Re: Re: Olmstead article

[Guest guest]

My son lost the ability to speak, coo, babble after the MMR shot at 13 months of

age and was silent for over a year. Eventually diagnosed with severe

phonological speech disorder (no history of speech disorders on either side of

the family). He has been in speech therapy for around 5 years now and has

recovered his speech except for the " r " sound which he continues working on.

Now we are dealing with some dyslexic symptoms (no family history of dyslexia

unless you count my grandmother's brother's son). Can you please email me

(off-list) the name/contact info of your doctor (the one who actually identified

your child's problems as related to vaccines)?

Thanks

Sandy

Re: Olmstead article

Roni, i agree w/ you- & your 'reassessment' story sounds similar to

mine, except the dev. ped we saw- it was the first time seeing my son.

but i remember when he walked in & fearing for weeks prior that i'd

be told he was 'fine' & there was nothing to be done, as in the 2yrs

since 'something happened' (we never got a real diagnosis), he's come

SO far!

he regressed at 14mo after his DTaP & MMR combo (*sigh*) & literally

was shut off to the world. took us over 3mo to find out where to get

help b/c his ped kept putting us off that it was 'normal development'

for him to just STOP??? then early intervention put off ST & OT for

almost 6mo (w/ us fighting them), it's amazing the progress he DID

make before we left IL.

i didn't get too involved in the biomed stuff, asside from removing

dairy, & adding a few probiotics to his diet.

he only recieved 4mo of OT & ST before we had to move & in that time,

he came alive again, not sure what it was that did it as we made a

lot of changes right about that time, & i don't particularly care,

he's much better b/c of it period.

after we moved, he regressed again, which prompted us demanding to

get a dev. ped. assessment. but w/ the lag in appt times, by the

time we saw the dr., my son had adjusted & came back to where he was

when we moved (it shocked me it took almost 3mo for him to adjust to

the move). if you'd have met my son during this 3mo adjustment,

you'd have assured me something was wrong, but by the time i got him

in to this dr. i was afraid he was 'too normal' for him to help him

(as i've heard so many stories of) & that was actually almost what

happened. the dr. walked in & at the end of the appt said he didn't

have ANY indication (based on my son at that time) that he had such a

dramatic history. after i got done talking to him, he said it

sounded as if he recieved some frontal lobe brain damage, from

lesions, *from his vaccinations* (coulda knocked me over w/ a feather

to finally hear a DOCTOR acknowledge the connection w/ the vaxes).

he then went on to say he doesn't know how we did it, but we made

amazing progress w/ him & based on his early evaluations & my verbal

account of his history, he'd never have thought he could

have 'recovered' so much in such a short period of time & that

whatever we were doing, he suggested we keep doing & that based on

his progress, all he could offer/recommend, is just following up in a

few more months. he did do a sedated CT scan of his brain tho to

make sure there weren't any active lesions & no structural damage to

his brain. but he said his speech/cognative seems to be the last to

catch up & there was nothing HE could do for that that we weren't

already doing, called it Acquired Apraxia (i believe that's what it

was he said) & that it could still affect him as an adult, or based

on his recovery, it's likely we can get him past it w/ minimal

residual difficulties as he gets older. so we just kept up w/ ST &

our 'at home program' that we've developed from dealing w/ him. he's

talking so much better & more, but it's still quite apparent there's

still major issues in that area. nothing i've found yet addresses

very helpful ways to change acquired apraxia except intense ST, so in

that respect i'm lost- we just keep on keepin on w/ how we can.

but getting him to the dev. ped. was quite irritating as every time i

talked to an evaluator or dr. & gave the account of what happened

(including the CLOSE connection of vax/regression) i'd get the

standard eye-roll & it just pisses me off still, all this news

coverage, etc about the " theory " of vax damage, it seems as if it's

being viewed as the 'current fad'.

