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Hi ,

Its great to hear that is doing well with the titanium rib.

I took my daughter Olivia to be assesed by Dr. Melvin and Dr. Cambell at the Santa Hospital in San TX., a few yrs ago. At the time, they felt that her ribs were too thin, and they feared rib breakage. Her thoracic curve then was at 50. In the end, they didnt rule her out, and they didnt rule her in. Im glad that we checked it out, because it may be an option in the future.

Many respected docs are of the opinion that the titanium rib is superior to subcutaneous (growing) rods.

How long does the average lengthening procedure take, since its an outpatient procedure? Where are you going to get it done.? I heard that a few places are doing it, besides TX.

And to what degree was s scoliosis when the 1st surgery was performed? Has rib breakage ever been a concern?

Olivia was diagnosed with "idiopathic," infantile scoliosis at 5 months. I dont use the term "idiopathic," because I know what caused it. She had a misdiagnosed left subluxed hip from birth, to 5 months. Her scoliosis is "pain induced," scoliosis.

She does have a slight case of Ehlers Danlos Syndrome type 6, but very slight. Its a connective tissue disorder. (lack of collagen).

Olivia is so sassy at this point, I am going crazy...but very glad she is so vocal and articulate.. That will be of benefit to her socially..

Thats really one of the things I worry about most..how will she handle this as she gets older. The normal pressures of society, and how you look...beautiful or not...

I guess we will handle it day by day, and be posotive. Not an easy thing , at times..

Anyway, thanks for joining the list..

I am really glad to know that your son is doing great with the titanium rib.

talk soon,

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Hi - I can't answer any of your questions but wanted to welcome you to

the group and to let you know your not the only one with no experience.

I've made two very small batches of the cold process soap so far and

that's it!!!

So your not alone!

Lois

http://www.HealthyForALifetime.com

Are you poisoning your children? What you don't know can hurt you and

your family

Ask me how I can help you get safer products in your home that will SAVE

you money -Risk Free

http://www.tinybottoms.com - cloth diapers and hand crocheted baby

blankets and bibs - also offering baby doll diapers and soap for

children.

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Hi Therese, and welcome! Sugar and salt scrubs are a great place to

start learning. If you scroll down close to the bottom of the

message, you will see a link to the library. In it, you will find

loads of recipes and ideas. Look for the scrubs... Ingredients for

these type of products are easy to get. If you have a health food

store near you, you should be able to pick up sea salt, essential

oils, oils like olive, sunflower, sweet almond... I don't know if

you have a lot of essential oils allready or not, but I would limit

myself to a few basics at first. For instance lavender, peppermint,

sweet orange. Sweet orange and other citrus e.o.s shouldn't be used

in leave on products like lotions, unless their percentage is quite

low. But for scrubs (which you wash off!) they are fine. There are

some incredibly knowledgable people on this list and I'm sure you

will be addicted in no time! Have fun.

Leanna in Alberta.

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Hi Therese,

Salt or sugar scrubs are really easy to make and the ingredients are

probably in your pantry already. Here's an easy recipe.

Basic Salt/Sugar Scrub

1 cup sea salt or sugar

½ cup oil, such as olive, safflower, sweet almond (use more if you like it

looser)

20-40 drops essential oil or fragrance oil

Mix together and store in a shatter-proof container.

You can add 1 Tbsp of ground-up herbs or flowers for added benefits.

If you're new you may not know about the wonderful database of recipes on

the list's site.

The Library: http://www.luxurylane.com/thelibrary/index.htm

This link is listed at the bottom of each email. There are tons of recipes

for just about anything you want to make.

It's recently been updated and is even sporting a nice fall design.

<(((><

New

Hi, I'm new here and after seeing the emails wonder if I should be! I

haven't

made anything yet but want to start. My daughter and I are interested in

making sugar or salt scrubs. Could any of you share your favorite recipes

and any

tips and hint for making the scrubs and where to find ingredients? Thanks

Therese

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Thanks Leana!

>

> Hi Therese, and welcome! Sugar and salt scrubs are a great place to

> start learning. If you scroll down close to the bottom of the

> message, you will see a link to the library. In it, you will find

> loads of recipes and ideas. Look for the scrubs... Ingredients for

> these type of products are easy to get. If you have a health food

> store near you, you should be able to pick up sea salt, essential

> oils, oils like olive, sunflower, sweet almond... I don't know if

> you have a lot of essential oils allready or not, but I would limit

> myself to a few basics at first. For instance lavender, peppermint,

> sweet orange. Sweet orange and other citrus e.o.s shouldn't be used

> in leave on products like lotions, unless their percentage is quite

> low. But for scrubs (which you wash off!) they are fine. There are

> some incredibly knowledgable people on this list and I'm sure you

> will be addicted in no time! Have fun.

