Thanks

July 3, 2006

That's great that your brother found out what he is dealing with... How are you doing???

http://www.msaweb.co.uk/posturalhypotension.pdf

((( Caring Hugs )))Helen

Thanks to all for their love and support even though Im new. My brother will be fine, he has postural hypotension and a right bundle block (after more testing today) but he can live with that. Just gotta be careful, like most of us!Anybody want to see me and DH please see 360 page for Reesie271.

"When life's problems seem overwhelming, look around and see what other people are coping with. You may consider yourself fortunate."

July 27, 2006

Dear - remember we are even braver when we are blessed with caretakers as special as you to help us get through. You husband is very blessed. May God Bless and be with you both. May he give you both the strength and courage to see this through and find the healing to a normal and healthy life again. Love, hugs, and prayers Marie -- Thanks Hello all, Thank you to everyone who responded to my question about my husband being so sleepy. I have now learned the term "decreased levels of consciousness" and the doctor has taken him off the chemo for a week. Part of the problem is that he is full of water. His legs and feet are huge. We have been pushing water like the chemo people say to do and it was the wrong thing to do in his case. They're not sure about the consciousness but his red and white blood cells are very far down and he is anemic. I know from reading your messages that this is common. The nurse says she has never heard of this symptom (decreased consciousness) from anyone. I told them that from "my group" I have learned that there is a huge array of symptoms and no one person is the same. Again, thank you for your help and input. Best wishes to everyone who is fighting this horrible disease. I think you're all incredibly brave. graphic from the www no copyright infridgement intended please do not tear apart this stat

July 28, 2006

You are welcome .. I hope your hubby gets his fluid overload straightened out soon so he can continue tx with making the virus mutate.. this tx is not something that you should be starting and stopping,, good luck and please keep us updated how things are going,, jax Goldbarth <goldbarth@...> wrote: Hello all, Thank you to everyone who responded to my question about my husband being so sleepy. I have now learned the term "decreased levels of

consciousness" and the doctor has taken him off the chemo for a week. Part of the problem is that he is full of water. His legs and feet are huge. We have been pushing water like the chemo people say to do and it was the wrong thing to do in his case. They're not sure about the consciousness but his red and white blood cells are very far down and he is anemic. I know from reading your messages that this is common. The nurse says she has never heard of this symptom (decreased consciousness) from anyone. I told them that from "my group" I have learned that there is a huge array of symptoms and no one person is the same. Again, thank you for your help and input. Best wishes to everyone who is fighting this horrible disease. I think you're all incredibly brave. Jackie

August 7, 2006

-

Sending prayers to your nephew.

Feel free to send me the list as an attachment whenever -- only if it would help

you.

Just wondering...does Rainbow Babies do all the obscure B-cell compartment and

T-cell function studies?

Jess

mom to cVIDer

September 6, 2006

Glenda,

I don't enjoy the military life, but I guess there are some perks! I often

think, well, if things get bad for the kids, we can just put in for a transfer!

New friends, fresh start, and people who know nothing of your past.

Hang in there.

Glenda ez <g_mart1971@...> wrote:

Thanks to and Adele for all your encouraging words.

- Funny you say that it was better for your daughter when you moved. My son

has actually asked if we can move because so much of our current house is

contaminated!

Glenda

---------------------------------

Get your email and more, right on the new .com

September 27, 2006

Thats awful Mike,, its my understanding that in Calif, the law mandates that they MUST treat and cover mental illness the same as any physical illness.. dont give up!guitarclovismike <guitarclovismike@...> wrote: I can't seem to get medicade to pay the shrink, to treat me for depression, so the doctor will treat the Hep C. Not to mention the cost of hep meds.I have had it this long and I guess I will not try to get treatment. I did not know I had it anyway and don't feel sick.I know this is not the

ideal way, but oh well. I have apreciated your help. I am feeling better mentaly and will continue to buy the Prozac because it does not cost much.Thanks again for your support.MikeJackie

September 27, 2006

It's not just the depprsion, I can't get approved for the Hep C

medicade because they keep saying I don't have enough medical

records or treatment ongoing. I keep telling them it's a catch 22.

Mike I can't

seem to get medicade to pay the shrink, to treat me for

> depression, so the doctor will treat the Hep C. Not to mention the

> cost of hep meds.

> I have had it this long and I guess I will not try to get

treatment. I

> did not know I had it anyway and don't feel sick.I know this is

not

> the ideal way, but oh well. I have apreciated your help.

> I am feeling better mentaly and will continue to buy the Prozac

> because it does not cost much.

> Thanks again for your support.

>

> Mike

>

> Jackie

>

September 28, 2006

guitarclovismike,

I am all the way over here in Florida but I'm having a similar problem.

