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In a message dated 5/15/2004 6:46:05 PM Central Standard Time,

marissajenkins03@... writes:

Welcome Marissa. Feel free to ask any questions. Nothing is too minor.

Rose

Just introducing myself. My name is Marissa and I am new to the group.

marissajenkins03@...

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  • 1 month later...
Guest guest

we had to take the bottle away cold turkey and he threw fits and finally got thirsty and took the cup. jesse (5) still throws fits about movies and cant seem to understand that they have to rewind. also the cup thing if he has a favorite cartoon like spongebob they make cups now that have them on it- and they are insulated to keep the milk cold longer. hope this helps!

god bless!

shelley

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My son is now 8 (still on bottle) and we have been in a feeding therapy program for 1.5 years.

When he first started the program he had been drinking ensure and had the PICA (eating non edible items) too, we stopped the ensure and the symptoms stopped. It could be that your son is reacting to the casein in the pediasure. My son only drinks soymilk and does have cheez items and yogurt and pudding, but not to the degree he was with drinking the ensure.

We had the ensure through insurance and then I found at Sav On a soy supplemental drink and got that through Insurance. A year ago in Feb he started on meds, first risperdal and now Geodon, this helped him gain weight since he seemed malnourished at times and had been hospitalized prior times we tried to stop bottle and was dehydrated.

Anyway I would look for a supplemental drink to get the nutrients and stop the pediasure and see if the eating non edible items stops. The combination of the meds and stopping the ensure is what did it for my son.

Get the new book - just take a bite, I got it for $24.95 thru future horizons. There is another one listed on amazon called Can't eat, Won't Eat.

Is your son verbal, are you using PECS for communication? What State are you in? Other siblings?

Bonnie

http://www.epnions.com/user-bonniesayers

===============

deblez653 <debbie_lezama@...> wrote:

Hi, my 3 year old son was recently dx with PDD. BEhavior problems where do I begin? My son seems to be in state of unhapiness he "EEEEE"S) when his videos are finished and will throw everything down when tantrumming (his food, the computer, the phone etc.) It's very unnerving. My son also places things in his mouth. (dirt, crayons,stones) He hates to comb his hair, brush his teeth. His diet is horrible it consists of pediasure, goldfish crackers, chicken nuggets, peas, and juice) He drinks pediasure from a bottle and we are having the hardest time removing it. I took the summer off and i don't know where to begin and how to help him. My main concern is the eating of non-edibles since he'll be starting pre-school soon. Thanks for letting me vent.debbi

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Marci

Walk Far For NAAR

Join our team: " Doin' It For Darius "

Hi

>From: Bonnie Sayers <bonniesa@...>

>Reply-autism

>autism

>Subject: Re: new

>Date: Mon, 5 Jul 2004 15:58:58 -0700 (PDT)

>

>My son is now 8 (still on bottle) and we have been in a feeding

>therapy program for 1.5 years.

>

>When he first started the program he had been drinking ensure and had the

>PICA (eating non edible items) too, we stopped the ensure and the symptoms

>stopped. It could be that your son is reacting to the casein in the

>pediasure. My son only drinks soymilk and does have cheez items and yogurt

>and pudding, but not to the degree he was with drinking the ensure.

>

>We had the ensure through insurance and then I found at Sav On a soy

>supplemental drink and got that through Insurance. A year ago in Feb he

>started on meds, first risperdal and now Geodon, this helped him gain

>weight since he seemed malnourished at times and had been hospitalized

>prior times we tried to stop bottle and was dehydrated.

>

>Anyway I would look for a supplemental drink to get the nutrients and stop

>the pediasure and see if the eating non edible items stops. The

>combination of the meds and stopping the ensure is what did it for my son.

>

>Get the new book - just take a bite, I got it for $24.95 thru future

>horizons. There is another one listed on amazon called Can't eat, Won't

>Eat.

>Is your son verbal, are you using PECS for communication? What State are

>you in? Other siblings?