>

> Leanna in Alberta.

>

>

>

>

>

>

>

>

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  • 2 weeks later...

Don't know 'bout s Hopkins... I'm in South 'Jersey and I can

highly recommend Penn Cardiology ... specifically, Dr. Russo

& Dr. Harvey Waxman ... you can find 'em at Presbyterian Medical

Center, 39th & Market Streets, Philadelphia, PA w/offices at 1400 E.

Route 70, Cherry Hill, NJ ... I've used them since '90 and my husband

has been a patient since Jan of 2000 ... we have no complaints :)

JES in 'Jersey :)

> I'm new (or returning) to the list, and new to the Central PA

area.

> Have had my ICD for 3 1/2 years. Having recently moved I need to

> find a new EPS. Anybody have a recommendation for a good doc at

> s Hopkins? Thanks.

>

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Thanks. I Welcome all recommendations.

> > I'm new (or returning) to the list, and new to the Central PA

> area.

> > Have had my ICD for 3 1/2 years. Having recently moved I need

to

> > find a new EPS. Anybody have a recommendation for a good doc at

> > s Hopkins? Thanks.

> >

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  • 3 months later...

Welcome from WA :) I just went to WA for the holidays to visit

my husband's family...beautiful trees and surroundings but I could do

without the weather. I'm spoiled from CA...anyway, back to BFL. It

sounds like you have a good plan in motion and I fully believe

success comes from being prepared with a plan of action.

Colleen

> Hey,

>

> My name is Suan and I Have just started BFL today. Little bit of

history. Since June of 2003 have been on a journey to a healthier way

of living. Eliminated refined sugar and white flour, circuit training

training 3 days/wk and 30 -45 min cardio 3 days/wk. I have lost 48

lbs with 40 more to go. I am so psyched about this program.

>

> Did not hit high point (or anywhere close) with upper body workout

today. I mostly concentrated on form because I have never done free

weights. I figure I will focus more on intensity when I am

comfortable with exercises.

>

> So glad I found this group. I am looking forward to tips from ya'll

( oops southern roots showing) and sharing anything I may have to

offer.

>

> in WA state

>

>

>

>

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Welcome! Welcome! I started my first official Challenge yesterday too.

I did okay, yesterday, but didn't get all my meals in, takes some

getting used to. I did get my cardio, but felt I could have pushed

harder than I did. Today I've done better on meals, but still haven't

got my UBWO in, it's been a crazy day. Good luck tomorrow and keep us

all posted on your ups and downs. We are all here to help, encourage

and praise!!

Christy in Indiana

C1-W1-D2

New

* Hey,

My name is Suan and I Have just started BFL today. Little bit of

history. Since June of 2003 have been on a journey to a healthier way of

living. Eliminated refined sugar and white flour, circuit training

training 3 days/wk and 30 -45 min cardio 3 days/wk. I have lost 48 lbs

with 40 more to go. I am so psyched about this program.

Did not hit high point (or anywhere close) with upper body workout

today. I mostly concentrated on form because I have never done free

weights. I figure I will focus more on intensity when I am comfortable

with exercises.

So glad I found this group. I am looking forward to tips from ya'll (

oops southern roots showing) and sharing anything I may have to offer.

in WA state

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  • 3 weeks later...
  • 3 weeks later...

Hi Eliane and welcome. Nice to know you....Hugs, from Australia.

new

> Hello, everybody,

> I am a french candles and soaps handcrafter living in Portugal.

> I am going to see what's on your group.

> Hope everything good for everyone!

> Eliane.

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Hello, , how are you?

thank you for wellcoming me...

Here in Europe we have them too but it takes a lot of time to find

the good suppliers and they always sell only in large quantities. Is

it the same in Australia?

À bientôt. Eliane.

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  • 1 month later...
Guest guest

Hi Lee, What kind of dystonia do you have? I've had it for 9 years

from a car accident..I have cervical dystonia..what type do you

have??? I want to talk to you more...Sue2

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Guest guest

Hi Nikki, welcome to the group :-)

What things stopped you from finishing your challenge last time?

That would be a good thing to look at, so that it doesn't happen again

in NZ

C1W12D3

> Hi! I am a lurker here at the group. I have tried and failed BFL

many many times! I am extremely motivated this time and I refuse to

give up. I know that I feel better physically and emotionally when I

work out and eat right, so I don't know why I continue to go back to

eating junk.

