . Will try best to keep in order of symptoms and this is just a summary of the initial symptoms first few months: Started Winter, 02. Initially chills, fever, major chest pains " bad allergies " Inhalation painful and epigastric pain. Congested head (felt Louisiana swamp had invaded my head) and ears and wouldn't clear no matter what I tried, post nasal drip, chronic sore, scratchy throat, puffy face, systemic edema, bloody discharge from my nose. Severe chest pains. Vision changes; eyes swollen, left eye started to twitch then left eye lid swelled I couldn't open my eye, woke with cloudy vision like being in a thick fog. Systemic joint pain started. Then brain fog, left brain damage (how to add 1+1 or balance a check book or even write a check), my spelling left me, couldn't find my way home a block from home, would wake up on the floor with 3-5 hours missing. Couldn't remember medical terminology nor any of education really. At night in bed my limbs would jerk and hubby complained I was vibrating the bed, Muscular weakness, my arms and my feet didn't function as they should; started to limp from edema and muscular weakness. Chest pain became worse, inhalation almost impossible due to pain, epigastric pain increased, felt as if golf balls stuck in there, severe heartburn like pains, couldn't eat without intense bloating, discomfort and reflux, burning in stomach, upper and lower quad of my abdomen swollen, rigid and painful to touch. Left clavicle inflamed and hurting. Total urine incontinence. Ears hurt. Absence of menses. Night sweats without perspiration (felt as if inside I was in a steam sauna). Hair began to fall out. Chest pain escalated, pain whenever I exhaled, felt as if I was having a heart attack, constant pain along my sternum, then pleurisy like pain: any movement one inch to the left or right felt like a hot dagger in my back and sides. Had chills then the " sweats " . Either was bundled in fleece head to toe or taking cold showers. My internal temperature regulation had short circuited. Couldn't tolerate any changes in temperatures. Couldn't sleep in bed, had to sit in a hard back chair totally upright without moving and tried to elevate my swollen feet/legs which would throb with pain. Difficult to move even an inch, could hardly walk and certainly not bend over. Much coughing, remembered had nasty coughing spell and coughed up foamy sputum with dark bloody specks. Temp increased to 101. Then my back felt as if on fire. Neck swollen, lymph nodes very enlarged. Frontal headache. Eyes had nasty discharges. Systemic joint pain escalated where I couldn't do anything, pain intense, very dizzy as if a feather could blow me away, constant thirst, unable to eat anything without side effects and kept gaining weight. My wonderful internist did all the required possible tests, X-Rays, ultrasounds, blood and urine, etc. Sent to Cardiologist, full workup EKG, Echocardiogram, doppler, etc. Had bi-lateral pleural effusion and " mysterious other symptoms " . Hospitalized to have lungs drained, IV steroids started. Felt better in hospital with oxygen and after lungs drained. At home with the steroids felt somewhat better for a few days, lost 12 pounds of the weight I gained in 2 days and then the symptoms returned full force. This time though I couldn't walk at night, remember sitting in a recliner, legs began to hurt horribly, wanted to get up and relief myself and fell on the floor. I couldn't walk. Pain was intense. Remember trying to crawl but every movement was intense pain and could only move my arms and shoulders. Those were difficult days. Thanks for asking, Rosie Re: [] toxic mold illness > WHAT WERE YOUR INITIAL SYMPTOMS, ROSIE, CAN I ASK? > V. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2005 Report Share Posted October 12, 2005 Rosie, Our family is sorry you are having to go thru this also. It's interesting to me when some of you share your symptoms. Sometimes I try to push aside symptoms, as just being something else. Or, a symptom that I am having or the kids are having that I would like it to be a different explanatiion, something that a doctor could have a name for, and a solution, but they don't. Then I hear some of your symptoms, and I just can't believe that they are so simialar. Well, I can believe, but it is just sad that sooooo many have to suffer for something that just seems so simple to many of us. Everytime someone hear shares a symptom, or several, I feel better knowing that it is just not us. But, on the other hand it just irritates me that no one will just say " Yes, you are right. Mold will do this. " I don't care if they have treatment or not. Geez, just tell us it does. We know already know it. It would make it so much easier for victims to find help (Like Dr. Shoemaker) if they would just say yes it does, I can't help with it, but here is someone who can. Or this mold is making you sick, your symptoms are from the exposure, you will need to find a specialist. How many times have they poked you? How many times have they poked our kids, to the point of histeria when they hear a visit to a doctor? Just to tell us nothing is wrong, you/your kids are perfectly healthy, while go home thinking your going to die you are so sick. WOW!!!! Excuse that venting episode I just had, but boy that felt good. Most days I'm alright, but after reading Rosie and 's symptoms tonight, and relating many of the symptoms here at home, it just got the better of me. I hope you both will have better days to come. Re: [] toxic mold illness > > >> WHAT WERE YOUR INITIAL SYMPTOMS, ROSIE, CAN I ASK? >> V. > > > > > FAIR USE NOTICE: > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2005 Report Share Posted October 12, 2005 THANKS, KELLY--BELIEVE ME, I'LL TAKE ALL THE PRAYER I CAN GET, ALONG WITH THE REST OF THIS GANG! YOU'RE RIGHT TOO, KELLY, IN THAT WE ALL ARE APPRECIATIVE OF KC & SHARON & WHAT THEY'RE TRYING TO DO--FOR ALL OF US! 8 YRS AGO, HAD I KNOWN TOXIC MOLD WOULD DO THIS TO A PERSON, I'D HAVE RUN (NOT WALKED!) AWAY FROM THAT BUILDING. THE PROBLEM WAS, THO, I DIDN'T EVEN KNOW IT HAD THAT PROBLEM.... HINDSIGHT IS 20/20 THEY SAY--IN THIS CASE, IT'S TRULY 20/20, PLUS MORE THAN THAT. NOW, ITS MY PURPOSE IN THIS LIFETIME TO EDUCATE OTHERS--I DO THAT BY WRITING & SHARING MY POETRY.....MUCH OF WHICH IS ABOUT TOXIC MOLD EXPOSURE! TAKE CARE, ALL, & GOD BLESS & HELP ALLLLLLLLLLL OF US! VICTORIA [] toxic mold illness >>>> >>>> >>>>>I am trying to find someone to who has been treated with steroids for >>>>> the joint pain caused by this illness. I have a sisiter in law who >>>>> has been recently diagnosed who has been on Decadron since June. The >>>>> side effects form this treatment alone are horrible. We are trying to >>>>> understand what are the steroid side effects and what is from the >>>>> illness. >>>>> >>>>> >>>>> >>>>> >>>>> >>>>> >>>>> >>>>> >>>>> FAIR USE NOTICE: >>>>> >>>>> >>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2005 Report Share Posted October 12, 2005 I JUST GOT TO THIS EMAIL, ROSIE...THANKS FOR ANSWERING. ACTUALLY, I AWOKE LIKE THIS, IN SEVERE PAIN. GOT TO BATHROOM, & FELL TO THE FLOOR AFTER, WHERE MY SON PICKED ME UP....WAS COMPLETELY UNABLE TO STAND, EVEN BETWEEN PARALLEL BARS. I'M " PRETTY COMPLETELY " DEMYELINATED AT THE LEVEL OF L 1-2, SO I'VE LOST ALL BLADDER CONTROL (NOW HAVE AN AUS IMPLANT), ALL BOWEL CONTROL, ALL SEXUALITY, ALL BALANCE, MY TUSH, LEGS & FEET HURT (FREEZE/BURN) 24/7, I HAVE HORRIBLE RASHES, HEADACHES, DIZZINESS, BRAIN FOG, NUMBNESS, I SHAKE HORRIBLY SOMETIMES, I HAVE SPASTICITY IN MY LEGS, ASTHMA-LIKE EPISODES, & MORE.... QUESTIONS, LOL? THIS