I'm new to the group

[Guest guest]

Hi Stacey,

Just wanted to give you a warm welcome! One good resource I would

recommend is Woodbine Publishers. They make lots of books for parents of

children with Down syndrome. You can find them at this web page:

http://www.woodbinehouse.com/

Do you know what age the child you wish to adopt is? Do you have a child

" picked out " yet? We have three boys, the youngest of which has Down

syndrome. His name is and he is almost six. Do you have any

questions you would like answered? There are so many great people on this

list that I'm sure at least one of us would be able to help you.

Roni

Usborne Books Consultant

www.ubah.com/J1422

[Guest guest]

Seems like there's some overlap with ocd and Sensory Integration Dysfunction -

which my son has and it appears yours does too. Have you talked about this with

an Occupational Therapist? There are some therapies they can try to

'desensitize' your son. They tried with mine something called Wilbarger, which

involved joint compression and brushing the skin. It didn't work because by this

time my son was 14 and just wouldn't agree to it. But I've heard it's successful

with young people. You could find the book The Out of Sync Child (forget author)

or google for more info. (My son's gifted with ocd too - seems like so many of

these things go hand-in-hand)

kimz

i'm new to the group

I have a 7 year old son who is mildly OCD. While reading through some

of the posts, I too have had to deal with the allergies and eczema

with all three of my children. However, my son is the only one who

seems to have " issues " as he calls them. I have also read that OCD

can be excasserbated by the strep virus...especially if it has

manifested into scarlet fever. He too had scarlet fever when he was

4. While he has always been very particular about food and clothing,

at the ripe age of 5 he seemed to wake up and everything was

different. He suddenly was against certain types of

clothes...everything had to feel just right, things had to be done in

a certain order...and if you broke the routine you had to start over

from the beginning. Just getting dressed could easily turn into an

hour ordeal. School work was the next focus...everything has to be

perfect to the point that he has rewritten the same thing over and

over until he has worn holes in the paper from erasing. He is gifted

as well, which I am not sure whether that is a blessing or a curse.

Mornings and evenings are normally pretty rough if something happens

to screw with his master plan. He has always been a picky eater...and

sometimes will go days only eating crackers or applesauce. It's not

so much the texture of things in his mouth as on his hands. He isn't

a washer...will get dirty and stay dirty if I let him. His main

things are his clothing and school work. He is past being a

perfectionist. I'm just wondering if there is a way to get his

hyperactive touch sense to take a little break...I'd rather not

medicate him but I don't want this to keep getting bigger and bigger.

We haven't faced depression yet...and while I feel like it is easier

just to try and keep his routine so that he isn't " off " the entire

day, I'm afraid that I'm just feeding the fire. So I'm just looking

for any advice.

Our list archives, bookmarks, files, and chat feature may be accessed at:

/ .

Our list advisors are Gail B. , Ed.D., Tamar Chansky, Ph.D.(

http://www.worrywisekids.org ), Dan Geller, M.D.,Aureen Pinto Wagner, Ph.D., (

http://www.lighthouse-press.com ). Our list moderators are Birkhan,

Castle, Fowler, Kathy Hammes, Joye, Kathy Mac, Gail

Pesses, and Kathy . Subscription issues or suggestions may be

addressed to Louis Harkins, list owner, at louisharkins@... ,

louisharkins@... , louisharkins@... .

[Guest guest]

My OCDer also has clothing issues. She will NOT wear underwear cause they dont

fit good, she only wears socks that are 2 sizes too small cause they have to fit

perfect and have no bagginess in them, her shoes: oh my gosh, she wore her size

11 Jazz shoes even when her foot was size 2 all cause they were seamless. Its

bizarre.

I think that socks, shoes, underwear and some shirts are about all the

clothing issues, but that is enough.

smoonirish <smoonirish@...> wrote:

I have a 7 year old son who is mildly OCD. While reading through some

of the posts, I too have had to deal with the allergies and eczema

with all three of my children. However, my son is the only one who

seems to have " issues " as he calls them. I have also read that OCD

can be excasserbated by the strep virus...especially if it has

manifested into scarlet fever. He too had scarlet fever when he was

4. While he has always been very particular about food and clothing,

at the ripe age of 5 he seemed to wake up and everything was

different. He suddenly was against certain types of

clothes...everything had to feel just right, things had to be done in

a certain order...and if you broke the routine you had to start over

from the beginning. Just getting dressed could easily turn into an

hour ordeal. School work was the next focus...everything has to be

perfect to the point that he has rewritten the same thing over and

over until he has worn holes in the paper from erasing. He is gifted

as well, which I am not sure whether that is a blessing or a curse.

Mornings and evenings are normally pretty rough if something happens

to screw with his master plan. He has always been a picky eater...and

sometimes will go days only eating crackers or applesauce. It's not

so much the texture of things in his mouth as on his hands. He isn't

a washer...will get dirty and stay dirty if I let him. His main

things are his clothing and school work. He is past being a

perfectionist. I'm just wondering if there is a way to get his

hyperactive touch sense to take a little break...I'd rather not

medicate him but I don't want this to keep getting bigger and bigger.

We haven't faced depression yet...and while I feel like it is easier

just to try and keep his routine so that he isn't " off " the entire

day, I'm afraid that I'm just feeding the fire. So I'm just looking

for any advice.

Our list archives, bookmarks, files, and chat feature may be accessed at:

/ .

Our list advisors are Gail B. , Ed.D., Tamar Chansky, Ph.D.(

http://www.worrywisekids.org ), Dan Geller, M.D.,Aureen Pinto Wagner, Ph.D., (

http://www.lighthouse-press.com ). Our list moderators are Birkhan,

Castle, Fowler, Kathy Hammes, Joye, Kathy Mac, Gail

Pesses, and Kathy . Subscription issues or suggestions may be

addressed to Louis Harkins, list owner, at louisharkins@... ,

louisharkins@... , louisharkins@... .

[Guest guest]

My OCDer also has clothing issues. She will NOT wear underwear cause they dont

fit good, she only wears socks that are 2 sizes too small cause they have to fit

perfect and have no bagginess in them, her shoes: oh my gosh, she wore her size

11 Jazz shoes even when her foot was size 2 all cause they were seamless. Its

bizarre.

I think that socks, shoes, underwear and some shirts are about all the

clothing issues, but that is enough.

smoonirish <smoonirish@...> wrote:

I have a 7 year old son who is mildly OCD. While reading through some

of the posts, I too have had to deal with the allergies and eczema

with all three of my children. However, my son is the only one who

seems to have " issues " as he calls them. I have also read that OCD

can be excasserbated by the strep virus...especially if it has

manifested into scarlet fever. He too had scarlet fever when he was

4. While he has always been very particular about food and clothing,

at the ripe age of 5 he seemed to wake up and everything was

different. He suddenly was against certain types of

clothes...everything had to feel just right, things had to be done in

a certain order...and if you broke the routine you had to start over

from the beginning. Just getting dressed could easily turn into an

hour ordeal. School work was the next focus...everything has to be

perfect to the point that he has rewritten the same thing over and

over until he has worn holes in the paper from erasing. He is gifted

as well, which I am not sure whether that is a blessing or a curse.

Mornings and evenings are normally pretty rough if something happens

to screw with his master plan. He has always been a picky eater...and

sometimes will go days only eating crackers or applesauce. It's not

so much the texture of things in his mouth as on his hands. He isn't

a washer...will get dirty and stay dirty if I let him. His main

things are his clothing and school work. He is past being a

perfectionist. I'm just wondering if there is a way to get his

hyperactive touch sense to take a little break...I'd rather not

medicate him but I don't want this to keep getting bigger and bigger.

We haven't faced depression yet...and while I feel like it is easier

just to try and keep his routine so that he isn't " off " the entire

day, I'm afraid that I'm just feeding the fire. So I'm just looking

for any advice.

