Re: neuro. symptoms worse

[Guest guest]

Thank you Lynda. Today I am feeling like a human pin cushion,

tingling like crazy. I have decided to hold off on my supplements

except for multivitamin and probiotic tonight and tomorow and see if

that makes any difference. Maybe I should try some detox stuff

first. I was telling someone else that you all are such an

inspiration. If it weren't for these groups I know I would think I

was going to die. Hope that won't happen!

I feel strongly led to get a hair analysis tomorrow and I want those

results back quickly. On a positive note, so much is better, no

more drunk dizzy headaches, no more bug bites on my ankles. I can

shave my legs now and I don't break out in hives, well just a few,

but it's better. My chest doesn't hurt and I haven't had heart

palpitations since explant. So it was worth getting them out just

for that.

Love,

Beth

> >Hey everyone,

> >

> >I just wanted to ask you all to keep me in your thoughts. At

three

> >weeks my neuro. symptoms are worse. Nothing else has come back

since

> >explant. I have numbness and tingling pretty much now down the

left

> >side of my body. It feels like someone is sticking little pins

into

> >me. I have been questioning my decision to have the explant since

> >this has happened, lol, but I know I made the right decision. Oh,

> >and I'm still having muscle twitches, sometimes as many as 7

episodes

> >a day. Fortunately, they only last for a few mintues.

> >

> >I'm seeing Dr. Kolb tomorrow for my checkup and I think we're

going

> >to do a hair analysis, which I really feel led to do. I'm going

to

> >back off my supplements just in case there is something not

agreeing

> >with me. I think I will just take my multivitamin, probiotic and

> >nystatin for awhile, then add one back at at time and see if that

> >makes any difference.

> >

> >I'm trying to be positive but sometimes I do wonder what my worst

> >case scenerio could be, partial paralysis? At any rate, I am

looking

> >forward to doing some detox. My starting goals are a colon

cleanse

> >and epsom salt baths. Depending on the hair analysis, we may do

> >something as mild as supplements, etc or more aggressive

chelation.

> >

> >Thanks everyone,

> >Beth

> >

> >

> >

> >

[Guest guest]

Beth, I have emailed you personally regarding these symptoms. AS they were the ones that led me to explant, and also became worse after explant. The muscle twtiches were small fasculations all over my body, mostly on my legs. Like little heartbeats. And you could see them too, right under the skin. The numbness and tingling was terrible. My nuerologists saw them (the twitching), tested me with electrical tests, mri's , physicals, and a spinal. Twice! She said I was showing smyptroms of MS and Lou Geriks, but not" typical" and had never seen this before this mixed. She told me to get them out. Look back at the posts after my explant in Sept 2002, I was scared to death. Same exact things as you. Those symptoms are very scary. I will remind you, if it makes you feel any better- I was so frigtened of what was to come. I for a while, felt as if explant was a mistake.I would call Dr Kolb regarding the numness and muscle twitches all the time, prabanbly every week ,as she wanted to keep in touch weekly-for months- asking her what to do. What toake. Would this get better? Would Iend up in a wheelchair? I was so upset. It was like I became worse. She would remind me that there is a doc in Calif that studies nuoro symptoms with saline breast implanted women. And that it is common.Get his name, and give him a call. Also, as good friend of mine, Crystal on this site, has been tested for MS as well regarding the same issues. We were both explanted by Dr Kolb, within weeks, and became very close, crying over the phone, of the VERY SAME symptoms at the same time. But both of us, have no nuero diseases. No positve testings/ no findings and now have settled down or went away. .I believe it is from either toxins being stirred up, or mycoplasma. Perhaps both. I would have her test for those infections. She did for me, the next day, even sent the blood work here to Il and then sent it off to Calif for me. If Dr Kolb is reassuring you, it is because she has heard this time and time again from her patients. I am one of them. She does not believe it will become permanent, and should get better. Mine did, just as she said. Calcium, magnesium chelated from is very important for muscles and nerves. I would def take that. Also, Omega 3's are needed in Neuro diseaseses, and so b12. I take sublingual b12, and also 2 tablespoons of flax daily. Both repair mylethin sheaths, as well as progesterone. Have a saliva test done. Progesterone has been proven in many tests to to repair mylethin shealths, and is very powerful- for those are the nerves that give you numbness and tingling as they are damaged. It has been very restorative to my health to have my hormones balanced, while maintaining a diet low in sugar and starch. It wasnt until I balanced the hormones that I realy began to get better. it will be two years since explant, and I am much better! ASk Patty, or look at old posts, I was a roller coaster for a while in the first year. I have occasional numbness (very little) in my left side,esp foot.... but no more muscle twitches at all. Those are gone. If you need to chat, Ill call you. hang in there Beth, and know there are women here that have been in the same boat. I have, and know those waters very well. Please try the recommendations, as they have helped me immensly. Love you.......

