Re: For BJ

[Guest guest]

I hope that you have a kind pain management Dr.-I know that none of us want to be on pain meds, but sometimes it's the only way I can get by. Because all my tests have always been normal, I have been so afraid that Dr.s or my Ins. co. isn't going to give me any more meds. I hate feeling like I have to have a drug to live my life! I tend to take as little as I can, and then put away the rest just in case.

I have an article that I keep in my desk about a 50 yr. old woman, named Gay, who was very ill from silicone implants. She had multiple sclerosis and was in terrible pain for yrs. She was down to 80 lbs. and lived in San Diego because her Ins. had dropped her and her husb. needed to get meds. from Mexico for her.

She kept begging her son, brother, and husband to let her die so she could stop suffering. Her husband finally gave in to her wishes on March 3rd. and shot her. He received 4-10 yrs. in jail and his family has stood behind him all the way. Oregon is the only state that someone can ask a Dr. to end their lives.

There was also a 28 yr. old girl in the paper 3 wks. ago who had taken an overdose of painkillers because she had fibro so badly. Her picture was in the paper, and she looked so beautiful and happy.

I am sure that those 2 women didn't have a support group to lean on ,and give them advice on how to help themselves. They most likely got all their info from Dr.s. who didn't have much hope to give them.

I don't mean to be so morbid, but I just wanted to share with you that it's very normal to be depressed and angry at our pain. These 2 women, and I'm sure some others probably had great hopes and dreams for their lives, that didn't include pain and death. It's hard to keep positive all the time when we keep hoping to get better.

The girls here that have the best attitude, have much faith in God. They know that He has a plan for them and that is comforting. I used to be a very spiritual person,but the last few yrs. I feel lost. I am trying to get more involved with church, but it's hard to even get there sometimes.

I hope that I haven't upset anyone by writing about this, I just wanted to bring up the point of how much we need each other, and how important it is that we can be honest and open with our feelings here. I have never seen anyone be judged or made feel bad here. It is a very safe place!

I am thinking about you and hope that you feel better son!

Love, Daryl

Re: For Barbara-I'm glad that you're here!

In a message dated 4/2/2004 9:29:41 PM Eastern Standard Time, daryljean@... writes:

Of course you fit in this group! We are all victims of silicone, and we know what it's like to feel alone and angry.

I had my implants in for 10 yrs. when I started getting terrible vaginal problems (burning,painful sex,etc.) along with abdominal pain, that made me think that I was dying. 2 months later, along came the all over body pain that never lets up. I've seen dozens od Dr.s who say that the 3 problems aren't related at all!

I can't believe that you had all those surgeries! What did the Dr.s think you had? Did they think that those surgeries would help you? Have any of them helped you at all?

I used to have a high amount of respect for Dr.s and now I think most of them are cold, unfeeling, robots who think they know everything, when they don't.

I should of had my implants out 5 yrs. ago when I 1st got sick, but becasue Dr.s told me not to, I suffered for 4 yrs. before I found this group and had an explant. My ins. wouldn't cover it, either. Luckily, my husb. borrowed $ from his family. Of course, they aren't too crazy about me especially since I'm still sick a yr. after explant. I need to keep up with the detoxing better. I have a book called the Yeast Connection and the Woman. It sounds like they wrote the book about me! None of my Dr.s believe it this.

I hope that you have a good support system where you are, that helps so much- Try to hang in there, just try and remember that you will not always be in pain. It has to get better, I really believe that!

Love, Daryl

Thanks Daryl,

i have had surgery on basically everything on my body, knees, back, neck, stomach, nose, feet, more than one time on each.....hysterectomy but prior to that laporocopies galore, my rectum prolapsed, my uterus prolapsed, my bladder prolapsed, had an ovary removed, i have had bone grafts taken from my hips both back and front have steffi plates lower spine at levels i think l3 l4 l5 s1, i have steffi plates in neck, i have pins and screws in foot....i am just a walking mess....i am just a tired old 46 year old women, yet when people look at me they say wow you don't look your age, nor do you look disabled, i just laugh.....laughter is my best medicine for without it i wouldn't be here that and having a lot of faith....i just enjoy life and i don't take anything for granted like most people do, i tend to have more compassion than the next as i know what its like to suffer, day in and day out i am in constant pain....it never goes away...so i am glad i am in the right place i need all the help and support i can get and i thank each and every one of you for that......take care BJ now does anyone know a good doctor in lets say NY.........thats the closest state to me where there has to be at least one there????? thank you love BJ