Guest guest Posted February 28, 2005 Report Share Posted February 28, 2005 Hello Rebekah! My name is and I have a 13 year old who was diagnosed with Asperger's at age 11. I could tell something was a little different about him when he was about 5 and started school, it was mostly the socializing part. He also had some compulsive behavior, which included going on every swing in the park in a certain order, not eating off certain dishes, and lining everything up symmentrically. I couldn't cut his waffles or pancakes or he wouldn't eat them, which he still has. He has overcome the lining things up and he doesn't play in the park anymore at his age. The teacher's noticed something different, his handwriting was messy and he couldn't color in the lines, until he was in about 3rd grade. I had him tested for fine and gross motor skills, which they told me were within normal limits. Doctors told me nothing was wrong. I had him start seeing a school counselor in 3rd grade. One day my Mom called me and said she saw an article on the internet about this disorder called Asperger's and said it sounded exactely like my son, well,lo and behold he was diagnosed with it just a few months later. I had never even heard of it before this. I just never knew what was wrong and just assumed he was extremely shy with other strange behaviors. He also had a seizure disorder but has since outgrown it. He started having them when he was 7, he had a very mild case of only 2 or 3 seizures a year and they would only last about 30 seconds each time. He was on tegratol for a very short time and then outgrew the seizures 2 years later. He hasn't had one since then. Well, if you need someone to talk to about it, I'm here. c0lesm0m <rebekahe@...> wrote: Hi, my name is Rebekah, and my son Cole is 27 months old. He has Sensory Processing Disorder, obsessive-compulsive disorder, gravitational insecurities, seizure activity and night terrors. He has been receiving OT, PT, and ST for almost a year now, and recently they told me they thought COle should be evaluated for Aspergers. I am curious what ages your children were diagnosed with autism/aspergers... I would greatly appreciate the info!Thanks,Rebekah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2005 Report Share Posted February 28, 2005 Hi Rebekah, My son was diagnosed at 2.5. Fortunately, my pediatrician did not feel he had enough speech and sent us to Regional Center. He has always been high functioning, but did lose all speech for a while. He is now 8.5 and that diagnoses has held. HE stll shows signs. My daughter was diagnosed with PDD-NOs at 2. Becauseof my son we took her in to Regional Center. The psychologist was unsure, but gave her that diagnosis just in case. We took her back at 3 years of age and she has a definite Asperger diagnosis now. At 27 months, I think they can look at your son and tell you if you should be concerned. Also the current issue of Newsweek talks about young children (babies) and Autism. That would also be a good source. I believe you can view the article online. Angels >From: " c0lesm0m " <rebekahe@...> >Reply-Autism and Aspergers Treatment >Autism and Aspergers Treatment >Subject: New here >Date: Mon, 28 Feb 2005 06:50:57 -0000 > > >Hi, my name is Rebekah, and my son Cole is 27 months old. He has >Sensory Processing Disorder, obsessive-compulsive disorder, >gravitational insecurities, seizure activity and night terrors. He >has been receiving OT, PT, and ST for almost a year now, and >recently they told me they thought COle should be evaluated for >Aspergers. I am curious what ages your children were diagnosed with >autism/aspergers... I would greatly appreciate the info! >Thanks, >Rebekah > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2005 Report Share Posted February 28, 2005 Hi Rebekah, My son wasn't diagnosed with anything until he was 6 yo due to MDs that didn't quite " get it " . I raised the subject of Autism with a MD when he was approx 18 months and got in return, " he's just spoiled, put him in a preschool " . Listening to this Pediatrician who I absolutely adored, I followed his advice and tried a preschool, what a flop. We had the AS diagnosis at age 9 after years of ADHD, Bipolar, ODD, Tourettes, Etc. I wish I had not trusted his first (of many) pediatrician so much and pushed harder to get an adequate diagnosis at an early age so he could have received Early Intervention Services at you son's age. Dana ('s mom, 11 yo who knows everything about everything, just ask him.) > Hi, my name is Rebekah, and my son Cole is 27 months old. He has > Sensory Processing Disorder, obsessive-compulsive disorder, > gravitational insecurities, seizure activity and night terrors. He > has been receiving OT, PT, and ST for almost a year now, and > recently they told me they thought COle should be evaluated for > Aspergers. I am curious what ages your children were diagnosed with > autism/aspergers... I would greatly appreciate the info! > Thanks, > Rebekah > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2005 Report Share Posted March 1, 2005 Our Louie, now 25, was diagnosed at around 30 months, give or take. Glad to know you! Annie, who loves ya annie@... -- I am here to live out loud. -- Emile Zola Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2005 Report Share Posted March 1, 2005 I've always heard that most aspies are hard to diagnose until they get older. Cameron was diagnosed with ASD at 4 years, 4 months old. The ped. that diagnosed him wants further evaluation to look for Aspie, but he even said it was usually hard to diagnose so young. Anne I know of nobody who is purely autistic or purely neurotypical. Even God had some autistic moments, which is why the planets all spin. - Jerry Newport Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2005 Report Share Posted March 2, 2005 Re: New here He has dx of OCD because it largely runs in the family, and he is such a perfectionist. When he lines up his cars (thats how he plays with them) they are by color and all face the same direction... this is the case with everything. **************** now 12 lined up his