Re: toxic mold illness-

[Guest guest]

PS: Care to share your initial symptoms?

Rosie

> WHAT WERE YOUR INITIAL SYMPTOMS, ROSIE, CAN I ASK?

> V.

[Guest guest]

SEVEREEEEEEEEEEEEEEEEEEE PAIN IN MY BACK & LEGS....FOLLOWED BY SUDDEN

NEAR-PARALYSIS, FROM WAIST DOWN. TOOK MONTHS TO WALK AGAIN.

V.

Re: [] toxic mold illness-

> PS: Care to share your initial symptoms?

> Rosie

>

>

>

>> WHAT WERE YOUR INITIAL SYMPTOMS, ROSIE, CAN I ASK?

>> V.

>

>

>

>

> FAIR USE NOTICE:

>

>

>

[Guest guest]

I SHOULD MENTION THAT I INHALED A POWDER-LIKE SUBSTANCE JUST PRIOR TO

ONSET....I KNOW NOW, THAT I GOT CAUGHT IN A MOLD PLUME.

VICTORIA

:>(

Re: [] toxic mold illness-

>

>

>> PS: Care to share your initial symptoms?

>> Rosie

>>

>>

>>

>>> WHAT WERE YOUR INITIAL SYMPTOMS, ROSIE, CAN I ASK?

>>> V.

>>

>>

>>

>>

>> FAIR USE NOTICE:

>>

>>

>>

[Guest guest]

Dear : Forgive me for causing you undue concern for my present

condition. I only posted in response to my initial symptoms. I

left out a few years. Even though, just thinking back of all the symptoms

and having to type them out was very painful and I had to stop. I can

honestly say overall I'm 75% better than initially. I do have multiple

chemical sensitivities, not as severe as originally but enough to keep me

from having a normal life: being able to have my health consulting practice

again, giving lectures in public and still have to be careful to avoid

exposures and I will react to chemicals and fragrances; especially perfumes,

toiletries, bleach, pesticides and unable to tolerate a beauty shop (sigh)

nor visit some friends and family members whose homes are not safe for me.

I'm walking, even climbed up on our roof with the contractors last Friday a

number of times, been up on that roof many times since damaged in May, doing

all my own shopping, errands, housekeeping, gardening, cooking, pressure

washing, minor repairs, etc. I have to pace myself, fatigue is still a

problem, and when I'm exposed I will react. My cognitive function are

returning, my left brain abilities are still diminished, I can add 1+1 but

still cannot access some of my education and clinical experience which is so

frustrating for me. My spelling is still not good (thank God for spell

check) and when totally exhausted my mind will take a mini-vacation. My

lungs are compromised so have to be extremely careful and use protective

masks whenever possible. My body has not regenerated and have to constantly

remind myself to slow down and use prevention. Right before Hurricane Rita

had gone to HomeDepot and other stores so often that week that my body

finally had enough Friday before Rita arrived. My legs didn't want to

support me, my chest hurt, etc so walk outside and sat on the curb in the

parking lot until I recovered enough to drive home slowly.

I'm pleased you saw some of your symptoms in the little history I shared

with you all. Pleased because it verifies that you have an actual illness

and not something that you are imagining or something so rare that only you

or your children have. Please accept the symptoms for what they are related

to even though your doctors do not have a name or solution. Take them

serious, we cannot deny our symptoms or illness. It's real even if our

M.D.'s do not understand them. My wonderful internist didn't either, he

was perplexed and did what he could to save my life. I'm forever grateful

to him. He cried when they had to inject me with the steroids, he phoned me

every night prior to and after hospitalization. He visited me in the

hospital that even and early the next morning. A more compassionate and

caring doctor I couldn't find; yet he couldn't diagnose me. I honestly can

say I was fortunate to have had him.