~marcia~

>

> I think the reigning sentiment about recovered kids is that they

were a diagnostic mistake. Since they recovered, there is no

possible way they could have been autistic in the first place because

that would blow their theory right out of the water. The only

success I've ever had in getting a doctor to admit that my son was

recovered (via biomedical therapies, no less) was when I took my son

back to the dev ped who diagnosed him and told me biomedical

therapies would never work, were a waste a of money and would

endanger my son. It came down to either he admit he was wrong in

diagnosing him or he admit that he was recovered. Talk about being

back into a corner!! I highly doubt it changed his mind on anything

and that he just found a way to justify it to himself later. The

important part was that his diagnosis was removed and when the two

files were compared side by side, they were talking about two

different children.

>

> I think the key is getting more kids recovered and that means

getting them out from under the doctors who are keeping them sick by

convincing their parents that there is no cure and talking them out

of trying biomedical interventions. We also need more people out

there who know what they're doing in regards to curing autism -

regardless of the letters behind their name. The more kids that

recover, the more the news spreads like wildfire. Nobody wants their

child to be autistic, much less autistic forever and if there is a

way to recover them, every parent I know of would sit right up and

listen.

>

> I know that every time I mention that my son was recovered from

autism on a email list like this, I get several emails of the " How'd

you do it? " variety and I'm very happy to share how we did it. I'd

shout it from the hilltops if I thought it would help.

>

> --

> Roni Bergerson

> Independent Monavie Distributor

> Celebrate Good Health with Monavie!

> http://www.mymonavie.com/jandrbergerson/

[Guest guest]

My son received a custom intense supplement program along with dietary

modifications based on his own personal test results. This program included

high doses of antioxidants, supplements to heal his gut, probiotics, yeast

killers, bacteria killers (for the bad bacteria) and chelation therapy. I don't

tell people what was specifically used because I don't believe in poking around

in the dark, so to speak. I urge people to go get their kids tested so they

know exactly what they're dealing with. We tried various supplements here and

there, things we heard that worked for others, etc. and we got mild improvement

over time, but things really didn't start to happen until we got a

chiro/nutritionist who specialized in autism who tested my son and recommended

supplements specific to his root metabolic causes.

My doctor works with clients all around the country via phone or email so I can

pass his name on if you email me privately.

Thanks!

--

Roni Bergerson

Independent Monavie Distributor

Celebrate Good Health with Monavie!

http://www.mymonavie.com/jandrbergerson/

-------------- Original message --------------

From: " rosemarypersi " <rosemarypersi@...>

Hi Roni,

So glad to hear that your child has recovered from autism!

Would you mind telling me what you gave your child to help his

recovery from autism?

Regards

Rosemary

> >

> > I think the reigning sentiment about recovered kids is that they

> were a diagnostic mistake. Since they recovered, there is no

> possible way they could have been autistic in the first place

because

> that would blow their theory right out of the water. The only

> success I've ever had in getting a doctor to admit that my son was

> recovered (via biomedical therapies, no less) was when I took my

son

> back to the dev ped who diagnosed him and told me biomedical

> therapies would never work, were a waste a of money and would

> endanger my son. It came down to either he admit he was wrong in

> diagnosing him or he admit that he was recovered. Talk about being

> back into a corner!! I highly doubt it changed his mind on

anything

> and that he just found a way to justify it to himself later. The

> important part was that his diagnosis was removed and when the two

> files were compared side by side, they were talking about two

> different children.

> >

> > I think the key is getting more kids recovered and that means

> getting them out from under the doctors who are keeping them sick

by

> convincing their parents that there is no cure and talking them out

> of trying biomedical interventions. We also need more people out

> there who know what they're doing in regards to curing autism -

> regardless of the letters behind their name. The more kids that

> recover, the more the news spreads like wildfire. Nobody wants

their

> child to be autistic, much less autistic forever and if there is a

> way to recover them, every parent I know of would sit right up and

> listen.

> >

> > I know that every time I mention that my son was recovered from

> autism on a email list like this, I get several emails of

the " How'd

> you do it? " variety and I'm very happy to share how we did it. I'd

> shout it from the hilltops if I thought it would help.

> >

> > --

> > Roni Bergerson

> > Independent Monavie Distributor

> > Celebrate Good Health with Monavie!

> > http://www.mymonavie.com/jandrbergerson/

>