IS WHAT I CALL THE NIGHTMARE OF MY LIFE.... & THEN SOME. VICTORIA Re: [] toxic mold illness > > >> WHAT WERE YOUR INITIAL SYMPTOMS, ROSIE, CAN I ASK? >> V. > > > > > FAIR USE NOTICE: > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2005 Report Share Posted October 12, 2005 With neuro symptoms like that you should be able to IVIG covered on insurance and it should help. > > I JUST GOT TO THIS EMAIL, ROSIE...THANKS FOR ANSWERING. ACTUALLY, I AWOKE > LIKE THIS, IN SEVERE PAIN. GOT TO BATHROOM, & FELL TO THE FLOOR AFTER, > WHERE MY SON PICKED ME UP....WAS COMPLETELY UNABLE TO STAND, EVEN BETWEEN > PARALLEL BARS. I'M " PRETTY COMPLETELY " DEMYELINATED AT THE LEVEL OF L 1-2, > SO I'VE LOST ALL BLADDER CONTROL (NOW HAVE AN AUS IMPLANT), ALL BOWEL > CONTROL, ALL SEXUALITY, ALL BALANCE, MY TUSH, LEGS & FEET HURT (FREEZE/BURN) > 24/7, I HAVE HORRIBLE RASHES, HEADACHES, DIZZINESS, BRAIN FOG, NUMBNESS, I > SHAKE HORRIBLY SOMETIMES, I HAVE SPASTICITY IN MY LEGS, ASTHMA-LIKE > EPISODES, & MORE.... > > QUESTIONS, LOL? THIS IS WHAT I CALL THE NIGHTMARE OF MY LIFE.... & THEN > SOME. > > VICTORIA > Re: [] toxic mold illness > > > > > >> WHAT WERE YOUR INITIAL SYMPTOMS, ROSIE, CAN I ASK? > >> V. > > > > > > > > > > FAIR USE NOTICE: > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2005 Report Share Posted October 13, 2005 THANKS, JILL. I HAVE WONDERED ABOUT ALL THAT, BUT HAVE NEVER DONE IT. MAYBE SOMEDAY (IFFFFFFFFF I CAN EVER AFFORD IT) I'LL LOOK INTO THAT. WHAT WOULD THE IVIG DO, SPECIFICALLY? TAKE CARE, VICTORIA Re: [] toxic mold illness >> > >> > >> >> WHAT WERE YOUR INITIAL SYMPTOMS, ROSIE, CAN I ASK? >> >> V. >> > >> > >> > >> > >> > FAIR USE NOTICE: >> > >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2005 Report Share Posted October 13, 2005 , I have a damaged spinal cord also. My first back surgery was suppose to be an overnight stay....yeah right. ( He first wanted to do it in his office.) The doctor was cutting away some vertebrate with a hinged instrument and did not know it had pinched onto my spinal cord. When he pulled the instrument out, it tore a hole into the spinal cord sack. I remember waking up in the recovery room and the doc. that did the surgery was there. He explained there was an accident and informed me what happened. Of course he did not tell me he forgot to patch the hole. I was sent to my room and I started to loose spinal fluid. It was extremely painful...like I was being crushed. It started in my feet and after 3 1/2 hours of yelling for help, it reached my chest area and I stopped breathing. The nurse had come into the room before and told me to quite down..I was disturbing the other patients. I asked her for my doctor and she stated he left after my surgery and turned is pager off. I told her to find another doctor. Well that did not happen and my best friend was in the room with me and a daughter of some lady across the hall. After I stopped breathing my friend did CPR on me and the other girl ran to the nurses station. When I came to, the room was filled with about 20 people. One guy leaned to my ear and said, " I don't want to scare you but we are taking you to ICU. " I told him scared hell, I have been yelling for help for 3 1/2 hours and have been damned scared the whole time. When they got me to the ICU room and were transferring me to the ICU bed, they dropped me. I kept telling them I wanted to go to another hospital. Needless to say, they never informed me I would be there for a month and had to learn how to walk all over again. Having MS did not make the progress easy but I was a fighter and still am trying to fight. I took Baclofen and Flexeril for awhile but stopped because I could not afford it. I have had to have other back surgeries to fuse my back and it was much better until I was exposed to the Stachybotrys mold. I have pain in my back, legs, and no feeling in the butt area and left leg. ( only good thing about being numb in the butt, that is where I take my shots.LOL!!) I have degenerative disk disease also......along with the list of the other stuff. I just try to take each day as it comes and pray for everyone that is sick with mold disease that there will be help soon. PLEASE TAKE CARE AND GOD BLESS US ALL! Sincerely, Marcie <toria@...