I know dear how frustrating and frightening it is to be so ill not

understanding our illness nor what the next symptom will be. I cannot even

imagine how much more difficult and painful it is for you having sick little

ones. My heart aches for them. How I remember those days thinking if I

moved an inch the pain would be unbearable. My heart aches also for all

those who haven't found this group or some group or internet site that can

help them to put the pieces of their symptoms together to see the full

picture of why they are so ill. I was fortunate to have a nutrition and

herbal background, a huge inventory from my practice and could experiment on

myself and help myself to regain as much as I have. Most don't have this

luxury. There are still days when I have an exposure or have worked too

hard I will " loose " it; I cannot concentrate, can't construct a sentence or

answer an email. I'm just too exhaust and spend. My chest will hurt, I've

been close to pleurisy many times and have halted it. My legs and feet

still swell at times. My internal thermostat is still not normal. I'm

still researching and seeking solutions for my multiple chemical sensitive's

other than avoidance which is impossible. My home is not 100% safe but I

have a safe bedroom and I'm sure you have a safe bedroom for yourself and

your children. My dream is one day if our list owner will allow to ask you

all to share your symptoms and treatments with me privately to learn more

from you as I continue my research with alternative protocols. So much to

do, not enough time or energy.

I'm pleased what symptoms and I shared with you caused a

reality check in you and allowed you to express your emotions. This is good

and your venting is positive, we must not harbor our feelings and this is

one reason I so appreciate this group. So often we have displaced

anger..smiles and hugs before I say this....projecting or displaced anger;

the darn mold made us ill, yes I realize this is a multifaceted spider web

of how did the mold get there, why didn't someone clean it up, why didn't

someone warn us, why won't they diagnose us, why won't they admit to

themselves and us mold is the enemy, why are not billions of dollars being

given for research.....displaced " danger/anger " makes the un-powerful (us,

the mold survivors) even more un-powerful. And it's cyclic: the more often

one gets angry and looses power and control, the more they get angry and

loose even more power. Someone who learns to manage their displaced anger

has learned they hurt themselves by getting angry that it could ever hurt

the target. Anger uses up a lot of emotional energy, that if identified and

used for positive action builds healthy attitudes and behaviors that satisfy

and build self responsibility and health. And being able to take that real

anger and direct it to the cause of the anger is healthy and healing if we

have an audience that will understand our anger. This group is the audience

and very healthy for us all.

I remember early on being so angry with my body for failing me, angry with

the darn mold, angry that I had lost power over my body that I might yell at

my poor husband for nothing--displaced anger or projecting. I remember he

would yell at me when I reacted to something he had on---was he really angry

with me or my illness? I learned to warn my husband during bad times I love

him, it's not personal but I'm just in a bad mood or I might avoid him so I

wouldn't project and hurt him. Don't children do this, don't we see this

displaced and projected anger in so many circumstances daily. Anger is a

warning to us, what we do with the anger is our responsibility; we've been

so injured physically and emotionally, do we have a right to project our

anger onto others and waste what precious energy we have in ourselves or do

we use this group and/or other avenues to vent, discuss, brainstorm with

only those who truly understand.

I'll be praying for you and your little ones . You are taking

responsibility, you are doing your best to provide for a safe home for

yourself and them and I'm proud of you. You are taking responsibility for

what you can, learning and educating yourself and then you can educate

others.

Bless you and big hugs of compassion. I'm here for you and I know the other

group members are also,

Rosie

> Rosie,

> Our family is sorry you are having to go thru this also. It's interesting

> to me when some of you share your symptoms. Sometimes I try to push aside

> symptoms, as just being something else. Or, a symptom that I am having or

> the kids are having that I would like it to be a different explanatiion,

> something that a doctor could have a name for, and a solution, but they

> don't. Then I hear some of your symptoms, and I just can't believe that

> they are so simialar. Well, I can believe, but it is just sad that sooooo

> many have to suffer for something that just seems so simple to many of us.

> Everytime someone hear shares a symptom, or several, I feel better knowing

> that it is just not us. But, on the other hand it just irritates me that

> no

> one will just say " Yes, you are right. Mold will do this. " I don't care

> if

> they have treatment or not. Geez, just tell us it does. We know already

> know it. It would make it so much easier for victims to find help (Like

> Dr.

> Shoemaker) if they would just say yes it does, I can't help with it, but

> here is someone who can. Or this mold is making you sick, your symptoms

> are

> from the exposure, you will need to find a specialist. How many times

> have

> they poked you? How many times have they poked our kids, to the point of

> histeria when they hear a visit to a doctor? Just to tell us nothing is

> wrong, you/your kids are perfectly healthy, while go home thinking your

> going to die you are so sick.

> WOW!!!! Excuse that venting episode I just had, but boy that felt good.

