Re: shari-test results back-bad news...

[Guest guest]

let me try this again... I got off line for a little bit this morning and received a call from my doc re: the tesing for cystic fibrosis gene and it was positive. I am not sure what happens from here - there is a ton of people who are carriers but I need to have my hubby tested to see where my son stands - if he were to be positive also then he could have the disease full blown. he is only two... I would hope that we would have known by now but he has had a lot of sicknesses with ear infections (already had tubes). I don't know what I would do if that were the case. it will also determine wheter or not I should have another child were I to feel good enough to try. I am freaking out a little. I am the one who suggested the test after doing a ton of internet research on chronic sinusitis and found a bunch of sites with studies of many people that are carriers of the CF gene have a mild case of the disease causing mucosal thickening illnesses frequently - aka - sinus infections leading to ear infections, upper respiratory-you name it. I knew in my heart that test was gonna be positive although I really did not want to hear it. I guess i was born a carrier and it layed dormant until these #@#$%$ implants ruined my life and health. I guess the immunity problems stirred it up. It is so sad that we have to continue to be our own doctors - do our own research then go to the doctors, pay them $$$ to tell them what tests we need and what we feel is wrong. I have been right pretty much every time. if I left it up to what the doctors said and not relyed on my own hours and hours of research (leading me here ) I would still have those nasty implants & would probably be dead in a year from candida. Now I have diagnosed the sinus problems and am pretty sure am showing signs of lupus, too. I just called and set up another appt with Dr. Vasey on the 26th to discuss lupus testing. what a morning I have had...and to top it off, my boss just called on my cellphone (after i have already called in sick) to see "just how bad I was feeling because he had plans this afternoon and it would be nice if i could make it in". agggghhhhhhhh! If he only knew. I really don't want them to know about the cf ot lupus stuff as I don't want any insurance problems. crap - he is calling me again - i have to go.

(sorry fro the venting)

love shari

[Guest guest]

-Shari

I am so sorry to hear your news with the cf. However, it is " mild

cf " and I still think there is much you can do to improve your

health and possibly get your sinus situaiton more under control. I

really do think you will need to have strong measures of treatment

that is not antibiotic and also really go after the detoxing. I bet

your husband is not a carrier and hopefully son will be just fine.

Ear infections--chronic--are real problems in many young children.

Does he drink milk? There is a big connection between milk and ear

infections. Don't borrow trouble where your son is concerned. So

far, he sounds in normal health. Do follow up with your dr. on ana

testing and remember that ana is not the only way to diagnose

autoimmune illness.

Hugs, kathy

-- In , halvey70@a... wrote:

> let me try this again... I got off line for a little bit this

morning and

> received a call from my doc re: the tesing for cystic fibrosis

gene and it was

> positive. I am not sure what happens from here - there is a ton

of people who

> are carriers but I need to have my hubby tested to see where my

son stands -

> if he were to be positive also then he could have the disease full

blown. he

> is only two... I would hope that we would have known by now but

he has had a

> lot of sicknesses with ear infections (already had tubes). I

don't know what I

> would do if that were the case. it will also determine wheter or

not I

> should have another child were I to feel good enough to try. I am

freaking out a

> little. I am the one who suggested the test after doing a ton of

internet

> research on chronic sinusitis and found a bunch of sites with

studies of many

> people that are carriers of the CF gene have a mild case of the

disease causing

> mucosal thickening illnesses frequently - aka - sinus infections

leading to ear

> infections, upper respiratory-you name it. I knew in my heart

that test was

> gonna be positive although I really did not want to hear it. I

guess i was

> born a carrier and it layed dormant until these #@#$%$ implants

ruined my life

> and health. I guess the immunity problems stirred it up. It is

so sad that we

> have to continue to be our own doctors - do our own research then

go to the

> doctors, pay them $$$ to tell them what tests we need and what we

feel is wrong.

> I have been right pretty much every time. if I left it up to

what the

> doctors said and not relyed on my own hours and hours of research

(leading me here

> ) I would still have those nasty implants & would probably be dead

in a year

> from candida. Now I have diagnosed the sinus problems and am

pretty sure am

> showing signs of lupus, too. I just called and set up another

appt with

> Dr. Vasey on the 26th to discuss lupus testing. what a

morning I have had...and

> to top it off, my boss just called on my cellphone (after i have

already

> called in sick) to see " just how bad I was feeling because he had

plans this

> afternoon and it would be nice if i could make it in " .

agggghhhhhhhh! If he only

> knew. I really don't want them to know about the cf ot lupus

stuff as I

> don't want any insurance problems. crap - he is calling me again -

i have to go.

> (sorry fro the venting)

> love shari