> wrote: HI MARCIE, & THANKS. I COULD SAY " YEP, I'M GREAT! " , MARCIE, BUT I WON'T LIE. I'LL NEVER BE WELL-MY SPINAL CORD IS DAMAGED, GIRL--WHICH MEANS MY BOWEL & BLADDER CONTROL ARE NON-EXISTENT, MY SEX LIFE IS AS WELL, MY BALANCE ABSOLUTELY STINKS, & I HAVE WHAT I CALL " FREEZE/BURN " PAIN FROM MY TUSH DOWN. I'M NOT COMPLAINING, THOUGH--JUST TELLIN IT HOW IT IS, YA KNOW? AT LEAST I HAVE MY (ALMOST!) 3 GRANDCHILDREN TO LOVE & ADORE, & LOTS & LOTS OF HOBBIES TO KEEP ME BUSY...THANK GOD FOR THAT. I WON'T STOP TRYING TO GET PEOPLE TO LISTEN TO ME, THOUGH. THERE ARE NOW LIKE 12+ PEOPLE FROM THAT BUILDING, SUDDENLY UNABLE TO WALK......'CAUSE ITS FILLED WITH TOXIC BLACK MOLD. I WROTE A LETTER & SUBMITTED IT TO A MAGAZINE FOR ? PUBLICATION, YA KNOW? IT WAS RETURNED. THEY SAID " WE DON'T PUBLISH FICTION! " ITS HARD SOMETIMES NOT TO GIVE UP--BUT I'LL KEEP AT IT, ONE WAY OR ANOTHER. TAKE CARE, ALL-- VICTORIA [] toxic mold illness >> >> >>>I am trying to find someone to who has been treated with steroids for >>> the joint pain caused by this illness. I have a sisiter in law who >>> has been recently diagnosed who has been on Decadron since June. The >>> side effects form this treatment alone are horrible. We are trying to >>> understand what are the steroid side effects and what is from the >>> illness. >>> >>> >>> >>> >>> >>> >>> >>> >>> FAIR USE NOTICE: >>> >>> >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2005 Report Share Posted October 13, 2005 OMG, MARCIE, I'M SOOOO SORRY, & I HOPE TO **** YOU GOT COMPENSATED FOR ALL THAT NIGHTMARISH ACTIVITY!! THAT DOCTOR DESERVES TO HAVE HIS MEDICAL LICENSE YANKED, AND THAT HOSPITAL DESERVES TO BE IN HUGEEEEEEEEE TROUBLE, TOO. I'M NUMB TOO, MARCIE, FROM BUTT DOWN--BILATERALLY. I CAN'T EVEN URINATE WITHOUT THE USE OF AN ARTIFICIAL PUMP. (AUS). MY SPINAL CORD INJURY, THOUGH, WASN'T FROM ANY SURGERY--IT WAS FROM TOXIC MOLDS. I'M TOTALLY DEMYELINATED, & BELIEVE ME: THE PAIN FROM THAT WAS HORRIFIC!!!!!!!!!!!!! THE PLACE THAT DID THIS TO ME & OTHERS IS STILL IN " BUSINESS " TOO-- & I HEARD TODAY THERE ARE TWO MORE PEOPLE VERY VERY ILL. I'LL STOP THE NIGHTMARE GOING ON HERE, MARCIE, IF ITS THE VERY LAST THING I DO ON THIS EARTH.... & IT MAY VERY WELL BE. TAKE CARE, HON, & GOD BLESS--ALLLLLLLLL OF US! VICTORIA [] toxic mold illness >>> >>> >>>>I am trying to find someone to who has been treated with steroids for >>>> the joint pain caused by this illness. I have a sisiter in law who >>>> has been recently diagnosed who has been on Decadron since June. The >>>> side effects form this treatment alone are horrible. We are trying to >>>> understand what are the steroid side effects and what is from the >>>> illness. >>>> >>>> >>>> >>>> >>>> >>>> >>>> >>>> >>>> FAIR USE NOTICE: >>>> >>>> >>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2005 Report Share Posted October 13, 2005 --- In , Marcie McGovern <marcie1029@y...> wrote: > > , God you guys, I thought my story was horrible. I don't know what is worse knowing my family has been through so much-- but to know that this is happening to so many makes my sooo sad. I cry way to much these days. God bless you all. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2005 Report Share Posted October 13, 2005 THANKS, GAL, BUT DON'T WORRY ABOUT ME--WORRY ABOUT ALL OF THOSE WHO ARE STILL BEING EXPOSED, & WHO HAVE NOOOOOOOO IDEA WHY THEY'RE SOOOOO SICK. THIS HAS TO STOP, & IT WILL, IF I HAVE ANY SAY IN THAT WHATSOEVER. I'LL NOT STOP EDUCATING THE PUBLIC ABOUT TOXIC MOLDS TILL THE DAY I DIE.....ITS FAR TOO IMPORTANT TO ME! GOD BLESS US ALL-- VICTORIA [] Re: toxic mold illness > >> >> , > > God you guys, I thought my story was horrible. I don't know what is > worse knowing my family has been through so much-- but to know that > this is happening to so many makes my sooo sad. I cry way to much > these days. God bless you all. > > > > > > > FAIR USE NOTICE: > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2005 Report Share Posted October 13, 2005 The worse part was later in the hospital. I was on a special bed that was full of air and could not move anything but my arms. They would bring in food trays and I could never reach them. I did not eat for 4 days. One day I asked a nurse for a cup of hot chicken broth because I was so hungry. I was on a Morphine pump and she placed the cup of hot broth on my chest. She crooked the straw and put it in my mouth and walked out. Needless to say, I nodded out from the morphine and the cup dumped on my chest and scalded me. She did this twice. There are other awful things that happened but not for everyone's ears. My police officer friends came to the hospital to see me and freaked out how I looked. One Lt. cussed for the first time ever. No...I never sued them. The hospital was closed down by the state from something else after my ordeal. Marcie <toria@...> wrote: OMG, MARCIE, I'M SOOOO SORRY, & I HOPE TO **** YOU GOT COMPENSATED FOR ALL THAT NIGHTMARISH ACTIVITY!! THAT DOCTOR DESERVES TO HAVE HIS MEDICAL LICENSE YANKED, AND THAT HOSPITAL DESERVES TO BE IN HUGEEEEEEEEE TROUBLE, TOO. I'M NUMB TOO, MARCIE, FROM BUTT DOWN--BILATERALLY. I CAN'T EVEN URINATE WITHOUT THE USE OF AN ARTIFICIAL PUMP. (AUS). MY SPINAL CORD INJURY, THOUGH, WASN'T FROM ANY SURGERY--IT WAS FROM TOXIC MOLDS. I'M TOTALLY DEMYELINATED, & BELIEVE ME: THE PAIN FROM THAT WAS HORRIFIC!!!!!!!!!!!!! THE PLACE THAT DID THIS TO ME & OTHERS IS STILL IN " BUSINESS " TOO-- & I HEARD TODAY THERE ARE TWO MORE PEOPLE VERY VERY ILL. I'LL STOP THE NIGHTMARE GOING ON HERE, MARCIE, IF ITS THE VERY LAST THING I DO ON THIS EARTH.... & IT MAY VERY WELL BE. TAKE CARE, HON, & GOD BLESS--ALLLLLLLLL OF US! VICTORIA [] toxic mold illness >>> >>> >>>>I am trying to find someone to who has been treated with steroids for >>>> the joint pain caused by this illness. I have a sisiter in law who >>>> has been recently diagnosed who has been on Decadron since June. The >>>> side effects form this treatment alone are horrible. We are trying to >>>> understand what are the steroid side effects and what is from the >>>> illness. >>>> >>>> >>>> >>>> >>>> >>>> >>>> >>>> >>>> FAIR USE NOTICE: >>>> >>>> >>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2005 Report Share Posted October 13, 2005 Marcie, Your story made me cry. You must have had a great deal of trauma from that ordeal. I am a long time RN and it breaks my heart to hear stories of poor nursing care. That hospital should have been closed down! Bobbie > >>> I HOPE SHE'S NOT ON HIGH-DOSE DECADRON, ETHAN. IT CAN CAUSE SUCH THINGS > >>> AS > >>> OSTEOPOROSIS, AVN (AVASCULAR NECROSIS), WHICH SHE DEFINITELYYYYYYYY > >>> DOESN'T > >>> WANT, HIGH BLOOD SUGARS, WEIGHT GAIN & " MOON FACE " , AMONGST MANY OTHER > >>> PROBLEMS. I WAS ON HIGH DOSE DECADRON & SOLU-MEDROL AT FIRST. THANK > >>> GOD, > >>> I > >>> NO LONGER HAVE TO HAVE THAT......THEY WERE IV DRUGS AT ONSET, CAUSE I > >>> WAS > >>> SO > >>> SICK I NEARLY DIED.... > >>> > >>> TAKE CARE, > >>> VICTORIA > >>> > >>> [] toxic mold illness > >>> > >>> > >>>>I am trying to find someone to who has been treated with steroids for > >>>> the joint pain caused by this illness. I have a sisiter in law who > >>>> has been recently