Guest guest Posted February 15, 2008 Report Share Posted February 15, 2008 " Dear Parents and Care Takers of children in the Epidemic of Developmental Disabilities, I am a systems engineer by trade and am well versed in tracking of details associated with the design of aircraft systems, and I am providing these services to the community of parents of children who are caught up in this epidemic of developmental disabilities. I have prepared a spreadsheet associated with the medical treatments of those in the ASD spectrum as a means of providing organization to this process. This spreadsheet details several different aspects of those suffering, the treatments currently recommended and available, as well as a means of capturing the individuality of your child's condition and treatments, and the parents desires for future treatments. This sheet is provided as a service to the community of parents who are inundated with information from seminars, chat groups, internet searches and are struggling to understand just where to go next. This information is simply meant to support parents struggling to wade through the mountains of information associated with these illnesses. The information in these spreadsheets is meant to be information only, and is not intended to be used to treat any illness or disease. The information here is intended to be used as an organization tool, and to be used in concert with the medical care from your health care provider. Ok, having stated the disclaimers, in an effort to protect my family, which is struggling just like yours, let's move on and get down to some serious engineering business here. It is time to get organized people, and apply tried and true " systems engineering " skills to the needs of your child. As you become more proficient with Excel you can then become adept at searching these sheets for keywords of particular interest. Much of the information under the headers is used to provide more detailed information to the parents. This Spread Sheet has been put together using information available from books and internet searches. This sheet is designed to be used as a means of helping parents organize and understand where there children fall into the subgroups of the spectrum of disabilities. The sheet labeled " Testing " is provided to help parents track the testing provided by for their child and then also track where they fall in the overall scheme of testing. The sheet labeled " Treatments " is then used to track treatments used for the particular child and the outcomes provided. The sheet labeled " Medical History " is to be used by the parent to track the medical history of the child and his / her family so that this information can then be communicated to your health care provider. Overall this document is designed so that the parents can print the tables out and then take them to their doctor to in an " organized fashion " and present the facts to the medical team, in order to communicate the needs of the child and the desires of the parent. These sheets also provide a means where the child's individual medical history is captured and the sheet is tailored to the needs of your child. It is like, here Mr. MD, can you please address the needs of my child as detailed in this table that provides concise information as to the biomedical needs of my child? In the event that you travel to seek medical care, then this sheet will provides a mechanism where you are able to then organize not only your child's medical history, but his / her current treatments, as well as where you desire to go next in his / her road to recovery. I have not yet completed this document and it will continue to grow as more information is researched and developed. This is a living document, that has the potential to not only be tailored to your child, but to provide a national and international database where we learn and capture the latest research and developments of the needs of our suffering children. I hope this tool is beneficial to many in the ASD spectrum and other areas of learning disabilities. If you would like to become part of this systems engineering organization team, then simply mail me your e:mail address to the following e:mail listed below. I will add you to my e:mail list and then provide monthly updates to this spreadsheet as they develop. If you have updates that you feel would benefit the community of parents, then please simply forward them to me in an excel file, with the cells highlighted and I can provide updates to the spreadsheet as needed. If you are not well versed in attaching files to e:mail then a simple e:mail message will suffice. The synergy that can develop from this effort is that details of the research done by us as a group of parents united for healing is that I am willing to capture the details in a spreadsheet and then mail that to the group so that we all benefit from the work done by others. Basically, capturing the details and research performed by others. If you are willing to share the testing results of your child, then I can capture that information as well and we can then develop a national database for the benefit of all that details the results of those caught up in this epidemic of catastrophic proportions. Presently my work has focused on the healing and treatment aspects of those suffering under the developmental disabilities. We once united can then take this to the next level, and move forward to document that damage perpetrated on our children and our families. One potential database would gather the details of those who have been tested for and shown positive results with respect to the measles antigen living in the ulcerated intestines of these children. Yet another potential dbase would be for MBP antibodies. We can develop a spreadsheet tailored just to those children suffering from myelin sheath antibodies. This spreadsheet can be tailored to the data that documents the children in this nation who have developed antibodies to their myelin sheath. Corporately, we can then ask why? Corporately, we need a " Wall of Suffering Children " next to the Vietnam Veteran's Wall. Who needs a VAERS dbase, when we United as Parents, have the potential to not only capture the Adverse Reactions to Vaccines, but also to capture the road to recovery. This is not about being a democrat, this is not about being republican, this is about our children and our families. It is time to get organized, not only for the individual needs of your children, but about the unified needs of the ASD / ADHD / ADD / PDD / Autism Community of suffering children. Don't be distracted by the politics of our day, instead focus on the needs of your children, your family and corporately the needs of the community of suffering children. There is strength in numbers, won't you join me in a national, and even international dbase of data that not only documents the needs, testing, and recovery steps for our children, but also the damage done? Why should parents have to travel thousands of miles to have damaged intestines treated with antifungals for the overgrowth of yeast? Why shouldn't every pediatrician in this nation be able to identify food sensitivities associated with the suffering children in this nation? A national dbase of suffering children is one method of communicating the needs of our children to the medical community and the politicians. At present they seem content to play ping pong with the medical needs of our children. They can hide the VAERS dbase if they want. Who cares. It is time to build our own dbase. This dbase is then not only resident on my computer, but it is resident of every red blooded American's computer who sends me an e:mail and shows an interest in joining in the movement. The dbase is then dispersed and has no single focal point suspect to viruses and sabotage. JFK, RFK and Luther King, all had their respective dreams. It is time to start a dream dbase of healing and justice for our children. Actually, they go hand in hand. Medical justice and treatment for our children then leads to the healing aspect a well. Does this sound like a worthy cause to you? Come on board and let's get this engineering project moving forward. There is power in sharing the dbase of the needs of our children. Applying systems engineering to the medical needs of suffering children (United we Stand, Divided we Fall), Stand4OurChildren@... Stand4OurChildren " at " The Unified Campaign for Justice for Suffering Children " D. Meyer, BSEE, 1991, 2330 Court NW Cedar Rapids, Iowa 52405 " The database proposed in this document and this document itself is considered to be " Proprietary Data " and it's concepts and ideas are owned solely by the " The Unified Campaign for Justice for Suffering Children. " Quote Link to comment Share on other sites More sharing options...
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