Guest guest Posted October 8, 2005 Report Share Posted October 8, 2005 Dr. Marinkovich Redwood City, CA He's educated at Stanford. One of the first doctors to identify and treat mold illness. Some say he's one of the best in the country. People do fly in to see him and be treated. Very nice, soft spoken man. He's helped me. Angelika [] markinvoch > Can someone tell me who this is? She/he is an MD, ND? > > Bobbie > > > > > > > > > FAIR USE NOTICE: > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2005 Report Share Posted October 8, 2005 Angelika: Does Dr. Marinkovich have a website? If so please share. I don't have plans to fly to CA and consult with him; would be interested to learn more of his protocols. Thanks so much, Rosie > Dr. Marinkovich > Redwood City, CA > > He's educated at Stanford. > One of the first doctors to identify and treat mold illness. > Some say he's one of the best in the country. > People do fly in to see him and be treated. > Very nice, soft spoken man. > He's helped me. > > Angelika Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2005 Report Share Posted October 8, 2005 In a message dated 10/7/2005 8:58:31 PM Pacific Standard Time, moldhelp@... writes: Dr. Marinkovich Redwood City, CA He's educated at Stanford. One of the first doctors to identify and treat mold illness. Some say he's one of the best in the country. People do fly in to see him and be treated. Very nice, soft spoken man. He's helped me. Angelika Dr. Marinkovich helped me, too. He treats from an immunological standpoint while Dr. Shoemaker treats from a toxicological standpoint. Both men are seeing great success with their patients. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2005 Report Share Posted October 8, 2005 In a message dated 10/8/2005 6:57:43 AM Pacific Standard Time, realmoldygal@... writes: What does he use to treat mold illness? Bobbie Avoidance, antifungal nasal (like the Mayo Clinic) and/or oral medication/ mold free diets. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2005 Report Share Posted October 8, 2005 What does he use to treat mold illness? Bobbie --- In , " Angelika \(mold list\) " <moldhelp@p...> wrote: > > Dr. Marinkovich > Redwood City, CA > > He's educated at Stanford. > One of the first doctors to identify and treat mold illness. > Some say he's one of the best in the country. > People do fly in to see him and be treated. > Very nice, soft spoken man. > He's helped me. > > Angelika > > [] markinvoch > > > > Can someone tell me who this is? She/he is an MD, ND? > > > > Bobbie > > > > > > > > > > > > > > > > > > FAIR USE NOTICE: > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2005 Report Share Posted October 8, 2005 THE IDIOTS WHO SAY WE'RE WRONG SHOULD WORK ABOUT A MONTH IN MY FORMER PLACE OF EMPLOYMENT...THEY'D GET A SNOOT FULL..... & THEN WE'D SEE IF THEY ARE " BELIEVERS! " VICTORIA :>( Re: [] markinvoch > > In a message dated 10/7/2005 8:58:31 PM Pacific Standard Time, > moldhelp@... writes: > > Dr. Marinkovich > Redwood City, CA > > He's educated at Stanford. > One of the first doctors to identify and treat mold illness. > Some say he's one of the best in the country. > People do fly in to see him and be treated. > Very nice, soft spoken man. > He's helped me. > > Angelika > > > Dr. Marinkovich helped me, too. He treats from an immunological > standpoint > while Dr. Shoemaker treats from a toxicological standpoint. Both men are > seeing great success with their patients. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2005 Report Share Posted October 8, 2005 > What does he use to treat mold illness? > Bobbie Re: [] markinvoch > Angelika: > Does Dr. Marinkovich have a website? If so please share. > I don't have plans to fly to CA and consult with him; would be interested to > learn more of his protocols. > Thanks so much, > Rosie Hello Bobbie and Rosie, Marinkovich is individualized. Not a " catch all " protocols. I don't know what he would prescribe for you but this is my plan: Firstly --remove myself from the mold - this is 99% of the recovery. Avoidance is crucial. The rest of it... the immune system needs help.... I was put on a very restrictive diet which can be found here. http://www.mold-survivor.com/dietcopyright.htm I stick to this religiously. Then I was put in anti-fungals. Killing mold is not like taking antibiotics for two weeks. Mold is programmed to decompose things and has a damn strong survival rate. Thus mold / fungal treatment must be done steadily, consitantly and over a long period of time. Avoidance is key though - no amount of drugs or diet is going to help without first getting away