> Most days I'm alright, but after reading Rosie and 's symptoms

> tonight, and relating many of the symptoms here at home, it just got the

> better of me.

> I hope you both will have better days to come.

>

[Guest guest]

I'm so sorry . This severe pain I understand. Don't think ever felt

such pain. thank you for sharing. What's interesting we both had the

horrific leg pain and then the sudden near-paralysis. If I recall the onset

of the horrific pain---not the usual leg pain was about 2 hours in the

recliner until my legs failed me. Any idea what actually caused this? I've

been trying to figure this out for ages.

Once in a while some of the pain will return in my legs with instability and

I have to get to work immediately to halt the progression. Same for you?

Rosie

Re: [] toxic mold illness-

> SEVEREEEEEEEEEEEEEEEEEEE PAIN IN MY BACK & LEGS....FOLLOWED BY SUDDEN

> NEAR-PARALYSIS, FROM WAIST DOWN. TOOK MONTHS TO WALK AGAIN.

> V.

[Guest guest]

, the pain you are discribing is EXACTLY what I experienced yrs. ago. I

had chronic sinus problems, allergies, coughs, etc. But in the fall of2003 I

knew something was terribly wrong. My legs just burned from my knee area to

my hips which lasted for over two months then everything began to hurt!!

Muscles, joints, bottoms of my feet, hands, etc. I was limping and couldn't

even

squeeze toothpaste from a tube. My vision was fuzzy , slurred speech, muscle

twitches, blinding headaches. Over the months even stranger things began

that would take a pages to explain. If you care to talk on the phone I'll be

happy to call you anytime.

Sue

Rosie, The freezer/burn pain that you discribed, does this feel like

a deep sunburn in the muscles?

SW

[Guest guest]

Rosie,

You are so right in saying our pain is real!! Drs. will tell us we're just

depressed, menopausal, it's arthritis, or their favorite, it must be a

virus!!!!

We are real people with a REAL illness and the medical community needs to

wake up, read & accept the proof that is out. I just wish there were enough

understanding Drs. around to help everyone. If only they would listen so many

could be helped.

At least we have each other until they do!!

Sue

It's good we can share and compare. At least we know it's not in our head

and there are more like us, even though with different degrees of symptoms,

and we can assure each other our illness is real.

Rosie

[Guest guest]

HI ROSIE--FORGIVE THE CAPS, PLEASE--MY EYESIGHT. SOME DAYS BETTER THAN

OTHERS.

I THOUGHT I'D DIE FROM THE PAIN, ROSIE--IT WAS DUE TO SWELLING,

INFLAMMATION, & DEMYELINATION OF MY SPINAL CORD--AT LEVEL OF L 1-2, BUT IT

CAN HAPPEN AT ANYYYYYY LEVEL. I AWOKE LIKE THIS, AFTER 4 DAYS OF AWFUL BACK

PAIN... & THE FREEZE/BURN PAIN I NOW FEEL 24/7 NEVER EVER GOES AWAY. I WAS

PRETTY MUCH PARALYZED, ROSIE--I COULDN'T EVEN STAND UP BETWEEN PARALLEL

BARS, & TO ROLL OVER IN BED INITIALLY, I HAD TO USE MY HANDS TO PULL MY LEGS

OVER WITH MY BODY. MY NEURO CALLS ME HIS " WALKING MIRACLE. "

DID U HAVE AN MRI? THAT SHOWED THE INFLAMMATION, ETC., OF MY CORD. ALSO,

DID U HAVE A SPINAL TAP? I'D BE VERY INTERESTED IN KNOWING WHAT THAT

SHOWED, AS WELL. DO YOU KNOW?

WHAT DO YOU MEAN YOU HAVE TO GET TO WORK STAT, TO STOP PROGRESSION? HOW DO

U DO THAT? I'M UNSTABLE 24/7, ROSIE. I HAVE NO BALANCE HARDLY AT ALL. I

STILL FALL FREQUENTLY, ETC..... & IF I'M UNDER ALOT OF STRESS,

FORGETTTTTTTTTTTT IT!

WHEN MY DAD HAD OPEN HEART SURGERY A YR AFTER I GOT SICK, IT PUT ME RIGHT

BACK IN A WHEELCHAIR.....