Our list archives, bookmarks, files, and chat feature may be accessed at:

/ .

Our list advisors are Gail B. , Ed.D., Tamar Chansky, Ph.D.(

http://www.worrywisekids.org ), Dan Geller, M.D.,Aureen Pinto Wagner, Ph.D., (

http://www.lighthouse-press.com ). Our list moderators are Birkhan,

Castle, Fowler, Kathy Hammes, Joye, Kathy Mac, Gail

Pesses, and Kathy . Subscription issues or suggestions may be

addressed to Louis Harkins, list owner, at louisharkins@... ,

louisharkins@... , louisharkins@... .

[Guest guest]

Hi,

writing over letters is what finally told me I needed

to get my son checked out. That particular symptom of

his OCD went away after one Exposure (ERP)session.

Are you doing CBT with him? Particularly ERP? It has

kept us off the meds so far. And it's a great thing

to teach for later. Let me know if you need more info

about it.

Best wishes,

Lynn

--- smoonirish <smoonirish@...> wrote:

---------------------------------

I have a 7 year old son who is mildly OCD. While

reading through some

of the posts, I too have had to deal with the

allergies and eczema

with all three of my children. However, my son is the

only one who

seems to have " issues " as he calls them. I have also

read that OCD

can be excasserbated by the strep virus...especially

if it has

manifested into scarlet fever. He too had scarlet

fever when he was

4. While he has always been very particular about food

and clothing,

at the ripe age of 5 he seemed to wake up and

everything was

different. He suddenly was against certain types of

clothes...everything had to feel just right, things

had to be done in

a certain order...and if you broke the routine you had

to start over

from the beginning. Just getting dressed could easily

turn into an

hour ordeal. School work was the next

focus...everything has to be

perfect to the point that he has rewritten the same

thing over and

over until he has worn holes in the paper from

erasing. He is gifted

as well, which I am not sure whether that is a

blessing or a curse.

Mornings and evenings are normally pretty rough if

something happens

to screw with his master plan. He has always been a

picky eater...and

sometimes will go days only eating crackers or

applesauce. It's not

so much the texture of things in his mouth as on his

hands. He isn't

a washer...will get dirty and stay dirty if I let him.

His main

things are his clothing and school work. He is past

being a

perfectionist. I'm just wondering if there is a way to

get his

hyperactive touch sense to take a little break...I'd

rather not

medicate him but I don't want this to keep getting

bigger and bigger.

We haven't faced depression yet...and while I feel

like it is easier

just to try and keep his routine so that he isn't

" off " the entire

day, I'm afraid that I'm just feeding the fire. So I'm

just looking

for any advice.

Our list archives, bookmarks, files, and chat feature

may be accessed at:

/

..

Our list advisors are Gail B. , Ed.D., Tamar

Chansky, Ph.D.( http://www.worrywisekids.org ), Dan

Geller, M.D.,Aureen Pinto Wagner, Ph.D., (

http://www.lighthouse-press.com ). Our list

moderators are Birkhan, Castle,

Fowler, Kathy Hammes, Joye, Kathy Mac,

Gail Pesses, and Kathy . Subscription issues

or suggestions may be addressed to Louis Harkins, list

owner, at louisharkins@... ,

louisharkins@... , louisharkins@... .

[Guest guest]

My son (who the doc says presents " mild OCD-like symptoms " which

nevertheless freak me out), also recently had a strep infection that turned

into scarlet fever with the red rashes all over his body. We were afraid he

d have rheumatic heart, but that's when his " OCD-like symptoms " returned.

He still has mild eczema and in the past had been prescribed prednizone and

a topical steriod (in addition to the non-steroidal but equally

controvercial Protopic). I don't know if there is also some kind of link

between the steroids and the breakdown in the immune system that leads from

strep to OCD (PANDAS), but I'm with you on staying away from meds if at all

possible. My son also has to take an antihistimine everyday so he doesn't

get hives from the heat or from something he touches or from basically

everything.

I'm so new to this affliction and there are so many great voices in this

group. I'm sure someone will have great advice. For me, being able to

discuss the symptoms and non-pharmaceutical treatments with the doc have

helped as well as hearing from all the folks on this site.

-- i'm new to the group

I have a 7 year old son who is mildly OCD. While reading through some

of the posts, I too have had to deal with the allergies and eczema

with all three of my children. However, my son is the only one who

seems to have " issues " as he calls them. I have also read that OCD

can be excasserbated by the strep virus...especially if it has

manifested into scarlet fever. He too had scarlet fever when he was

4. While he has always been very particular about food and clothing,

at the ripe age of 5 he seemed to wake up and everything was

different. He suddenly was against certain types of

clothes...everything had to feel just right, things had to be done in

a certain order...and if you broke the routine you had to start over

from the beginning. Just getting dressed could easily turn into an

hour ordeal. School work was the next focus...everything has to be

perfect to the point that he has rewritten the same thing over and

over until he has worn holes in the paper from erasing. He is gifted

as well, which I am not sure whether that is a blessing or a curse.

Mornings and evenings are normally pretty rough if something happens

to screw with his master plan. He has always been a picky eater...and

sometimes will go days only eating crackers or applesauce. It's not

so much the texture of things in his mouth as on his hands. He isn't

a washer...will get dirty and stay dirty if I let him. His main

things are his clothing and school work. He is past being a

perfectionist. I'm just wondering if there is a way to get his

hyperactive touch sense to take a little break...I'd rather not

medicate him but I don't want this to keep getting bigger and bigger.

We haven't faced depression yet...and while I feel like it is easier

just to try and keep his routine so that he isn't " off " the entire

day, I'm afraid that I'm just feeding the fire. So I'm just looking

for any advice.

Our list archives, bookmarks, files, and chat feature may be accessed at:

/ .

Our list advisors are Gail B. , Ed.D., Tamar Chansky, Ph.D.( http://www

worrywisekids.org ), Dan Geller, M.D.,Aureen Pinto Wagner, Ph.D., (

http://www.lighthouse-press.com ). Our list moderators are Birkhan,

Castle, Fowler, Kathy Hammes, Joye, Kathy Mac, Gail

Pesses, and Kathy . Subscription issues or suggestions may be

addressed to Louis Harkins, list owner, at louisharkins@... ,

louisharkins@... , louisharkins@... .

[Guest guest]

My son (who the doc says presents " mild OCD-like symptoms " which

nevertheless freak me out), also recently had a strep infection that turned

into scarlet fever with the red rashes all over his body. We were afraid he

d have rheumatic heart, but that's when his " OCD-like symptoms " returned.

He still has mild eczema and in the past had been prescribed prednizone and

a topical steriod (in addition to the non-steroidal but equally

controvercial Protopic). I don't know if there is also some kind of link

between the steroids and the breakdown in the immune system that leads from

strep to OCD (PANDAS), but I'm with you on staying away from meds if at all

possible. My son also has to take an antihistimine everyday so he doesn't

get hives from the heat or from something he touches or from basically

everything.

I'm so new to this affliction and there are so many great voices in this

group. I'm sure someone will have great advice. For me, being able to

discuss the symptoms and non-pharmaceutical treatments with the doc have

helped as well as hearing from all the folks on this site.

-- i'm new to the group

I have a 7 year old son who is mildly OCD. While reading through some

of the posts, I too have had to deal with the allergies and eczema

with all three of my children. However, my son is the only one who

seems to have " issues " as he calls them. I have also read that OCD

can be excasserbated by the strep virus...especially if it has

manifested into scarlet fever. He too had scarlet fever when he was

4. While he has always been very particular about food and clothing,

at the ripe age of 5 he seemed to wake up and everything was

different. He suddenly was against certain types of

clothes...everything had to feel just right, things had to be done in

a certain order...and if you broke the routine you had to start over

from the beginning. Just getting dressed could easily turn into an

hour ordeal. School work was the next focus...everything has to be

perfect to the point that he has rewritten the same thing over and

over until he has worn holes in the paper from erasing. He is gifted

as well, which I am not sure whether that is a blessing or a curse.