trains and soldiers perfectly also. What I consider OCD came out when he was 9 after 9/11. He would ask “is it poison” and go to the sink and rinse his hands. He is on medication for this and asks some but he is much better mentally than he was. Cole has no speech delay, but his language skills (pronounciation) are largely lacking. His fascination is cars... and although he has lots of other toys, this is his main focus. He is also fascinated with taking things apart & putting them back together. ************My son at 4 loved gears and the book ‘How Things Work’ He sees a developmental pediatrician tomorrow... so I guess we will find out more then. ************Let us know what they had to say…………..Take Care, Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2005 Report Share Posted March 2, 2005 I had been fighting for a diagnosis for my son for a year when he finally got one at 4 years, 4 months old. He was evaluated at 3 years, 4 months by the school and they said he wasn't autistic, but I knew better. Anne -- RE: New here My DS was diagnosed with autism a few months shy of 4 years old, but if I look back, he had symptoms of regression at about 2 1/2 or so. If I had had him evaluated at 3, when I was concerned about his language, he might have been diagnosed then...but we just thought he was a "late talker"Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 Hi .......my son has IgM deficiecy also as well as Comined immune Deficiency...he has low B, T, an NK cells....he also has chronic neutropenia for which he receives Neupogen. He has a large chromosome disorder they think is the cause of the bone marrow dysfunction..  He was getting IVIG but then in January we changed to Subq...Hizentra....he's doing great with it...honestly, he had some rough times with the IVIG...aseptic meningitis last Spring that was awful..he was in PICU for a week and had seizures and swelling in his brain.....  But so far so great with the Hizentra.....he has had no side effects...we pre-medicate beforehand with Tylenol and Benadryl.......  The IVIG and now Hizentra have improved his life so much....he's rarely ill with the awful infections he used to have.....now, if he gets a cold, it stays a cold, doesn't turn into pneumonia or mastoiditis like before.....and it's so nice to NOT have to go to the ER with all those high fevers!  welcome and good luck to you and your little boy!...sue From: Delao <ilove_ivan@...> Subject: New here Date: Wednesday, May 18, 2011, 1:15 AM  Hi all, i am new here. my son was diagnosed with selective IgM deficiency and functional antibody deficiency. he started SubQIg on Monday and did great. He is on Hizentra. Just wondering if anyone here has the same diagnosis? Or any tips of side effects? My son is 3 btw. THANKS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 Hi .......my son has IgM deficiecy also as well as Comined immune Deficiency...he has low B, T, an NK cells....he also has chronic neutropenia for which he receives Neupogen. He has a large chromosome disorder they think is the cause of the bone marrow dysfunction..  He was getting IVIG but then in January we changed to Subq...Hizentra....he's doing great with it...honestly, he had some rough times with the IVIG...aseptic meningitis last Spring that was awful..he was in PICU for a week and had seizures and swelling in his brain.....  But so far so great with the Hizentra.....he has had no side effects...we pre-medicate beforehand with Tylenol and Benadryl.......  The IVIG and now Hizentra have improved his life so much....he's rarely ill with the awful infections he used to have.....now, if he gets a cold, it stays a cold, doesn't turn into pneumonia or mastoiditis like before.....and it's so nice to NOT have to go to the ER with all those high fevers!  welcome and good luck to you and your little boy!...sue From: Delao <ilove_ivan@...> Subject: New here Date: Wednesday, May 18, 2011, 1:15 AM  Hi all, i am new here. my son was diagnosed with selective IgM deficiency and functional antibody deficiency. he started SubQIg on Monday and did great. He is on Hizentra. Just wondering if anyone here has the same diagnosis? Or any tips of side effects? My son is 3 btw. THANKS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 Welcome! My son has CVID (Common Variable Immune Deficiency); he is IgG and IgM deficient, and doesn't respond to some of his vaccines either. He has been on Hizentra for a couple of months; he was on SCIG Vivaglobin before that. He was diagosed about 15 months ago, but had symptoms for years earlier. He does have some side effects with the SCIG, but the immune globulin is worth it! He mostly has local side effects, which are neglible (and get better over time), and some lingering migraines since the change to Hizentra, that are treated with his premeds. He only has problems with infections occassionally now. You'll find that your son does much better on SCIG, and it will just become part of your weekly routine Mindy, mom of seven, including , 9, CVID, autism, presumed mito with those related issues > Hi all, > > i am new here. my son was diagnosed with selective IgM deficiency and > functional antibody deficiency. he started SubQIg on Monday and did great. > He is on Hizentra. Just wondering if anyone here has the same diagnosis? > Or any tips of side effects? My son is 3 btw. THANKS > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2012 Report Share Posted May 1, 2012 Hi everyone. I was looking through for weight loss sites and came across this forum. I weigh 258.2 lbs ( up 1 lb from yesterday) and my goal weight is 150. I have lost 13.8 lbs since November by using weight watchers on line and closed my ww account when I discovered My Fitness Pal this month. I joined a gym in March and hired a personal trainer. Things are going really well. 7 weeks ago I could barely get off the couch. Tomorrow evening I will be starting my couch to 5k training. I am looking forward to meeting everyone and participating in the discussions Quote Link to comment Share on other sites More sharing options...
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