I'm unemployeed for 3 years now because of my issues and have no money

or insurance. It is a catch 22. Care and treatment for Hep C patients

is expensive and no one wants the bill. I to started the

Disability/Medicaid Application and was denied for lack of

documentation. My wife also makes just over the income limit. We are

still cosidering divorce so I can qualify. The last time I went to the

Doctor as a cash patient, the labs and visit cost me 700.00 and I'm

still paying it off. We have to start creating a paper trail of

documentation somehow. The only immediate option I have is to present

myself to the Hospital Emergency room but I've been told of course that

I will recieve a bill and that they will attempt to put me on a payment

plan. Some people report a garnishee of there pay check. Although I

feel like crap, I think the best option for me is to get a simple job

somewhere and try to get on a group plan. Even then the premiums could

be high and coverage limited. At least I'd stay busy, have some

pocket " change " , and start to actually build my case. Apparently there

are some supplements that are helpful and I'm using Hillbilly Tim's

list and the Forum site info as a place to start. I think it's well

researched. Health Care in our country sucks right now. I'm also a

Nurse and I've personally seen people working for cash so they dont

report any income and thus qualifying for benefits and living well

somehow. I guess I just havent learned how to play the game. Please

post anything you learn that might help the rest of us. My apologies

for the long post. Good luck and dont worry its not just you. Your not

alone.

C Ellis, Florida

>

> It's not just the depprsion, I can't get approved for the Hep C

> medicade because they keep saying I don't have enough medical

> records or treatment ongoing. I keep telling them it's a catch 22.

September 28, 2006

I may be misunderstanding what you are saying in regards to applying for disability and medicaid which are two separate programs I think.. SSDI or disability is not based on your family income and you should be able to qualify if you have worked and paid into the system,, you have to have so many credits of work history to qualify.. Medicaid is a welfare system and they DO take in your family income, especially if you are married.. but the ssdi is based solely on your work history and if you ahve enough credits.. you might want to check on this again if you are unable to work,, just a thought, jaxjcellis63 <chrisellis63@...> wrote: guitarclovismike,I am all the way over here in Florida but I'm having a similar problem. I'm unemployeed for 3 years now because of my issues and have no money or insurance. It is a catch 22. Care and treatment for Hep C patients is expensive and no one wants the bill. I to started the Disability/Medicaid Application and was denied for lack of documentation. My wife also makes just over the income limit. We are still cosidering divorce so I can qualify. The last time I went to the Doctor as a cash patient, the labs and visit cost me 700.00 and I'm still paying it off. We have to start creating a paper trail of documentation somehow. The only immediate option I have is to present myself to the Hospital Emergency room but I've been told of course that I will recieve a bill

and that they will attempt to put me on a payment plan. Some people report a garnishee of there pay check. Although I feel like crap, I think the best option for me is to get a simple job somewhere and try to get on a group plan. Even then the premiums could be high and coverage limited. At least I'd stay busy, have some pocket "change", and start to actually build my case. Apparently there are some supplements that are helpful and I'm using Hillbilly Tim's list and the Forum site info as a place to start. I think it's well researched. Health Care in our country sucks right now. I'm also a Nurse and I've personally seen people working for cash so they dont report any income and thus qualifying for benefits and living well somehow. I guess I just havent learned how to play the game. Please post anything you learn that might help the rest of us. My apologies for the long post. Good luck and dont worry its not just you. Your

not alone. C Ellis, Florida >> It's not just the depprsion, I can't get approved for the Hep C > medicade because they keep saying I don't have enough medical > records or treatment ongoing. I keep telling them it's a catch 22.Jackie

November 1, 2006

Well, seeing how many other Autistics face the sames

struggles reminds me that, I never must forget all people have

their own difficulties with which, he/she must learn to manage

in a most appropriate and effective manner.

, in regards to my depression, I take sincere steps in

treating it with both therapy and medications.

I'm at a loss of words so, may the closing of this post

simply reflect the fact, being in this group is no different from

the outside world where everyone from all walks of life have

their own unique ups & downs.

Thanks .

Adam

January 17, 2007

You are welcome Steve,, let us know what you find out when you get to talk with the doc!steve brewer <brewmon2003@...> wrote: Thanks to all for your suggestions. I had all my questions written down and went to the Dr. and he was closed because of weather. These Texans get a little ice and they freak out and close the whole city! At least I'm ready though, thanks much for your support. Peace out, Steve Jackie

March 4, 2007

Wow A Texas Neighbor. I An East Of You On I 30 Half

Way To Texarkana. I Want Ya To Stop Stressin. Stress

Is Not Good For Ya. Take One Day At A Time. Cross One

Bridge As You Get To It. We Will Be Here To Answer

Questions And To Listen To You Vent. Oh Do You Like

Nascar Lol. Hope Ya Smiled There. Welcome To The

Family. d

--- Hepatitis CSupportGroupForDummies

<jimmymusso@...> wrote:

> hey everyone thank u so much for accepting me in ur

family...im 41 yrs

> old (act like im 18) commercial plumbler in dallas

,texas.....my

> insurance is thru my employer...(blue cross)what

does milk thistle

> do????does it work???i was being treated for

depression and they needed

> a blood sample...well my enzymes were high 48 and 83

well i went again

> 2 weeks ago and one was still the same (48) and the

other one dropped

> down 72......i go for blood work again in two

weeks...im currently

> taking citalopram (celexa) 20 mg and hydroxyzine

(atarax)10mg....i hope

> everyone has a great day!!!! with much respect j

>

________________________________________________________________________________\

____

Get your own web address.