Mornings and evenings are normally pretty rough if something happens

to screw with his master plan. He has always been a picky eater...and

sometimes will go days only eating crackers or applesauce. It's not

so much the texture of things in his mouth as on his hands. He isn't

a washer...will get dirty and stay dirty if I let him. His main

things are his clothing and school work. He is past being a

perfectionist. I'm just wondering if there is a way to get his

hyperactive touch sense to take a little break...I'd rather not

medicate him but I don't want this to keep getting bigger and bigger.

We haven't faced depression yet...and while I feel like it is easier

just to try and keep his routine so that he isn't " off " the entire

day, I'm afraid that I'm just feeding the fire. So I'm just looking

for any advice.

Our list archives, bookmarks, files, and chat feature may be accessed at:

/ .

Our list advisors are Gail B. , Ed.D., Tamar Chansky, Ph.D.( http://www

worrywisekids.org ), Dan Geller, M.D.,Aureen Pinto Wagner, Ph.D., (

http://www.lighthouse-press.com ). Our list moderators are Birkhan,

Castle, Fowler, Kathy Hammes, Joye, Kathy Mac, Gail

Pesses, and Kathy . Subscription issues or suggestions may be

addressed to Louis Harkins, list owner, at louisharkins@... ,

louisharkins@... , louisharkins@... .

[Guest guest]

The sock and shoe issue...oh geesh! My daughter(she'll

be 10 next month) has a method with this every morning

or whenever her socks and shoes need to be put on.

After putting her socks on, she pulls them from the

back so they're tight and then I have to put her shoes

on while she holds the socks and then they have to be

tied tight to her liking. She does have issues with

tags and zippers or whatever touching her and everyday

when she comes home from school she strips down and

changes all her clothes(underwear and all) but she

won't touch them to put them in the laundry. She also

has to have her food on seperate dishes and eats each

food with seperate utensils. Her diet is limited as

she doesn't like the feeling of certain

foods..Everything has to be perfect on and in her

desk(books lined up by size) and God forbid you empty

the pencil shavings from her pencil box...she needs to

save them for something!! Her letters and numbers have

to be written PERFECT and the teacher is working on

her erasing as she would erase until there was no

paper left! Though all these things and everything

else " strange " she does is just my everyday ,

I guess it can really impact one's life. If anyone

else deals with issues like these...let me know!

Especially the changing of clothes. Thanks...Diane

--- Seale <siriuslives689@...> wrote:

> My OCDer also has clothing issues. She will NOT

> wear underwear cause they dont fit good, she only

> wears socks that are 2 sizes too small cause they

> have to fit perfect and have no bagginess in them,

> her shoes: oh my gosh, she wore her size 11 Jazz

> shoes even when her foot was size 2 all cause they

> were seamless. Its bizarre.

>

> I think that socks, shoes, underwear and some

> shirts are about all the clothing issues, but that

> is enough.

>

>

>

> smoonirish <smoonirish@...> wrote:

> I have a 7 year old son who is mildly OCD. While

> reading through some

> of the posts, I too have had to deal with the

> allergies and eczema

> with all three of my children. However, my son is

> the only one who

> seems to have " issues " as he calls them. I have also

> read that OCD

> can be excasserbated by the strep virus...especially

> if it has

> manifested into scarlet fever. He too had scarlet

> fever when he was

> 4. While he has always been very particular about

> food and clothing,

> at the ripe age of 5 he seemed to wake up and

> everything was

> different. He suddenly was against certain types of

> clothes...everything had to feel just right, things

> had to be done in

> a certain order...and if you broke the routine you

> had to start over

> from the beginning. Just getting dressed could

> easily turn into an

> hour ordeal. School work was the next

> focus...everything has to be

> perfect to the point that he has rewritten the same

> thing over and

> over until he has worn holes in the paper from

> erasing. He is gifted

> as well, which I am not sure whether that is a

> blessing or a curse.

> Mornings and evenings are normally pretty rough if

> something happens

> to screw with his master plan. He has always been a

> picky eater...and

> sometimes will go days only eating crackers or

> applesauce. It's not

> so much the texture of things in his mouth as on his

> hands. He isn't

> a washer...will get dirty and stay dirty if I let

> him. His main

> things are his clothing and school work. He is past

> being a

> perfectionist. I'm just wondering if there is a way

> to get his

> hyperactive touch sense to take a little break...I'd

> rather not

> medicate him but I don't want this to keep getting

> bigger and bigger.

> We haven't faced depression yet...and while I feel

> like it is easier

> just to try and keep his routine so that he isn't

> " off " the entire

> day, I'm afraid that I'm just feeding the fire. So

> I'm just looking

> for any advice.

>

>

>

>

>

> Our list archives, bookmarks, files, and chat

> feature may be accessed at:

>

/

> .

> Our list advisors are Gail B. , Ed.D., Tamar

> Chansky, Ph.D.( http://www.worrywisekids.org ), Dan

> Geller, M.D.,Aureen Pinto Wagner, Ph.D., (

> http://www.lighthouse-press.com ). Our list

> moderators are Birkhan, Castle,

> Fowler, Kathy Hammes, Joye, Kathy Mac,

> Gail Pesses, and Kathy . Subscription

> issues or suggestions may be addressed to Louis

> Harkins, list owner, at louisharkins@... ,

> louisharkins@... , louisharkins@... .

>

>

>

>

>

>

[Guest guest]

The sock and shoe issue...oh geesh! My daughter(she'll

be 10 next month) has a method with this every morning

or whenever her socks and shoes need to be put on.

After putting her socks on, she pulls them from the

back so they're tight and then I have to put her shoes

on while she holds the socks and then they have to be

tied tight to her liking. She does have issues with

tags and zippers or whatever touching her and everyday

when she comes home from school she strips down and

changes all her clothes(underwear and all) but she

won't touch them to put them in the laundry. She also

has to have her food on seperate dishes and eats each

food with seperate utensils. Her diet is limited as

she doesn't like the feeling of certain

foods..Everything has to be perfect on and in her

desk(books lined up by size) and God forbid you empty

the pencil shavings from her pencil box...she needs to

save them for something!! Her letters and numbers have

to be written PERFECT and the teacher is working on

her erasing as she would erase until there was no

paper left! Though all these things and everything

else " strange " she does is just my everyday ,

I guess it can really impact one's life. If anyone

else deals with issues like these...let me know!

Especially the changing of clothes. Thanks...Diane

--- Seale <siriuslives689@...> wrote:

> My OCDer also has clothing issues. She will NOT

> wear underwear cause they dont fit good, she only

> wears socks that are 2 sizes too small cause they

> have to fit perfect and have no bagginess in them,

> her shoes: oh my gosh, she wore her size 11 Jazz

> shoes even when her foot was size 2 all cause they

> were seamless. Its bizarre.

>

> I think that socks, shoes, underwear and some

> shirts are about all the clothing issues, but that

> is enough.

>

>

>

> smoonirish <smoonirish@...> wrote:

> I have a 7 year old son who is mildly OCD. While

> reading through some

> of the posts, I too have had to deal with the

> allergies and eczema

> with all three of my children. However, my son is

> the only one who

> seems to have " issues " as he calls them. I have also

> read that OCD

> can be excasserbated by the strep virus...especially

> if it has

> manifested into scarlet fever. He too had scarlet

> fever when he was

> 4. While he has always been very particular about

> food and clothing,

> at the ripe age of 5 he seemed to wake up and

> everything was

> different. He suddenly was against certain types of

> clothes...everything had to feel just right, things

> had to be done in

> a certain order...and if you broke the routine you

> had to start over

> from the beginning. Just getting dressed could

> easily turn into an

> hour ordeal. School work was the next

> focus...everything has to be

> perfect to the point that he has rewritten the same

> thing over and

> over until he has worn holes in the paper from

> erasing. He is gifted

> as well, which I am not sure whether that is a

> blessing or a curse.