from this killer. I still have reactions due to being over-sensitized and am now MCS. But that will decrease over time. I have gotten far better in the last six months. In fact six months ago - I there was no way in hell I could have gotten my thoughts together enough to write an email like this one ! I am sure Dr. Marinkovish would welcome a call from you. His staff is nice. Dr. Shoemaker is another top-notch " best of the best " expert in the field. I have not gone to him but people on this list can tell you more about him. He is located back east and may be closer to you. Please keep in mind not everyone is the same, not every doctor uses the " exact " same approach and what works from one person may not for a another. But most of the doctors discussed on this list are experts, are wonderful and have results in helping thousands of people. Marinkovich contact: Marinkovich 801 Brewster Ave #220 Redwood City, CA 94063 650-482-2800 Dr. Shoemaker's website is: http://www.chronicneurotoxins.com/ I hope this helps. Keep going ! We're all in this together. Avoidance is key - get away from this stuff immediately !!! Mold kills. Angelika -------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2005 Report Share Posted October 8, 2005 Hi Angelika: Thank you so much for your detailed summary of Dr. Marinkovich's protocols. I'm always curious about different protocols and what the experts are prescribing for obvious reasons. I also am doing much better than I did originally and am able to function almost normally when not exposed. As you, I developed MCS as well in addition to my original Lupus. lol I was laughing yesterday when I had to climb onto our roof to check on the roofer 3 times thinking of and his mountain climbing. Decided I was climbing mountains also on my roof top since it's multi-level and had to do some jumping from one point to another. Early on I put myself on the mold-diet or should I say my version of the mold diet that still restricts the food I needed to avoid for my Lupus. The only thing I eat which is not on the mold-diet are organic eggs. I will make that another post. Was just hoping Marinkovich might have a web site to increase my knowledge and view his protocols and thoughts on this subject. I'm so pleased you are doing better. And I totally concur we must restrict our diet and avoid mold and other chemical toxins to which we are reactive. I was so ill originally even the mold on a lemon or in the produce section of a grocery store would cause a reaction. I believe in prevention and will use a charcoal face mask when I'm in a possible moldy or other environment to which I react, still watch my diet, cook everything from scratch, eat nothing prepared or outside the home, and am always checking my home for any water leaks to prevent further damage. And yes you are so correct that we are all individuals and each treatment must be custom to our di-stress not a one size fits all. We also change with exposures, stress and other factors and our protocols need to be changed also. Thanks again and so delighted you are doing better, Rosie > Marinkovich is individualized. Not a " catch all " protocols. I don't know > what he would prescribe for you but this is my plan: > > Firstly --remove myself from the mold - this is 99% of the recovery. > Avoidance is crucial. The rest of it... the immune system needs help.... I > was put on a very restrictive diet which can be found here. > http://www.mold-survivor.com/dietcopyright.htm I stick to this > religiously. Then I was put in anti-fungals. > > Killing mold is not like taking antibiotics for two weeks. Mold is > programmed to decompose things and has a damn strong survival rate. Thus > mold / fungal treatment must be done steadily, consitantly and over a long > period of time. Avoidance is key though - no amount of drugs or diet is > going to help without first getting away from this killer. I still have > reactions due to being over-sensitized and am now MCS. But that will > decrease over time. I have gotten far better in the last six months. In > fact six months ago - I there was no way in hell I could have gotten my > thoughts together enough to write an email like this one ! I am sure Dr. > Marinkovish would welcome a call from you. His staff is nice. > > Dr. Shoemaker is another top-notch " best of the best " expert in the field. > I have not gone to him but people on this list can tell you more about > him. He is located back east and may be closer to you. > > Please keep in mind not everyone is the same, not every doctor uses the > " exact " same approach and what works from one person may not for a > another. But most of the doctors discussed on this list are experts, are > wonderful and have results in helping thousands of people. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2005 Report Share Posted October 9, 2005 Thank you for the information. I am a Shoemaker patient. Just finished my Procrit injections, am in a " bubble " for a time, and taking Cholestyramine. For the first time in many years my CFS and Fibro s/s are almost gone. Sleep and water retention (MSH is low) remain an issue. I even walked 3 miles several times the last few weeks. Best of all I am focusing on and retaining new information! My fog is gone. I am very excited about it all and want to learn everything that I can about the biotoxic illness world. Bobbie --- In , " Angelika \(mold list\) " <moldhelp@p...> wrote: > > > What does he use to treat mold illness? > > Bobbie > Re: [] markinvoch > > Angelika: > > Does Dr. Marinkovich have a website? If so please share. > > I don't have plans to fly to CA and consult with him; would be interested to > > learn more of his protocols. > > Thanks so much, > > Rosie > > > > Hello Bobbie and Rosie, > > Marinkovich is individualized. Not a " catch all " protocols. I don't know what he would prescribe for you but this is my plan: > > Firstly --remove myself from the mold - this is 99% of the recovery. Avoidance is crucial. The rest of it... the immune system needs help.... I was put on a very restrictive diet which can be found here. http://www.mold-survivor.com/dietcopyright.htm I stick to this religiously. Then I was put in anti-fungals. > > Killing mold is not like taking antibiotics for two weeks. Mold is programmed to decompose things and has a damn strong survival rate. Thus mold / fungal treatment must be done steadily, consitantly and over a long period of time. Avoidance is key though - no amount of drugs or diet is going to help without first getting away from this killer. I still have reactions due to being over-sensitized and am now MCS. But that will decrease over time. I have gotten far better in the last six months. In fact six months ago - I there was no way in hell I could have gotten my thoughts together enough to write an email like this one ! I am sure Dr. Marinkovish would welcome a call from you. His staff is nice. > > Dr. Shoemaker is another top-notch " best of the best " expert in the field. I have not gone to him but people on this list can tell you more about him. He is located back east and may be closer to you. > > Please keep in mind not everyone is the same, not every doctor uses the " exact " same approach and what works from one person may not for a another. But most of the doctors discussed on this list are experts, are wonderful and have results in helping thousands of people. > > Marinkovich contact: > Marinkovich > 801 Brewster Ave #220 > Redwood City, CA 94063 > 650-482-2800 > > Dr. Shoemaker's website is: > http://www.chronicneurotoxins.com/ > > > I hope this helps. > Keep going ! We're all in this together. > > Avoidance is key - get away from this stuff immediately !!! Mold kills. > Angelika > > > -------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2005 Report Share Posted October 9, 2005 Bobbie - How long did you do the procrit? (I'm in a fight with my insurance company over this one medication. Thought I'd like to know just how much money we're really arguing about.) Bobbie Delory <realmoldygal@...> wrote:Thank you for the information. I am a Shoemaker patient. Just finished my Procrit injections, am in a " bubble " for a time, and taking Cholestyramine. For the first time in many years my CFS and Fibro s/s are almost gone. Sleep and water retention (MSH is low) remain an issue. I even walked 3 miles several times the last few weeks. Best of all I am focusing on and retaining new information! My fog is gone. I am very excited about it all and want to learn everything that I can about the biotoxic illness world. Serena www.freeboards.net/index.php?mforum=sickgovernmentb --------------------------------- Music Unlimited - Access over 1 million songs. Try it free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2005 Report Share Posted October 9, 2005 Serena, I did the Procrit for 21/2 weeks. Do you have a copy of the protocol? I have a great med plan so 13 vials cost me $75.00. Do you see Shoemaker? I think he charges for the visit when you get the injection, he has it in the office. Bobbie Thank you for the information. I am a Shoemaker patient. Just finished my Procrit > injections, am in a " bubble " for a time, and taking Cholestyramine. For the first time in > many years my CFS and Fibro s/s are almost gone. Sleep and water retention (MSH is low) > remain an issue. I even walked 3 miles several times the last few weeks. Best of all I am > focusing on and retaining new information! My fog is gone. I am very excited about it all > and want to learn everything that I can about the biotoxic illness world. > > > > > Serena > www.freeboards.net/index.php?mforum=sickgovernmentb > > > --------------------------------- > Music Unlimited - Access over 1 million songs. Try it free. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2005 Report Share Posted October 9, 2005 Last I saw, there is no single copy of the protocol(s). And even if there were, I wouldn't put out it out on a public board. It's individualized stuff that should not be done outside a physician's care. But yes, I'm one of Shoemaker's patients. Since I live out of his area, we wouldn't be doing it at his office. (Wouldn't be the first time I had an injectable prescription, so I'm fine with that.) This is the first and only time my insurance has fought me on anything. The fools tried to tell me that off-label prescribing is flatly illegal. When I suggested to them that off-label drug use would have virtually every physician in the country up on charges by morning if that were true, they just insisted all the more. Doh! And me without my boots. I'm glad to hear that the procrit seems to be effective for you despite the low MSH. I was trying to figure whether to go ahead and wait it out, or just bear the expense up front and let the chips fall where they may. More on our wonderful friends in the insurance industry in a sec... Serena www.freeboards.net/index.php?mforum=sickgovernmentb --------------------------------- Music Unlimited - Access over 1 million songs. Try it free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2005 Report Share Posted October 9, 2005 What is procrit? On Sun, 9 Oct 2005, Bobbie Delory wrote: > Date: Sun, 09 Oct 2005 02:12:58 -0000 > From: Bobbie Delory <realmoldygal@...> > Reply- > > Subject: [] Re: markinvoch > > Serena, > > I did the Procrit for 21/2 weeks. Do you have a copy of the protocol? I have a great med > plan so 13 vials cost me $75.00. Do you see Shoemaker? I think he charges for the visit > when you get the injection, he has it in the office. > > Bobbie > Thank you for the information. I am a > Shoemaker patient. Just finished my Procrit >> injections, am in a " bubble " for a time, and taking Cholestyramine. For the first time in >> many years my CFS and Fibro s/s are almost gone. Sleep and water retention (MSH is > low) >> remain an issue. I even walked 3 miles several times the last few weeks. Best of all I am >> focusing on and retaining new information! My fog is gone. I am very excited about it > all >> and want to learn everything that I can about the biotoxic illness world. >> >> >> >> >> Serena >> www.freeboards.net/index.php?mforum=sickgovernmentb >> >> >> --------------------------------- >> Music Unlimited - Access over 1 million songs. Try it free. >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2005 Report Share Posted October 9, 2005 Bobbie, just curious did Dr. Shoemaker suggest an anti-fungal diet for you or only the Rx meds? Rosie > Thank you for the information. I am a Shoemaker patient. Just finished > my Procrit > injections, am in a " bubble " for a time, and taking Cholestyramine. For > the first time in > many years my CFS and Fibro s/s are almost gone. Sleep and water > retention (MSH is low) > remain an issue. I even walked 3 miles several times the last few weeks. > Best of all I am > focusing on and retaining new information! My fog is gone. I am very > excited about it all > and want to learn everything that I can about the biotoxic illness world. > > Bobbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2005 Report Share Posted October 9, 2005 It is a drug that is often used to treat people with anemia or cancer. Bobbie Thank you for the information. I am a > > Shoemaker patient. Just finished my Procrit > >> injections, am in a " bubble " for a time, and taking Cholestyramine. For the first time in > >> many years my CFS and Fibro s/s are almost gone. Sleep and water retention (MSH is > > low) > >> remain an issue. I even walked 3 miles several times the last few weeks. Best of all I am > >> focusing on and retaining new information! My fog is gone. I am very excited about it > > all > >> and want to learn everything that I can about the biotoxic illness world. > >> > >> > >> > >> > >> Serena > >> www.freeboards.net/index.php?mforum=sickgovernmentb > >> > >> > >> --------------------------------- > >> Music Unlimited - Access over 1 million songs. Try it free. > >> > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2005 Report Share Posted October 9, 2005 In my brain fog during treatment I cannot recall an antifungal diet. He does however use the drug Actos for which he puts you on a low amylase/low glycemic index food diet. Bobbie --- In , " Healthier4All " <Healthier4All@h...