Re: RE: Fibromyalgia/Connective Tissue

[Guest guest]

Those relapses happened to me, and you could have one again, so try to stay

positive if it happens. I found out they got shorter and shorter and the

good times got longer and longer.

Lynda

At 02:14 PM 3/14/2004, you wrote:

>Hi Everyone,

>

>I have been reading these posts for about 5 months and have posted a

>few times. I had double lumen implants in for 17 years and at the

>end there was VERY ILL. I had a positive ANA,(but negative on all the

>connective tissue diseases) extreme pain (hands, feet back, joints

>etc. etc.)extreme fatigue,, foggy head, very ill feeling

>(unexplainable because it felt like nothing else I have ever

>experienced) high blood pressure, heart palpatations, very stiff and

>achey all the time. It has been 14 months since explant and I am

>doing better. I had a bad relapse about 6 months after implant and

>could hardly get out of bed for two months. However, I think I have

>taken a turn for the better. I have been detoxing like crazy for

>about two years now. I eat about 60-70% raw foods, take infra

>saunas, jaquizzis, had 25 chelation treatments, ozone treatments. My

>last test showed a negative ANA which was about three months ago. My

>energy is much better and I am back at work. I also feel pretty good

>on most days but I still have a chronic low back pain HOWEVER even

>that is slowly getting better. I am taking SAM-e 400mgs a day which

>I read will help with fibromyalgia and arthritis and lots of ensymes

>9 per day of Vitalsym. With the Same you have to take a B vitamin

>along with it so your homocysteine doesn't go up. I found a new

>enzyme that I ordered called Naticor that is supposed to eat up all

>non living substances in your body and that it has helped lots of

>people with fibro because it eats up fibrin which is stored in blood

>vessels and muscle tissue. Hopefully that will work also.

>

>I also have been doing a lot of research about new upcoming

>treatments for autoimmune disease. It looks like in the not so

>distant future there will be effective treatments and/or cures for

>these diseases. Bayhill therapuetics is now doing clinical trials

>for MS using DNA vaccines that only dampened down specific parts of

>the immune system that is overactive. USC is doing clinical trials

>now for Lupus using a similar therapy readapting only the high

>working parts of the immune system. Also at the University of Bristol

>in England they are now doing clinical trials using a protein that

>causes diahrea and knocking out the bad part and this stops the

>autoimmune response. They think between 3-5 years they will have new

>effective therapies that are safe and maybe even a cure.

>Anyway, I beleive in the power of God and the power of the human body

>to heal itself.

>We can't give up hope.

>Love to you all,

>Judi

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[Guest guest]

Thanks for the encouragement Lynda,

I already FEEL a lot better, it's just the pain that is still there, but I don't

take any pain medication for it. I want my immune system to just naturally calm

down on it's own. I think it probably takes years for the body to go back to

normal in some cases.

Judi

[Guest guest]

Yes, chemo has some nasty side effects. But I think with the Naturopathic

Doctor and your healthy attitude, you will do very well. I went that

route, and believe it is why I am still alive.

Lynda

At 03:36 PM 3/14/2004, you wrote:

>Thanks for the encouragement Lynda,

>I already FEEL a lot better, it's just the pain that is still there, but I

>don't take any pain medication for it. I want my immune system to just

>naturally calm down on it's own. I think it probably takes years for the

>body to go back to normal in some cases.

>Judi

>

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