> I have many questions, so you will probably hear from me often.

> Thanks,

> Nikki

> C1W1D2

>

>

>

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Guest guest

,

I couldn't live without junk food. I would eat good for a few days, but I always

messed up, and then I couldn't get back on track. It was awful!!

Re: New

Hi Nikki, welcome to the group :-)

What things stopped you from finishing your challenge last time?

That would be a good thing to look at, so that it doesn't happen again

in NZ

C1W12D3

> Hi! I am a lurker here at the group. I have tried and failed BFL

many many times! I am extremely motivated this time and I refuse to

give up. I know that I feel better physically and emotionally when I

work out and eat right, so I don't know why I continue to go back to

eating junk.

> I have many questions, so you will probably hear from me often.

> Thanks,

> Nikki

> C1W1D2

>

>

>

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Guest guest

Then there are a couple of possibilities here. Either your body is

missing out on something it needs, or you're not really ready to

change.

What I mean by that is that for most people making a huge change like

getting fit/losing fat involves getting to a point where they MUST

change (like when the doctor tells them if they don't lose weight

they'll get diabetes, or if they have a special event in mind like a

school reunion that they want to get slim for). Do you have a reason

like that? If you don't, then you can create one! Think about this:

what will happen if you stay the way you are? Make a list of all the

terrible things, reasons why you really HAVE to change. For example

my reasons would be:

I have no energy to do anything after work

I'm not comfortable in an airplane seat

I won't be able to conceive children if I don't lose weight

I can't fit standard size bras

My partner gets upset when I make myself sick with food

So basically you end up with a lot of reasons you MUST change, and

when you compare them with the temporary pleasure of the junk food -

it's no contest really.

Other tactics: I ADORE sweet things, especially chocolate. When I am

standing in a shop looking at them, I remind myself that those foods

have been on the market for my entire lifetime. They're always going

to be there. This isn't my last opportunity to ever buy that

chocolate bar. And besides, I know exactly what it tastes like, I

can even re-create the taste in my mind if I want. And oh my

goodness..... it feels so GOOD after I've resisted it. If I don't

resist it, I feel like absolute crap. Bingo..... I realise it feels

BETTER to resist than it does to give in. So next time I resist, it

becomes easier and easier, because I know how good I'm going to feel

afterwards, and that good feeling is more appealing to me than the

crappy feeling.

Anyway, I could ramble on for hours about how to stop yourself eating

junk food, but the main message I want to convey is that when you're

faced with that decision, ask yourself if it's worth it. Is that

moment of pleasure worth feeling like crap for failing to resist? Is

it worth your clothes not fitting, is it worth everything else on

your list of reasons? Can you compare that moment of taste to ALL

those reasons on your list?

Also, sometimes when I crave the most it's because I've had boring

food lately, because I'm due for a meal, because I haven't had enough

calories (especially around that TOM), or because I didn't give

myself enough slack on free-day. Maybe next time you crave you can

post what you've been eating?

Besides all that, make sure you get plenty of good fats (EFA's),

because fats make you full, and help with cravings. Make sure you

stuff yourself with vegetables, and do NOT let yourself get caught

short without a meal, I always have a protein bar in my desk, and one

in my hand-bag for " just in case " times.

Before I close off this really really long ramble, I just wanted to

address what you said about not getting back on track. Bill says

something in his book which is so true. It's about progress, not

perfection. Let's take two women, both start BFL. The first one

does well, but every now and then slips up and has a burger when she

shouldn't. The second one has that first burger slip-up, then gives

up. Which one is going to be better off at the end of the 12 weeks?

The one who kept on going after the slip-ups of course! What you do

MOST of the time matters more than what you do SOME of the time.

What you did yesterday does not equal what you're going to do today.

Right, if you've read this far I'll be surprised... lol. I'll be

watching out for your posts on here, let us know of your successes

and failures, we all need to hear about it to keep ourselves

motivated :-)

in NZ

C1W12D3

> > Hi! I am a lurker here at the group. I have tried and failed

BFL

> many many times! I am extremely motivated this time and I refuse

to

> give up. I know that I feel better physically and emotionally

when I

> work out and eat right, so I don't know why I continue to go back

to

> eating junk.

> > I have many questions, so you will probably hear from me

often.

