Re: Plaquenil...BJ...Barbara

[Guest guest]

Is BJ your nickname? We have another Barbara on this site, so it

might be easier if we called you BJ. But, of course not if it's not

your name!! Anyway, I was wondering what kind of positive things you

noticed with the Plaquenil. My 1st Rheummy told me that it could

take up to 6 months to notice any results. Like I said, I must have

had some very subtle things happen over a long period of time - so

subtle that I thought nothing really got better. But now that I'm

off of it I think I am feeling worse.

Pam

> In a message dated 4/2/2004 9:01:43 PM Eastern Standard Time,

> naturalbeauty38@y... writes:

> Fiona, I used Plaquenil for about 8 months. I think it may have

> > helped very subtly and now that it's out of my system I am

noticing

> > that it probably helped more than I thought. My Rheummy (at the

> > time) said that she liked using Plaquenil for all her RA, Lupus,

> and

> > all her Auto-immune illness patients before trying anything

else.

> It

> > may have stopped some of the things I'm noticing now like the

> > increased fatigue and pain and possibly my sensitivity to anti-

> > bacterial soap and harsh detergents. I've had this happen ever

> since

> > my first pregnancy - my hands would break out from washing them

too

> > much - especially if I use anti-bacterial soap just one time. My

> > fingers break out in little bubbles and they itch terribly. Then

> the

> > bubbles break open and the skin gets all hard and dry and then

> peels

> > off. It takes about a month for the whole process. I've told

> > doctors about it and they just said it was probably " contact

> > dermatitis " . Whatever it is, I didn't have it for months and the

> > only thing I was taking to calm my immune system was Plaquenil.

I

> > left a message for my new Rheummy to see if he wants to try it

> again

> > or go to something stronger. I don't know what my options are -

> > anyone know anything about Remicade and Methotrexate (sp?)Is that

> > what it's called? The brain fog is horrible! I've been

diagnosed

> > with RA but no Rheumatoid factor.

> i had to go off and on plaquenil many many times for my lupus, and

i would

> have to say i would rather take that than the prednisone any time,

prednisone is

> a very dangerous drug more than people know it is, but with me its

usually

> the only thing to help put me in remission, so it can help and yet

at the same

> time it can kill, the plaquenil i had to have my eyes checked all

the time, but

> on the whole i felt better taking it than not....i guess each

person is

> different, i have been taking it off and on for over 26 years...

take care

> barbara (BJ) p.s i had the brain fog before i even started to take

this drug...