Have a HUGE year through Small Business.

http://smallbusiness./domains/?p=BESTDEAL

March 4, 2007

Being on anti-depressants is a good thing. Your enzymes will fluctuate

some, that's normal. All you can do betwen blood work is relax and

educate yourself, my friend.

A good book is " Living with Hepatis C: A Survivor's Guide " .

Ask us any questions that come to mind.

De

>

> hey everyone thank u so much for accepting me in ur family...im 41

yrs

> old (act like im 18) commercial plumbler in dallas ,texas.....my

> insurance is thru my employer...(blue cross)what does milk thistle

> do????does it work???i was being treated for depression and they

needed

> a blood sample...well my enzymes were high 48 and 83 well i went

again

> 2 weeks ago and one was still the same (48) and the other one dropped

> down 72......i go for blood work again in two weeks...im currently

> taking citalopram (celexa) 20 mg and hydroxyzine (atarax)10mg....i

hope

> everyone has a great day!!!! with much respect j

>

March 4, 2007

Hey Jimmy!!! I'm in Houston, right between Pattypooh in San and Deb, the red fox, in (near) New Orleans)!! Talk later! Deliman jimmymusso <jimmymusso@...> wrote: hey everyone thank u so much for accepting me in ur family...im 41 yrs old (act like im 18) commercial plumbler in dallas ,texas.....my insurance is thru my employer...(blue cross)what does milk thistle

do????does it work???i was being treated for depression and they needed a blood sample...well my enzymes were high 48 and 83 well i went again 2 weeks ago and one was still the same (48) and the other one dropped down 72......i go for blood work again in two weeks...im currently taking citalopram (celexa) 20 mg and hydroxyzine (atarax)10mg....i hope everyone has a great day!!!! with much respect j

Never miss an email again! Toolbar alerts you the instant new Mail arrives. Check it out.

March 19, 2007

Thanks.

I need to relax, until she is examined in SLC. I have no idea what is

happening, so I shouldnt predict anything....I know that the rods have never sat

that high, but maybe there is another explanation, besides migration or rib

breakage..(?) The posotive's are; that my girl is feeling absolutely no pain,

and doing great in every other way.

HRH

Re: Olivia

,

Give Olivia a gentle hug from us. Call me when you

get to town. I'll be in SLC on Friday. Braydon's

VEPTR has migrated too, but in a very different

fashion, I'm guessing. In Braydon's case, the

migration has been a slow process, not causing any

discomfort or problem with the natural ribs. The

migration through the ribs sounds much worse than it

is. I promise. Take care!

Carmell

Mom to Kara, idiopathic scoliosis and hypothyroidism, Blake 16, GERD, and

Braydon 11, VACTERL-congenital scoliosis (fusion surgery 5/96), VEPTR patient

#137 (implant 8/01), Thoracic Insufficiency Syndrome (TIS), rib anomalies,

missing coccyx, fatty filum/TC (released 4/99 & 12/06), anal stenosis, chronic

constipation, horseshoe (cross-fused) kidney, dbl ureter in left kidney,

ureterocele (excized 6/95), kidney reflux (reimplant surgery 1/97), neurogenic

bladder, dysplastic right leg w/right clubfoot with 8 toes (repaired 2/96, 3/96,

1/97, 3/04), tibial torsion, 4cm length discrepancy-wears 3cm lift, pes cavus,

SUA, GERD, Gastroparesis, etc. http://carmellb-ivil.tripod.com/myfamily/

Congenital scoliosis support group

http://health./group/CongenitalScoliosisSupport/

__________________________________________________________

Looking for earth-friendly autos?

Browse Top Cars by " Green Rating " at Autos' Green Center.

http://autos./green_center/

March 20, 2007

WE will be praying like crazy for you and Olivia as you travel to SLC. I am so

glad Carmell and are there. Ladies---Hug them for me please!! Let us

know what the docs say. I am so thankful Olivia is not in any pain. I truly

pray the situation is not as bad as it might seem. Call me anytime .

Shellie

heather hyatt wrote:

Thanks.

I need to relax, until she is examined in SLC. I have no idea what is happening,

so I shouldnt predict anything....I know that the rods have never sat that high,

but maybe there is another explanation, besides migration or rib breakage..(?)

The posotive's are; that my girl is feeling absolutely no pain, and doing great

in every other way.