> > Thanks,

> > Nikki

> > C1W1D2

> >

> >

> >

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Guest guest

Hey Nikki! I'm a bit behind in posts so I'm sure someone already

told you to check out all of the FAQs (link on home page) and all of

the files-there is a ton of information there. I'm gina, on my 4th

week (I think its my 3-4 attempt!) but this is the first time I'm

actually committed and it feels great! stick with the group and

you'll do great! Welcome!

gina

> Hi! I am a lurker here at the group. I have tried and failed BFL

many many times! I am extremely motivated this time and I refuse to

give up. I know that I feel better physically and emotionally when I

work out and eat right, so I don't know why I continue to go back to

eating junk.

> I have many questions, so you will probably hear from me often.

> Thanks,

> Nikki

> C1W1D2

>

>

>

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Guest guest

Thanks ! I feel great so far. I haven't missed one workout yet. (although I

am only on day 4.) And I did mess up my eating yesterday. I broke down and ate

a candy bar, and it felt Awful!!! So I am hoping that I can have the self

discipline to say no to that next time.

But I can honestly admit, that this is the first time around that I have done 4

days straight with the cardio/weights part of the program. I also dragged out my

old Body for Life book and started reading it again, to motivate myself more.

My husband does not want to do BFL, but he is being so supportive!! it surprised

me!! He was helping me with my form when I was using the weights. (and what's

scary is he actually did help me! I had no idea he knew what to do!)

Nikki

C1W1D4

Re: New

Hey Nikki! I'm a bit behind in posts so I'm sure someone already

told you to check out all of the FAQs (link on home page) and all of

the files-there is a ton of information there. I'm gina, on my 4th

week (I think its my 3-4 attempt!) but this is the first time I'm

actually committed and it feels great! stick with the group and

you'll do great! Welcome!

gina

> Hi! I am a lurker here at the group. I have tried and failed BFL

many many times! I am extremely motivated this time and I refuse to

give up. I know that I feel better physically and emotionally when I

work out and eat right, so I don't know why I continue to go back to

eating junk.

> I have many questions, so you will probably hear from me often.

> Thanks,

> Nikki

> C1W1D2

>

>

>

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Guest guest

In a message dated 4/6/2004 11:17:41 PM Eastern Daylight Time,

no_reply writes:

> I'll be

> watching out for your posts on here, let us know of your successes

> and failures, we all need to hear about it to keep ourselves

> motivated :-)

>

> in NZ

> C1W12D3

>

you know one of the things I enjoy about this board aside from the wealth of

information and support is reading how people's attitudes change as they are

doing BFL. It's refreshing to know that people are learning and changing.

, you are one of the people that I have really noticed a change in, as

well

as Kathi. Keep it up. I hope that you stick with this after your 12 weeks

is up and make this a lifetime change. I always wonder what happens to people

when they quit posting and I like it when people succeed at this. weight loss

is such an encredibly hard thing to accomplish and when you are capable of

accomplishing your goals it really changes your life.

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Guest guest

Thank you , I'm having lots of warm fuzzy feelings reading the

boards lately... lol. Yes, this has been a big learning curve for

me, I'm changing a lifetime of bad habits and mindsets & I know I

still have a way to go on my journey. I do intend on making it my

lifestyle, though right now I am looking forward to a bit of a

break. I bet it won't last long though!

in NZ

> In a message dated 4/6/2004 11:17:41 PM Eastern Daylight Time,

> no_reply writes:

>

> > I'll be

> > watching out for your posts on here, let us know of your

successes

> > and failures, we all need to hear about it to keep ourselves

> > motivated :-)

> >

> > in NZ

> > C1W12D3

> >

>

> you know one of the things I enjoy about this board aside from the

wealth of

> information and support is reading how people's attitudes change

as they are

> doing BFL. It's refreshing to know that people are learning and

changing.

> , you are one of the people that I have really noticed a

change in, as well

> as Kathi. Keep it up. I hope that you stick with this after your

12 weeks

> is up and make this a lifetime change. I always wonder what

happens to people

> when they quit posting and I like it when people succeed at this.

weight loss

> is such an encredibly hard thing to accomplish and when you are

capable of

> accomplishing your goals it really changes your life.

>

>

>

>

>

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  • 3 weeks later...
Guest guest

,

How old are you? You said that you wore a Milwaukee brace from 3 to 6, etc. Can you please tell us what your official diagnosis was at that time. Were you born with scoliosis or is it infantile (non structural)?

Are you in a brace now? And what are the degrees of your curves, now?

Sorry for all the questions. Please let us know.

Thank you,

H.

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Guest guest

hi .