> Mornings and evenings are normally pretty rough if

> something happens

> to screw with his master plan. He has always been a

> picky eater...and

> sometimes will go days only eating crackers or

> applesauce. It's not

> so much the texture of things in his mouth as on his

> hands. He isn't

> a washer...will get dirty and stay dirty if I let

> him. His main

> things are his clothing and school work. He is past

> being a

> perfectionist. I'm just wondering if there is a way

> to get his

> hyperactive touch sense to take a little break...I'd

> rather not

> medicate him but I don't want this to keep getting

> bigger and bigger.

> We haven't faced depression yet...and while I feel

> like it is easier

> just to try and keep his routine so that he isn't

> " off " the entire

> day, I'm afraid that I'm just feeding the fire. So

> I'm just looking

> for any advice.

>

>

>

>

>

> Our list archives, bookmarks, files, and chat

> feature may be accessed at:

>

/

> .

> Our list advisors are Gail B. , Ed.D., Tamar

> Chansky, Ph.D.( http://www.worrywisekids.org ), Dan

> Geller, M.D.,Aureen Pinto Wagner, Ph.D., (

> http://www.lighthouse-press.com ). Our list

> moderators are Birkhan, Castle,

> Fowler, Kathy Hammes, Joye, Kathy Mac,

> Gail Pesses, and Kathy . Subscription

> issues or suggestions may be addressed to Louis

> Harkins, list owner, at louisharkins@... ,

> louisharkins@... , louisharkins@... .

>

>

>

>

>

>

[Guest guest]

I have clothing issues. I hate to wear the same clothes in the house that I

wear out. So for example, I will change as soon as I get home in order to shed

the germy stuff that I got on me when i was out. I realize that its not

rational!!

I also have laundry issues. I hate to wash clothes because all the clothes

are dirty. It really ticks my husband off. Matter fact--TICKED is sooooo not

the word!

Diane-lee $anto$ <slimdi@...> wrote:

The sock and shoe issue...oh geesh! My daughter(she'll

be 10 next month) has a method with this every morning

or whenever her socks and shoes need to be put on.

After putting her socks on, she pulls them from the

back so they're tight and then I have to put her shoes

on while she holds the socks and then they have to be

tied tight to her liking. She does have issues with

tags and zippers or whatever touching her and everyday

when she comes home from school she strips down and

changes all her clothes(underwear and all) but she

won't touch them to put them in the laundry. She also

has to have her food on seperate dishes and eats each

food with seperate utensils. Her diet is limited as

she doesn't like the feeling of certain

foods..Everything has to be perfect on and in her

desk(books lined up by size) and God forbid you empty

the pencil shavings from her pencil box...she needs to

save them for something!! Her letters and numbers have

to be written PERFECT and the teacher is working on

her erasing as she would erase until there was no

paper left! Though all these things and everything

else " strange " she does is just my everyday ,

I guess it can really impact one's life. If anyone

else deals with issues like these...let me know!

Especially the changing of clothes. Thanks...Diane

--- Seale <siriuslives689@...> wrote:

> My OCDer also has clothing issues. She will NOT

> wear underwear cause they dont fit good, she only

> wears socks that are 2 sizes too small cause they

> have to fit perfect and have no bagginess in them,

> her shoes: oh my gosh, she wore her size 11 Jazz

> shoes even when her foot was size 2 all cause they

> were seamless. Its bizarre.

>

> I think that socks, shoes, underwear and some

> shirts are about all the clothing issues, but that

> is enough.

>

>

>

> smoonirish <smoonirish@...> wrote:

> I have a 7 year old son who is mildly OCD. While

> reading through some

> of the posts, I too have had to deal with the

> allergies and eczema

> with all three of my children. However, my son is

> the only one who

> seems to have " issues " as he calls them. I have also

> read that OCD

> can be excasserbated by the strep virus...especially

> if it has

> manifested into scarlet fever. He too had scarlet

> fever when he was

> 4. While he has always been very particular about

> food and clothing,

> at the ripe age of 5 he seemed to wake up and

> everything was

> different. He suddenly was against certain types of

> clothes...everything had to feel just right, things

> had to be done in

> a certain order...and if you broke the routine you

> had to start over

> from the beginning. Just getting dressed could

> easily turn into an

> hour ordeal. School work was the next

> focus...everything has to be

> perfect to the point that he has rewritten the same

> thing over and

> over until he has worn holes in the paper from

> erasing. He is gifted

> as well, which I am not sure whether that is a

> blessing or a curse.

> Mornings and evenings are normally pretty rough if

> something happens

> to screw with his master plan. He has always been a

> picky eater...and

> sometimes will go days only eating crackers or

> applesauce. It's not

> so much the texture of things in his mouth as on his

> hands. He isn't

> a washer...will get dirty and stay dirty if I let

> him. His main

> things are his clothing and school work. He is past

> being a

> perfectionist. I'm just wondering if there is a way

> to get his

> hyperactive touch sense to take a little break...I'd

> rather not

> medicate him but I don't want this to keep getting

> bigger and bigger.

> We haven't faced depression yet...and while I feel

> like it is easier

> just to try and keep his routine so that he isn't

> " off " the entire

> day, I'm afraid that I'm just feeding the fire. So

> I'm just looking

> for any advice.

>

>

>

>

>

> Our list archives, bookmarks, files, and chat

> feature may be accessed at:

>

/

> .

> Our list advisors are Gail B. , Ed.D., Tamar

> Chansky, Ph.D.( http://www.worrywisekids.org ), Dan

> Geller, M.D.,Aureen Pinto Wagner, Ph.D., (

> http://www.lighthouse-press.com ). Our list

> moderators are Birkhan, Castle,

> Fowler, Kathy Hammes, Joye, Kathy Mac,

> Gail Pesses, and Kathy . Subscription

> issues or suggestions may be addressed to Louis

> Harkins, list owner, at louisharkins@... ,

> louisharkins@... , louisharkins@... .

>

>

>

>

>

>

[Guest guest]

I have clothing issues. I hate to wear the same clothes in the house that I

wear out. So for example, I will change as soon as I get home in order to shed

the germy stuff that I got on me when i was out. I realize that its not

rational!!

I also have laundry issues. I hate to wash clothes because all the clothes

are dirty. It really ticks my husband off. Matter fact--TICKED is sooooo not

the word!

Diane-lee $anto$ <slimdi@...> wrote:

The sock and shoe issue...oh geesh! My daughter(she'll

be 10 next month) has a method with this every morning

or whenever her socks and shoes need to be put on.

After putting her socks on, she pulls them from the

back so they're tight and then I have to put her shoes

on while she holds the socks and then they have to be

tied tight to her liking. She does have issues with

tags and zippers or whatever touching her and everyday

when she comes home from school she strips down and

changes all her clothes(underwear and all) but she

won't touch them to put them in the laundry. She also

has to have her food on seperate dishes and eats each

food with seperate utensils. Her diet is limited as

she doesn't like the feeling of certain

foods..Everything has to be perfect on and in her

desk(books lined up by size) and God forbid you empty

the pencil shavings from her pencil box...she needs to

save them for something!! Her letters and numbers have

to be written PERFECT and the teacher is working on

her erasing as she would erase until there was no

paper left! Though all these things and everything

else " strange " she does is just my everyday ,

I guess it can really impact one's life. If anyone

else deals with issues like these...let me know!