>

>Bonnie

>

>http://www.epnions.com/user-bonniesayers

>

>===============

>

>

>deblez653 <debbie_lezama@...> wrote:

>Hi, my 3 year old son was recently dx with PDD. BEhavior problems

>where do I begin? My son seems to be in state of unhapiness

>he " EEEEE " S) when his videos are finished and will throw everything

>down when tantrumming (his food, the computer, the phone etc.) It's

>very unnerving. My son also places things in his mouth. (dirt,

>crayons,stones) He hates to comb his hair, brush his teeth. His diet

>is horrible it consists of pediasure, goldfish crackers, chicken

>nuggets, peas, and juice) He drinks pediasure from a bottle and we

>are having the hardest time removing it. I took the summer off and i

>don't know where to begin and how to help him. My main concern is the

>eating of non-edibles since he'll be starting pre-school soon. Thanks

>for letting me vent.

>debbi

>

>

H i Bonnie,

I have a 7 yr old who is also staying alive through Pediasure and I

have been trying to find a soy alternative that contains all of the

nutrients of the pediasure. What is the name of your soy drink and who

makes it? Any info would be so greatly appreciated!

Thank you,

Marci in PA

>

>

>---------------------------------

>

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Wow, the more I read the postings the less I feel CB is one of a kind. He is now 7 and the only thing he said was "E'".Also he would burst into tears and bite us when the video was over. We had to explain to him the video wasnt " Gone ".We also had to explain to him that went he went to the bathroom the poo-poo would be back tomorrow( we actually said Bye Bye to it.) Tell him if he throws his stuff it will be " Mommy's Toy " from now on then take it away . I still have some pro jacks from last summer, he has to ask me to play with them ( and Ouch ! did they hurt ) Cb's Diet (if you would like to call it that is pepperoni pizza and Easy Mac and cheese. If he'll drink juice boxes , stick some liquid Vitamins in the box or bottle when hes not looking. The Bottle finally left us at age 4, but the pacifer was its replacement. He gave that up for chewy tubes(They sell chewy tubes on some of these therapy sites.) His school teacher will be able to give you good suggestions and get your guy into OT, ASAP. I know the road seems hideous right now, but take a deep breath. You've come to the right group. These guys are great !!!!!!

CB's Granny

ps. Start prompting his speech, Say the name of the thing ,withhold the object he desires until you get a responce, say Great Job. Do it EVERYTIME !

LOL Whew.....

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  • 1 month later...

Hello everyone My name is Kimm, I'm new to the group. I am an Air Force

wife and mother of a 4yr old and 3 yr old twins. All Boys. I am currently

located in VA. I'm 25 in in the beggining 4th week of the challege. I am

looking

for support and inspiration. I just wanted ppl who could relate. I hope I

get to know you all very well.

Kimm

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Hi Kimm!

Welcome aboard! You will find all types here - moms and not, older and

younger, beginners and experienced veterans. Lots of good advice and

support. I can imagine three little boys keep you on the run! Good luck -

I look forward to hearing more from you.

Redondo

> Hello everyone My name is Kimm, I'm new to the group. & nbsp; I am an

> Air & nbsp; Force wife and mother of a 4yr old and 3 yr old twins. All

> Boys. I am & nbsp; currently located in VA. & nbsp; I'm 25 in in the

> beggining 4th week of the & nbsp; challege. & nbsp; I am looking for & nbsp;

> support and inspiration. & nbsp; I just & nbsp; wanted ppl who could

> relate. & nbsp; I hope I get to know you all very well.

>

> Kimm

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Welcome Kimm!

I'm Nanci from Iowa, mom of 2 (12 & almost 4), wife, i work full time

in Human Resources.

> Hello everyone My name is Kimm, I'm new to the group. I am an Air

Force

> wife and mother of a 4yr old and 3 yr old twins. All Boys. I am

currently

> located in VA. I'm 25 in in the beggining 4th week of the

challege. I am looking

> for support and inspiration. I just wanted ppl who could

relate. I hope I

> get to know you all very well.

>

> Kimm

>

>

>

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Have you been diagnosed?

Ann

new

I started got knee pain 3 weeks ago, now i am on naproxin, but still

on pain, seems like naproxin is not working.I been worried about my

knees.

I am still new to this, anybody knows how long does it take to get

recovered approximately?