TAKE CARE, ROSIE, & PLEASE STAY IN TOUCH!

VICTORIA

Re: [] toxic mold illness-

>

>

>> SEVEREEEEEEEEEEEEEEEEEEE PAIN IN MY BACK & LEGS....FOLLOWED BY SUDDEN

>> NEAR-PARALYSIS, FROM WAIST DOWN. TOOK MONTHS TO WALK AGAIN.

>> V.

>

>

>

>

> FAIR USE NOTICE:

>

>

>

[Guest guest]

Good morning :

I understand about the caps! Trust me. I have about 6 different strengths

of reading glasses at home. My vision changed so much and so often that I

decided would be easier to go to BigLots and buy a number of reading glasses

so I could see. Even now, when exposed or exhausted or yes.....having

severe stress as I did with the Hurricane preparations and then trying to

deal with the contractors....my vision changes and so do my symptoms.

Emotions play a major factor in our dis-tress as you indicated.

I thought I would die from the pain also, had no idea what was happening.

It's a horrific pain. I just wonder how many others have been affected to

some degree as you and I have. Mine was much less severe as is yours. And

I'm still trying to remember what I did or what I was exposed to that day to

cause the paralysis of my legs.

Hope you are sitting down when I tell you this. I had no MRI nor spinal

tap. Nothing. Long story and I'd rather discuss this with you on the phone

rather than on the group. lol we ladies have to have some secrets from the

world don't we...giggles.

Like you when I've overworked myself or over exposed or stressed-out (like

that day in Home Depot where I felt my legs giving out on me and being

unable to breathe plus the chest pains returning) I had to get out of that

building without paying, sit on the parking lot curb and just wait. I've

learned through experimenting with my own body what supplements and herbs

and salves to use that will help and stop the symptoms from becoming more

severe. I'd rather not post to the group because again we are all different

and wouldn't want anyone to try something that worked for me but could have

an adverse affect on them since we are all so different and react

differently to any thing we put into our bodies. Be happy to talk to you on

phone if you want and we can chat and share if you like.

Being under a lot of stress my legs will start to grumble and I have to

catch myself from falling (the last climb on that roof Friday did me in) and

also my arms will fail me (I drop things) if under stress or over exposed.

I wish someone had some viable solutions to MCS other than exposures.

If you'd like to chat on phone, send me your phone number. I have free

unlimited long-distance in the U.S. This morning I need to get some fall

vegetables and herbs into the ground since I'm so late already.

Yes, let's do keep in touch, we seem to have similar symptoms but mine are

not as severe as yours.

Hugs of compassion,

Rosie

Re: [] toxic mold illness-

> HI ROSIE--FORGIVE THE CAPS, PLEASE--MY EYESIGHT. SOME DAYS BETTER THAN

> OTHERS.

>

> I THOUGHT I'D DIE FROM THE PAIN, ROSIE--IT WAS DUE TO SWELLING,

> INFLAMMATION, & DEMYELINATION OF MY SPINAL CORD--AT LEVEL OF L 1-2, BUT IT

> CAN HAPPEN AT ANYYYYYY LEVEL. I AWOKE LIKE THIS, AFTER 4 DAYS OF AWFUL

> BACK

> PAIN... & THE FREEZE/BURN PAIN I NOW FEEL 24/7 NEVER EVER GOES AWAY. I WAS

> PRETTY MUCH PARALYZED, ROSIE--I COULDN'T EVEN STAND UP BETWEEN PARALLEL

> BARS, & TO ROLL OVER IN BED INITIALLY, I HAD TO USE MY HANDS TO PULL MY

> LEGS

> OVER WITH MY BODY. MY NEURO CALLS ME HIS " WALKING MIRACLE. "

>

> DID U HAVE AN MRI? THAT SHOWED THE INFLAMMATION, ETC., OF MY CORD. ALSO,

> DID U HAVE A SPINAL TAP? I'D BE VERY INTERESTED IN KNOWING WHAT THAT

> SHOWED, AS WELL. DO YOU KNOW?

>

> WHAT DO YOU MEAN YOU HAVE TO GET TO WORK STAT, TO STOP PROGRESSION? HOW

> DO

> U DO THAT? I'M UNSTABLE 24/7, ROSIE. I HAVE NO BALANCE HARDLY AT ALL. I

> STILL FALL FREQUENTLY, ETC..... & IF I'M UNDER ALOT OF STRESS,

> FORGETTTTTTTTTTTT IT!