Especially the changing of clothes. Thanks...Diane

--- Seale <siriuslives689@...> wrote:

> My OCDer also has clothing issues. She will NOT

> wear underwear cause they dont fit good, she only

> wears socks that are 2 sizes too small cause they

> have to fit perfect and have no bagginess in them,

> her shoes: oh my gosh, she wore her size 11 Jazz

> shoes even when her foot was size 2 all cause they

> were seamless. Its bizarre.

>

> I think that socks, shoes, underwear and some

> shirts are about all the clothing issues, but that

> is enough.

>

>

>

> smoonirish <smoonirish@...> wrote:

> I have a 7 year old son who is mildly OCD. While

> reading through some

> of the posts, I too have had to deal with the

> allergies and eczema

> with all three of my children. However, my son is

> the only one who

> seems to have " issues " as he calls them. I have also

> read that OCD

> can be excasserbated by the strep virus...especially

> if it has

> manifested into scarlet fever. He too had scarlet

> fever when he was

> 4. While he has always been very particular about

> food and clothing,

> at the ripe age of 5 he seemed to wake up and

> everything was

> different. He suddenly was against certain types of

> clothes...everything had to feel just right, things

> had to be done in

> a certain order...and if you broke the routine you

> had to start over

> from the beginning. Just getting dressed could

> easily turn into an

> hour ordeal. School work was the next

> focus...everything has to be

> perfect to the point that he has rewritten the same

> thing over and

> over until he has worn holes in the paper from

> erasing. He is gifted

> as well, which I am not sure whether that is a

> blessing or a curse.

> Mornings and evenings are normally pretty rough if

> something happens

> to screw with his master plan. He has always been a

> picky eater...and

> sometimes will go days only eating crackers or

> applesauce. It's not

> so much the texture of things in his mouth as on his

> hands. He isn't

> a washer...will get dirty and stay dirty if I let

> him. His main

> things are his clothing and school work. He is past

> being a

> perfectionist. I'm just wondering if there is a way

> to get his

> hyperactive touch sense to take a little break...I'd

> rather not

> medicate him but I don't want this to keep getting

> bigger and bigger.

> We haven't faced depression yet...and while I feel

> like it is easier

> just to try and keep his routine so that he isn't

> " off " the entire

> day, I'm afraid that I'm just feeding the fire. So

> I'm just looking

> for any advice.

>

>

>

>

>

> Our list archives, bookmarks, files, and chat

> feature may be accessed at:

>

/

> .

> Our list advisors are Gail B. , Ed.D., Tamar

> Chansky, Ph.D.( http://www.worrywisekids.org ), Dan

> Geller, M.D.,Aureen Pinto Wagner, Ph.D., (

> http://www.lighthouse-press.com ). Our list

> moderators are Birkhan, Castle,

> Fowler, Kathy Hammes, Joye, Kathy Mac,

> Gail Pesses, and Kathy . Subscription

> issues or suggestions may be addressed to Louis

> Harkins, list owner, at louisharkins@... ,

> louisharkins@... , louisharkins@... .

>

>

>

>

>

>

[Guest guest]

Because she has social issues at school and her OCD

really comes out there, my mom figures maybe it's her

way of coming home and leaving the " whole " school

thing behind and now she can just come out of her

shell and start fresh! Ya know...Diane

--- Seale <siriuslives689@...> wrote:

> I have clothing issues. I hate to wear the same

> clothes in the house that I wear out. So for

> example, I will change as soon as I get home in

> order to shed the germy stuff that I got on me when

> i was out. I realize that its not rational!!

>

> I also have laundry issues. I hate to wash

> clothes because all the clothes are dirty. It

> really ticks my husband off. Matter fact--TICKED is

> sooooo not the word!

>

>

>

> Diane-lee $anto$ <slimdi@...> wrote:

> The sock and shoe issue...oh geesh! My

> daughter(she'll

> be 10 next month) has a method with this every

> morning

> or whenever her socks and shoes need to be put on.

> After putting her socks on, she pulls them from the

> back so they're tight and then I have to put her

> shoes

> on while she holds the socks and then they have to

> be

> tied tight to her liking. She does have issues with

> tags and zippers or whatever touching her and

> everyday

> when she comes home from school she strips down and

> changes all her clothes(underwear and all) but she

> won't touch them to put them in the laundry. She

> also

> has to have her food on seperate dishes and eats

> each

> food with seperate utensils. Her diet is limited as

> she doesn't like the feeling of certain

> foods..Everything has to be perfect on and in her

> desk(books lined up by size) and God forbid you

> empty

> the pencil shavings from her pencil box...she needs

> to

> save them for something!! Her letters and numbers

> have

> to be written PERFECT and the teacher is working on

> her erasing as she would erase until there was no

> paper left! Though all these things and everything

> else " strange " she does is just my everyday

> ,

> I guess it can really impact one's life. If anyone

> else deals with issues like these...let me know!

> Especially the changing of clothes. Thanks...Diane

>

> --- Seale <siriuslives689@...> wrote:

>

> > My OCDer also has clothing issues. She will NOT

> > wear underwear cause they dont fit good, she only

> > wears socks that are 2 sizes too small cause they

> > have to fit perfect and have no bagginess in them,

> > her shoes: oh my gosh, she wore her size 11 Jazz

> > shoes even when her foot was size 2 all cause

> they

> > were seamless. Its bizarre.

> >

> > I think that socks, shoes, underwear and some

> > shirts are about all the clothing issues, but that

> > is enough.

> >

> >

> >

> > smoonirish <smoonirish@...> wrote:

> > I have a 7 year old son who is mildly OCD. While

> > reading through some

> > of the posts, I too have had to deal with the

> > allergies and eczema

> > with all three of my children. However, my son is

> > the only one who

> > seems to have " issues " as he calls them. I have

> also

> > read that OCD

> > can be excasserbated by the strep

> virus...especially

> > if it has

> > manifested into scarlet fever. He too had scarlet

> > fever when he was

> > 4. While he has always been very particular about

> > food and clothing,

> > at the ripe age of 5 he seemed to wake up and

> > everything was

> > different. He suddenly was against certain types

> of

> > clothes...everything had to feel just right,

> things

> > had to be done in

> > a certain order...and if you broke the routine you

> > had to start over

> > from the beginning. Just getting dressed could

> > easily turn into an

> > hour ordeal. School work was the next

> > focus...everything has to be

> > perfect to the point that he has rewritten the

> same

> > thing over and

> > over until he has worn holes in the paper from

> > erasing. He is gifted

> > as well, which I am not sure whether that is a

> > blessing or a curse.

> > Mornings and evenings are normally pretty rough if

> > something happens

> > to screw with his master plan. He has always been

> a

> > picky eater...and

> > sometimes will go days only eating crackers or

> > applesauce. It's not

> > so much the texture of things in his mouth as on

> his

> > hands. He isn't

> > a washer...will get dirty and stay dirty if I let

> > him. His main

> > things are his clothing and school work. He is

> past

> > being a

> > perfectionist. I'm just wondering if there is a

> way

> > to get his

> > hyperactive touch sense to take a little

> break...I'd

> > rather not

> > medicate him but I don't want this to keep getting

> > bigger and bigger.

> > We haven't faced depression yet...and while I feel

> > like it is easier

> > just to try and keep his routine so that he isn't

> > " off " the entire

> > day, I'm afraid that I'm just feeding the fire. So

> > I'm just looking

> > for any advice.

> >

> >

> >

> >

> >

> > Our list archives, bookmarks, files, and chat

> > feature may be accessed at:

> >

>

/

> > .