> wrote: > > Bobbie, just curious did Dr. Shoemaker suggest an anti-fungal diet for you > or only the Rx meds? > > Rosie > > > > Thank you for the information. I am a Shoemaker patient. Just finished > > my Procrit > > injections, am in a " bubble " for a time, and taking Cholestyramine. For > > the first time in > > many years my CFS and Fibro s/s are almost gone. Sleep and water > > retention (MSH is low) > > remain an issue. I even walked 3 miles several times the last few weeks. > > Best of all I am > > focusing on and retaining new information! My fog is gone. I am very > > excited about it all > > and want to learn everything that I can about the biotoxic illness world. > > > > Bobbie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2005 Report Share Posted October 10, 2005 Re: [] markinvoch > Hi Angelika: > > Thank you so much for your detailed summary of Dr. Marinkovich's protocols. > I was so ill originally even the mold on a lemon or in the produce section > of a grocery store would cause a reaction. And here I thought I was the only one that reacted to a bit of mold on a lemon in the grocery store. Good Lord, I remember it clearly still ...walking through the isle and suddenly my legs went out from under me. My lungs seized up and as I got up I realized that I was standing next to the lemon's and lime and a few of them had a bit of white fuzz on them. Took me three days to recover. *%( & (@ & %)!@ I went home and cried thinking I could never go outside again. Thankfully, it's not that bad anymore. Angelika Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2005 Report Share Posted October 10, 2005 > And here I thought I was the only one that reacted to a bit of mold on a > lemon in the grocery store. > Good Lord, I remember it clearly still ...walking through the isle and > suddenly my legs went out from under me. > My lungs seized up and as I got up I realized that I was standing next to > the lemon's and lime and a few of them had a bit of white fuzz on them. > Took > me three days to recover. *%( & (@ & %)!@ I went home and cried thinking I > could > never go outside again. Thankfully, it's not that bad anymore. > > Angelika > Huggies Angelika--you are another " me " . Thank you for sharing this. I remember walking into my organic produce co-op and having a severe reaction; coughing, throat tightening on me, chest felt like I was being squeezed, legs got weak, foggy brain. Seems a moldy potato (and the older ones not stored properly will be very moldy) caused my reaction. Had to leave without my produce and drive home very carefully and yes I was ill for several days, couldn't sleep due to pain. I'm much better now. Yesterday visited my very favorite wholesale herb nursery in the country. For the last few years couldn't go there because many of their buildings/greenhouses covered with mold and I'd react. Decided I needed some plants for my Fall garden, am way past my planting deadline due to having spent much of my Summer with water leaks, tornado and hurricane. I was hesitant. Did take with me with homemade charcoal mask, etc but decided to test first. Had no reaction whatsoever. Even their bathroom (which I needed after drinking a few quarts of water while there, walked through acres of fields trying to find something to wildcraft and bring home and I did, goldenrod in bloom and fresh pine needles for tea) I knew would be a problem and didn't quite know what to do. Since I wasn't reacting to the mold in the greenhouses, took a risk. The bathroom's walls 2' high from ground covered with black mold. I didn't react. Talk about doing happy dance. lol but then I've been taking 's advise to go mountain climbing. lol in Houston we don't have mountains but I do have a 3 story roof and had to climb it often to make sure the roofers were actually making the needed repairs and doing it properly. Been taking herbs for the mold and seems to be working. Now having said all that my MCS is still active and I will react quickly to fabric softeners, perfumes, toiletries, still cannot go into a beauty salon to get my hair cut. Need to figure out what I can take for the MCS to reduce symptoms other than total avoidance. Rosie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2005 