>

> WHEN MY DAD HAD OPEN HEART SURGERY A YR AFTER I GOT SICK, IT PUT ME RIGHT

> BACK IN A WHEELCHAIR.....

>

> TAKE CARE, ROSIE, & PLEASE STAY IN TOUCH!

> VICTORIA

[Guest guest]

Rosie, The freezer/burn pain that you discribed, does this feel like

a deep sunburn in the muscles? I get this where my upper leg meets

my butt. It is very painful. Feels like someone cracked me a good

wallop with a 2X4. Is this what you are discribing? (deep in the

muscle?) Also I have a discharge from my eyes and vision problems

for months.

SW

>

> I thought I would die from the pain also, had no idea what was

happening.

> It's a horrific pain. I just wonder how many others have been

affected to

> some degree as you and I have. Mine was much less severe as is

yours. And

> I'm still trying to remember what I did or what I was exposed to

that day to

> cause the paralysis of my legs.

[Guest guest]

Hi :

I think used the description " freezer/burn " . My " heat " pain is

usually in my upper back, feels as if my back is on fire with deep muscle

pain extending down to the bone. When my upper arms and shoulders are

inflamed and painful the pain seems to be all the way in my bones also. I

start feeling my upper arms and whenever I can fell an " ouch " spot with

tight, knotted muscles will gentle try to work them out and do get some

relief. This is part of my MCS. I can tolerate some 100% pure essential

oils and infused herbal oils and will usually massage a home made salve

(have a number of them) on my aching parts and then work on the " ouch "

spots.

It's good we can share and compare. At least we know it's not in our head

and there are more like us, even though with different degrees of symptoms,

and we can assure each other our illness is real.

Rosie

[] Re: toxic mold illness-

> Rosie, The freezer/burn pain that you discribed, does this feel like

> a deep sunburn in the muscles? I get this where my upper leg meets

> my butt. It is very painful. Feels like someone cracked me a good

> wallop with a 2X4. Is this what you are discribing? (deep in the

> muscle?) Also I have a discharge from my eyes and vision problems

> for months.

>

> SW

[Guest guest]

Thanks Rosie and , It IS better to know that this is " not in

our heads " and to share our symptoms. I never get any warning that

the " burning pain " is coming on, it just hits. I tried massage and

hot

baths, nothing worked except time. It also comes with leg cramps at

night. It goes away after a few weeks. But, it sure is PAINFUL! I

can

only describe it as a sunburn like pain that goes deep into the

muscle

from just above my knees to my lower butt. My doc had a name for it

and I looked it up, but I forgot the name. He suspected it had

something to do with L 3,4, & 5 in my lower back which I damaged.

Just after I started at my job my left arm went numb(last august

2004), he thought I pinched a nerve ending from typing. No strength

in

my left arm at all. This took 6 months to go away.

I live in Canada so I am not sure if your Long distance applies to

calling me, but thanks for the offer. I have no long distance plan

at

all and $$$ is tight. On a good note, my Employment insurance was

approved yesterday so I should have an income next week (just in

time

to fill my oil tank LOL) I am going to vacuum out my duct work today

and clean my filters too.

My son wants to get a small electric

fireplace to heat the living room/kitchen area (my house is small),

that should keep the oil cost down and also the dust from blowing

through the house. They are on sale right now and look so beautiful,

the fake flames are soooooo soothing, LOL. (I need a man to share it

with though, single life ain't great) I'm bored silly not working.

I sure wish I could breathe normally though, my

lungs are killing me, filled right up and when I laugh the coughing

fit near kills me, and I can't get in to see my doc

until end of the month. I guess the two main problems right now are

my

lungs and eyes, the aches have gone away for now, so has my low

fever.

Take care, SW

[Guest guest]

After we switch to electric fireplaces ($149/each Canadian) to keep

the dust down, my son wants to rip out all the carpets and put down

Hardwood floors and tile.

(I will leave the house when they do this)That should also help with

dust, besides, I HATE vacuuming.

I figure electric is healthier than forced air heating and carpets,

well what can one say......a dust collector.