> ,

> How old are you? -----> I'M 35

You said that you wore a Milwaukee brace from 3 to 6, etc.

> Can you please tell us what your official diagnosis was at that

time.--------->i have call my mother to get this info , it was a

infantile scoliosis , 35 degre , i was diagnoticate at 16 month with

a scoliosis of 20 degre , at 2 y/o it was 25 * , the doc have

proposed a surgery to stop it , but my mother have said to wait some

more , so at 3 i have meet en other doc , so he have suggest to try a

brace at first , so i got a milwaukee .at 6 the scoliosis was less

then 25 * .

at 11 i was having a 40 degre scoliosis with a cervical lordosis .

Were

> you born with scoliosis or is it infantile (non structural)?

---------->at born i was probably having a " minor " scoliosis .

> Are you in a brace now? -----> i'm not in brace for a scoliosis

now , but soon i'm gonna go to the doc because i have lower back pain

and i feel like having the lower back curved inside .( lordosis )

And what are the degrees of your curves, now? i don't know lolll

PATRICK .

>

> Sorry for all the questions. Please let us know.

>

> Thank you,

>

> H.

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Guest guest

Hello ,

Reading your recent post gave me chills. It reminds me of what my

son is going through now. He was at a 21 degree curve in December(11

months old) and its down to 13 (without any treatment) now (15

months old). Seeing your experience with infantile has really hit

home to me. The fact that your scoliosis never went away, as you got

older it stayed with you. It reminds me that I need to stay vigil to

my sons scoliosis and not just " let it go. " I can honestly say that

it really opened my eyes as to my sons possible future. It also is a

great example of how even " self correcting " or " mild " curves can

have a great impact on the rest of your life. I am very interested

in hearing more about you. Your diagnosis now, as well as then.

Please keep us posted on how you are doing!! You are my window to

the future, and weither you know it or not, you have a lot to offer

this group and me!! :) Thank you!!

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Guest guest

Hi ,

That is great advice about the surgery. I just can't imagine what that would feel like!!

(10 months old) is in a plaster cast for his Scoliosis. We are so hopeful that this will be our answer because he is so young. The older a baby gets the less that a cast can correct that is why I opted not to wait and see on behalf of . I just don't want to chance missing our chance with a cast. He is doing great in it too, it doesn't bother him one bit, I don't even think he knows he is wearing a cast. LOL :)

Anyways..Thanks for your posts , I think you will be an inspiration to alot of the parents here.

Crista

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Guest guest

hi .

yes, you must have an eye on your sons .

personaly i don't recommand a surgery ,, why , you may ask .....

ok ,, because a surgery meen NO WAY BACK , if the spine are corrected

with " " rod " " they will staid for ever , and they are prone to break

when the personne are very active , and too , the spine will not bend

anymore and the pain that come with it , and so on .......

i know a girl that she got a surgery at 12 y/o , she have told me ,

when she's sleeping on the back side she can feel the rod and she

have told me when she's do roller blade she feel well the pavement on

her head , because the spine are no longer absorbing the shock .

and she have tlod when she's bend over to grabe something on the

floor she feel some pain on the lower because she got only couple

vertebra that are still free , or she have to put a knee on the

floor . ect .....

the doctor have pushed her parents for a surgery , she was having a

45 degre scoliosis , her parents was wanting to try a brace before a

surgery ,, but the doctor have said it,s gonna be long to correct

with the brace but not impossible ....

she have told me , if she can go back , she will try a brace ....

for my self experience , the doctor have suggest for me too a

surgery , but i have said ( my parents too ) why not trying a

brace ..... so i got a brace , now my back is like a new one from age

20 ( no more scoliosis ) but i have a minor LORDOSIS on the lower

back.

PATRICK .

> Hello ,

>

> Reading your recent post gave me chills. It reminds me of what my

> son is going through now. He was at a 21 degree curve in December

(11

> months old) and its down to 13 (without any treatment) now (15

> months old). Seeing your experience with infantile has really hit

> home to me. The fact that your scoliosis never went away, as you

got

> older it stayed with you. It reminds me that I need to stay vigil

to

> my sons scoliosis and not just " let it go. " I can honestly say that

> it really opened my eyes as to my sons possible future. It also is

a

> great example of how even " self correcting " or " mild " curves can

> have a great impact on the rest of your life. I am very interested

> in hearing more about you. Your diagnosis now, as well as then.

> Please keep us posted on how you are doing!! You are my window to

> the future, and weither you know it or not, you have a lot to offer

> this group and me!! :) Thank you!!

>

>

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