Guest guest Posted October 11, 2005 Report Share Posted October 11, 2005 Hi & welcome to the group! I too am a patient of Dr. Shoemaker's since 2003 and think the world of him! I can't agree more about the motels. I honestly think the health department inspectors must be blind. The bldg. where I worked was proof of that. Even if there had been no mold the flith alone was enough to make you sick & the inspectors never said a word. We were recently in a Comfort Inn in PA . We noticed a leak in the ceiling & a very wet carpet & asked to be moved immediately. Scared me to death since I am sooooo sensitive. I had some extra CSM with me & I doubled my dose right away. I didn't have any problems but I couldn't wait to check out!!!!! Hope you will be feeling better soon. It took me a while to feel human again, it's been a long road but I'm doing so much better. Can I ask if you are still taking prednisone for the pneumonitis, the pain or both? Are you going to be weaned off of it soon? I'm asking because I have a good friend who is on steroids and wants despertly to get off of them asap! Sue I AM NEW TO THIS SITE AND WAS EXPOSED TO MOLD OVER A TWO MONTH PERIOD IN A MOTEL ROOM IN SOUTH CAROLINA. IT HAPPENED 3YEARS AGO AND I'M STILL VERY SICK. HYPERSENSITIVITY PNEUMONITIS AND ALL OF THE BIOTOXIN RELATED ILLNESSES THAT COME ALONG WITH THE EXPOSURE. I'VE BEEN ON PREDNISONE FOR OVER 2 AND HALF YEARS. BEEN SEEING DR. SHOEMAKER SINCE FEB. BIOMARKERS WERE OFF THE CHARTS. HOW DO THESE MOTELS AND HOTELS GET BY WITH THIS? ISN'T THERE SOME HEALTH DEPT THAT INSPECTS THESE PLACES? THIS IS MORE WIDE SPREAD THAN PEOPLE CAN IMAGINE I'M SURE. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2005 Report Share Posted October 12, 2005 >EVERYTIME I TRY TO WEEN OFF THE PREDNISONE I GET PNEUMONIA OR SOME LUNG INFECTION. I BEEN UP AND DOWN FROM 60MG TO 10MG, CURRENTLY BACK UP TO 40MG DAILY. IT'S BEEN HELL WITH SIDE EFFECTS AND ALL BUT IT'S THE ONLY THING KEEPING ME ALIVE RIGHT NOW, AT LEAST UNTIL I CAN GET THESE BIOMARKER BACK IN LINE. I WAS ON CSM 4TIMES A DAY FOR 5 MONTHS, BUT HAVE CUT BACK TO TWICE DAILY. > > > > Hi & welcome to the group! I too am a patient of Dr. Shoemaker's since 2003 > and think the world of him! I can't agree more about the motels. I honestly > think the health department inspectors must be blind. The bldg. where I > worked was proof of that. Even if there had been no mold the flith alone was > enough to make you sick & the inspectors never said a word. > We were recently in a Comfort Inn in PA . We noticed a leak in the ceiling > & a very wet carpet & asked to be moved immediately. Scared me to death > since I am sooooo sensitive. I had some extra CSM with me & I doubled my dose > right away. I didn't have any problems but I couldn't wait to check out!!!!! > Hope you will be feeling better soon. It took me a while to feel human > again, it's been a long road but I'm doing so much better. Can I ask if you are > still taking prednisone for the pneumonitis, the pain or both? Are you going to > be weaned off of it soon? I'm asking because I have a good friend who is on > steroids and wants despertly to get off of them asap! > Sue > > I AM NEW TO THIS SITE AND WAS EXPOSED TO MOLD OVER A TWO MONTH > PERIOD IN A MOTEL ROOM IN SOUTH CAROLINA. IT HAPPENED 3YEARS AGO AND > I'M STILL VERY SICK. HYPERSENSITIVITY PNEUMONITIS AND ALL OF THE > BIOTOXIN RELATED ILLNESSES THAT COME ALONG WITH THE EXPOSURE. I'VE > BEEN ON PREDNISONE FOR OVER 2 AND HALF YEARS. BEEN SEEING DR. > SHOEMAKER SINCE FEB. BIOMARKERS WERE OFF THE CHARTS. > HOW DO THESE MOTELS AND HOTELS GET BY WITH THIS? ISN'T THERE SOME > HEALTH DEPT THAT INSPECTS THESE PLACES? THIS IS MORE WIDE SPREAD THAN > PEOPLE CAN IMAGINE I'M SURE. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2005 Report Share Posted October 12, 2005 From: " moldwarrior2k6 " <moldwarrior2k6@...> > >>EVERYTIME I TRY TO WEEN OFF THE PREDNISONE I GET PNEUMONIA OR SOME > LUNG INFECTION. I BEEN UP AND DOWN FROM 60MG TO 10MG, CURRENTLY BACK > UP TO 40MG DAILY. IT'S BEEN HELL WITH SIDE EFFECTS AND ALL BUT IT'S > THE ONLY THING KEEPING ME ALIVE RIGHT NOW, AT LEAST UNTIL I CAN GET > THESE BIOMARKER BACK IN LINE. I WAS ON CSM 4TIMES A DAY FOR 5 MONTHS, > BUT HAVE CUT BACK TO TWICE DAILY. I'm so sorry. What are your side effect from the prednisone if you wish to share? 40 mg is a hefty dose. Are you taking all early morning or dividing into two doses? I understand you need the prednisone currently and tapering off will take a number of months. Please don't try to do this yourself. Rosie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2005 Report Share Posted October 12, 2005 -- Thanks for the info! What type of side effects do you experience? Sue >EVERYTIME I TRY TO WEEN OFF THE PREDNISONE I GET PNEUMONIA OR SOME LUNG INFECTION. I BEEN UP AND DOWN FROM 60MG TO 10MG, CURRENTLY BACK UP TO 40MG DAILY. IT'S BEEN HELL WITH SIDE EFFECTS AND ALL BUT IT'S THE ONLY THING KEEPING ME ALIVE RIGHT NOW, AT LEAST UNTIL I CAN GET THESE BIOMARKER BACK IN LINE. I WAS ON CSM 4TIMES A DAY FOR 5 MONTHS, BUT HAVE CUT BACK TO TWICE DAILY. Quote Link to comment Share on other sites More sharing options...
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