My son is 17 and works like a dog. He worked all summer at two jobs

(70-80 hrs/week) I am very lucky to have him for a son or we would not

have made it through the last two months. $$$$ was Soooooo tight with

me not working. Santa is going to be SOoooo good to him this year LOL.

We are also shopping at farmer's markets a lot to avoid pesticides.

NOTHING tastes like a free range chicken, yummmmmm. I will never buy

chicken from a store again!

Take care, SW

[Guest guest]

Absolutely, without a doubt my illness is due to the toxic mold in my

school.

Sue

AND DO YOU ATTRIBUTE THAT TO MOLD TOO, SUE?

THANKS,

VICTORIA

[Guest guest]

THAT'S ABOUT IT, MARY--SOMETIMES (ESP. IN THE COLD MONTHS) MY LEGS & FEET

ARE LIKE ICE CUBES TO TOUCH--I HAVE FREEZE/BURN FROM WAIST DOWN, PRETTY

MUCH.... & THE BACKS OF MY LEGS & MY BUTT ARE VERYYYYYYYY NUMB. I CUT MYSELF

SHAVING MY LEGS , FOR EXAMPLE-- & DON'T FEEL IT.

VICTORIA

[] Re: toxic mold illness-

> Rosie, The freezer/burn pain that you discribed, does this feel like

> a deep sunburn in the muscles? I get this where my upper leg meets

> my butt. It is very painful. Feels like someone cracked me a good

> wallop with a 2X4. Is this what you are discribing? (deep in the

> muscle?) Also I have a discharge from my eyes and vision problems

> for months.

>

> SW

>

>

>

>>

>> I thought I would die from the pain also, had no idea what was

> happening.

>> It's a horrific pain. I just wonder how many others have been

> affected to

>> some degree as you and I have. Mine was much less severe as is

> yours. And

>> I'm still trying to remember what I did or what I was exposed to

> that day to

>> cause the paralysis of my legs.

>

>

>

>

>

>

>

> FAIR USE NOTICE:

>

>

>

[Guest guest]

THANKS MUCH FOR THIS EMAIL, ROSIE-- & IT WAS GREAT TO TALK TO YA TODAY!

HUGS BACK AT YA!

VICTORIA

Re: [] toxic mold illness-

>

>

>> HI ROSIE--FORGIVE THE CAPS, PLEASE--MY EYESIGHT. SOME DAYS BETTER THAN

>> OTHERS.

>>

>> I THOUGHT I'D DIE FROM THE PAIN, ROSIE--IT WAS DUE TO SWELLING,

>> INFLAMMATION, & DEMYELINATION OF MY SPINAL CORD--AT LEVEL OF L 1-2, BUT

>> IT

>> CAN HAPPEN AT ANYYYYYY LEVEL. I AWOKE LIKE THIS, AFTER 4 DAYS OF AWFUL

>> BACK

>> PAIN... & THE FREEZE/BURN PAIN I NOW FEEL 24/7 NEVER EVER GOES AWAY. I

>> WAS

>> PRETTY MUCH PARALYZED, ROSIE--I COULDN'T EVEN STAND UP BETWEEN PARALLEL

>> BARS, & TO ROLL OVER IN BED INITIALLY, I HAD TO USE MY HANDS TO PULL MY

>> LEGS

>> OVER WITH MY BODY. MY NEURO CALLS ME HIS " WALKING MIRACLE. "

>>

>> DID U HAVE AN MRI? THAT SHOWED THE INFLAMMATION, ETC., OF MY CORD.

>> ALSO,

>> DID U HAVE A SPINAL TAP? I'D BE VERY INTERESTED IN KNOWING WHAT THAT

>> SHOWED, AS WELL. DO YOU KNOW?

>>

>> WHAT DO YOU MEAN YOU HAVE TO GET TO WORK STAT, TO STOP PROGRESSION? HOW

>> DO

>> U DO THAT? I'M UNSTABLE 24/7, ROSIE. I HAVE NO BALANCE HARDLY AT ALL.

>> I

>> STILL FALL FREQUENTLY, ETC..... & IF I'M UNDER ALOT OF STRESS,

>> FORGETTTTTTTTTTTT IT!