> > Our list advisors are Gail B. , Ed.D., Tamar

> > Chansky, Ph.D.( http://www.worrywisekids.org ),

> Dan

> > Geller, M.D.,Aureen Pinto Wagner, Ph.D., (

> > http://www.lighthouse-press.com ). Our list

> > moderators are Birkhan, Castle,

> > Fowler, Kathy Hammes, Joye, Kathy Mac,

> > Gail Pesses, and Kathy . Subscription

> > issues or suggestions may be addressed to Louis

> > Harkins, list owner, at louisharkins@... ,

> > louisharkins@... , louisharkins@...

> .

> >

> >

> >

> >

> >

> >

[Guest guest]

Have you looked at Hanna Andersson for underwear? The cotton is

amazingly soft, with covered waistbands. www.hannaandersson.com

Khris

>

> My OCDer also has clothing issues. She will NOT wear underwear cause

they dont fit good, she only wears socks that are 2 sizes too small

cause they have to fit perfect and have no bagginess in them, her

shoes: oh my gosh, she wore her size 11 Jazz shoes even when her foot

was size 2 all cause they were seamless. Its bizarre.

>

> I think that socks, shoes, underwear and some shirts are about all

the clothing issues, but that is enough.

>

>

[Guest guest]

In a message dated 3/25/2006 9:03:21 PM Eastern Standard Time,

akdelgado@... writes:

Although, he struggles with full RPT,

Kris

What is RPT?

LT

[Guest guest]

Hi,

My son will be 7 in June and like you, we saw very mild quirky

preferences exascerbate DRAMATICALLY at age 5 and a half. For six

months, we had no idea what we were dealing with. My husband

frustrated, insisted that it had to be a lack of discipline. But no

amount of threatening, punishment, cojoling, bribing, pleading,

begging or rewarding could get him to budge. The more we insisted on

interrupting his rituals, the more he protested, right into full

panic attacks. We could see that he was terrified, but we couldn't

understand why...or of what!

My son was diagnosed at 6 and has made remarkable progress in this

last year. ly, so have we! We no longer try to " discipline "

this out of him, nor comply with every ritual. My son is not on any

medication and we hope to keep it that way, although there are days

that I wonder if we're making the correct decision.

My son can now articulate that he's feeling anxiety and he can

explain like a professional, why that feeling occurs, and what he

SHOULD do to fight it. Although, he still " protects " the OCD most of

the time.

My son is gifted too (in the areas of creativity, imagination and

language). He's been fully tested. He does not have ADD, but often

performs similarly because his attention is literally devided in

half between his rituals and his school work. For example, he is

often the last to finish his math because (I discovered) that the

kids all grab a pencil from a basket and my son MUST get a pencil

with characters or colors. If he winds up with a standard pencil

that reads, " U.S.A. Pencil " on it, he silently must repeat the

phrase, " U.S.A. Pencil means it was made in the USA " . It's very hard

for him to concentrate on his math, with that phrase running through

his head every few seconds.

We see a therapist, once a month and my sons feels better just

knowing what's going on. Although, he struggles with full RPT,

because he says that he " trys " and " it doesn't work! " . Of course, he

wants immediate relief and doesn't want to wait the weeks or months

necessary for his brain to get bored with a thought.

Anyway, just thought I'd say that I can relate!

Kris

>

> I have a 7 year old son who is mildly OCD. While reading through

some

> of the posts, I too have had to deal with the allergies and eczema

> with all three of my children. However, my son is the only one who

> seems to have " issues " as he calls them. I have also read that OCD

> can be excasserbated by the strep virus...especially if it has

> manifested into scarlet fever. He too had scarlet fever when he

was

> 4. While he has always been very particular about food and

clothing,

> at the ripe age of 5 he seemed to wake up and everything was

> different. He suddenly was against certain types of

> clothes...everything had to feel just right, things had to be done

in

> a certain order...and if you broke the routine you had to start

over

> from the beginning. Just getting dressed could easily turn into an

> hour ordeal. School work was the next focus...everything has to be

> perfect to the point that he has rewritten the same thing over and

> over until he has worn holes in the paper from erasing. He is

gifted

> as well, which I am not sure whether that is a blessing or a

curse.

> Mornings and evenings are normally pretty rough if something

happens

> to screw with his master plan. He has always been a picky

eater...and

> sometimes will go days only eating crackers or applesauce. It's

not

> so much the texture of things in his mouth as on his hands. He

isn't

> a washer...will get dirty and stay dirty if I let him. His main

> things are his clothing and school work. He is past being a

> perfectionist. I'm just wondering if there is a way to get his

> hyperactive touch sense to take a little break...I'd rather not

> medicate him but I don't want this to keep getting bigger and

bigger.

> We haven't faced depression yet...and while I feel like it is

easier

> just to try and keep his routine so that he isn't " off " the entire

> day, I'm afraid that I'm just feeding the fire. So I'm just

looking

> for any advice.

>

[Guest guest]

Krsi,

how terrific that you discovered it so early and your (and his) work

is giving him pricelss relief!

I wonder how my son would have done if we'd " identified " it early on

like that . . . given him a perspective on all the behaviors and

thoughts . . . instead of just more and more and fear and

distraction. . . with no way to " name it " and see it as seperate from

himself CLEARLY instead of just intuitively.

I urge you though to try to find out about things that may be going

on in his mind that wouldn't be visible to you and that wouldn't ever

occur to him to share with you . . . kids have no reason to believe

usually that their minds and thoughts are even the least bit

different - they just 'live' and 'experience' and their own internal

workings are one of the few things they never think to question.

I say this because though I knew of the incredibly terrifying

thoughts and nightmares and I knew he didn't seem to feel " SAFE "

despite my every effort to make his world safe . . . once we had an

ocd diagnosis at 13 he told me story after story of things that

happened in his thoughts over the years that I DIDN'T know about -

nightmare like doom and death episodes at school during the day (not

just at bedtime like I thought), terrified his stuffed animals would

turn on him and destroy him if he didn't do certain things with them

(I'm not sure I ever really noticed he even arranged them each night).

When he started the lexapro it was these thoughts of impending doom

and general fear of disaster that were the first to slip away down to

a manageable level . . . even on the lower doses!

I don't have any suggestions for you, but you should be aware that it

may never occur to him to tell you about a fair amount of it if you

don't find a way to show him . . . maybe share other kids' ocd

obsessions compulsions with him and he can start to see the pattern

and identify his own???

> >

> > I have a 7 year old son who is mildly OCD. While reading through

> some

> > of the posts, I too have had to deal with the allergies and

eczema

> > with all three of my children. However, my son is the only one

who

> > seems to have " issues " as he calls them. I have also read that

OCD

> > can be excasserbated by the strep virus...especially if it has

> > manifested into scarlet fever. He too had scarlet fever when he

> was

> > 4. While he has always been very particular about food and

> clothing,

> > at the ripe age of 5 he seemed to wake up and everything was

> > different. He suddenly was against certain types of

> > clothes...everything had to feel just right, things had to be

done

> in

> > a certain order...and if you broke the routine you had to start

> over

> > from the beginning. Just getting dressed could easily turn into

an

> > hour ordeal. School work was the next focus...everything has to

be

> > perfect to the point that he has rewritten the same thing over

and

> > over until he has worn holes in the paper from erasing. He is

> gifted

> > as well, which I am not sure whether that is a blessing or a

> curse.

> > Mornings and evenings are normally pretty rough if something

> happens

> > to screw with his master plan. He has always been a picky

> eater...and

> > sometimes will go days only eating crackers or applesauce. It's

> not

> > so much the texture of things in his mouth as on his hands. He

> isn't

> > a washer...will get dirty and stay dirty if I let him. His main

> > things are his clothing and school work. He is past being a

> > perfectionist. I'm just wondering if there is a way to get his

> > hyperactive touch sense to take a little break...I'd rather not

> > medicate him but I don't want this to keep getting bigger and

> bigger.