>From: "bethlakey" <bethlakey@...> >Reply- > >Subject: neuro. symptoms worse >Date: Mon, 05 Apr 2004 19:04:07 -0000 > >Hey everyone, > >I just wanted to ask you all to keep me in your thoughts. At three >weeks my neuro. symptoms are worse. Nothing else has come back since >explant. I have numbness and tingling pretty much now down the left >side of my body. It feels like someone is sticking little pins into >me. I have been questioning my decision to have the explant since >this has happened, lol, but I know I made the right decision. Oh, >and I'm still having muscle twitches, sometimes as many as 7 episodes >a day. Fortunately, they only last for a few mintues. > >I'm seeing Dr. Kolb tomorrow for my checkup and I think we're going >to do a hair analysis, which I really feel led to do. I'm going to >back off my supplements just in case there is something not agreeing >with me. I think I will just take my multivitamin, probiotic and >nystatin for awhile, then add one back at at time and see if that >makes any difference. > >I'm trying to be positive but sometimes I do wonder what my worst >case scenerio could be, partial paralysis? At any rate, I am looking >forward to doing some detox. My starting goals are a colon cleanse >and epsom salt baths. Depending on the hair analysis, we may do >something as mild as supplements, etc or more aggressive chelation. > >Thanks everyone, >Beth > > > >

[Guest guest]

-

I just wanted to add that I have had tingling and pins and needles

sensations and numbness feelings in my legs, hands, feets, arm, and

face for over twenty years off and on. I was told it was part of

fms which I have had for 20 years. Also, the muscle twitches have

been one of my worst symtpoms. I have them virtually everywhere.

The numbness and tingling has gotten much much better. I hardly

ever have it and it leaves quickly when I do. The muscle twitches

have been my hardest symptom but I feel now with the new program I

am doing they will soon be history too!! Hang in there. Sometimes

you get worse before you start to get better. By getting the

implants out, you have stirred up alot of things. Lots of toxins

need to be disposed of. It can be normal to have an increase in

symptoms followed by a reduction later on.

Blessings, kathy

-- In , " JOSEPH PALANCA "

<juliejp61@m...> wrote:

>

[Guest guest]

Thank you Kathy. I try not to get scared. I HATE it when it is in

my face, it is left jaw throat area. Can't stand it. So far I seem

to back to my usual numbness and tingling in left arm and leg.

Sometimes it is in my hands. I am working through the supplement

protocol dr. kolb has me on. One of the supplements makes it worse,

am trying to figure out which one. I think it may be the alpha

lipoic. I just started epsom salt baths and am starting to enjoy

them. Am still trying to figure out how much salt to use. This

weekend I am going to start a colon cleanse using cape aloe. Am

excited about that.

I also wanted to express how very happy I get when someone responds

to one of my messages. I don't talk about this to my family anymore

and you all have been so great. I hope at some point I can be helpful

to someone else.

You said you have been diagnosed with FMS. Don't you think the

tingling sensations are a little extreme for FMS?

Love,

Beth

--- In , " mikat828 " <mikat828@y...>

wrote:

> -

> I just wanted to add that I have had tingling and pins and needles

> sensations and numbness feelings in my legs, hands, feets, arm, and

> face for over twenty years off and on. I was told it was part of

> fms which I have had for 20 years. Also, the muscle twitches have

> been one of my worst symtpoms. I have them virtually everywhere.

> The numbness and tingling has gotten much much better. I hardly

> ever have it and it leaves quickly when I do. The muscle twitches

> have been my hardest symptom but I feel now with the new program I

> am doing they will soon be history too!! Hang in there. Sometimes

> you get worse before you start to get better. By getting the

> implants out, you have stirred up alot of things. Lots of toxins

> need to be disposed of. It can be normal to have an increase in

> symptoms followed by a reduction later on.

> Blessings, kathy

[Guest guest]

Hey ,

I was finally able to view your message. Did you test positive for

mycoplasma? My implants haven't gotten to Dr. Blais yet. He told me

today where the implants are located in the body is enough to cause

muscle and nerve damage. Also, do you remember the name of the

neuro. in California?

Thanks,

Beth

>