>>

>> WHEN MY DAD HAD OPEN HEART SURGERY A YR AFTER I GOT SICK, IT PUT ME RIGHT

>> BACK IN A WHEELCHAIR.....

>>

>> TAKE CARE, ROSIE, & PLEASE STAY IN TOUCH!

>> VICTORIA

>

>

>

>

> FAIR USE NOTICE:

>

>

>

[Guest guest]

And people thought I was kidding about the pain! And yes I also had

trouble shaving too LOL. Used to take hot baths just to get warm!

If I find out the name the doc gave for this condition I will post

it OK? Take Care. SW

> >>

> >> I thought I would die from the pain also, had no idea what was

> > happening.

> >> It's a horrific pain. I just wonder how many others have been

> > affected to

> >> some degree as you and I have. Mine was much less severe as is

> > yours. And

> >> I'm still trying to remember what I did or what I was exposed to

> > that day to

> >> cause the paralysis of my legs.

> >

> >

> >

> >

> >

> >

> >

> > FAIR USE NOTICE:

> >

> >

> >

[Guest guest]

,

In reading your post you may be referring to two different conditions:

Hypoxemia- lack of oxygen to the brain, lungs and circulatory system

Damage to the Autonomic Nervous System (ANS)- the one that regulates body

temperature, heart rate and pulse.

I have both- no picnic- especially the compromised Autonomic Nervous System- In

cold weather I sweat profusely; in warm weather I am cold and shivering.

Yanni from California

[] Re: toxic mold illness-

And people thought I was kidding about the pain! And yes I also had

trouble shaving too LOL. Used to take hot baths just to get warm!

If I find out the name the doc gave for this condition I will post

it OK? Take Care. SW

> >>

> >> I thought I would die from the pain also, had no idea what was

> > happening.

> >> It's a horrific pain. I just wonder how many others have been

> > affected to

> >> some degree as you and I have. Mine was much less severe as is

> > yours. And

> >> I'm still trying to remember what I did or what I was exposed to

> > that day to

> >> cause the paralysis of my legs.

> >

> >

> >

> >

> >

> >

> >

> > FAIR USE NOTICE:

> >

> >

> >

[Guest guest]

you're welcome, mary, & like you said its surely NOT in our

heads.....despite what some others may think. this whole scenario stinks, &

i'm soooo sick of all of it.

take care, hon, & God bless,

victoria

[] Re: toxic mold illness-

> Thanks Rosie and , It IS better to know that this is " not in

> our heads " and to share our symptoms. I never get any warning that

> the " burning pain " is coming on, it just hits. I tried massage and

> hot

> baths, nothing worked except time. It also comes with leg cramps at

> night. It goes away after a few weeks. But, it sure is PAINFUL! I

> can

> only describe it as a sunburn like pain that goes deep into the

> muscle

> from just above my knees to my lower butt. My doc had a name for it

> and I looked it up, but I forgot the name. He suspected it had

> something to do with L 3,4, & 5 in my lower back which I damaged.

> Just after I started at my job my left arm went numb(last august

> 2004), he thought I pinched a nerve ending from typing. No strength

> in

> my left arm at all. This took 6 months to go away.

> I live in Canada so I am not sure if your Long distance applies to

> calling me, but thanks for the offer. I have no long distance plan

> at

> all and $$$ is tight. On a good note, my Employment insurance was

> approved yesterday so I should have an income next week (just in

> time

> to fill my oil tank LOL) I am going to vacuum out my duct work today

> and clean my filters too.

> My son wants to get a small electric

> fireplace to heat the living room/kitchen area (my house is small),

> that should keep the oil cost down and also the dust from blowing

> through the house. They are on sale right now and look so beautiful,

> the fake flames are soooooo soothing, LOL. (I need a man to share it

> with though, single life ain't great) I'm bored silly not working.

> I sure wish I could breathe normally though, my

> lungs are killing me, filled right up and when I laugh the coughing

> fit near kills me, and I can't get in to see my doc

> until end of the month. I guess the two main problems right now are

> my

> lungs and eyes, the aches have gone away for now, so has my low

> fever.

>

> Take care, SW

>

>

>

>

>

>

> FAIR USE NOTICE:

>

>

>

[Guest guest]

AND DO YOU ATTRIBUTE THAT TO MOLD TOO, SUE?