> > We haven't faced depression yet...and while I feel like it is

> easier

> > just to try and keep his routine so that he isn't " off " the

entire

> > day, I'm afraid that I'm just feeding the fire. So I'm just

> looking

> > for any advice.

> >

>

[Guest guest]

Kris,

I am new to this group as well and my hair stood on end reading your

description of your son because you could have been talking about

mine - all the way down to the pencil basket! I am very encouraged

by the benefit your son seems to have found in therapy. We have

only been to therapy once and I wasn't really to keen on the

therapist. We selected her because our insurance covered her and

she had OCD listed in her areas of specialty.

I've read a lot about CBT. Could you please help me understand how

you selected a therapist and what type they are?

thanks

Kathy

> >

> > I have a 7 year old son who is mildly OCD. While reading through

> some

> > of the posts, I too have had to deal with the allergies and

eczema

> > with all three of my children. However, my son is the only one

who

> > seems to have " issues " as he calls them. I have also read that

OCD

> > can be excasserbated by the strep virus...especially if it has

> > manifested into scarlet fever. He too had scarlet fever when he

> was

> > 4. While he has always been very particular about food and

> clothing,

> > at the ripe age of 5 he seemed to wake up and everything was

> > different. He suddenly was against certain types of

> > clothes...everything had to feel just right, things had to be

done

> in

> > a certain order...and if you broke the routine you had to start

> over

> > from the beginning. Just getting dressed could easily turn into

an

> > hour ordeal. School work was the next focus...everything has to

be

> > perfect to the point that he has rewritten the same thing over

and

> > over until he has worn holes in the paper from erasing. He is

> gifted

> > as well, which I am not sure whether that is a blessing or a

> curse.

> > Mornings and evenings are normally pretty rough if something

> happens

> > to screw with his master plan. He has always been a picky

> eater...and

> > sometimes will go days only eating crackers or applesauce. It's

> not

> > so much the texture of things in his mouth as on his hands. He

> isn't

> > a washer...will get dirty and stay dirty if I let him. His main

> > things are his clothing and school work. He is past being a

> > perfectionist. I'm just wondering if there is a way to get his

> > hyperactive touch sense to take a little break...I'd rather not

> > medicate him but I don't want this to keep getting bigger and

> bigger.

> > We haven't faced depression yet...and while I feel like it is

> easier

> > just to try and keep his routine so that he isn't " off " the

entire

> > day, I'm afraid that I'm just feeding the fire. So I'm just

> looking

> > for any advice.

> >

>

[Guest guest]

> > >

> > > I have a 7 year old son who is mildly OCD. While reading

through

> > some

> > > of the posts, I too have had to deal with the allergies and

> eczema

> > > with all three of my children. However, my son is the only one

> who

> > > seems to have " issues " as he calls them. I have also read that

> OCD

> > > can be excasserbated by the strep virus...especially if it has

> > > manifested into scarlet fever. He too had scarlet fever when he

> > was

> > > 4. While he has always been very particular about food and

> > clothing,

> > > at the ripe age of 5 he seemed to wake up and everything was

> > > different. He suddenly was against certain types of

> > > clothes...everything had to feel just right, things had to be

> done

> > in

> > > a certain order...and if you broke the routine you had to start

> > over

> > > from the beginning. Just getting dressed could easily turn into

> an

> > > hour ordeal. School work was the next focus...everything has to

> be

> > > perfect to the point that he has rewritten the same thing over

> and

> > > over until he has worn holes in the paper from erasing. He is

> > gifted

> > > as well, which I am not sure whether that is a blessing or a

> > curse.

> > > Mornings and evenings are normally pretty rough if something

> > happens

> > > to screw with his master plan. He has always been a picky

> > eater...and

> > > sometimes will go days only eating crackers or applesauce. It's

> > not

> > > so much the texture of things in his mouth as on his hands. He

> > isn't

> > > a washer...will get dirty and stay dirty if I let him. His main

> > > things are his clothing and school work. He is past being a

> > > perfectionist. I'm just wondering if there is a way to get his

> > > hyperactive touch sense to take a little break...I'd rather not

> > > medicate him but I don't want this to keep getting bigger and

> > bigger.

> > > We haven't faced depression yet...and while I feel like it is

> > easier

> > > just to try and keep his routine so that he isn't " off " the

> entire

> > > day, I'm afraid that I'm just feeding the fire. So I'm just

> > looking

> > > for any advice.

> > >

> >

>

Kris,

My husband also tells me that it's b/c of a lack of discipline on my

part. He's starting to see that it's not the case, but it's been a

SLOW process. I talked to my son about things today since we had a

major melt-down about a pair of socks...my son doesn't really think

that he's off on his perceptions, and I agree...in his world he's not.

I asked him why he has to do both socks and then both shoes, instead

of one sock and then a shoe and then move to the next foot. He told

me it was crazy to do it my way. I had to chuckle. I gave in with the

sock thing remembering that I need to pick my battles, and he ended

up not wearing socks. In the past year I've really changed my

attitude to one that most people around us don't like, but as my kids

get older I am to the point that I really don't care what everyone

else thinks. All three of my kids are gifted so they don't act like

everyone else's anyway...then to add my son's " issues " on top, well

I'm used to it. While it's frustrating when we are in a hurry, it's

just part of who he is. So I've decided to run with it. I don't know

if that's the right way to look at it, but it's working for me right

now.

[Guest guest]

smoonirish <smoonirish@...> wrote:

That's funny, because I will do it either way. My husband recently saw me

doing it your way, though (one sock, one shoe then the other set) and thought it

rather odd. I also often put my socks on first if I am wearing pants because

they are easier to pull up then.

P.

I asked him why he has to do both socks and then both shoes, instead

of one sock and then a shoe and then move to the next foot. He told

me it was crazy to do it my way. I had to chuckle. I gave in with the

sock thing remembering that I need to pick my battles, and he ended

up not wearing socks.

---------------------------------

Blab-away for as little as 1¢/min. Make PC-to-Phone Calls using

Messenger with Voice.

[Guest guest]

HI Darletta,

Welcome to the group. I have gotten an extreme amount of support from this

group.

I too have a 9yr old dd with ocd and other commorbid disorders, bp, odd, etc.

and have basically been down the same road. Going to so many doctors, therapies,

medications, etc, etc. I know what your going through!

Geodon works wonders for many children, but it didn't for my dd. She never

hallucinated before until she was on Geodon. She was ok at a moderate dose, but

they continued to raise it and she thought the tv was talking to her. She saw

sharks in the tub, toilet, and swimming pool. As soon as we discontinued it, it

stopped.

I wish you luck! My dd has also been on abilify(didn't do anything for her)

and risperdal, which gave her akathisia.

hugs

Judy

mom to Brittany-11-NT -going into 6th gr-high honor student

-Brittany's twin-3-29-95--4-7-95

-9-bp,ocd,odd, 50 mg seroquel 75mg trazadone 50mg zoloft going into reg

5th gr class-504plan

iel 4-ocd, speech problem-going into kindergarten-speech therapy, IEP

5.0mg prozac

[Guest guest]

Hi Darletta,

I have a 17 yr old son with OCD, dysgraphia and Aspergers

diagnoses. He also received OT quite a while back for writing

issues but they also helped with his sensory problems.

I'm wondering - why does the doctor just not try another SSRI med

and drop Zoloft?? Many times one SSRI is stopped, another

tried...which can be frustrating, but then *the* one that works is

tried. For instance we have only tried Celexa for my son and it

worked well for his OCD, tiredness was the side effect for him. But

someone else who tries Celexa might have their child have behavioral

side effects, agitation...and need to try another medication.

Was the wiping part of her initial behaviors when you sought out

help?

>

> Hi,

> I'm new to the group. I recently read the book " What

> To do When YOur Child has OCD " . In the book it talked

> about this on line support system and it sounded

> great.