diagnosed who has been on Decadron since June. The > >>>> side effects form this treatment alone are horrible. We are trying to > >>>> understand what are the steroid side effects and what is from the > >>>> illness. > >>>> > >>>> > >>>> > >>>> > >>>> > >>>> > >>>> > >>>> > >>>> FAIR USE NOTICE: > >>>> > >>>> > >>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2005 Report Share Posted October 13, 2005 THE PAIN FROM THAT WAS HORRIFIC!!!!!!!!!!!!! I Know what you mean I put my air on and couldn't walk for a few days I live under HUD and if I complain or not in 5 months all my Landlord has to say is she's sale and I will be homeless again. one place I lived the mold was so bad I was eating it, it was on ever thing plates pots I had to mop each time i put on the air. I didn't know until the smell it was so bad I couldn't sleep this man filed 2 eviction on me with the NAACP pretending to be on my side Bill McCormick he's no longer the President of the Broward NAACP thenperpetrated Fraud on my credit using a Company called ASAP EVICTION & SKIP SEARCH THERE OWN ATTORNEYS gave me the proof I need to prove my case Long story short. Case Name: Elvira > > FCHR CASE NUMBER: 23-91453h > > HUD CASE NUMBER: 04-03-0696-8 > > CASE NUMBER: 04-2860 > > On September of 2001, Ms. Elvira moved into the Tennis Club II > Apartments after entering into the agreement with the landlord that She, > Ms. , would ONLY residing at the Tennis Club II Apartments until > Venice Cove was completely constructed from the ground up. The completion > of which was suppose to occur in a year of move-in. > > Ms. was harassed by the tenants and management of the Tennis Club > II and singled out. Most of which falls into the category of > discrimination based on Ms. ' Section 8 HUD VOUCHER AND THE FACT > THAT > > MS. is a recipient of and based on her financial and economic > status and disability. > > In August 2002, Ms. received a 3 Day Eviction Notice To VACATE > the Apartment. > > Ms. communicated with Joe Newman and Josie Whom said get > out that's the man's apartment. They Work for the City of Fort Lauderdale > Housing Authority about the eviction. > > Ms. was informed she had to move by the City of Fort Lauderdale > after the fact. > > Venice Coves was accepting applications for Venice Coves Apartments. > , an employee of Venice Coves who was located in the trailer Venice > Coves Development had established on the premises. > > Ms. showed evidence of the poor state of the apartment at the > Tennis Club II Apartments and the large extent of the mold infestation. > > Ms. equally showed the eviction notice that she had been > served and reiterated the urgency for which she had to move from the > Tennis Club II Apartments for due to her declining health and the mold > intoxication she was enduring. As well as the eviction. > > Ms. was then, immediately instructed by the employee of > Venice Cove, who appeared concerned ,instructed Ms. to go down to > Okeechobee in West Palm Beach, off of I-95, to put in the application. Ms. > ailing condition from the toxic mold infestation was then carried > down to the West Palm offices of Venice Cove Apartments by an individual > by the name of Judy who also helped Ms. fill out the application > due to Ms. ' poor health and inability to do so. > > Ms. then returned to Venice Coves trailer to submit the > application and have her credit check run on the background check. > > , Venice Cove employee, informed Ms. that the ONLY credit > history problem on her credit that needed to be resolved prior to VENICE > COVE accepting her application was an CABLE BOX PAYMENT Of $125.00, U.S. > Dollars. > > informed Ms. to make the necessary payment to the Cable > Company and return with proof of the payment of CABLE Box and then her > application would be