THANKS,

VICTORIA

Re: [] Re: toxic mold illness-

>

> , the pain you are discribing is EXACTLY what I experienced yrs. ago.

> I

> had chronic sinus problems, allergies, coughs, etc. But in the fall of2003

> I

> knew something was terribly wrong. My legs just burned from my knee area

> to

> my hips which lasted for over two months then everything began to hurt!!

> Muscles, joints, bottoms of my feet, hands, etc. I was limping and

> couldn't even

> squeeze toothpaste from a tube. My vision was fuzzy , slurred speech,

> muscle

> twitches, blinding headaches. Over the months even stranger things began

> that would take a pages to explain. If you care to talk on the phone I'll

> be

> happy to call you anytime.

> Sue

>

>

>

> Rosie, The freezer/burn pain that you discribed, does this feel like

> a deep sunburn in the muscles?

>

> SW

>

>

>

[Guest guest]

THANKS.

V.

[] Re: toxic mold illness-

> And people thought I was kidding about the pain! And yes I also had

> trouble shaving too LOL. Used to take hot baths just to get warm!

> If I find out the name the doc gave for this condition I will post

> it OK? Take Care. SW

>

>

>> >>

>> >> I thought I would die from the pain also, had no idea what was

>> > happening.

>> >> It's a horrific pain. I just wonder how many others have been

>> > affected to

>> >> some degree as you and I have. Mine was much less severe as is

>> > yours. And

>> >> I'm still trying to remember what I did or what I was exposed to

>> > that day to

>> >> cause the paralysis of my legs.

>> >

>> >

>> >

>> >

>> >

>> >

>> >

>> > FAIR USE NOTICE:

>> >

>> >

>> >

[Guest guest]

OOPS--WAS IT PERIPHERAL NEUROPATHY?

V.

[] Re: toxic mold illness-

> And people thought I was kidding about the pain! And yes I also had

> trouble shaving too LOL. Used to take hot baths just to get warm!

> If I find out the name the doc gave for this condition I will post

> it OK? Take Care. SW

>

>

>> >>

>> >> I thought I would die from the pain also, had no idea what was

>> > happening.

>> >> It's a horrific pain. I just wonder how many others have been

>> > affected to

>> >> some degree as you and I have. Mine was much less severe as is

>> > yours. And

>> >> I'm still trying to remember what I did or what I was exposed to

>> > that day to

>> >> cause the paralysis of my legs.

>> >

>> >

>> >

>> >

>> >

>> >

>> >

>> > FAIR USE NOTICE:

>> >

>> >

>> >

[Guest guest]

BINGO! that was what he told me it was! But I had these attacks

before (10 years ago). Never had another until this year then I had

a few of them, wonder why?

SW

> >> >>

> >> >> I thought I would die from the pain also, had no idea what

was

> >> > happening.

> >> >> It's a horrific pain. I just wonder how many others have been

> >> > affected to

> >> >> some degree as you and I have. Mine was much less severe as

is

> >> > yours. And

> >> >> I'm still trying to remember what I did or what I was

exposed to

> >> > that day to

> >> >> cause the paralysis of my legs.

> >> >

> >> >

> >> >

> >> >

> >> >

> >> >

> >> >

> >> > FAIR USE NOTICE:

> >> >

> >> >

> >> >

[Guest guest]

what a delight talking with you on the phone. You are one

proactive woman! I'm proud to have had the opportunity to talk with you;

you are an inspiration of what can be accomplished and you are living proof

in spite of your illness.

It's very beneficial being able to share symptoms, learn we have

similarities and also differences. I compare our conversation to a little

baby just discovering its toes...yes they are really there and yes there are

real!

Huggies to you and we'll have to talk more often.

Rosie

> THANKS MUCH FOR THIS EMAIL, ROSIE-- & IT WAS GREAT TO TALK TO YA TODAY!

>

> HUGS BACK AT YA!

> VICTORIA

>

[Guest guest]

> OOPS--WAS IT PERIPHERAL NEUROPATHY?

> V.

Sounds right to me since I also have those symptoms and .

Rosie

>> And people thought I was kidding about the pain! And yes I also had

>> trouble shaving too LOL. Used to take hot baths just to get warm!

>> If I find out the name the doc gave for this condition I will post

>> it OK? Take Care. SW

>>