> My daughter is 9 years old. She was diagnosed with OCD

> in 2/05. We began therapy and medication at that time.

> During the first few months she made great strides. We

[Guest guest]

Hello

I am on 75mg spiro and 12mg HCTZ,50mg atenolol and I just added

another one for my tight chest feeling called norvasc today.

I have too much adrenelin and dopemine on top of

aldosterone,testosterone,dhea. I have a tumor in my left adrenal.

Your symptoms having no period I believe are related to being on

Spiro but I am not sure. Sprio also blocks testosterone. Maybe

someone will comment on that who knows.Glad you found us.

ita

>

> Hi everyone

> I never knew a support group for Conn's Syndrome existed! I am

very

> relieved to know there actually is one.

>

> Now my story - back in Feb. '06 I had a CT scan done on my abdomin

> because of abdominal pain, well to my surprise they found a 2cm

tumor

> on my left adrenal gland. Of course I panicked! I didn't have a

clue

> to what this was! Actually, I was worried that it was cancer! Then

I

> did some research online and figured out that this tumor was

caused

> from the excess aldostrone. I knew it was the aldostrone because I

> remember reading some of my endocrinologists notes that he had

> written down on my file. In April he put me on potassium tablets,

but

> not for long. Then he put me on Spironolactone, this was in April

as

> well. The Spiro had caused horrible side effects - well, I had to

> suck it up and keep taking the Spiro. Mind you, I am only on 50

mgs.

> of Spiro, but I am still having side effects. I guess side effects

> effect everyone differently, no matter the dosage. Now the Spiro

has

> caused my periods to be irregular - you can never guess what my

Endo

> doc says it is? Yes, Peri-menopause! If that is the case, then why

> have my periods become irregular ever since I've started taking

> Spiro? Go figure! My periods were like clock work! I knew what

date I

> was going to have it! I ended up having to go to a new ob/gyn

doctor

> to have a biopsy done on my Uterus because of the irregular

periods!

> I still think it's the Spiro! Is anyone here taking Spironolactone

> for the adrenal tumor as well? I just want to compare notes. Oh

and

> another thing, the Spiro hasn't lowered my BP at all! It is still

> 165/103 and this really scares me. I had seem my primary doctor

today

> and he put me on a water pill (Hydrochlorothiazide - I know, a

long

> word!) Is anyone here taking this pill as well?

>

> Well anyway, this is my story.

>

> Have a wonderful day :-)

>

[Guest guest]

Hi Kathy

Welcome to the group. I guess I will start with saying that I think everyone's story and symptoms seem to be different. Also the reaction to drugs are very individual. Anyway I am male, so my experience with Spiro is definately going to be different from yours. I took Spiro for 8 months and got gynomastisis (sp), I went on it because it was tried and true and more predictable while I weaned myself off 7 BP meds, 2 of them BetaBlockers, they were the worst. After that I went on Inspra, it has been great. Absolutely no side effects, and I take quite a bit, 75 mg 3 times daily, 225 mg total. My understanding, and I hope someone will correct me if I am wrong, is that Spiro blocks or suppresses aldosterone and all the other "terones" like testosterone. But Inspra blocks the receptors that cause the reaction. I have done very well on Inspra but others have had problems.

I take nothing else except diet. I do not do well with anything with out following a strict low and as close to "no" sodium diet. I urge you to get a copy of the DASH diet and take the challenge. Nothing worked right for me until I DASHed totally. The links and files section can help you in your study.

I wish you luck, you are in the right place. Ask questions, there are a lot of very helpful and knowledgeable people here. When I got here I thought these people were the greatest people in the whole world and guess what, I still do. I really wish that I could meet so many of them in person.

Bless you all, Randy

<><May we all be DASHing!!><>-- "kathy11961" <kathy11961@...> wrote:

Hi everyoneI never knew a support group for Conn's Syndrome existed! I am very relieved to know there actually is one.Now my story - back in Feb. '06 I had a CT scan done on my abdomin because of abdominal pain, well to my surprise they found a 2cm tumor on my left adrenal gland. Of course I panicked! I didn't have a clue to what this was! Actually, I was worried that it was cancer! Then I did some research online and figured out that this tumor was caused from the excess aldostrone. I knew it was the aldostrone because I remember reading some of my endocrinologists notes that he had written down on my file. In April he put me on potassium tablets, but not for long. Then he put me on Spironolactone, this was in April as well. The Spiro had caused horrible side effects - well, I had to suck it up and keep taking the Spiro. Mind you, I am only on 50 mgs. of Spiro, but I am still having side effects. I guess side effects effect everyone differently, no matter the dosage. Now the Spiro has caused my periods to be irregular - you can never guess what my Endo doc says it is? Yes, Peri-menopause! If that is the case, then why have my periods become irregular ever since I've started taking Spiro? Go figure! My periods were like clock work! I knew what date I was going to have it! I ended up having to go to a new ob/gyn doctor to have a biopsy done on my Uterus because of the irregular periods! I still think it's the Spiro! Is anyone here taking Spironolactone for the adrenal tumor as well? I just want to compare notes. Oh and another thing, the Spiro hasn't lowered my BP at all! It is still 165/103 and this really scares me. I had seem my primary doctor today and he put me on a water pill (Hydrochlorothiazide - I know, a long word!) Is anyone here taking this pill as well? Well anyway, this is my story. Have a wonderful day :-)

[Guest guest]

Hello Kathy, and welcome to the group, although I'm sorry you have to

be here! I think that Spiro can cause some strange side effects, you

could ask your doc re/prescribing Inspra instead. It's seems to me

that when my doc prescribed the Inspra for me he said it had less side

effects than the Spiro...but that was awhile ago and my memory is not

the greatest! The dose you are on seems small, most of us are on other

BP meds in addition to the Spiro/Inspra...I also take Maxzide

(switched from HCTZ because of continuing low potassium), Toprol XL, &

Verapamil. You should read Dr. Grim's reports in the " files " section,

lots of good info there to start you out. Are you getting your

potassium checked regularly? Well -- welcome! Hopefully, you will be

able to get that BP down soon...

Kim

- " kathy11961 " <kathy11961@...> wrote:

>

> ...Now my story - back in Feb. '06 I had a CT scan done on my

abdomin because of abdominal pain, well to my surprise they found a

2cm tumor on my left adrenal gland... Spiro hasn't lowered my BP at

all! It is still 165/103 and this really scares me. I had seem my

primary doctor today and he put me on a water pill

(Hydrochlorothiazide - I know, a long word!) Is anyone here taking

this pill as well? >

[Guest guest]

Thank you all for welcoming me to the group! I am so pleased to have

found this place! Actually I posted on WebMB and someone there gave

me the link to this group.

This disease or whatever you want to call it has me VERY confused! My

Endo doc never seems to explain things to me so I end up having to

ask my primary doc everything. I seen my primary doc yesterday and I

asked him if the tumor was causing my BP to be high - he said no!

Ooookaaay, go figure that one! Anyway, the only way I knew what was

going on was I had to be sneaky and look at my files on my Endo's

desk while he was out of the room. I do remember seeing Aldostrone.

The only tests he did was blood work and a 24 hour urine test. I

don't have another appointment to see him (Endo doc) until next

March! That will be after my next 6 month CT scan to check the tumor.

I've been reading the posts and see a lot about AVS sampling - should

I have this test done?

To be honest with you, when I was first told about the tumor and it

being 2 cm, I was worried about it being cancer. Is there anyway they

can know this as well? My Endo doc kind of scared me the last time I

seen him because I said " this isn't cancer? " then he replied " we're

not sure yet " - well if it's producing too much aldostrone wouldn't

it NOT be cancer? I would think if he thinks it's cancer then he

should be moving a bit quicker and not deciding to do the scans every

6 months. I just wish he would explain things to me!

Kathy