Guest guest Posted April 6, 2004 Report Share Posted April 6, 2004 Thank you so much for writing. Last night my head hurt so bad I thought my brain would exploid. Cold really helped. then I laid back down. My PCP gave me a referral to see a dermatologist who will squeeze me in today for the skin culture, in less than 2 and a half hours. Praise God. then I hope they give me steroids for the inflammation that is getting much much worse. My eye is now getting involved. My whole head hurts so bad. I'm incredibly weak and fatigued. I'm nauseated. My breathing is shallow and hurts to breath. This is so uncommon it must be Lupus. The nurse again said yes it is a 100% diagnosis. Of course I'll really be convinced once the biopsy and labs are back. thanks Iggy my dear friend, and thank you BJ my new friend. I hope you'll keep writing I feel very alone. I don't know how to tell family members. What do you say is the treatment? I wonder if taking two classes this summer will still be possible. It means MTW class for 4 to 5 hours, then the study of grad classes. One class is extrememly hard, Research 800, the other should be moderate curriculum 504, thats a beginning level graduate class. If I don't get my Master's now I won't be able to because the statute of limitations must be met by Dec 04. I have one class in Fall to take. I figure I will do the best I can and if I need to take an incomplete on the Research class I will and finish it in the Fall. I should be able to do the one class in the Fall. I don't work and am applying for disability. Iggy, do you have Lupus too? I've had Fibro. for over 2 years, wonder if it was always Lupus. My first facial rash actually happened after my explant surgery. There was silicone spill at surgery. this week I was on Penicillin. that is a known cause of Lupus. I probalby had a drug interaction and it brought it out. I thought I was allergic to Penicillin. What a way to find out. Now I'm on Biaxin. I'll write after derm. apt. Love you , thank you, michelle Baboola57@... wrote: In a message dated 4/6/2004 12:13:49 AM Eastern Standard Time, iggyangel@... writes: I ride my bike, then ache later and hurt, but its worth it, It kicks up my mood in my brain, keeps the depression away,,,,, I have to get out of the house for a couple of hours a day at least..... Love you, and keep me posted or email on how you are.. let me know as soon as the tests come back,,,,, the only thing with lupus is you don't want to exhurt yourself, if you feel tired rest alittle then continue doing what you were doing, if that is indeed your prognosis you will in time see how you feel and how much you can handle. I pretty much am living a normal life, and when i go in flares i just take it easy do what i have to do and then i come out of it faster...for a few years there every time they took me off the prednisone i went back into a flare, but its because i pushed myself over the limit, so listen to your body and do as much as you can until you feel no more......but carefully listen to your body and its symptoms...and hopefully someday we may be free of this nasty illness......keep on praying....love ya bj Quote Link to comment Share on other sites More sharing options...
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