Re: Re: lupus lesion....Today I was diagnosed with Lupus; ver...

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In a message dated 4/5/2004 9:16:21 PM Eastern Standard Time, nantynannie@... writes:

In , michelle king <michellerking1@y...> wrote:> Thank you Colleen and Ann, for commenting. I went to see my primary care physician today and he diagnosed bronchitus, sinusitus, ear infection and Lupus due to the rash and swelling over cheeks. Can he diagnose this without the lab work and biopsy of facial tissue? My chest x-ray showed a mark on my lungs, so he's using that as part of his diagnosis. He sent me for a sed rate, compliments, CBC, and ANA. I also told him I have a bad headache (it's not a sinus headache), nausea, EXTREME fatigue, muscle and joint pain (the usual flare of Fibromyalgia). My eyes are burning and eye sockets hurt. My ears ring some times. My depression is peaked and I was just in mental health hospital aobut 10 days ago. All of this he contributed to the breast implants and the flare-up of Lupus. Help? What do I tell people. He diagnosed Lupus. I called my social Security Disability adjudicator to tell him the news and mailed in a copy of hte report. I feel bad because I told a loved one. and> they said what is the treatment? what is it? Mostly just for the symptoms, is there a cure or a way to slow it down? I know I could only have the skin type or just lupus rashes without full blown lupus, what do you girls think? I know in a week the test will show something. My ANA titer whould be higher than it normally is if I'm having a full blown lupus flare. could I have had Lupus all along and I'll be getting better. Will I be able to go back to school to finish my Master's this summer? I have two graduate level courses to take this summer, like crash courses then one in the fall. I have to finish them now or I'll loose the chance of ever taking my master's. Is stress a factor in lupus. Can it bring on the symptoms? Love > Lupus Foundation of America, Inc. www.lupus.org

michelle i have systemic erythematosus lupus and it took them a while to finally diagnose it, i have had it over 20 years now and have had a lot of complications from it, did they say whether you have discoid or systemic?????or both...i have both..i just get the butterfly rash on my face and i get a lot of the red spider veiny things....i have had this so long and yet it still baffles me to no end....i still don't understand the whole thing, but all my problems started 6 months after having silicone implants put in me in 79....if you would like i can send you info if you need some take your time and read them and it will help you understand....the sun is your enemy....wear good sun screen on your head as well, keep yourself covered up in the sun...did they do the test yet, he shouldn't diagnose you till he does the tests (blood)ana.....let me know and i can send some info your way OK take care BJ

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In a message dated 4/5/2004 7:21:57 PM Eastern Standard Time, michellerking1@... writes:

My ANA titer whould be higher than it normally is if I'm having a full blown lupus flare. could I have had Lupus all along and I'll be getting better. Will I be able to go back to school to finish my Master's this summer? I have two graduate level courses to take this summer, like crash courses then one in the fall. I have to finish them now or I'll loose the chance of ever taking my master's. Is stress a factor in lupus. Can it bring on the symptoms? Love

, yes you could of had it all along, i did for many years before they detected it, or even tested me for it....they found it after i had mono that i contracted in the hospital after having a serious surgery 14 hours on my back....lupus doesn't go away, unless its drug induced, i believe...there is no cure as of yet but they are working on it every day....prednisone is what puts it in remission but that also lowers your resistance sometimes even more, i hate to take it, but of course i have to to help me out...you can lead a very normal life with it as long as you follow your doctors orders and take care of yourself...stress can exhuberate it ...sometimes lights can, the sun, many triggers, everyone is different but you can go on when your feeling good and do whatever you please....go to school and don't stress just take care of yourself is all.......keep me posted OK sweetie thanks bj

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Hi,

I am so sorry to hear about your Lupus diagnosis However I have done some research on autoimmune diseases and they are testing some new vaccines (DNA vaccines) right now that show much promise for actually curing these diseases. They are also doing clinical trials at the Keck School of Medicine at USC for Lupus right now. They take your white blood cells and re-engineer them in the lab to only calm down the ones that are overactive therefore not suppressing your whole immune system. You can go to their website Keck School of Medicine and find out how far along they are. You could even call them and see if you can get into the trial or when the treatment will become available. I think there will be good help soon rather than the steriods. So keep positive and envision yourself healed and well. I have also read of people who had Lupus andn it went into complete remission over time and they test negative for it now, so don't beleive them when they say it is incurable. Know that you will get well. Also at the University of Bristol in England they are now doing clinical trials with proteins that are showing promise for calming down the immune system and curing these diseases. Check that out on their website.

Keep hope that you will get well.

Love

Judi