Report Share Posted October 10, 2005 HIya Rosie (and all moldies reading this thread on individual reactions) Yep - sounds familiar. I still react though and have to be careful. Yesterday I went house hunting; walked into a few houses and no problem. Glory be ! I figured I could rent one of them. Then walked into the third house for show and WHAM within minutes my knees went weak, foggy brain started to set in. I realized it was coming from the carpeting they had laid in the basement (moldy basement obviously). I got outta of there. The good news is that I figured out that I cannot live in a house with carpeting and have to have wood floors only. (Provided they weren't recently refinished. The refinishing chems and oils do me in too.) The MCS is in full swing. Eighteen months ago I could romp - yes ROMP - through department stores and smell all the lovely and expensive perfumes. I couldn't afford them but I could always scam a few samples LOL ! No more. I could wash my clothes in whatever I pleased but now can't go near the soap isle at Target. I have to use all natural soap for clothes, body wash, shampoo you name it or else. No nail polish remover - that kills me for days. (BTW there's an all vegetable based nail polish remover that causes NO reactions !) No chemical cleaning products either - only vinegar, Borax or baking soda and dish soap from EcoVer. The local carwash knows not to use any chems inside my car too. Mold + chems + bad environments = serious illness for me. Angelika PS - I only go to the beauty shop for hair cuts first thing in the morning before they start all the chem processing. SuperCuts usually doesn't do a lot of dying and perming so I have found I could go there in the mornings and I am OK. Forget the high-end places - tried that - they're loaded ! Re: [] markinvoch > > > And here I thought I was the only one that reacted to a bit of mold on a > > lemon in the grocery store. > > Good Lord, I remember it clearly still ...walking through the isle and > > suddenly my legs went out from under me. > > My lungs seized up and as I got up I realized that I was standing next to > > the lemon's and lime and a few of them had a bit of white fuzz on them. > > Took > > me three days to recover. *%( & (@ & %)!@ I went home and cried thinking I > > could > > never go outside again. Thankfully, it's not that bad anymore. > > > > Angelika > > > > Huggies Angelika--you are another " me " . Thank you for sharing this. I > remember walking into my organic produce co-op and having a severe reaction; > coughing, throat tightening on me, chest felt like I was being squeezed, > legs got weak, foggy brain. Seems a moldy potato (and the older ones not > stored properly will be very moldy) caused my reaction. Had to leave > without my produce and drive home very carefully and yes I was ill for > several days, couldn't sleep due to pain. > > I'm much better now. Yesterday visited my very favorite wholesale herb > nursery in the country. For the last few years couldn't go there because > many of their buildings/greenhouses covered with mold and I'd react. > Decided I needed some plants for my Fall garden, am way past my planting > deadline due to having spent much of my Summer with water leaks, tornado and > hurricane. I was hesitant. Did take with me with homemade charcoal mask, > etc but decided to test first. Had no reaction whatsoever. Even their > bathroom (which I needed after drinking a few quarts of water while there, > walked through acres of fields trying to find something to wildcraft and > bring home and I did, goldenrod in bloom and fresh pine needles for tea) I > knew would be a problem and didn't quite know what to do. Since I wasn't > reacting to the mold in the greenhouses, took a risk. The bathroom's walls > 2' high from ground covered with black mold. I didn't react. Talk about > doing happy dance. > > lol but then I've been taking 's advise to go mountain climbing. lol in > Houston we don't have mountains but I do have a 3 story roof and had to > climb it often to make sure the roofers were actually making the needed > repairs and doing it properly. Been taking herbs for the mold and seems to > be working. > > Now having said all that my MCS is still active and I will react quickly to > fabric softeners, perfumes, toiletries, still cannot go into a beauty salon > to get my hair cut. Need to figure out what I can take for the MCS to > reduce symptoms other than total avoidance. > > Rosie > > > > > FAIR USE NOTICE: > > > Quote Link to comment Share on other sites More sharing options...
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