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Doc told me any knee cap problem is called chondromalacia, so i have

already diagnosed with that.I went to see orthopedic.Now he is

waiting to see my MRI, then might ask me to go for physical

therapy.

Anybody know is naproxen a good one? Should i walk natural looking

or limp? Is it better for me not to walk so much now?

> Have you been diagnosed?

>

> Ann

> new

>

>

> I started got knee pain 3 weeks ago, now i am on naproxin, but

still

> on pain, seems like naproxin is not working.I been worried about

my

> knees.

> I am still new to this, anybody knows how long does it take to

get

> recovered approximately?

>

>

>

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Do you know about knee tape? This holds your kneecap more medially to resist

the forces that are pulling it laterally that are causing the rubbing of the

kneecap against the femur. I can send instructions if you write me separately

(ruby2zdy@...). For me knee tape is the difference between being able

to get exercise and not.

Otherwise, you should probably do whatever you can that doesn't hurt, and/or

doesn't cause pain a day or two later. Use ice. Try the Stick on your thigh,

both front and lateral, and your hams. I've found the Stick to be a better

stretcher than passive stretching, since it digs in and forces each muscle cell

to stretch. I think passive stretching can sometimes cause a counter-reaction

in the muscles. But you should also do a leg stretching routine every day to

keep your hip/thigh muscles from being tight. I might be able to find something

I wrote on how I stretch my legs if you're interested.

Ann

new

>

>

> I started got knee pain 3 weeks ago, now i am on naproxin, but

still

> on pain, seems like naproxin is not working.I been worried about

my

> knees.

> I am still new to this, anybody knows how long does it take to

get

> recovered approximately?

>

>

>

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  • 2 months later...

Deb,

Welcome to the group! You are in good company here!!!

~hugs~

Rabecca

> hi there

> my name is Debby and i have an 11 year old son with aspergers. he

was only diagnosed this year and it has been a long tiring battle. he

just went up to his secondary school and is really struggling. his

teachers have admitted that they know nothing about aspergers and are

finding it difficult to handle him. i belong to the ADHD support

group who are fantastic and now i belong to yours. just wanted to

say hi.

> Deb Linford

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  • 2 months later...

Hi, I am new. My name is Charlotte and I have 2 children, a 11 year old son and a 4 year old daughter.

My son is currently being assessed for Aspergers, although I know he has it. At this point I am just waiting for the diagnosis in writing.

I always new there was something different with him, but did not know anything about "disorders and such" back then.....and did not have the internet!!

I just throught my kids was a little goofy and pretty quirky, I assumed he would outgrow most of it.

Had I had a clue back then he would have been diagnosed with pretty bad Sensory Integration issue. He has many AS red flags in all reports from pre-school up but he was social so I assume that is why no one sent us for a dx back then. At 7.5 he was described to me by his teacher as the "worst case of ADHD she had ever seen" and thought he should be evaluated. Of course it was the AS stuff combined with some ADHD stuff that made it seem so bad. He was not being "bad" but he was an emotional trainweck and thought nothing of laying on the floor crying IN THE CLASSROOM in a full blown tantrum if something wen't the wrong way in his day.

I took him for a neuropsych exam which indicated ADHD and .......something else....labled as "more" or "additional concerns"

Again, I did not know about AS at the time or that some can be socially outgoing just "bad" at it.

This is the age that his group of "friends" started shrinking. We are now in 5th grade and down to one. This is the first year that he is really realizing the rejection and has stopped trying with most kids, however he will still try and engage a "popular" kid in a conversation while the kid is practically running in the other direction.

His grades are A's and B's always, he has a hard time in some subjects but mostly because he hates them and thinks they are pointless. He is starting middle school next year and because of his pragmatic language issues his teacher is afraid for him.

I just wanted to send an intro, I am psyched that I have the answer but somewhat depressed that I missed all of this so long ago!

-Charlotte

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  • 2 months later...
Guest guest

Hello , my name is Jon, and I've been a member of this group for

some time. Some of us in group have been newly diagnosed with the

virus, some of us have been undergoing treatments for some time, some

of us have been transplanted because of this illness. We are to offer

you any type of information and support you may need. We are all

different in the ways the illness affects us, but we are all united

in the battle to survive, and to live the best life we can. Whatever

we can do to help you, we will do so. Welcome from all of us.

