Re: RE dimonds

[Guest guest]

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Hi lisa

I have negative blood work also. I went to a rheumatologist and

they are worthless. I think most of the women on this site would

agree. It doesn't really matter that your bloodwork is negative.

It doesn't exclude the possibility of any autoimmune disease despite

what the doctor might tell you. For instance, if your ANA is

negative, they will say, well,you don't have lupus. Not necessarily

so. Same with scleroderma, RA and all of them. Plus, you can be

very sick with negative bloodwork. It is just that most doctors

will ignore you for alot longer when your blood work is normal. But

even when they agree you are sick, so what? Most of them have

nothing to offer. The standard pain meds, prednisone, methotrexate,

and other immune suppressants. I think you are better off trying to

heal yourself. There are lots of things you can do to get better

without the doctor. You might also want to check out the

www.roadback.org and www.rheumatic.org websites. These are run by

people who use the antibiotic protocol to put their autoimmune

disease in remission. If nothing else, you might learn more about

your condition as people with many different types of diseases post

there. Those people are also very friendly and helpful. Best of

luck

kathy

-- In , lisa robinson <jzamom2001@y...>

wrote:

> i'm glad to know someone personally with neg. bloodwork. i have

never seen a rhuemy, even though most of my symptoms don't relate to

that, when i get

> " fluey " once a week or so,my hands and feet hurt and ache

terrible. do you think that might be helpful? love, lisa

>

> dimonds68 <XENA6881@a...> wrote:

> Hello , Just a little note to say, hope things get better for

> you with explant, and sorry to hear about all your troubles. I

too,

> have negative bloodwork and have been that way scince day one of

> being sick, so you are not alone on that one. Have you seen seen a

> Ruematologist? (that maybe a stupid question? I am sure you have

> seen tons of Dr.s). Just sending some thoughts and prayers your

> way ..'hugs'dimonds

>

>

>

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