accepted. > > Ms. was then assigned by to Apartment # 202, when Ms. > requested a 2 bedroom, 2 bath Apartment. > > Ms. then requested to see the apartment. Ms. was denied > the initial request. > > Ms. then returned 2 days later to make another attempt to see the > apartment for which she believed was to be her new home, her new > residence. Krissy Parrish, the Manager of Venice Cove, then made entrance > and instructed to remove Ms. from Apartment # 202 to # > 204. > > They still refused to allow Ms. to see the apartment. > > The next day Krissy had call Ms. to inquire if Ms. > had called HUD and the Housing Authority that she, Ms. , > had been moved from # 202 to # 204. > > Ms. stated that she had. > > Ms. also had her transferred her electricity over from TENNIS > CLUB II APARTMENTS, TO VENICE COVE APARTMENTS IN SEPTEMBER OF 2002 TO > APARTMENT # 202 OF VENICE COVE AND THEN TRANSFERRED THE ELECTRICITY AGAIN, > ON ORDER OF KRISSY PARRISH OF VENUS COVE OF THE MOVE FROM # 202 T0 # 204, > OVER TO # 101. > > CAUSING A MASSIVE INCONVENIENCE NOT ONLY TO THE ELECTRIC COMPANY, > FLORIDA POWER AND LIGHT, BUT TO MS. WILLIAMS AS WELL IN HER POORLY HEALTH. > > MS. WILLIAMS ALSO HAD TO CONTINUOUSLY JUMP TO TRANSFER NOT ONLY THE > ELECTRIC UTILITIES AT KRISSY PARRISH'S TOTAL REASSIGNMENT OF THE APARTMENT > UNIT, BUT THE PHONE CONNECTION AS WELL. > > THIS FIASCO WENT ON FOR FOUR MONTH. > > Venice Cove continued to deny Ms. access to view the apartment # > 204 which Ms. was led to believe was a 2 bedroom, 2 bath > apartment unit. > > Ms. was ONLY and POSITIVELY able to view the apartment when she > was secretly allowed on the premises by an employee of VENICE COVE. > > Ms. then, AND ONLY THEN, discovered that #204 which Krissy > Parrish had led her to believe and for which she had applied for on the > application was not in fact a 2 bedroom, 2 bath but a Two bedroom and Two > and a half bath. > > That is when Ms. informed Venice Cove by way of , the > employee, Venice Cove that the apartment # 204 was not per the > specifications of her application for Two Bedroom, Two Bath unit. > > Ms. reiterated that she wanted a two bedroom, two bath. > > Venice Cove then informed Ms. that she would not qualify for the > apartment at 204 due to a past eviction. Ms. states that she > had never been evicted prior to Tennis Club II Apartments. > > Ms. states that Venice Cove messed up the credit she had worked > so hard to protect. > > The former President of the NAACP, Bill McCormick witnessed false > signature on Ms. paperwork. > > Ms. were forced to wait another month and then ,as circumstances > unfolded, ex President of the NAACP, Bill McCormick WHO TOOK MORE THAN > CHARACTERISTIC INTEREST IN ELVIRA WILLIAMS' PLIGHT WITH VENICE COVE, told > Krissy Parrish that " if it wasn't for the NAACP, Venice Cove would not > exist " and this conversation was witnessed by Ms. . The > intervention by Mr. McCormick led to Ms. being ASSIGNED to yet > another apartment in the Venice Cove Complex, 2nd Building, # 101. After > Ms. was all ready to FINALLY MOVE INTO # 101, that is when The > Venice Cove employees informed Ms. that a SECOND credit check was > performed and Ms. credit was negative. Ms. states that > fraud was perpetrated with her bankruptcy papers. > > Ms. was now forced to completely move into a new complex due to > Krissy Parrish's failure to fulfill the agreement at Venice Cove entered > into with Ms. . > > Ms. states that her credit to move into the new complex, > BRIDGEWATER, was forced to move into after total and complete abandonment > and failure of Venice Cove to follow through with the agreement they gave > her, that the new apartment complex, BRIDGEWATER, did not have the > problems with her credit being negative other wise they would not have > allowed her entry into the apartment