Jon. (transplanted 4 yrs ago for HCV)

>

> Hello to everyone, I'm . I went in for a complete physical last

> week, was called back for an addt'l blood test then diagnosed this

> Monday. I am still in a state of shock. I flip-flop between

trying

> not to think about it and then searching for info. I have so many

> questions... I'm not sure how this happened, how to feel, can I

lose

> my job if people know, could my twins have it... etc. I have an

appt

> next week w/ a GI doc. From what I've read it sounds like a liver

> biopsy is inevitable, sounds very scary & painful. So, I guess

> that's a little about me & I look forward to meeting everyone.

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Hi I am Kathy B.. Post transplant almost one yr!!!Also a member of this happy crowd..I asked my doctors about the milk thistle.. They said it couldn't hurt..I have a list of herbs etc..(some where) that are kinda taboo. I locate it for you.. Kathy Boo

-- Re: New

What a great group of people! Thank you Deb, Pat, , & Jon for your thoughts. Your words have been an inspiration & calmed my fear just a bit. This is the best day I've had since being diagnosed. I actually worked out & put on makeup, lol. Someone mentioned I should start taking Milk Thistle. This should be okay, right? Well, I'm off to the vitamin & book stores. I look forward to learning more about each of you and your situations. Maybe I can reciprocate your support once I get on my feet. > > > > Hello to everyone, I'm . I went in for a complete physical last > > week, was called back for an addt'l blood test then diagnosed this > > Monday. I am still in a state of shock. I flip-flop between > trying > > not to think about it and then searching for info. I have so many > > questions... I'm not sure how this happened, how to feel, can I > lose > > my job if people know, could my twins have it... etc. I have an > appt > > next week w/ a GI doc. From what I've read it sounds like a liver > > biopsy is inevitable, sounds very scary & painful. So, I guess > > that's a little about me & I look forward to meeting everyone.

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Guest guest

Hello sorry it has taken me a while to say hello..Welcome to you, we are a fairly nice crowd of folks.. Hang around eventually every one will answer you one question at a time.. Some one always has an answer or an idea..And lots of love.. I am Kathy B. in Milwaukee WI.. Kathy Boo

-- New

Hello to everyone, I'm . I went in for a complete physical last week, was called back for an addt'l blood test then diagnosed this Monday. I am still in a state of shock. I flip-flop between trying not to think about it and then searching for info. I have so many questions... I'm not sure how this happened, how to feel, can I lose my job if people know, could my twins have it... etc. I have an appt next week w/ a GI doc. From what I've read it sounds like a liver biopsy is inevitable, sounds very scary & painful. So, I guess that's a little about me & I look forward to meeting everyone.

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  • 4 weeks later...
Guest guest

BFL has what seems to me, almost instant results - i feel better, look

better, I have more enrgy - what is Thurmond?

debonaire1998 wrote:

>

> Hi,

>

> Wanted to introduce myself. Have 100+ lbs to lose, anyone else out

> there with the same situation? Also, can someone tell me the pros of

> doing BFL rather than Thurmond?

>

> Thanks.

>

> Deb

>

>

>

>

> ------------------------------------------------------------------------

>

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Guest guest

Hi Deb,

I've lost 55 lbs so far and I've still got almost 100 to go! This program has

changed my life. It works whether you've got 10 lbs to lose or 100. But you have

to do the work. It is hard work, but it is totally worth it. Once you get into a

routine, it becomes a lifestyle and doesn't seem like so much work. We're here

for you if you need anything along the way...

I don't know much about Thurmond's program...sorry.

Beth

debonaire1998 <debonaire1998@...> wrote:

Hi,

Wanted to introduce myself. Have 100+ lbs to lose, anyone else out

there with the same situation? Also, can someone tell me the pros of

doing BFL rather than Thurmond?

Thanks.

Deb

---------------------------------

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Guest guest

55 lbs? WOW! You are awesome!