complex. > > Lo! and Behold! Krissy Parrish worked as an employee at Bridgewater Place > 2700 NW 44th Street with Jill DeBoys, before she went to work for Venice > Cove. > > After a year, Bridgewater put Ms. on the street homeless. > > Then Ms. discovered her credit was permanently damaged and she > became homeless for 3 months and falsely placed in a hospital 2 times?!. > at her Hearing Venice dismissed Krissy Parrish nor did they have > there it was the woman Mari Peccira living in the two Bedroom 2 bath > apartment waiting for her home to be built. MS. had nothing to do > with Mari but to ask for her Boxes Ms. is Packed in those Boxes > to this day 11/04. Yet this woman and the new manager is who Venice Coves > Brought in as Witnesses they had nothing to do with any thing other than > she had the 2 bedroom 2 bath Judge E. Meale, Ask Her How long did > she live there, She replied it took a year for her home she also asked MS. > if she wanted to see her new apartment Ms. said yes and > took the Boxes. > > this is the only thing Ms. had to do with Mrs Mari Peccira she > lied under Oath, WHY? The bet goes on to this day 11/4/04 Long story? The > County Placed Ms. in a Hotel from 9/15/03 to 11/15/03 Illness > from Mold with legal aid as her attorney? Again she was on the street or > back to the Moldy apart she that evicted her because of Krissy Parrish Ms. > had no Choice in the matter Ms. is Disable and in need > for safe living from Toxins HUD did care about the Doctor advice to > remove Ms. . > > No Land Lord can say Miss. was late with her rent she has always > paid on time!?. Evicted by mold disabled they don't care the also had my > Meds turn off for one month!?. No Justice for the less than? We Are People > Too. > > Again Long Story > > > > > www.housingtrustgroup.com Venice Coves > that is. > > Peace Elvira [] toxic mold illness >>> >>> >>>>I am trying to find someone to who has been treated with steroids for >>>> the joint pain caused by this illness. I have a sisiter in law who >>>> has been recently diagnosed who has been on Decadron since June. The >>>> side effects form this treatment alone are horrible. We are trying to >>>> understand what are the steroid side effects and what is from the >>>> illness. >>>> >>>> >>>> >>>> >>>> >>>> >>>> >>>> >>>> FAIR USE NOTICE: >>>> >>>> >>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2005 Report Share Posted October 14, 2005 Me too ...I will never give up unless I die....and then I will haunt them! LOL! Marcie <toria@...> wrote: THANKS, GAL, BUT DON'T WORRY ABOUT ME--WORRY ABOUT ALL OF THOSE WHO ARE STILL BEING EXPOSED, & WHO HAVE NOOOOOOOO IDEA WHY THEY'RE SOOOOO SICK. THIS HAS TO STOP, & IT WILL, IF I HAVE ANY SAY IN THAT WHATSOEVER. I'LL NOT STOP EDUCATING THE PUBLIC ABOUT TOXIC MOLDS TILL THE DAY I DIE.....ITS FAR TOO IMPORTANT TO ME! GOD BLESS US ALL-- VICTORIA [] Re: toxic mold illness > >> >> , > > God you guys, I thought my story was horrible. I don't know what is > worse knowing my family has been through so much-- but to know that > this is happening to so many makes my sooo sad. I cry way to much > these days. God bless you all. > > > > > > > FAIR USE NOTICE: > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2005 Report Share Posted October 14, 2005 LOL, MARCIE, MAYBE WE CAN " HAUNT " THEM TOGETHER AS GHOSTS, LOL? TAKE CARE, VICTORIA [] Re: toxic mold illness > > >> >>> >>> , >> >> God you guys, I thought my story was horrible. I don't know what is >> worse knowing my family has been through so much-- but to know that >> this is happening to so many makes my sooo sad. I cry way to much >> these days. God bless you all. >> >> >> >> >> >> >> FAIR USE NOTICE: >> >> >> Quote Link to comment Share on other sites More sharing options...
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