Usdrowski wrote:

> Hi Deb,

> I've lost 55 lbs so far and I've still got almost 100 to go! This

> program has changed my life. It works whether you've got 10 lbs to lose

> or 100. But you have to do the work. It is hard work, but it is totally

> worth it. Once you get into a routine, it becomes a lifestyle and

> doesn't seem like so much work. We're here for you if you need anything

> along the way...

>

> I don't know much about Thurmond's program...sorry.

>

> Beth

>

> debonaire1998 <debonaire1998@...> wrote:

>

> Hi,

>

> Wanted to introduce myself. Have 100+ lbs to lose, anyone else out

> there with the same situation? Also, can someone tell me the pros of

> doing BFL rather than Thurmond?

>

> Thanks.

>

> Deb

>

>

>

>

>

> ---------------------------------

>

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Guest guest

Welcome! Look in the photos section in Mina's folder. She lost at

least 100 pounds.

I don't know much about any other nutrition and training disciplne

other than BFL but the way that BLF incorporates nutrition with

training is the basis of how bodybuilders follow their regimens. BFL

really works at helping to burn fat and build some fat burning muscle.

Stasia

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Guest guest

Thanks, Aimee. I've still got a long way to go, but it's fun to remember how far

I've already come. Thanks for the encouragement!

" Aimee M. Rasch " <fuzzyelf@...> wrote:55 lbs? WOW! You are awesome!

Usdrowski wrote:

> Hi Deb,

> I've lost 55 lbs so far and I've still got almost 100 to go! This

> program has changed my life. It works whether you've got 10 lbs to lose

> or 100. But you have to do the work. It is hard work, but it is totally

> worth it. Once you get into a routine, it becomes a lifestyle and

> doesn't seem like so much work. We're here for you if you need anything

> along the way...

>

> I don't know much about Thurmond's program...sorry.

>

> Beth

>

> debonaire1998 <debonaire1998@...> wrote:

>

> Hi,

>

> Wanted to introduce myself. Have 100+ lbs to lose, anyone else out

> there with the same situation? Also, can someone tell me the pros of

> doing BFL rather than Thurmond?

>

> Thanks.

>

> Deb

>

>

>

>

>

> ---------------------------------

>

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Guest guest

I forgot the other day to mention also that Seattle Lady has lost

somewhere around 80 pounds doing BFL. Her pohoto folder says " headless

in Seattle " I think.

Stasia

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Guest guest

BIG pro for BFL it’s free (other than the cost of the book and a few

weights) Thurmonds is (quote from the website)….6 Week Body

Makeover Program costs approximately $1,400 - $1,500. I certainly would

want to pay that much money!! If you do 12 Weeks its $2,800 to

$3,000!!! It sounds like a scam to me!!! If I had an extra $3,000

laying around I certainly wouldn’t spend it that way! I’d save it for a

boob job after they go bye bye due to BFL ROTFLOL!!!!

Just my 2¢

Christy in Indiana

New

Hi,

Wanted to introduce myself. Have 100+ lbs to lose, anyone else out

there with the same situation? Also, can someone tell me the pros of

doing BFL rather than Thurmond?

Thanks.

Deb

_____

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Guest guest

With that kind of cost, I hope it includes plastic surgury.

> BIG pro for BFL it's free (other than the cost of the book and a few

> weights) Thurmonds is (quote from the website)….6 Week Body

> Makeover Program costs approximately $1,400 - $1,500. I certainly would

> want to pay that much money!! If you do 12 Weeks its $2,800 to

> $3,000!!! It sounds like a scam to me!!! If I had an extra $3,000

> laying around I certainly wouldn't spend it that way! I'd save it for a

> boob job after they go bye bye due to BFL ROTFLOL!!!!

>

>

>

> Just my 2¢

>

>

>

> Christy in Indiana

>

>

>

> New

>

>

>

>

> Hi,

>

> Wanted to introduce myself. Have 100+ lbs to lose, anyone else out

> there with the same situation? Also, can someone tell me the pros of

> doing BFL rather than Thurmond?

>

> Thanks.

>

> Deb

>

>

>

>

>

>

> _____

>

>

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